May – June, 2011 Newsletter

May/June 2011 ~ Volume 10, No. 3
In this issue...
DSACC Updates..................... P. 2
Message from the President
Monthly Articles...................... P. 3
Birthdays.................................. P. 4
Kid’s Korner............................ P. 4
Announcements...................... P. 5
Island Waterpark
New Donation Page
A Grandparent’s Guide
Playgroup
Thank You’s............................. P. 6
Sweetheart Luncheon Pictures
Volunteer Spotlight.................. P. 7
Lourdes Arias
2011 Calendar......................... P. 8
Articulos en Español............... P. 9-10
Resources................................ P. 11
!
Sign up TODAY
It’s not too late to become a
Tee Up sponsor!
For more info, call 559-228-0411.
5 and Under Receptions
Fresno - Rotary Storyland
890 West Belmont Ave., Fresno, 93728
Saturday, May 7 from 11am to 1pm
(Please bring your own camp chair.)
Tulare - The Fernandes Residence
2450 La Paloma Dr., Tulare, 93274
Saturday, May 14 from 11am to 1pm
Merced - The Torres Residence
9722 Palm St., Delhi, 95315
Saturday, May 21 from 11am to 1pm
Please RSVP by May 2, 2011
559-228-0411
Tee Up
for
Down
Syndrome
Friday, June 10, 2011
Fig Garden Golf Club
7700 North Van Ness Boulevard
Fresno, CA 93711
11 a.m. Lunch
12:30 p.m. Shotgun Start
Dinner, Raffle & Silent Auction
To Follow Tournament
Deadline to enter
June 3, 2011 is
$100.00 per golfer
Golf fee includes: Golf, Cart, Lunch,
Dinner and Range Balls
DSACC Updates
Executive Director:
A Message from the President
Kate Henry
Office Manager:
Danielle Hananouchi
Here we are heading into May and June and a very
busy time of the year for us with Down Syndrome
Association of Central California. The big events
we have coming up in May are the Five and Under
Receptions. These are social gatherings that are
vital to our cause of connecting new families to
other members in their area.
The Extra is funded in part by
The Fansler Foundation.
Newsletter Editor:
Danielle Hananouchi
[email protected]
Spanish Language Editor:
Lourdes Arias
[email protected]
I remember attending one of these first events and
meeting new friends. Many of those we met that
day have been with us these past thirteen years as
we have watched our girl grow. These friends have
advised us on everything from potty training and
feeding issues to the IEP process and school
placement. I can’t stress enough how valuable I
believe it is to connect with others who can help
you navigate the special nuances of having a loved
one with Down syndrome.
Contact Information:
Down Syndrome Association of Central California
4277 W. Richert Ave. Suite 102
Fresno, CA 93722
Phone: (559) 228-0411
Fax: (559) 228-0414
E-mail: [email protected]
Website: www.dsacc.org
Statement of Policy and Disclaimer:
The Extra is the periodic newsletter of (DSACC) Down Syndrome
Association of Central California, which serves Central California.
Subscription is free to members & friends of the Association.
Please check this edition for information on the
Five and Under Reception near you, put it on your
calendar, and go meet someone who can benefit
from your experience or seek out someone who is
ready to guide you!
DSACC is affiliated with N.D.S.C and N.D.S.S.
The Extra reports items of interest related to Down syndrome, so
that the reader may make informed decisions concerning Down
syndrome related issues. Any opinions, findings and conclusions, or
recommendations expressed in The Extra are those of the individual
authors and do not necessarily reflect the views of the officers,
Board of Directors, DSACC organization or its membership. All medical related issues should be thoroughly discussed with your doctor
before being implemented. DSACC does not endorse the writings of
any individual, professional, or organization.
In June, we have one of our big fund raising affairs,
the Third Annual Tee Up for Down Syndrome. This
is a very popular event that involves lots of fresh
air, good food, and fantastic raffle and silent
auction items. It has proven to be one of our more
popular functions, so if you are interested in
putting together a foursome, or signing up as a
single, don’t hesitate. Of course, we would love
to have you volunteer behind the scenes; it is just
as fun to be around all that excitement even if you
can’t play!
2011 Officers and Board of Directors
Jane Feist - President
Bill Leist - Vice President
Marie Harder - Secretary
Lourdes Arias - Treasurer
Denise Allshouse - Past President
Members At Large
Jeremy Bishel
Paris Boone
Daniel Christensen
Seth Manfredi
Tony Phillips
Efrain Tovar
Jennifer Whiting
Jane Feist
2011 DSACC President
***Office Hours***
Monday and Wednesday: 9am until 4pm
Tuesday and Thursday: 9am until Noon
Friday: 9am until 3pm
Also open for scheduled events, and by appointment
2
Monthly Articles
D.A.D.S.
Hey all you D.A.D.S. out there,
The weather is warming up, and it is time to get more involved with the upcoming DSACC events! I hope you
will join us at the following events:
5 and Under Receptions - There are three receptions being held in May - Fresno: Storyland on Saturday, May 7
from 11am to 1pm; Tulare: The Fernandes Residence on Saturday, May 14 from 11am to 1pm; and Merced: The
Torres Residence on Saturday, May 21 from 11am to 1pm. RSVP’s are required by May 2.
Tee Up for Down Syndrome - Friday, June 10 at Fig Garden Golf Course. Sign up to golf! If you are not a golfer,
we can always use volunteers. Deadline to enter is June 3.
Island Waterpark - Saturday, July 23. Purchase your tickets today at the DSACC office!
Step Up for Down Syndrome - Saturday, October 15. Start rounding up your teams!
And, of course, join other D.A.D.S. at monthly meetings, which are held the SECOND Monday of the month at
6pm at Round Table Pizza on Willow and Herndon.
UPCOMING MEETINGS: May 9 and June 13
Grandparents: The Grand Art Show!
How to display and appreciate the art your grandchild creates.
It is likely that your grandchild loves to color, paint and create art whenever the opportunity presents itself.
Maybe it is an activity at school or something you do with your grandchild on a spring afternoon on the back
patio. Most arts and crafts materials are inexpensive or can come from things you have around the house.
Coloring books and crayons from the dollar store, a collage of favorite things from pictures out of old
magazines, simple paints or markers on a roll of paper to make a mural.
But, what to do with all these special pieces of art once they are created? Surely you should display them for
all to see, you are a proud grandparent of a budding artist after all. But, there are so many, and new ones every
week! Where will they all go? Here are some ideas for keeping and displaying children’s art that will solve both
these dilemmas, and make your grandchild swell with pride themselves, when they see how you have honored
them by showing off their work.
Make a binder with sheet protectors to keep pieces in and to browse through. A simple display can be made
by hanging a colorful length of rope or yarn along a wall and hanging pictures on it with clothes pins, changing pieces every now and then. Try scanning art pieces and putting them into an electronic picture frame for a
entry-way slide show. Pick out two or three particularly good art pieces and have them framed and hung up in
your home. Finally, if you have a family website (many people have one to share events and photos with family
members who live in other parts of the country) be sure to post digital copies (scans) of the art work.
One wonderful way to use the work your grandchild creates is to help them see their progress as they grow
and develop. While a child may get frustrated trying to write or color, you may see that they are mastering the
task better over time. Take the chance to praise them and show them something they created a year or two
ago that you have saved, and point out how much they have improved!
3
Birthdays
May 2011 Birthday Celebrations * June 2011 Birthday Celebrations
If your birthday is not listed here, please call us and let us know.
We will publish missed birthdays.
Dean Aftanas
Francisco Lopez
Julio Perez
Ava Cortez
Sammy De La Rosa Jr.
Jessica Hernandez
Connor Ellingson
Alexander Fermin
Robert Glazebrook
Marlenie Haro
Kristof Herstik
Roman Honorato
Elijah Ray Rodriguez
Macy Huls
Mitali Jain
Carter Larson
Wyatt Lockhart
Roman Lomelin
Aiden Martinez
Arsema Teffra
Jacob Null
Charlie Rangel-Ordonez
Jesus Osorio
Jzabelle Palms
Javier Parra
Tony Phillips
Gage Purewal
Mona Lisa Perez
Ricardo Rubio
Isabel Ruiz
Maria Alvarez
Gigi Smith
Dustin Valenzuela
Cathrine Blanco
Leonel Oseguera Tapia
Imara Ferrer
Macee Fleming
Abigail Flores
Natalie Garcia
Yesenia Gonzalez
Sarah Hovannisian
Tracy James
Laura A. Stewart
Jazunique Rosales
Jennifer Alfaro Lopez
Joey Loyd
Jessica Najar
Ava Marquez
Guadalupe Molina
Trevor Morrison
Julian Ochoa
Kid’s Korner
Summer Fun!
Solve this summer maze and
help Amy find her brother at the
beach!
Summer Riddles:
How do you keep a skunk
from smelling?
Why do birds fly North in
the summer?
What do you call a duck
that gets all “A’s” in
school?
Find the answers to the
maze and the riddles on
page 7
4
Alma Orozco
J.D. Pagliotti
Alex Perez
Eden Rapp
Anna Saxton
Lisa Saxton
Tina Tolan
Carson Ward
Abigail White
Jayden Alvarado
Noah Hernandez
Bryon Reynoso
Alexis Monse
Sara Allshouse
Announcements
Island Waterpark
Creating a Plan
Saturday, July 23, 2011
Tickets are available through the DSACC Office.
Tickets are $12 per person.
Island Waterpark rules apply.
Please call for more information, 559-228-0411.
Tickets are sold on a first come, first served basis.
They sell fast, so purchase them today!
Creating A Plan (CAP) is a series of focused
workshops to help you complete all the steps
toward a high quality life for your loved one with
Down syndrome. Upcoming sessions:
Check out our NEW donation
page on our website www.dsacc.org!
Calendar Link
June 22, 2011 at 6:30 p.m.
Call the office at 228-0411 to sign up for these
free educational classes.
Purchase your calendar today!
You can customize your calendar to begin at your
month of choice. And, remember, proceeds from
each calendar purchased will be donated to
Down Syndrome Association
of Central California.
Just go to: www.calendarlink.org/dsacc and
choose selected DSACC pictures or upload your own
personal pictures to create your very own calendar!
Click the donate button to make a one time
donation or become a VIP donor and give monthly!
AND, while you are on our website, do not
forget to sign up for SMS messaging (located under
our Contact page). You can receive text
messages reminding you of important
DSACC events!
Third Thursday New LOCATION
First Friday
When was the last time you went to a First Friday
event? You can enjoy some coffee, a treat, and good
conversation while the little ones explore the play
area. If your children are grown or in school, that’s
great too. Come by for the First Friday in May and
June and catch up with friends or meet new ones!
You’ll be glad you did.
Join us for Third Thursday at our new location:
Visalia Nazarene Church
3333 West Caldwell Avenue
Visalia, CA 93277
South side of Caldwell just East of Demaree
A Grandparent ’s Guide
Playgroup!
Grandparents, family and friends
Please join us on Saturday, May 14, 2011
(Second Saturday)
for the unveiling of our grandparents booklet.
This beautifully designed book was created with the
help of grandparents of a child (children) with
Down syndrome. “A Grandparent’s Guide” will help
new grandparents explore the world of
Down syndrome.
We hope to see you there!
Parents, we need your help! The topic of having a
playgroup has been swirling around our office. The
weather is warming up, and we think this would be
the perfect time to start this gathering. How many of
you would be interested in having a monthly playgroup? The location could be the DSACC office, the
park, someone’s home, etc. (The location can change
month to month.) Please E-mail [email protected] with
your feedback. We appreciate your input, and would
welcome any suggestions.
5
Thank You
Thank you for helping us fulfill our mission to enhance the quality of life for all people
whose lives are touched by Down syndrome.
Many thanks to...
...our March and April volunteers: Kathy Monty and Sally Fernandes (Third Thursday), Allie Omandam (office
volunteer), and Susan Reyes (intern).
...Lourdes Arias and Maria Falcon for hosting our Grupo Latino de Sindrome de Down meeting on March 27.
There was a great turnout, and it was a very successful meeting! We thank you both for your hard work and
dedication to this group.
Sweetheart Luncheon and Fashion Show Pictures
Photography by Snapshot Media
Check out the Sweetheart Luncheon
and Fashion Show Video on our
website, www.dsacc.org.
Videography credit to
Volt Entertainment.
6
Volunteer Spotlight
Lourdes Arias
Lourdes has been involved with our organization for ten years, since
the birth of her very handsome son Arturo, Jr. In the past few years her
contributions and accomplishments have been awesome. Lourdes is the
spirit behind Grupo Latino de Sindrome de Down, which was founded in
2009. Just recently a meeting of our Spanish speaking families turned
out such a crowd that we may have to think about increasing the size
of our classroom to accommodate the group! In addition, Lourdes has
been instrumental in the translation of all of our materials to Spanish so
that our families will have equal access to information. She visits Spanish speaking families who have new babies and is a bottomless source
of support for them. Lourdes is also the Treasurer for DSACC board of
directors, a position that she excels in because of her training in finance.
Whenever there is a need, Lourdes is always there with a beautiful smile
on her face, full of enthusiasm, ready to assist. Thank you Lourdes for all
of your hard work!
Lourdes and her family; husband, Arturo,
daughters, Crystal and Vianey, and son, Arturo, Jr.
Kid’s Korner Answers

How do you keep a skunk from smelling?
Answer: You plug his nose with a clothespin.
Why do birds fly North in the summer?
Answer: It is too far to walk.
What do you call a duck that gets all “A’s” in school?
Answer: A wise quacker.

a personal note from the Feist family…
We just wanted to express our thanks to our friends in this organization who prayed for
Teagan as she went thru her heart surgery on January 17. We all believed that it would
be a fairly short duration. As plans sometimes go, the recovery process took a bit longer
than anticipated and was quite taxing on all of us. We know that many of you stayed
up to date on Teagan’s condition and were praying for her and our whole family as we
struggled with the set backs. Thank you again for your kind words, your support thru
the CaringBridge site, and your many prayers. It meant the world to us.
7
2011 Programs, Groups & Events Calendar
For more information or questions,
Call the DSACC Office 559.228.0411
Programs
Groups
First Friday
D.A.D.S.
Meetings held on 2nd Mondays at 6pm
Round Table Pizza on Willow and Herndon
UPCOMING MEETINGS:
May 9 and June 13
Meetings are held at DSACC office, 10am to Noon
May 6, 2011: Come for a morning of
Summer Fun Crafts!
June 3, 2011: Aimee Tijerina, Pediatric Physical
Therapist; Owner of Dynamik Kids Pediatric
Physical Theraphy
Board Meetings are held the 3rd Wednesday
Second Saturday
Events
of the month, 5:30pm, DSACC Office
Meetings are held at DSACC office, 10am to Noon
May 14, 2011: A Grandparent’s Guide Unveiling!
Grandparents join us as we reveal our new
grandparents book
5 and Under Receptions
Fresno - Rotary Storyland
Saturday, May 7, 2011 • 11am to 1pm
Tulare - The Fernandes Residence
Saturday, May 14, 2011 • 11am to 1pm
Merced - The Torres Residence
Saturday, May 21, 2011 • 11am to 1pm
Please RSVP by May 2
Third Thursday
Meetings are held at Visalia Nazarene Church,
10am to Noon
May 19, 2011: Enhance your child’s learning
experience by creating a touch and read book;
Brown Bear. Brown Bear What Do You See?
By Eric Carle
June 16, 2011:Denise Allshouse will teach you
about creating Social Stories books
Tee Up For Down Syndrome
Fig Garden Golf Club
Friday, June 10, 2011
11 a.m. Lunch
12:30 p.m. Shotgun Start
Dinner, Raffle and Silent Auction to Follow
Creating A Plan (CAP)
Upcoming CAP Sessions
Wednesday, June 22, 2011
For more information, please call 559-228-0411
RSVP one week prior to Session
Island Waterpark
Saturday, July 23, 2011
Tickets are available through the DSACC office
Step Up for Down Syndrome
Saturday, October 15, 2011
Hoover High School
More information to come in the
July/August Newsletter
8
2011 Calendario, de Grupos y Eventos
Llame a la Oficina de DSACC Si Tiene Preguntas
559.228.0411
Grupos
Programas
D.A.D.S.
Primer Viernes
Las Juntas Son el Segundo Lunes a las 6pm
Round Table Pizza entre Willow y la Herndon
Para mas información, llame a
Arturo Arias al (559) 978-1686
Las Siguientes Juntas Son: Mayo 9 y Junio 13
Las juntas son en la oficina de DSACC, de10am al medio día
Mayo 6 2011: Venga a una mañana de
Manualidades de Verano!
Junio 3, 2011: Aimee Tijerina, Pediatra de Terapia
Física Dueña de Dynamik Kids Pediatric
Physical Therapy
Juntas de la Mesa Directiva son el tercer miér-
Segundo Sábado
Eventos
Mayo 14, 2011: Una Guía Para Abuelos estará
disponible! Abuelos acompáñenos a
revelar nuestro libro para abuelos
Recepciones de menores de 5
coles Del mes, a las 5:30pm, en la Oficina de DSACC
Las Juntas son en la oficina de DSACC, de 10am al medio día
Fresno - Rotary Storyland
Sábado, Mayo 7, 2011 • 11am a 1pm
Tulare – La Residencia Fernandes
Sábado, Mayo 14, 2011 • 11am a 1pm
Merced – La Residencia Torres
Sábado, Mayo 21, 2011 • 11am a 1pm
Favor de hacer su reservación para Mayo 2
Tercer Jueves
Las juntas son en la Iglesia Nazarene de Visalia,
10am al Medio día
Mayo 19, 2011: Mejore la experiencia del
aprendizaje de su hijo creando un libro de
tacto y lectura
Junio 16, 2011: Denise Allshouse le enseñara a
hacer libros de Historias Sociales
Tee Up Para sindrome de Down
Fig Garden Campo de Golf
Viernes, Junio 10, 2011
11 a.m. Almuerzo
12:30 p.m. Comienzo
Cena, Rifa y Subasta
Crear Un Plan (CAP)
Sesiones por Venir
Miércoles, Junio 22, 2011
Favor de Llamar al 559-228-0411 para Reservar
Una semana antes de la Sesión
Parque Acuático (Island Waterpark)
Sábado, Julio 23, 2011
Los boletos estarán disponibles en nuestra
oficina de DSACC
Caminata de Síndrome de Down
Sábado, Octubre 15, 2011
Hoover High School
Más información por venir en la
Revista de Julio/Agos
9
Queridas Familias
de Habla Hispana
Papás Orgullosos de Tener una Criatura
con el Síndrome de Down.
-Arturo Arias
Es súper importante tener un grupo como este para
ayudar a otros papás que podrían tener preguntas
sin respuestas sobre su hijo/a. En nuestro grupo de
papás existe una variedad de niños de diferentes
edades. Por ejemplo: Si su hijo tiene 11 años, yo
posiblemente podría contestar alguna de sus preguntas sobre la escuela, actividades que son posibles
de hacer, y que hacer para motivarlos a crecer más
como un niño normal. Arturo es mi hijo y estoy muy
orgulloso de él.
Si su miedo es tener que compartir sus experiencias
de su hijo/a, no se preocupe y venga a escuchar a
otros papás. Le aseguro que van a aprender algo
nuevo para mejorar la vida de su ser querido.
Espero verlos en nuestra próxima junta de DADS.
Mándeme un correo electrónico a arturoarias@att.
net si tiene alguna pregunta y yo tratare de contestarle lo más pronto posible.
Segundo lunes de cada Mes (Mayo 9, Junio 13……)
Round Table Pizza (Fresno, En la esquina de Herndon
y Willow Ave. Venga con apetito que nosotros le
disparamos la piza y su refresco.
Quiero darles las gracias a todas las familias que
asistieron a nuestra reunión del Grupo Latino de
síndrome de Down que tuvimos el domingo 27 de
Marzo, 2011. Para mí fue muy emotivo ver el gran
grupo de personas que asistieron, y para muchas
familias fue la primera vez que asistían a uno de
nuestros eventos. Espero que se hayan divertido y
hayan tenido la oportunidad de intercambiar ideas
con otras familias. Estoy planeado traer a una terapeuta del habla y el lenguaje y a una especialista de
oftalmología las dos hablan español, así que podrán
darles la presentación en su propio idioma. Ya les
mantendré informados cuando será nuestra próxima
reunión. Si alguien de ustedes tiene alguna idea
puede compartirla conmigo por medio de mi correo
electrónico a [email protected] o puede dejarme
un mensaje en el teléfono de la oficina de DSACC al
(559) 228-0411
Revise nuestra revista del mes para que se informe
de todos los eventos que están por venir.
Atentamente,
Lourdes Arias
Lista de Contactos
DSACC
Down Syndrome Association of Central California
4277 W. Richert Ave., Suite 102
Fresno, CA 93722
559-228-0411
www.dsacc.org
Children’s Hospital Central California
9300 Valley Children’s Place
Madera, CA 93636
Family Resource Center - 559-353-6170
Charlie Mitchell Clinic- 559-353-6425
Break the Barriers
8555 North Cedar Avenue
Fresno, CA 93720
559-532-6292
www.breakthebarriers.org
CVRC
Central Valley Regional Center
4615 N. Marty Ave.
Fresno, CA 93722
www.cvrc.org
National Down Syndrome Society
800-221-4602
www.ndss.org
Fresno - 559-276-4300
Merced - 209-723-4245
Visalia - 559-738-2200
National Down Syndrome Congress
800-233-6372
www.ndsccenter.org
Parent and Family Resource Center
(at Exceptional Parents Unlimited)
4440 N. First St.
Fresno, CA 93726
559-229-2000
www.exceptionalparents.org
Healthcare Website
www.ds-health.com
10
Family Resource List
DSACC
Down Syndrome Association of Central California
4277 W. Richert Ave., Suite 102
Fresno, CA 93722
559-228-0411
www.dsacc.org
Children’s Hospital Central California
9300 Valley Children’s Place
Madera, CA 93636
Family Resource Center - 559-353-6170
Charlie Mitchell Clinic- 559-353-6425
Break the Barriers
8555 North Cedar Avenue
Fresno, CA 93720
559-532-6292
www.breakthebarriers.org
CVRC
Central Valley Regional Center
4615 N. Marty Ave.
Fresno, CA 93722
www.cvrc.org
Fresno - 559-276-4300
Merced - 209-723-4245
Visalia - 559-738-2200
National Down Syndrome Society
800-221-4602
www.ndss.org
National Down Syndrome Congress
800-233-6372
www.ndsccenter.org
Parent and Family Resource Center
(at Exceptional Parents Unlimited)
4440 N. First St.
Fresno, CA 93726
559-229-2000
www.exceptionalparents.org
Healthcare Website
www.ds-health.com
Parenting Network
1900 N. Dinuba Blvd., Suite C
Visalia, CA 93921
559-625-0384
www.parentingnetwork.org
Website Resources:
http://downsyndrome.com/top-ten-iep-tips/ - Learn valuable information you may need for
your next IEP meeting.
http://dsresearch.stanford.edu/resources/ - Stanford School of Medicine, Down syndrome information Portal with 20 different articles on aspects of Down syndrome.
http://www.familyvillage.wisc.edu/comm/california.html - Family Village Resources. A page of
links on California disability resources.
http://www.nads.org/pages_new/resources/down_orgs.html - National Association for Down
Syndrome based in Chicago. Although the organization provides direct services to the Chicago
area, the website has lots of resources, particularly for and about adults with Down syndrome.
11
Save the Date
Step Up for Down Syndrome
Saturday, October 15, 2011
Hoover High School
Registration opens July 1, 2011.
More information to come in the July/August Newsletter!
Return Service Requested
4277 W. Richert Ave. Suite 102
Fresno, CA 93722
Fresno, CA
Permit No. 2383
PAID
Nonprofit
Organization
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