M-INCLUSION
Transcripción
M-INCLUSION
D4.1 – Benchmark on End-Users needs Dissemination level - PU Project co-funded by the European Commission within the FP7 (2007–2013) Grant agreement no. 288594 M-INCLUSION Mobile Inclusion Platform for Europe and Latin America Project type: Coordination and Support Action Start date of project: 1st November 2011 Duration: 24 months D4.1 - Benchmark on End-Users needs WP n° and title WP4 – Starting point: Identification of end-users needs for inclusion WP leader UPCH Responsible Author(s) INDT, UFMG, UPCH Contributor(s) UFMG, UPCH, INDT, ECONET, UPVLC Planned delivery date M7 Actual delivery date M17 Dissemination Level PU PP RE CO Public Restricted to other programme participants (including the Commission Services) Restricted to a group specified by the consortium (including the Commission Services) Confidential, only for members of the consortium (including the Commission Services) FP7 GA n° 288594 X Page 1 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU TABLE OF CONTENTS LIST OF TABLES 3 LIST OF ABBREVIATIONS AND DEFINITIONS 4 SHORT SUMMARY 5 1. INTRODUCTION 6 2. END-USERS NEEDS FOR INCLUSION 10 3. METHODOLOGY 11 3.1. TARGET OR CORE GROUPS 11 3.2. M-INCLUSION MACRO VALUE CHAIN 15 3.3. FUTURE INPUT FOR THE STAKEHOLDERS GROUP 16 4. 17 RESULTS 4.1. TARGET END USERS´ REPRESENTATIVES 17 4.2. M-INCLUSION MACRO VALUE CHAIN MAPPING 20 4.3. SECONDARY DATA ANALYSIS 23 4.4. END USER´S INTERVIEW DATA ANALYSIS 29 5. 42 DISCUSSION 5.1 THE END USERS´ NEEDS FOR INCLUSION 42 5.2 THE M-INCLUSION MACRO VALUE CHAIN IN LATAM 47 6. CONCLUSIONS 49 7. REFERENCES 52 8. ANNEXES 53 FP7 GA n° 288594 Page 2 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU LIST OF TABLES Table 1: M-inclusion Target Core Groups and Secondary Groups 13 Table 2: Stakeholders Activities 16 Table 3: Target end-User´s Representatives from Peru 17 Table 4: Target end-User´s Representatives from Brasil 19 Table 5: Target end-User´s Representatives from Colombia 20 Table 6: Value Chain Peru 21 Table 7: Value Chain Brasil 22 Table 8: Results of Search for People with visual impairment and blindness 23 Table 9: Results of Search for People with non-communicable conditions 25 Table 10: Results of Search for People from low income sectors 27 Table 11: Results of Search for People living in Isolated Areas 28 Table 12: Summary of End Users´ Needs 45 FP7 GA n° 288594 Page 3 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU LIST OF ABBREVIATIONS AND DEFINITIONS M-Inclusion Mobile Inclusion PWD Person with Disability R&D Research & Development SG Stakeholder Group WG Workgroup WP Work Package LATAM Latin America FP7 GA n° 288594 Page 4 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU SHORT SUMMARY In this report, we present the end-user needs of inclusion for the four targeted groups and subgroups, from Peru, Brazil and Colombia. We also include a general overview of the Mobile Inclusion Macro Value Chain, including its three dimensions—Education, Health and Occupation. This deliverable D4.1—part of WP4 - Starting point: Identification of end-users needs for inclusion —is a document containing the analysis of current needs of targeted End-Users, inserted in a socio-technological system driven by a value chain. This document will be an initial input for discussion of the Workgroup 1: End-Users collaboration level aiming to create the End-users roadmap draft, after the workgroups interactions. D4.1 has the objective to go in depth on needs evaluation and refine the first assessment for the main needs of the four target groups addressed, made by the consortium in the project. D4.1. will be the input for the end-users workshops and those discussions will set the direction for the discussions in the technology workshops. Also, the latter body of data will serve as input for D.5.1—the report on the M-Inclusion Benchmark. This document starts with a first chapter with a brief introduction, and then we continue defining the end- user’s needs for inclusion. In a second chapter, we present the results from the analysis of the end-user´s interviews and the end-user´s target representatives. The third chapter we discuss these results. Finally, we present conclusions that will generate input for D.5.1. FP7 GA n° 288594 Page 5 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 1. INTRODUCTION Latin America is one of the regions with the most ethnical, racial and cultural diversity of the world, according to Buvinic et al. (2004). The region, however, must overcome a long and conflicted history of exclusionary practices that led to a divided and unequal society, impeding the achievement of the wealth that there is in the diversity. This diversity represents an important asset and a key element to achieve a lasting political and economic stability and to build a righteous, cohesive and democratic society. “Social inclusion refers to the extent that individuals, families and communities are able to fully participate in society and control their destinies.” (1) By the end of 2011, Latin America and the Caribbean had 177 million inhabitants living below the poverty line, 70 million of them in extreme poverty (2). Acute socioeconomic inequality, along with gender, racial, and sexual discrimination, pose public health challenges in the region of Latin America and the Caribbean. Nearly 35 percent of the region´s population lives in poverty, with 12.6 percent living in extreme poverty. The social agenda continues to be to reduce poverty and inequities in the context of an ambivalent reality. Although, in net terms, over 60 million persons in LAC emerged from poverty in 2010, an unprecedented magnitude of change (2), an increase in income inequality has been seen, for example recent data point out that 21% of young people in Latin America neither work nor study. (2) While the relative incidence of urban poverty in the Region fell from 41% in 1990 to 29% in 2007, the absolute number of urban poor paradoxically increased, from 122 million to 127 million (2). Cities tend to concentrate wealth, creativity, innovation, and opportunities on all fronts—from the artistic and cultural, to the technical and scientific, to employment and economic. Despite this context of greater affluence in urban environments, everything points to the fact that, in coming years, cities will continue to be home to populations in different gradients of poverty and vulnerability (2). FP7 GA n° 288594 Page 6 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU All of the Region’s countries are undergoing various phases of epidemiological change. At the regional level, data from 2007–2009 indicate that 76.4% of all deaths were caused by noncommunicable diseases, 12.5% by communicable diseases, and 11.1% by external causes, with variations from country to country. Infectious diseases like HIV-AIDS rates are stabilizing, but MDRTB is a concern in some countries. (2) Each year 22,000 women die in childbirth and 400,000 children die before reaching their fifth birthday in Latin America and the Caribbean. The poorest 20% of the population endures about 40% of the under-five child deaths. Child mortality is mainly due to preventable or treatable conditions such as malnutrition and infectious and respiratory diseases. Low birth weight, asphyxia and sepsis are responsible for 40% of neonatal deaths. Most maternal and neonatal deaths can be prevented by improving prenatal and delivery care and improving the mother's nutrition and health status. Simple interventions such as education on breastfeeding can save millions of infant lives. In 2008, the vast majority of maternal deaths in LAC (over 35%) occurred in the least educated quintile of the female population, while the most educated quintile accounted for fewer than 10% of these deaths (2). Every year there are 1.2 million unplanned pregnancies in the Region, 49% of which occur among adolescents. Prenatal-care coverage in LAC is not low, since pregnant women receive an average of four to five checkups (9). However, these services are not necessarily of good quality, which gives rise to one of the most flagrant expressions of inequity and calls for devoting greater efforts to rectifying it. (2) In Latin America and the Caribbean an estimated of 1.9 million people live with HIV-AIDS, with generally low adult HIV- prevalence rats and with the spread of HIV occurring largely among men who have sex with men or commercial health workers. In 2007, Latin America and the Caribbean saw 140,000 new HIV infections and 63,000 AIDS-related deaths. The Caribbean has the world's second highest adult HIV prevalence rate at 2-3%. Over 466,000 people have tuberculosis in Latin America and the Caribbean, and over 50,000 die each year. While many countries in the region have progression the fight against tuberculosis through immunizations and aggressive treatment regimens, the fact that Brazil and Haiti, continue to report high burden of TB, and the emergence of multidrug-resistance (MDR) tuberculosis in Peru, especially in urban colonies around Lima, point FP7 GA n° 288594 Page 7 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU to the importance of efforts to improve surveillance, laboratory testing and effective treatment with first-line drug Information, education and communication programs are critical to preventing HIV and reducing stigma, especially among high-risk populations. Tuberculosis affects the poorest and most vulnerable groups: migrants, urban slum residents, prisoners and indigenous populations. Early detection of tuberculosis and integrated screening and care for tuberculosis along with HIV/AIDS is an effective way to treat both diseases. Malaria remains endemic in 21 countries. Almost 90% of all cases reported in LAC originate in endemic South American countries, especially among populations living close to the Amazon Basin. Some 250 million people in the Region suffer from chronic, noncommunicable diseases (CNCDs). In 2007, 3.9 million people died from CNCDs, 37% of whom were under age 70. Shared risk factors for CNCDs are tobacco consumption, harmful use of alcohol, poor diet, and physical inactivity Cardiovascular diseases (CVDs) are the leading cause of death from CNCDs Hypertension is a shared risk factor for other chronic diseases. Of premature deaths from CVDs, 30% occur in the poorest quintile, with only 13% corresponding to the richest quintile. Premature deaths from CVDs are more frequent among men than among women and occur at the age of greatest productivity, causing the greatest economic and social damage (2). Between 140 and 180 million people in the Region live with some level of disability that limits their personal capabilities and quality of life (2). The number of persons with disabilities is increasing due to population growth, the aging of the population, and the rise of chronic diseases, as well as the toll taken by accidents, disasters, acts of violence, poor eating habits, and substance abuse. Blindness and visual impediments are frequently associated with poverty and marginalization. Estimates indicate that in rural areas up to 88% of all cases of blindness are curable, as is the case with cataracts where there has been no surgical intervention (2). FP7 GA n° 288594 Page 8 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Cardiovascular disease, respiratory disease, cancer and diabetes account for two-thirds of all deaths in the region. In Mexico, hospitalization for hypertension and diabetes alone cost more than out-patient services for infectious diseases. Risk factors for chronic diseases such as unhealthy diet and lack of exercise can be addressed through awareness raising and screening programs. In Latin America and the Caribbean, many people with diabetes have limited access to health care, which means that indirect costs may exceed direct health care costs. The care of diabetes and other noncommunicable diseases presents a challenge for most health care systems in Latin America and the Caribbean. Some countries in the region are facing an increasing prevalence of diabetes and other noncommunicable diseases, while still experiencing a high incidence of communicable diseases. Diabetes is a chronic disease that requires lifelong, continuous medical care. Health care services in developing countries are oriented to acute medical care (5-6) Medical expenditures for people with diabetes are 2–3 times higher than for those not affected by diabetes (3). All these groups have needs and demands that need to be address. According to United Nations Foundations, mobile communication offers effective means to bring inclusion services to developing country citizens. Our work not only identified needs of the end-users but also collected valuable information about the mobile solutions provided by actors inserted in a sociotechnological system driven by a value chain. We looked and asked for the needs of end-users and then we searched/asked how these end-users think mobile technologies would satisfy those needs.(4-5) FP7 GA n° 288594 Page 9 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 2. END-USERS NEEDS FOR INCLUSION The definitions of the current needs for social inclusion were initially based on information from two countries in LATAM, Peru and Brazil. Information from Colombia was included later. This definition of “needs” was based and agreed upon core groups of disadvantaged social end-users, considering those selected in the project as priority and strategic. End-users were discussed and selected by all partners and categorized and defined as Target groups. Each target group was then subdivided according to its own characteristic in subgroups or secondary groups. The objective is to go in depth on needs evaluation and refine the first assessment for the main needs of the four target groups addressed, made by the consortium in the project. This will be the input for the end-users workshops and those discussions will set the direction for the discussions in the technology workshops. Identification of end-users needs for inclusion —is a document containing the analysis of current needs of targeted End-Users, inserted in a socio-technological system driven by a value chain. The data collected has been analyzed and these results will be used as initial inputs for the end-users workshops aiming to create the End-users roadmap draft, after the workgroups interactions and is presented in this document D4.1. FP7 GA n° 288594 Page 10 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 3. METHODOLOGY Partners in the consortium reached an agreement on which specific subcategories within the four objective groups are going to be considered “core” and which ones “secondary”, in the context of the project the approach here is to identify and classify current needs for social inclusion based on actual situation in LATAM countries for disadvantaged social groups, by considering the ones participating in the project as priority and strategic end-users groups. The objective of this task is to locate first-hand information, or original data, regarding the needs of the prioritized groups of End Users. This should be undertaken by conducting interviews with representatives of organizations from each of the prioritized groups of End Users. The interviews should be conducted in the LATAM partners´ countries—i.e. Peru, Colombia and Brazil—in order to compare results and identify cross-country similarities and differences regarding these needs. The results of this search will be used as initial input for the end-users workshops to be developed in the frame of the next task (Task 4.2). 3.1 Target groups or Core groups (i) Core Group 1: People with ongoing Physical- Structural Impairment.- The first targeted group is People with disabilities, including people with activity limitations and participation restrictions due to visual, hearing and mobility impairments. According to the World Bank, there are at least 50 million disabled people in Latin America & the Caribbean. Smartphone’s and tablets will be the main arena of health care strategies, as mobile technologies need to be accessible especially for people with physical disability. (ii) Core Group 2: People with Non- Communicable or Persistent Communicable Conditions.- The second target groups are chronic patients, which include patients suffering chronic diseases that usually are diseases of long duration and generally with slow progression such as chronic respiratory, cardiovascular, diabetes, HIV/AIDS, tuberculosis and malaria. Using mobile communication within health centers, patients will have the chance to maintain continuous FP7 GA n° 288594 Page 11 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU contact with nurses and doctors seeking to provide medical support networks that promote healthy behavior changes that can reduce the risk of diseases. (iii) Core Group 3: People Living in Low Income Sectors.- The third target groups are People from Low income sectors, including individuals or households supported by an income that is below 2 USD/day. Within this group, M-Inclusion focuses on maternity and early years of life, and youth education. Households belonging to poor and excluded people acknowledge the importance of mobile phone use, especially in regards to the perception of personal safety. The generation of wealth, creation of skilled employment, improved productivity, economic stability and development of new services are increasing the contribution of new technologies and telecommunications services in the various spheres of society and the economy. (iv) Core Group 4: People Living in Isolated Areas.- The fourth target group is People in isolated areas, or people living in settlements, often in rural and/or wild regions, with poor communication with the central areas due to distance or physical features. In most Latin American nations and especially those of large geographical extent— as Peru Brazil and Colombia— outside the cities and areas of influence, there is lack of telecommunications infrastructure. The M-Inclusion partners of the research team identified the following core and secondary groups, appearing in Table N° 1: FP7 GA n° 288594 Page 12 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Table 1: M-inclusion Target Core Groups and Secondary Groups Core groups: Secondary groups: 1.People with on-going physical/structural impairments 1.1 People with visual impairment and blindness 1.2 People with Deafness and Hearing Impairment 1.3 People with Mobility Impairment 2. People with noncommunicable or persistent communicable conditions 2.1 People with non-communicable conditions: Chronic respiratory diseases 2.2 People with non-communicable conditions: Cardiovascular Diseases 2.3 People with non-communicable conditions: Diabetes 2.4 People with persistent communicable conditions: HIV/AIDS 2.5 People with persistent communicable conditions: Tuberculosis 2.6 People with persistent communicable conditions: Malaria 3.1 Maternity and early years of life 3.2 Youth Education 4.1 Amazon: Main Ethnic Groups (Indigenous, Caboclinhos, Ribeirinhos) 4.2 Andes: Main Ethnic Groups (Quechuas and Aymaras) 3. Low-income sectors 4. Isolated areas Using this table as reference, LATAM partners identified organizations representing each of the 13 secondary groups and conducted a series of interviews with end-users’ representatives of these organizations. In addition, partners researched information about these groups using electronic sources. Each interview tries to compile opinions about needs, from specific target groups, focusing each question on how the existing mobile technologies can be possible solutions to low economic, geographic, educational and health gaps, and help reduce social exclusion. Interviews were designed following a specific structure which defined dimensions of the value chain: • Health needs • Education needs • Occupational needs • Psychological needs • Other social needs FP7 GA n° 288594 Page 13 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU For example, interviewers asked representatives to identify the existing health needs of their members and to think about possible mobile solutions that can be used to reduce those needs. Complete data of this search appears in the annexes. (Annex 1-5) Regarding the needs assessment for the core groups and the sub-groups, we implemented a methodology following the next steps: 1. To identify the core or target groups and their secondary groups (presented in Table 1, above). 2. To propose a macro value chain and its three variations—health, education and occupation. 3. To interview all secondary group of each core group by selecting one member of that secondary group. Thus for the thirteen selected sub-groups, we 1. prepared an interview guide, 2. identified an organization and a contact person within that organization, 3. interviewed them over either over the phone or by email, and 4. prepared a synthesis of each interview. Additionally, and in order to strengthen the needs´ assessment, information about the secondary groups was searched electronically using the following steps. • identified a search engine—e.g. GOOGLE • defined a search strategy—i.e. BOOLEAN search with the search terms exclusion, inclusion, rights, services, technology, communication, education, health, and • selected five sources for each of the secondary groups—these sources showed relevant information about the needs for inclusion of each group. FP7 GA n° 288594 Page 14 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 3.2 M-Inclusion Macro Value Chain Further, with the objective of analyzing the current needs of targeted End-Users, we built a strategy on the notion that target groups are inserted in a socio-technological system driven by a value chain. This notion reflects the idea that we have to take into account certain actors of an ecosystem in order to better assess the end-users’ needs. Therefore, three variations of a macro value chain were considered, which are based on three dimensions of needs: • Occupation • Education • Health The actors in the value chain were classified into the following groups: • Regulators • Funders • Equipment Manufacturers • Content Providers • Application Developers • Developers Platform • Internet Providers • Operators of Mobile Services • Owners / Project Developers We identified these actors in LATAM. The intention of this search was not the exhaustive mapping of all actors in the value chain M-Inclusion, but to provide an illustrative view to facilitate the understanding of the proposed methodology. The objective is to facilitating the understanding of how to organize value chains of M-Inclusion, the needs of key actors to help them assess the end-users’ needs and to attend social inclusion using mobile technology, and to guide the process of engagement of the actors identified as potential collaborators and / or project participants. FP7 GA n° 288594 Page 15 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Additionally for the actors of ONE value chain with the three dimensions of health, education and occupation we made a Boolean search: —Google—and an Academic search engine (e.g. Pubmed). (See Annex 6 for results of this work) 3.3 Future Input for the Stakeholders Group Results and conclusion of this report will be used as initial input for the end-users workshops aiming to create the End-users roadmap draft, after the workgroups interactions. In the frame of the project management, the SG will participate as an independent advisory body providing complementary expertise to the consortium: the Advisory Board (AB). For an operative approach to SG activities within M-Inclusion, the planned work for the SG has been classified in future activities defined in Table N° 2. Table N° 2: Stakeholders Activities Level of Collaboration Planned actions Communication Channels Inputs Specific questionnaire focused in the field of expertise of each SG Member (mainly end-user or technical profile) Request of additional information on the initial inputs provided (if needed) On-line Workshops Face to Face Work-shops Ask for feedback on contents for the Roadmap successive drafts Ask for feedback on M- inclusion activities of the SG Members interests (SG as advisory Body) e-mail Skype (or similar) Telephone M-Inclusion Web Site Workshops Recommendations FP7 GA n° 288594 Call/Video conference Open international Forums e-mail Skype (or similar) Telephone M-Inclusion Web Site Page 16 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 4. RESULTS In this document, we present the results collected, first in the Target end-user´s representatives, then in the M- inclusion macro value chain mapping, afterwards the secondary analysis.from the boolen GOOGLE search (Tables N°3-11), and finally the the interviews with the target groups and subgroups of the three countries involved in M- inclusion. We present the results per country as follow; Peru, Brasil, and Colombia. In the interviews sections, interviews were based upon defined questionnaires orientated towards occupational, health, educational, and psychological needs. Questions were also oriented in asking about improving the use of mobile technology for solving their needs. All questions were validated previously by the research team (Annex 1). Unfortunately, not all interviews were completed in all the subgroups of the 4 groups from the 3 selected countries. 4.1 Target End-Users´ Representatives Search for end-users’ needs revealed end-users’ representatives, programs, projects and/or public policies in, Peru, Brazil and Colombia. All are represented in Tables N° 3, 4 and 5. Table N° 3: Target end-User´s Representatives from PERU Core groups: Core sub-groups Interviews done in Peru 1.People with on-going 1.1 People with visual 1.1 Hospital Hipólito Unanue, physical/structural impairment and blindness Departamento de Medicina impairments Física y Rehabilitación Center for the Rehabilitation for blind people in LimaPeru. 1.2 People with Deafness and Hearing Impairment 1.3 People with Mobility Impairment FP7 GA n° 288594 1.2 Asociación de sordociegos del Perú. 1.3 Dirección de Salud V Lima Ciudad-Ministerio de Salud Page 17 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 2. People with noncommunicable or persistent communicable conditions 3. Low-income sectors 2.1 People with noncommunicable conditions: Chronic respiratory diseases 2.2 People with noncommunicable conditions: Cardiovascular Diseases 2.3 People with noncommunicable conditions: Diabetes 2.4 People with persistent communicable conditions: HIV/AIDS 2.5 People with persistent communicable conditions: Tuberculosis 2.6 People with persistent communicable conditions: Malaria 2.1 Hospital Hipólito Unanue, Unidad de Asma y EPOC 2.2 ESSALUD Estrategia Nacional de Control de PCT y VIH 2.3 Médico PAAD-ESSALUDRIMAC 2.4 Association, support program for the self-support of people living with HIV/AIDSPROSA 2.5 Hospital Hipólito Unanue, Unidad de Asma y EPOC Programa de Control de Tuberculosis. 2.6 Hospital Hipólito Unanue, Hospital Hipólito Unanue, Hospital Nacional de Chanchamayo Departamento de Infectología, 3.1 Maternity and early years of 3.1 Center of Technical and life Productive Development3.2 Youth Education CEDETEP 3.2Corporación Educativa Cruz Saco 4. Isolated areas FP7 GA n° 288594 3.3 General: Sociedad de Beneficiencia de Lima Metropolitana 4.1 Amazon: Main Ethnic Groups 4,1 Yine Yame-CEPOXY YINE (Indigenous, Caboclinhos, 4.2 Asociación de comunidades Ribeirinhos) altoandinas de Ayacucho 4.2 Andes: Main Ethnic Groups (Quechuas and Aymaras) Page 18 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Table N° 4: Target end-User´s Representatives from BRAZIL Core groups: 1.People with on-going physical/structural impairments Core sub-groups 1.1 People with visual impairment and blindness 1.2 People with Deafness and Hearing Impairment Interviews done in Brasil 1.1 IE Sdldh dO SAO RafaelBrasil 1.2 Tamiris Aro de Medeiros 2. People with noncommunicable or persistent communicable conditions 3. Low-income sectors 2.1 2.4 People with persistent communicable conditions: HIV/AIDS 2.4 Grupo de Apoio e Wevencao aos Wortadores da Aids (GRAPPA)- Brazil 3.2 Youth Education 3. 1 Descarte Correto Serviço Ambiental Ltda 4. Isolated areas 4.1 Amazon: Main Ethnic Groups 4.1 Grupo Interdisciplinar de (Indigenous, Caboclinhos, Estudos Sócio-ambientais e de Ribeirinhos) desenvolvimento de Tecnologias 4.2 Andes: Main Ethnic Groups Sociais na Amazônia – Grupo (Quechuas and Aymaras) Inter-Ação. (Interdisciplinary Group for Social and Environmental Studies and Development of Social Technologies in the Amazon) 4.2 Comitê para Democratização da Informática Amazônia FP7 GA n° 288594 Page 19 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Table N° 5: Target end-User´s Representatives from COLOMBIA Core groups: 2. People with noncommunicable or persistent communicable conditions Core sub-groups 2.4 People with persistent communicable conditions: HIV/AIDS Interviews done in Colombia 2. Liga Colombiana de Lucha contra el Sida. 4.2 M-Inclusion Macro Value Chain Mapping Boolean Google search for the M-inclusion Macro Value Chain mapping was completed for Peru and Brasil. (Tables N° 6 -7) PERU As in other developing countries, the telecommunications infrastructure in Peru has improved rapidly and Internet access is widely available. However, the use of information and communication technology in health remains limited. Biomedical Informatics in Peru is in an emerging phase. The ICT sector and the telecommunications market has increased substantially over the last decade in Peru, leading to new challenges and opportunities (Table N°6). Still, we could not identify hardware vendors, content providers, application developers, platform developers nor operators) FP7 GA n° 288594 Page 20 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Table N° 6 : Value Chain PERU Actors Health Education Occupation Regulators Ministry of Health Presidency of the Council of Ministers Ministry of Education Ministry of Transport and Communications Ministry of Labour Ministry of Transport and Comm. Funders Universidad Cayetano Heredia Ministry of Health Telefónica AFI Foundation World Bank Development Ministry of Transport and Communications The ITAA (Information Technology Association of America) Telefônica Hardware vendors Content providers Application Developers Platform developers Internet providers Operators Project owners/Systems Universidad Cayetano Heredia Wayra Google Universidad Cayetano Heredia Movistar Claro Nextel Red Quipu Aptra Trade Ministry of Labour Ministry of Health BRAZIL The ICT and the telecommunications market in Brazil is quite extent and as we can see in Table N° 8 the infrastructure in the value chain covers the three main domains in health, education and occupation where we could manage to identify several actors. Comparing the actors of the three Brazilian value chains studied (Health, Education and Occupation), it was demonstrated that actors of four of the nine categories are the same for all the value chains, namely, hardware vendors, platform developers, internet providers and operators. The main R&D funding agencies (CNPq and FINEP) have been also present in all the FP7 GA n° 288594 Page 21 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU three value chains. This suggests that those actors should be considered important stakeholders since their transversal action along all the considered value chains can contribute to support structural programs and projects such as open platforms for M-Inclusion applications. We could not identify Content Providers through our search (Tables N° 7). Table N° 7: Value Chain BRAZIL Actors Regulators Health Ministry of Health Committee of Social and Family OPAS/OMS Funders BNDES CNPq FINEP Hardware vendors Apple Ericson Motorola Nokia Samsumg Content providers Application Developers Platform developers Internet providers Operators Project owners/Systems FP7 GA n° 288594 Apple store Google play Nokia store Blue via SBIS DATASUS Google Microsoft Oracle NIC Claro Oi Tim Vivo Ministry of Health Secretary State of Education Ministry of Education Committee of Education and Culture UNESCO BNDES CNPq FINEP Apple Ericson Motorola Nokia Samsumg Brazilian Association of Distance learning Editacuja Mobility Editora Apple store Google play Nokia store Blue via Google Microsoft Oracle NIC Claro Oi Tim Vivo Ministry of Education Secretary State Occupation Ministry of Agrarian Development Committee of Agriculture BNDES CNPq FINEP FAT Apple Ericson Motorola Nokia Samsumg Embrapa Apple store Google play Nokia store Blue via Google Microsoft Oracle NIC Claro Oi Tim Vivo Ministry of Agrarian Development Page 22 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Health Secretary Municipal Health Universities R&D Institutes Education Secretary Municipal Education Universities R&D Institutes Secretary State Agriculture Secretary Municipal Agriculture Universities R&D Institutes 4.3 Secondary Data Analysis This is secondary information obtained from a Boolean search in Google, focused on the 4 target groups and sub-groups. We present the results in Tables N° 8- 11. This additional information will help to improve the end-users interview analysis. Table N° 8 Results of Search for People with visual impairment and blindness Core Sub-groups NEEDS Health Inclusion Educational Economic Geographic Inclusion Inclusion Inclusion 1.1 People with visual Cross cutting needs: Accessibility and usability to access all contents impairment and Visual impairment- Low vision: Special glasses & Large fonts blindness Blind: Text-to Speech Needs related to - Special - Work - Equal rights (sensitive universe) blindness: Communication: - Affordable - Accessibility - Access to Braille Solutions healthcare - Special education - Orientation users: math, - Mobility writing, public - Living problems speaking - Communication - Special education - Living aids to gain family autonomy - Public awareness - Self-esteem - Training for teachers Related health - Contents situations: development - Physical posture - Pathology diabetes, - Hereditary Hypertension - Alcoholic - Elderly - HIV/AIDS - Insulin dependency FP7 GA n° 288594 Page 23 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 1.2 People with Deafness and Hearing Impairment (Visual universe) 1.3 People with Mobility Impairment Cross-cutting solutions: Accessibility and usability - Access to treatments - Hearing equipment - Self-esteem - Communication: - Work - Equal rights Sign - Affordable language, lips Solutions reading - Special education - Training for teachers Cross-cutting solutions: Accessibility for mobility impairments - Living aids to gain autonomy - Mobility infrastructure (home, company, cities) - Access to treatments - Mobility equipment - Self-esteem FP7 GA n° 288594 - Special infrastructure to access education - Work - Affordable Solutions - Equal Rights - Accessibility Page 24 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Table N° 9 Results of Search for People with non-communicable conditions Core Sub-groups Needs Health Inclusion 2.1 People with noncommunicable conditions: Chronic respiratory diseases 2.2 People with noncommunicable conditions: Cardiovascular Diseases Economic Inclusion Geographic Inclusion Cross cutting needs: Prevention and access to proper treatment - Access to - User and family - Affordable treatment education Solutions - Adherence to - Access to digital treatment literacy - Regular medical care - Support to families - Home help - Need of communication and living aid to gain autonomy Preventive actions - Fast diagnosis Access to treatment - Adherence to treatment 2.3 People with Preventive nonactions communicable - Fast diagnosis conditions: Access to Diabetes treatment - Adherence to treatment - Re-organize life 2.4 People with - Access to public persistent health communicable - Medicines conditions: Emotional HIV/AIDS support - Group therapy FP7 GA n° 288594 Educational Inclusion Preventive - Affordable Solutions education - User and family education - Re-organize life Preventive - Affordable education Solutions - User and family education - Reduce stigma discrimination Education of living with HIV/AIDS - Re-organize life - Skill to form SMEs - Skill to form - Equal rights SMEs - Affordable Solutions Page 25 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Manage secondary effects of medicine - Stress - Monitor report claims - Social networking among users and institutions 2.5 People with - Preventive persistent actions communicable - Access to conditions: treatment Tuberculosis - Adherence to treatment - User and family awareness - Re-organize life - Preventive action 2.6 People with - Fast diagnosis persistent Access to communicable treatment conditions: Malaria - Adherence to treatment FP7 GA n° 288594 - Communication among users - Communication with health providers Preventive - Affordable education Solutions - User education Preventive - Affordable education Solutions - User and family education Page 26 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Table N° 10 Results of Search for People living in Low Income Sectors Core Subgroups Needs Health Inclusion Educational Inclusion Economic Inclusion Geographic Inclusion Cross cutting needs: Work training and educational needs 3.1 Maternity - Prevention - Preventive sexual - Work and early - Teen pregnancy education - Affordable years of life follow-up - Elementary school Solutions - Baby’s health and –mom - Selfgrowth follow-up - Pre-school – kid sustainability - Diagnosis of - Training for - Citizenship (Lack congenital problems teachers of personal ID) - Sexual health - Access to digital program literacy - Nutritional control – mom/baby - Services to the newborn - Emotional recovery - Personal conflict resolution - Maternal role - Plan of life 3.2 Youth - Access to healthcare - Education (Lack of - Work - Equal rights Education for marginalized learning: reading, Affordable groups writing, math skills) Solutions - Social integration - Constant access to information - Access to digital literacy FP7 GA n° 288594 Page 27 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Table N° 11 Results of Search for Isolated Areas Core Sub-groups Needs Health Inclusion 4.1 Amazon: Main Ethnic Groups (Indigenous, Caboclinhos, Ribeirinhos) 4.2 Andes FP7 GA n° 288594 Educational Inclusion Economic Inclusion Geographic Inclusion Cross cutting needs: lack of proper health and educational systems and acknowledgement of equal rights - Proper health - Preservation of - Policy of - Equal rights for system for traditional sustainable ethno Indigenous and indigenous and culture, historical development native of original riverside values and the - Citizenship territories population environment - Subsistence - Scarcity of basic - Alternative - Lack of proper - Generate income services medical plants education system for local populations - Lack of - Access to - Deficient access - Scarcity of basic communication healthcare and to training services: infrastructure social services Lack of - Bi-lingual and Energy, water, - Social intercultural housing, sanitary, infrastructures in interaction education logistic, vital services - Low school transportation and (educational and performance technical assistance medical centers, - Access to in the productive security) digital literacy activities: fishing, - Integration of harvesting, raising isolated areas animals, handicrafts and agriculture. - Proper health - Proper - Work - Equal rights system education system - Subsistence - Accessibility - Basic - Access to digital - Affordable - Communication infrastructure literacy Solutions infrastructure - Social - Citizenship - Access to basic interaction services Page 28 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 4.4 End-Users´ Interview Data Analysis The questions used in the interviews are found in Annex 2. The whole set of interviews from the target groups and subgroups from Peru, Brasil and Colombia can be found in Annexes 3. Unfortunely not all countries completed the 13 interviews in all subgroups. Not all interviews were completed in the same depth regarding the three dimensions mentioned in the previous objectives. Still all the information recollected from secondary groups can give us a unique data from these 3 LATAM countries. A. PERU.A total of 13 interviews were completed in Peru, from the 4 target core groups and their subgroups. This means the goal was completed 100%. Although, not all three dimensions in the interviews were completed in the same depth. (i) People with on-going physical/structural impairments.- People with on-going physical/structural impairments tell us how much their condition of disability affects them and impedes their ability to relate socially. To communicate socially, many times they need to re learn processes. This affects them emotionally, many even having symptoms of depression. The educational and emotional backup of the families is fundamental in these cases, which also have to be informed and learn about new ways of communicating; whether through the Braille in case of blind people or mute deaf language. Many times this leads to situations of emotional and physical dependence, where self-esteem is affected. People interviewed indicated that their greatest need is to learn how to be independent and to be able to communicate better and socialized so they can be inserted in any type of work. They refer that due to this condition of disability the unemployment rate is twice as in normal people. Their request is for more psychological support and for greater social comprehension. FP7 GA n° 288594 Page 29 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU If there is some degree of vision impairment, the help of special glasses and of books with large fonts can facilitate this. It can also be helpful to have devices that help patients, such as software for reading texts and books in Braille. In fact mobile technologies can be useful in helping solve some needs surrounding chronic pathologies. It can also be helpful to have devices that help patients, such as software for reading texts and books in Braille. These new technologies can help with Braille information systems, oral Braille, laptops that use synthesis of voice (speaking computer), devices related to the computer, systems that convert text to voice, systems of visual recognition of characters, braille printers, speaking calculators, amplifiers of TV screens. People interviewed at the Health care center V Lima- Ciudad, who are in charge of blind people due to HIV/AIDS refer that patients, their families and health workers need is to create networks between them for helping them improve education needs, appointments, treatments, counseling and strengthening support between them. People with Deafness and Hearing Impairment in Peru, refer that currently there is in existence a new modern display that is connected to the computer and translates it into a form of Braille language. Unfortunately this technology has very high costs, therefore, as far as they know the more accessible technologies are intelligent telephones, which help communication without needing an interpreter. “What is needed for the blind and deaf are interpreters and specialists in dactylography; which varies from country.” “Technologies would be useful for us, in order to help us insert socially, since a lot of us find it difficult to communicate, since few people know our language”. People with Disability at the Hipólito Unanue Hospital, Department of Physical Medicine and Rehabilitation; a public state hospital; where usually a high number of people from low and medium income sectors get attention; indicate their main statistical pathologies are ostheoarticular and vertebral illness, carrying problems whilst employed and leading to unemployment. These patients are usually refered from different parts of the country to get attended for specific surgeries and they have to spend time in the hospital and in the city with their families. Eventhough most of the costs are covered by the hospital; they have to pay, along with the time of internship. Many patients get depressed because of their new condition. They FP7 GA n° 288594 Page 30 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU were poor when they arrive and they get back to their communities even poorer and with a disability. Some go back and commite suicide. New technologies would be able to help us in controlling pain; by measuring and monitoring the patient, therefore giving him the correct treatment and dosis. Mobile technologies can help in giving information and counseling to patients who have to be trained for a new life and need to face a new reality, as supportive tools for emotional support and for rehabilitation appointments. (ii) People with non-communicable or persistent communicable conditions.- ii.i From January 2013 to date, 246 children aged five have died of Chronic respiratory diseases, mostly from asthma and pneumonia. These victims live in poor conditions in the Andean area above the 3,500 meters sea level. They live in extreme conditions, far away from populated communities, in permanent poverty and with chronic malnutrition and temperatures that arrive at 15 degrees below zero. These people are usually attended in the health posts by health technicians, and if lucky by a trained nurse. Every so often medical campaigns with doctors will arrive at geographically excluded areas, where patients get diagnosis and referral, children get vaccines, and free treatments are given. Unfortunately; these measures are not sustainable, and many people continue with unresolved conditions or in worst scenarios respiratory outbreaks increases with high mortality rates. One interviewer says: “In case of emergencies, people need to be attended immediately”. Technological innovations are changing the panorama on control and prevention of illnesses and diseases. Extensive availability of mobile technology, even in less developed countries, constitutes an exceptional opportunity to broaden the benefits of “ciberhealth”. Mobile technology can be a tool in reaching communities and giving support to chronic patients living in extreme conditions. i.ii People with cardiological diseases present not only one symptom of chronic disease; they have several conditions that develop in time. Unfortunately health workers are not capable of informing and maintaining patient’s adherence to treatment, leading to a loss of the patient. Therefore many of them do not return back to their appointments, unless they feel really ill. “Many of the patients are iliterate and have little education” There is no culture of prevention in the health care FP7 GA n° 288594 Page 31 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU system. Therefore, there is a need for the health care system to follow chronic patients and give them better information, health standards, treatment and monitorising. ESSALUD an extended social healthcare institution in Peru for low and middle income sectors; had a pilot project with technological mobile systems at their Cardiological Service Unit. They had telephone consultations. This project was withdrawn because the contract ended and was not reinitiated. Nevertheless, they consider it was a very positive experience because mobile technology can be used in helping patients with their appointments via the internet and in having access to patient’s clinical history and viewing any pending results. With this system via mobile technology, using a code, doctors in charge of the patient can have access to medical history via internet, obviously respecting codes of ethics in order to secure their rights. Another positive effect in using mobile technology is for creating support groups that can mantain them informed and hopefully calm since at times their diagnosis is not very good. ii.iii People with diabetes/hypertension need to maintain constant communication with their doctors and nurses who can monitor them, control their secondary effects through treatment and control their levels of glucose and hypertension. Through this system they can receive back and forth information about their condition, serving to educate in diabetes and hypertension prevention. Upon receiving constant information, they can deal with their chronic condition, since their is a need for a certain degree of psychological support, especially considering that the vast majority of patients are older adults and are found many times alone and living in conditions of exclusion. Mobile Technology can be helpful in monitorising these patients, allowing for appointments with their doctors and the necessary support. ii.iv People with HIV-AIDS in Peru receive free treatment through the programme called TARGA. There is a strong organization of people who give information and work along with government organizations and the health minister for a multisectorial programme, especially to reduce stigma and for better access to treatment. They intend to guarantee that the existing norms accomplish access to medicines, reduction of stigma and discrimination, and the empowerment of people in self-management. FP7 GA n° 288594 Page 32 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU The organization called PROSA representing People living with HIV/AIDS whose mission is to improve the quality of life and the respect of the rights of people with HIV, is interested in incorporating informatics systems like mobile technology that can support their institutions by establishing networks between users and health providers. Also by establishing better channels of information via Internet and mobile phones related to social surveillance and political incidence. In their opinion, this will bring better opportunities for HIV-AIDS patients, in reporting claims and monitoring already existing concerns related to social and health topics. It will also help reduce social stigma by strengthening social networks, improving educational access to information, and supporting groups and counseling which are basic needs for reducing social exclusion and isolation in HIV patients. Their major concern is to be includes and to share their experience, learning to manage emotional aspects related to secondary effects of their condition as people living with HIV/AIDS and the side effects caused by treatments. PROSA has developed skills related to building and functioning of small and medium-size companies (called “PyMes” in Peru). They consider that this idea can be developed even more and can be used by more users. “The “users” can have access to technological tools that might help them create small business. With these informatics techniques and mobile technology; users could create a new telephone business and this would create social and job stability in their lives”. ii.v .People living with persistent transmissible conditions of malaria and working people at Hipolito UnanueHospital- National Hospital of Chanchamayo were interviewed. This Hospital is located in an endemic area where the malaria is characterized as cyclical, seasonal and associated to geographically and ecological tropical Amazon and Northern desert coast. “32% of the national population is at risk to contract malaria”. Therefore educating the population is required. Mobile technology can be helpful to surpass geographical barriers and communicate opportunely with distant health centers. Using technology to notify possible cases and of the presence of mosquitoe larvae can help us avoid propagation. Technologies would be able to play an important role giving constant information, educating, monitoring endemic areas, especially geographically excluded communities. “Epidemiological surveillance can be done through telephone cellular”. FP7 GA n° 288594 Page 33 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ii.vi Peru is one of the countries with the highest rates of detection and treatment of tuberculosis, eventhough in the last decades statistics for MDR-TB have increased, this has become a big problem for the national public health system. Basically patients come from poor income sectors and malnourish populations living in periurban hacinated areas. The national health system gives free treatment by a Directed Observed Treatment (DOTS), supervised by nurses. Those patients living with chronic conditions like tuberculosis are committed in having to take many tablets every day for several months, in case they develop resistance this will be for years, and they can have adverse reactions. In many cases patients will abandon treatment. Patients with tuberculosis many times live in conditions of extreme poverty and they should abandon for a time their work and they suffer from the stigma. Most patients have severe depressions and they begin to lie about their condition to their family, living with them in their overcrowding houses infecting the entire family group. These needs are difficult due to the scarce educational and cultural level. The majority are informal, independent people dedicated to the sale of delicacies, papers or handimen, etc. The basic needs for the health system are rapid diagnosis, good adherence to the treatment; avoid depression due to stigma and increase information to the population. The mobile technologies help the patient in adhere to treatment and diminish social stigma, supporting them in counseling groups. Goals seak the constant training of patients, teaching them about side effects in treatment, giving them emotional support. DOTS should achieve more effective results and not have cases of X MDR. (iii) People living in Low-income sectors.- People living in low income sectors, have little access to many services, the deprivation of basic human needs, which commonly include food, water, sanitation, clothing, shelter, health care and education. Most Low income patients are undocumented, which exclude them even more from the system, making them invisible to many social programs. Gaps in education, health which is basically free, becomes very difficult to reach for this sector of people. “There is a lack in 40% of the population to access to mobile technology, and it comes from low income settings”. This goes hand in hand with a lack of educational opportunities, unsatisfied FP7 GA n° 288594 Page 34 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU demands in the student´s needs to be at the vanguard of times of their generation. People have perceptions and they believe there is inequality in education, especially the young. Mobile technology would be able to help expand the richness of a high-quality and fair education. This can help for immediate access to internet software’s connected with the national data base system and register undocumented people, facilitating burocratic processes that have excessive costs for low income people. “Chats are needed and virtual conferences that permit the exchange of strategies and also to identify the tendencies and future needs; in which the students can develop their capacities”. According to the “Sociedad Benefica Metropolitana de Lima” technologies should offer specific strategies for attending programms for children, adolescents, pregnant women, young adult and older adults living in extreme poverty with quality and efficacy. Through verbal or virtual contact, in this case using telephone texting, follow ups, immediate diagnosis, counseling, physiological support or information families can be informed and be introduced into a social program. If we include the high percentage of excluded people, living as indigents, vulnerable, who have limited access to health care, education, information, and create networks for including them via telephone we can connect them and avoid exclusion. For CEDETEP; an organization in charge of re-valuing the role and rights of women within families; tell us that teenage mothers require special services for their emotional recovery and subsequent re-integration into society. One way is monitoring pregnant women by sending text messages, emails because most of the teen moms now have a cellular phone and access to the Internet. These innovative technologies can help train teachers, student-leaders and fathers, within educational centers in the prevention of teen-age pregnancy, within the frame of sexual responsibility in values. There is a special need in giving social support network, monitoring, and keeping records in their appointments for teenage pregnancy and high risk pregnancy. FP7 GA n° 288594 Page 35 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU (iv) People living in Isolated areas.- The Amazon Organization interviewed YINE YAME-CEPOXY YINE, they made clear that their mission was to complete spiritual life for social and human development, based on the principles of justice, reciprocity, equity, solidarity, innovation, respect and discipline. This is important to point out, because indigenous communities are willing to accept changes to their culture. Most of the amazon communities represented by this organization are excluded geographically from health services; being accessible only by boats and by feet; taking them several hours or days to arrive. There is a lack of knowledge about the indigenous health system, and the local health system has no policy in promoting intercultural politics. There is a high prevalence of child malnutrition, gastrointestinal and parasitic infections in the Amazon area. Reemergence of old and new diseases in the communities are of importance in epidemiological vigillance. There is neither promotion nor harnessing of the elderly knowledge about medicinal plants. There is no appreciation for the work of midwives, or to be assisted, or in cases of emergencies, they can only get help by helicopter. “If we had more technological help, distances would be shorter by using cellular phones; yet there are no lines in these areas and we only have electricity a few hours or we use an engine that generates electricity”. For the last several decades, access to education has been the most important aspiration for all natives in all of these communities, even for those located contacted and living in isolated areas. In fact, the formation of communities in the Bajo Urubamba can be explained by the creation of bilingual schools, which facilitates children´s daily access to the school. Still, there is presence of non-indigenous teachers in indigenous primary schools. As a whole, indigenous communities lack from enough human resources in different specialties. There are no education centers for superior education that are decentralized and at the reach of the indigenous communities. There is little promotion of policies for the development of Bilingual and Intercultural Education. Most of the bilingual schools have only one teacher. In those schools located in distant communities, teachers are not present through all educational time of the year. There is limited participation of indigenous population in the State offices at the Educational administration. In general, there is a poor quality in children´s education across all educational levels. The limited income of the parents FP7 GA n° 288594 Page 36 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU is one factor limiting youth´s access to superior education in the city. As, changes occur, so called globalization, teachers who are sent to those areas lack of bilingual skills, and the ancient knowledge is increasingly forgotten by the indigenous communities. According to the organization the Government has taken away their indigenous territories and is resistant in acknowledging it back or respecting international agreements. The organization explains their actual sociopolitical situation: “We are the sector of extreme poverty in the country. We have not developed awareness about financial self-sustainment. We strongly depend on financial organizations, like NGO´s”. Another explanation is that some leaders do not inform or disseminate information to their communities about the activities conducted by the local, regional or national organizations. There is limited access to any communication media (radio, newspapers, television, internet etc.), even transportation for getting into their communities. The government lacks of any plan for development of communication media for indigenous communities. Therefore, YINE YAMECEPOXY YINE decided to build a web site which includes a large number of communities of the amazon basin in Peru. “We are stronger when we communicate; we are building a web portal, which is the largest in Peru about the indigenous people; most of our social organizations are linked within a network and we would like to develop an intranet with more technology for informatics; and we are especially training our indigenous youth so that the work can be conducted by ourselves”. The Association of Andean communities of Ayacucho (Quechua and Aymaras) work with rural, periurban and urban populations from the highlands of the province of Huanta, Ayacucho. They represent remote communities located at 4,000 meters altitude of the Andes, living in extreme poverty. They have experienced the internal violence of the country (1980-1992) and suffered social and historical exclusion. Many migrated to the coast cities. The wild and rough geography of the Andean area makes it difficult for accessing to technological communication. There are no mobile services, like internet or cell phones, or any other telecommunication and for getting any of these services people must travel two hours to the nearby communities. There is an increase of the population over 65 years and foresees that in the following years Ayacucho will have a more FP7 GA n° 288594 Page 37 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU aged population, data that suggests there will be greater health services needs for chronic illnesses in the older adults. Mobile technology is an opportunity for communities living in high altitudes because this would help them reduce time in accessing to services and also for children in receiving better educational training. B. BRAZIL.In Brazil, a total of 6 interviews were achieved. (i) People with on-going physical/structural impairments.- The visually impaired with or without other disabilities generally fall in the category of low-income population are supported by social benefits. The social exclusion resulting from the scarce resources have several limitations imposed by disability. The increased accessibility of visually impaired to communication and access to information and knowledge certainly opens new possibilities to get out of this condition of exclusion. The learning of new ways in communication increases self-esteem, highlighting their ability and independence as they can communicate without the help and mediation of third parties. Their basic needs are focuse in strengthening selfesteem and confidence of disabled people. People with visual impairment and blindness in the INSTITUTO SÃO RAFAEL comment that being able to use compatible phones, like softwares such as Portable Scanner Reader (SLEP), which captures images and reads text to the user and has applications that can identify colors and money bills is of absolute help for the blind community. Access to social networks via the Internet enables communication, having long and constant conversations with other people anywhere in the world, expanding their social skills. However the access depends on the possibility to purchase equipment (phones, laptops, etc.), usually is more expensive when compatible softwares are available for the blind and in native language. FP7 GA n° 288594 Page 38 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU People with Deafness and Hearing Impairment in Brazil, sustain their needs are to be included as in a globalized world through text messaging and in social network. It fortifies social life, with relations within friends and family. People with impairment need tools for the inclusion. “We need to learn to use these technologies. Teachers must be prepared to teach students with some type of disability and include them”. Technologies help people put in better contact and relations with the disabled. Needs are focused on improving better communication and mechanism of integration. (ii) People with non-communicable or persistent communicable conditions.- People with persistent communicable conditions, living with HIV/AIDS, (GRAPPA) in Brazil, indicate that the main challenge with HIV patients is to focus in the stage of recovering the individual, building a vital and on-going debate, targeting the best form of action to seek recovery of the individual and their reintegration into society, in order to break the stigma and prejudice that still exist. It is understood that this transformation process is gradual and in this sense it seeks partnerships that can contribute to the effectiveness of these actions. Since its creation, GRAPPA has been recognized by local public health agencies as an important entity in supporting minority groups. Patients living with HIV / AIDS need to have a differentiated approach in health. Technology helps a lot, because most live in other cities and the use of movile phones can help schedule appointments and tests. Education is essential and technology is very important, since many of them make online courses now to get more information and be in supportive groups. Today users living with HIV-AIDS, despite any profession, suffer much prejudice and often end up being excluded from the labor market. Everyone needs to be accompanied with counseling and psychological support to be able to deal with their condition. Mobile technology is one way that they use to look up and meet other testimonials from people who are experiencing it and are facing reality of living with HIV- AIDS. (iii) People living in Low-income sectors.- “Around 65% of the Brazilian population is digitally and technologically excluded”. This percentage limits the access for any kind of information and reduces active participation. New technologies can FP7 GA n° 288594 Page 39 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU benefit professional for seeking better qualification. The Committee for Democratization for the Amazonia believes that mobile technology can facilitate access to communities into networks and consequently bring more empowerment for communities. For people living in low income sectors, who have little access to many services and are experiencing changes in their communities, mobile technology can facilitate their legitime concept of health and care for nature, like reducing environmental impacts caused by disposable trash, through the management and handling of residues. By sharing their knowledge they can return to the productive chain saving natural resources, sharing Amazon natural values. (iv) People living in Isolated areas.- For the Interdisciplinary Group for Social and Environmental Studies and Development of Social Technologies in the Amazon; health needs faced by riverside communities are numerous, since the health system does not cover effectively these communities due to lack of available goods and services (medicines, equipment, health professionals, among others). Medical care is poor; there are no health center, and limited access to medicines. Although in some cases there is a health worker in the communities, lack of supplies, equipment and qualified personnel to provide assistance or care for the simplest cases of illness become a serious problem. An alternative found to substitute industrialized medicines is the traditional knowledge from these populations. Medicinal plants, are used extensively in this region only for consumption by the community, and are prescribed by those who know them well, being used for health problems from accidents to tropical diseases like malaria, for example. In the case of health, mobile technology can aid in relief (communication) and the agility of the process of mobility both for the Public Health team in getting access to cities and for communities, making easier diagnosis and treatment or even in the most serious cases for the displacement of the sick to the city. Mobile technologies can be an important tool for educational inclusion of the riverside communities in the Amazon. Since riverside communities are located in remote areas, which hinders access to the FP7 GA n° 288594 Page 40 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU communications systems (telephone, cellular) as well as transportation. Due to the lack of means of communication of greater amplitude (internet, cell phone, among others) riverside communities’ population from remote areas, themselves, mostly end up establishing social interaction restricted to the site. Proving mobile technologies to riverside communities in the Amazon would enable the community to establish means of communication with social workers from various parts of the world, thus favouring greater social interaction and dialogue with other external social agents. It would also favour more accessibility for training courses / instrumentation, information of local interest, socio-political articulation, and commercial, among others. This would create new possibilities for interaction and dissemination of local knowledge. C. COLOMBIA.Unfortunately, the team only recollected one interview from Colombia. (i) People with non-communicable or persistent communicable conditions.- People living with HIV/AIDS in Colombia have several difficulties because the vast majority of our users seek alternatives for psychological advising, treatment, legal and health insurance and support within the health system. Along with the HIV condition, it becomes very difficult and lonely condition to live with. The chance in having access to a correct diagnosis, opportune service and orientation for the patient and their families, it is a great challenge in reducing barriers found in the health system. The barriers mentioned of poverty, discrimination, lack of information and access to a good diagnosis or treatment are their major needs. Therefore, information given by any kind of network constitutes mechanisms of appropriation of information by the users, some include mobile resources of consultation set against different pages of information, but others include the facility to access to information and confidentiality as a tool that would facilitate time for users. The facilities that offer the mobile technologies are in education by giving better access to pedagogical tools; help them get to know programmes of development helping resolve their needs and reduce exclusion in this group of people. FP7 GA n° 288594 Page 41 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 5 DISCUSSION 5.1 The End-Users´ Needs for Inclusion Interviews were completed in all core groups and subgroups from Peru. In Brasil we managed to complete 6 interviews. Unfortunately in Colombia only one interview was completed. The Boolean search was done through GOOGLE. This information helped to enrich information found in the interviews. We must explain that; even though these three countries share similarities with other LATAM countries (they have people living in low income sectors, some have people living in isolated areas, people living with chronic diseases and impairments) it is not possible to extrapolate these results to other countries of the region; because their socioeconomic, political context and priorities in their needs of their population might differ. For example, Peru and Brasil share the vast majority of indigenous populations in the Amazon area, Colombia has few Aymaras and Quechua´s, but their needs are difficult to generalize for other countries of LATAM that do not have indigenous ethnic groups. Although this information is not comparable, in some cases we found similarities. Further studies with more representative groups in the LATAM area should be incorporated. Comparison with End-User Groups in Europe should be completed in a future analysis and will be included in D4.3. Using the information in the interviews and in the Boolean search for the END-USER NEEDS, we see that for the first core group; People with on-going physical/structural impairments; their needs are to find ways in learning to be independent and be able to communicate much better and socialize. They need to insert in any type of work and take part of the new changes in society. Their basic request is for more psychological support and for greater social comprehension and integration; in terms of educational programs, health care systems, and occupational jobs that can be offered to them. Regarding technology, it will be useful for accessing to healthcare by communicating the system with patients and in creating networks. These will create educational links to improve information and will reduce social stigma in these group of people. Technology can be an affordable economical solution for people with any disability. These new available programmes can serve as FP7 GA n° 288594 Page 42 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU tools for communication making them feel less dependent, more confident and integrated in a changing modern society. The above perceptions were homogenous for both, Peru and Brazil. In the second group of People with non-communicable or persistent communicable conditions; interviews from all three LATAM countries were done from HIV-AIDS patients. All HIV-AIDS patients in Peru, Brasil and Colombia have free access to treatment. HIV-AIDS communities of affected people are becoming stronger organizations who work along with government organizations and the health minister for a multisectorial program, especially to reduce stigma and to for better access through treatment. Their general needs are to reduce social stigma by strengthening social networks, improving educational access to information, and supporting groups and counseling which are basic needs for reducing social exclusion and isolation in HIV patients. Their major concern is to be included and to share their experiences, learning to manage emotional aspects related to secondary effects of their condition as people living with HIV/AIDS and the side effects caused by treatments. They all have similar concerns regarding education and having more information for patients and family. Mobile technologies offer them facilities like programs of development helping them resolve their needs and probably reduce exclusion in this group of people. Regarding health needs; the chance in having access to mobile technologies can give better access to correct diagnosis and coordinate medical appointments. The opportune service and orientation for the patient and their families can reduce barriers found in the health system. Mobile technology can establish permanent communication demanded in this group of people. All this is related to social stigma and needs for equal right inclusion in the HIV-AIDS patients. For the other sub-groups of people living with a chronic condition, they all manifested to be affected emotionally, socially, and sometimes even financially. The way people and their families get affected by a chronic illness depends on the particular illness and its severity. How they deal with new information, education, available treatments can help them deal with the chronicity of their condition. These groups focused their needs in health education, defined as constant FP7 GA n° 288594 Page 43 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU training of the patient. They also mentioned the importance in the adherence to treatment related to a good information and education of the patient and family. They also mentioned the need in teaching about side effects in treatment, giving emotional support and reducing stigma due to chronicity. If these mobile technologies seek to be helpful they should be in these areas mentioned. A particular case was that of malaria; where they mentioned their needs in improving control of malaria. Movile texting can be a very useful tool for epidemiological surveillance, control of cases and larvae growth along with education of the population. In the third core group of People living in low income settings, their needs are in the lack of access to basic human needs which commonly includes food, water, sanitation, health care and education. Most Low income patients are indocumented, which exclude them even more from the system, making them invisible to many social programs. Gaps in education, health which are basically free, become very difficult to attend for this sector of people. Their demands focus basically on these areas. We managed to have interviews form Peru and Brazil. Even though in both countries the interviewers come from extreme poverty and are socially excluded; in Peru they talked about the need to be included in a formal system. This means to improve education, incorporate technology so the young people education can have the same chance to compete with others in a modern world. At the same time it will help them bring the “unknown or undocumented people” into contact with the system, giving them certain “social, health and educational rights” and reduce exclusion. Meanwhile in Brazil, the interviews correlate their needs with the chance in sharing their culture, especially with their own particular concept of care in health in their communities, such as reducing environmental impacts and saving natural resources. When they were asked about the benefits in using technology their positions were as previously mentioned. FP7 GA n° 288594 Page 44 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU In the fourth core group of People living in isolated areas; both countries Peru and Brazil; have communities in the Amazon. Their needs are focused in shortening the distance in education, health, human rights, negotiation with governmental institutions and reduce geographical exclusion. Through better education, culture and bilingual education, traditional medicine preserve, intercultural health services they can improve their conditions of living. What Indigenous people from the Amazon are asking for, is to improve the sense of empowerment and strength in negoting with institutions. Technology can help them generate knowledge and improve research from the Amazon areas. Mobile telephones are useful to reduce time in the access to health services and also for the children in receiving better educational training, reducing discrimination felt by them. In table N° 12 we present a summary of end user´s needs. TABLE N° 12: SUMMARY OF END-USER´S NEEDS TARGET GROUPS People with on-going physical/structural impairments NEEDS • • • • • People with noncommunicable or persistent communicable conditions • • • • • • • FP7 GA n° 288594 Learn to be independent and be able to communicate much better and socialize. Psychological support, social comprehension and integration. They ask for educational programs, health care systems, and occupational jobs adequate for them. Reduce social stigma in these group of people. Regarding technology, it will be useful for accessing to healthcare by communicating the system with patients and in creating networks. Reduce social stigma in HIV-AIDS patients. Have better access through treatment in HIV-AIDS patients. Strengthen social networks. Improve educational access to information. Have supporting and counseling groups. Mobile technologies offer them facilities like programs of development helping them resolve their needs and probably reduce exclusion in this group of people. Health education, defined as constant training of the Page 45 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU • • • People living in low income settings • • • • People • living in isolated areas • • • • FP7 GA n° 288594 patient. Improve adherence to treatment related to a good information and education of the patient and family. Better knowledge about side effects in treatment, giving emotional support and reducing stigma due to chronicity. Improve control of malaria. Mobile texting can be a very useful tool for epidemiological surveillance. Improve the lack of access to basic human needs in health care, education, water, food, water and sanitation. Document the “undocumented” people and include them in the formal system. Improve and incorporate technology education. Share their concept of culture and care in health. Reduce educational, health, human rights, and geographical exclusion. Improve their conditions of living through better education, culture and bilingual education. Preserve their traditional medicine and create intercultural health services. Improve the sense of empowerment and strength in negotiating with institutions. Technology can help them generate knowledge and improve research from the Amazon areas, and reduce time for access to basic services. Page 46 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 5.2 The M-Inclusion Macro Value Chain in LATAM Telecommunications infrastructure in developing countries has showed to improved rapidly and Internet access is widely available. The ICT sector and the telecommunications market has increased substantially over the last decade, leading to new challenges and opportunities. However, the use of information and communication technology in health remains limited or is still in an emerging phase. Telecommunications infrastructure in Peru has improved rapidly and Internet access is widely available. However, the use of information and communication technology in health remains limited. Biomedical Informatics in Peru is in an emerging phase. The ICT sector and the telecommunications market has increased substantially over the last decade in Peru, leading to new challenges and opportunities. Comparing the actors of the three value chains studied (Health, Education and Occupation), Brazil demonstrated presence of four actors of the nine categories for all the value chains, namely, hardware vendors, platform developers, internet providers and operators. The main R&D funding agencies (CNPq and FINEP) have been also present in all the three value chains. This suggests that those actors should be considered important stakeholders since their transversal action along all the considered value chains can contribute to support structural programs and projects such as open platforms for M-Inclusion applications. In the m-Health Value Chain in Peru, it can be identified that the interventions to promote the adoption of health information and communication technology tools, particularly with limited resources patients, can be acceptable and feasible, and may be based on existing standards. In the future, Mobile technology will have a greater role in caring for health in developed countries and in countries in process of development. Education and training on information technology for health professionals remains one of the challenges of public health. Lack of education in medical informatics skills is evident among health professionals who have different levels of computing skills. Another conclusion from the value chain analysis is that existing initiatives should be considered as the basis for M-Inclusion applications. For example, Brazil has a solid experience in the field of distance learning aimed at higher education and the same knowledge and technologies that support the existing courses could be applied to create new M-Education applications focused at the population in isolated areas. It is important to notice that all the regulators of the searched FP7 GA n° 288594 Page 47 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU value chains have an active role formulating and implementing policies aimed at social inclusion including the use of ICT to reduce vulnerability. FP7 GA n° 288594 Page 48 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 6 CONCLUSIONS Telecommunications infrastructure has improved rapidly in developing countries, and Internet access is widely available. However, the use of information and communication technology still remains a challenge. Referring to LATAM, we could not identify hardware vendors, content providers, application developers, platform developers or operators. This can be a future challenge for implementing informatics in target groups, especially when understanding and focusing their special needs. We consider that the END-USERS organisations have a clear understanding of their needs and the benefits that can be brought by M-Inclusion applications. The needs in the targets groups are very specific; going from the development of specific software’s for impaired people, through educational needs, health needs, reducing geographical and economical barriers in poor settings, reducing stigma in chronic conditions and creating networks for communication in a globalized and constantly changing world. They ask for telecommunications as a right for accesing basic services such as health, education and psychological support. However, although many were supportive in the use of mobile solutions, their use remains very limited and cannot solve all the structural problems that are behind the nature of the needs in the target groups. As a brief summary: Finally, we presented the following data in the D.4 document; 1. The search for the Target end-user´s representatives: Peru, Brazil and Colombia were selected as LATAM countries. 2. The M- inclusion macro value chain mapping: Peru and Brazil was completed. Data from Colombia is missing. 3. Secondary analysis from the Boolean GOOGLE search: These data strengthen the interviews analysis. 4. The interviews with the target groups and subgroups of the three countries involved in Minclusion: A total of 20 interviews were done. 13 were from Peru who completed all FP7 GA n° 288594 Page 49 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU subgroups, 6 came from Brazil and 1 from Colombia. The subgroup of HIV- AIDS was the only group that could be compared for the 3 countries. For Brazil and Peru, comparison was made, for finding similarities or differences, for interviews of the subgroups of people living with impairments, chronic diseases, low incomes and isolated areas. Unfortunately not all interviews were answered in the same depth. 5. Results and conclusions of this report will be used as initial input for the end-users workshops- D4.2- aiming to create the End-users roadmap draft-D4.3-, after the workgroups interactions. 6. This deliverable D4.1—part of WP4 – is a starting point for the inputs for the end-usersthat will be helpful for the latter body analysis of data that will serve as the complete input for D.5.1—the report on the M-Inclusion Benchmark. Recommendations for future analysis • Complete the search for the Target end-user´s representatives for Colombia. • Complete the M- inclusion macro value chain mapping for Colombia and the gaps in Peru. • If possible complete the interviews of the missing subgroups in Brasil and Colombia. • Complete the data From Europe countries for further comparative analysis between LATAM countries. Open Questions Based on the research shown in this document, we propose five key questions to be answered by the stakeholders. The questions are the following: • As needs and demands are being identified overtime, will the needs of the target groups become more specific? Do the stakeholders think new needs can appear? • Are the M- inclusion stakeholders able to satisfy End Users´ needs? For example, how can M- inclusion actors of LATAM articulate available mobile technology to solve these needs? • Are the M- inclusion stakeholders aware of the End Users´ needs? FP7 GA n° 288594 Page 50 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU • Can telecommunication emerge as possible solution, if so in what degree can they cover the needs mentioned by the end-users in each sub-group? • Can we think of a telecommunication initiative as a correct proposal for a particular setting and group of End Users? Are there more general telecommunication initiatives that are appropriate for different settings and groups of End Users? FP7 GA n° 288594 Page 51 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 7 REFERENCES 1. Warshauer, M., Technology and Social Inclusion – Rethinking the Digital Divide. MIT Press, 2004. 2. Health in the Americas, 2012 Edition: Regional Volume N 7, Pan American Health Organization, 2012 3. Bulletin of the World Health Organization 2003, 81 (1) The cost of diabetes in Latin America and the Caribbean 4. Buvinic, M., Mazza, J., Deutsch, R. Inclusão social e desenvolvimento econômico na América Latina; tradução de Hilda Maria L. P. Coelho. - Rio de Janeiro: Elsevier: Washington [Estados Unidos]: BID, 2004. 5. United Nations Foundations, The Opportunity of Mobile Technology for Healthcare in the Developing World, UNF 2009 6. World Bank, Disability and Inclusive Development in Latin America and the Caribbean, World Bank Factsheet. FP7 GA n° 288594 Page 52 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 8 ANNEXES SUMMARY OF ANNEXES The annexes present the following information: 1. The search guide: this guide was used to collect information online about actors in the value chain. 2. The interview guide: this guide was used to gather interview data from a representative of one secondary group of each of the four core groups. 3. The search guide: this guide was used to collect information online about all secondary groups that were not interviewed. 4. The M-Inclusion Value Chain – Peru/Brazil – Search descriptions 5. End-users needs for inclusion - Peru/Brazil – Interviews and search descriptions 6. M-Inclusion Value-Chain—Peru / Brazil – Descriptions of the search FP7 GA n° 288594 Page 53 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ANNEX 1 Search Guide- Definition of current needs for inclusion based on actual situation Searching the Value Chain Country: ( ) Brazil ( ) Peru Dimensions of the Value Chain: ( ) Health ( ) Education ( ) Occupation Actors in the Value Chain: ( ) Regulators (e.g. Ministry of Health) ( ) Funders (e.g. Banks, NGOs) ( ) Hardware vendors (e.g. PDAs, handsets, laptops) ( ) Content Providers (e.g. Content aggregators, content developers) ( ) Application developers ( ) Platform developers ( ) Project owners/Developers ( ) Internet providers ( ) Mobile service providers ( ) Health systems managers Source link: Search strategy: SEARCH TERMS: a) Name of actor in the value chain b) Mobile c) ICT d) Cell phone e) Internet f) Health* g) Educat* h) Occupat* BOOLEAN SEARCH • Name of actor in the value chain AND (Mobile OR ICT OR Cell phone OR Internet) AND (Health* OR Educat* OR Occupat*) Summary 1. General Description of Source 2. What health services, linked to technology, presented and/or discussed 3. What educational services, linked to technology, presented and/or discussed FP7 GA n° 288594 Page 54 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 4. What occupational services, linked to technology, presented and/or discussed FP7 GA n° 288594 Page 55 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ANNEX 2 Interview Guide - Definition of current needs for inclusion based on actual situation Country: ( ) Brazil ( ) Peru Core group: ( ) People with ongoing physical/structural impairments ( ) People with non communicable or persistent communicable conditions ( ) Low-income sectors ( ) Isolated areas Secondary group: ( ) People with Visual Impairment and Blindness ( ) People with persistent communicable conditions: HIV/AIDS ( ) Maternity and early years of life ( ) Amazon: Main Ethnic Groups (Indigenous, Caboclinhos, Ribeirinhos) Name of the organization: Name of the interviewee: Contact information of the interviewee: ( ) Email— ( ) Telephone number— Date: Mode of interview: ( ) Email ( ) Telephone Questions by Topics TOPICS Your organization 1. Can you describe the mission of your organization? Health 2. What are the health needs of individuals your organization represents? a. How could mobile technologies help solve these needs? Education 3. What are the educational needs of individuals your organization represents? a. How could mobile technologies help solve these needs? Occupation 4. What are the occupational needs of individuals your organization represents? a. How could mobile technologies help solve these needs? Psychological support 5. What are the psychological needs of individuals your organization represents? a. How could mobile technologies help solve these needs? Social (other) FP7 GA n° 288594 Page 56 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 6. What are other social needs of individuals your organization represents? a. How could mobile technologies help solve these needs? FP7 GA n° 288594 Page 57 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ANNEX 3 Search Guide- Definition of current needs for inclusion based on actual situation Country: ( ) Brazil ( ) Peru Core group: ( ) People with ongoing physical/structural impairments ( ) People with non communicable or persistent communicable conditions ( ) Low-income sectors ( ) Isolated areas Secondary group: ( ) People with Deafness and Hearing Impairment ( ) People with Mobility Impairment ( ) People with noncommunicable conditions: Chronic respiratory diseases ( ) People with noncommunicable conditions: Cardiovascular Diseases ( ) People with noncommunicable conditions: Diabetes ( ) People with persistent communicable conditions: Tuberculosis ( ) People with persistent communicable conditions: Malaria ( ) Youth Education ( ) Sertão: Main Ethnic Groups (Sertanejo)) ( ) Andes: Main Ethnic Groups (Quechuas and Aymaras) Source link: Search strategy: SEARCH TERMS: i) j) k) l) m) n) o) Name of secondary group Need* Health* Educat* Occupat* Psycholog* Social* BOOLEAN SEARCH • Name of secondary group AND (Need*) AND (Health* OR Educat* OR Occupat* OR Psycholog* OR Social*) Summary 5. General Description of Source FP7 GA n° 288594 Page 58 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 6. What health needs are presented and/or discussed 7. Are these needs addressed by mobile technology? 7. What educational needs are presented and/or discussed 8. Are these needs addressed by mobile technology? 8. What occupational needs are presented and/or discussed 9. Are these needs addressed by mobile technology? 9. What psychological needs are presented and/or discussed 10. Are these needs addressed by mobile technology? 10. What other social needs are presented and/or discussed 11. Are these needs addressed by mobile technology? FP7 GA n° 288594 Page 59 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ANNEX 4 End-users needs for inclusion – Peru, Brazil, Colombia – Interviews and search descriptions End-users needs for inclusion INTERVIEWS FROM PERU 1. PEOPLE WITH DISABILITIES 1.1 People with visual impairment and blindness – Interview data Name of Organization: CENTER FOR THE REHABILITATION OF THE BLIND OF LIMA - Peru MISSION: To contribute to the promotion and to supervise the wellbeing and constant improvement of individuals with visual impairment, evaluating and developing their capacities, so that that they can become leading actors of their own development and integration to the society. Health needs How can mobile technologies solve those needs? • Pathologies related to diabetes • Physical problems and of physical posture • Low vision • Hereditary diseases • Hypertension • Patients with alcoholic intoxication • Elderly with blindness • People with HIV/AIDS • People dependent on insulin The loss of vision makes people re-organize their lives and learn new ways of doing things. If there is some degree of vision, the help with special glasses and of books with large fonts can facilitate their living. It can also be helpful to have devices that help patients, such as software for reading texts and books in Braille, to have the software updated in our computers; in fact mobile technologies are very helpful in our institution because our main area of teaching is computer sciences and informatics. Educational needs How can mobile technologies solve those needs? • • • • Orientation and mobility: Independence of movement with the help of a walking stick. Communication: reading Braille, math calculations, writing, and public speaking. Development of capacities and skills through projects and productive work. We need more teachers of computer sciences and informatics, and to assemble computers The technologies that would help would be Braille information systems, oral Braille, lap-tops that use synthesis of voice (speaking computer), devices related to the computer, systems that convert FP7 GA n° 288594 Page 60 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU text to voice, systems of visual recognition of characters, Braille printers, speaking calculators, amplifiers of TV screens. The JAWS software, which ignores all graphic objects, helps to read the hyperlinks and the text in an orderly fashion. Likewise, the access to emailing with Outlook Express is very quick and it would be very helpful in our institution. Occupational needs How can mobile technologies solve those needs? • • • • • When you leave, the labor market closes itself. To sensitize the universities. To train society. Budgeting to improve the quality of life. The telescopic glasses are impossible to access. Psychological needs How can mobile technologies solve those needs? If the person is born blind, he/she learns how to live with it and everything would depend on the environment. • To receive psychological support. • To reinforce the social area and the recreational area. • Self-esteem, they become irritable. With technological support we can have direct contact to our patients because they only come to the institution for their rehabilitation; we don´t have hospitalized patients. Other social needs How can mobile technologies solve those needs? • Living problems • Problems associated with low income. • Lack of dissemination of the skills they have • Underemployment • Unemployment rates affect them twice as other people. The emotional part of it is fundamental; the process of learning is larger and the desire of improvement is high. FP7 GA n° 288594 Page 61 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 1.2 People with visual impairment and blindness – interview GUÍA DE ENTREVISTA País: ( ) Brasil (x) Perú Grupo: PERSONAS CON ENFERMEDADES PERSISTENTES VIH/SIDA- PERSONAS CON DISCAPACIDAD OCULAR _______________________________________________________________ Nombre de la organización: Dirección de Salud V Lima Ciudad-Ministerio de Salud Nombre del entrevistado: Sonia Mónica Figueroa Paucar La información de contacto de la persona entrevistada: (x) Dirección de correo electrónico [email protected] [email protected] [email protected] (x ) Número de teléfono993491819 Fecha: 16-02-2013 Modo de la entrevista: ( x ) Correo electrónico ( ) Teléfono Preguntas por Temas TEMAS Su organización 1. ¿Puede describir la misión de su organización? Atención de la Salud en 22 distritos de Lima Metropolitana 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? Atención integral en las diferentes etapas de vida. FP7 GA n° 288594 Page 62 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Atención de la salud Ocular Atención de la Salud Bucal en pacientes viviendo con VIH ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Mejoran el acceso a la información y Educación de los pacientes y personal de salud que ofrecen prestaciones de salud. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Actualización en información educativa, investigaciones y experiencias exitosas en la atención primaria como también la especializada .Todo ello, permita la mejora en las competencias y la oferta de nuestros servicios de salud. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Pueden contribuir en la información inmediata y la mejora en la comunicación en caso se requiera una consulta a corto plazo de ser necesaria. 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? Acceder a mejora en la comunicación con tecnología móvil y otros medios ya que se trabaja con personal de salud y pacientes ubicados en puntos distantes en la ciudad. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? El apoyo psicológico 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? Disminuir el stress laboral ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social (otro) 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades Las tecnologías nos abrirían muchas puertas para mejorar su atención teniéndolos conectados y en constante contacto. FP7 GA n° 288594 Page 63 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 1.3 People with Deafness and Hearing Impairment- interview GUÍA DE ENTREVISTA País: ( ) Brasil ( X ) Perú Grupo: PERSONAS CON SORDERA Y DEFICIENCIA AUDITIVA _______________________________________________________________ Nombre de la organización: ASOCIACIÓN DE SORDOCIEGOS DEL PERÚ Nombre del entrevistado: PRESIDENTE: JOSÉ HERNÁN LLONG QUIUN La información de contacto de la persona entrevistada: ( X ) Dirección de correo electrónico [email protected] (X ) Número de teléfono01-4-516194 Fecha: 04-03-2013 Modo de la entrevista: ( ) Correo electrónico ( X ) Teléfono (X) Personal Preguntas por Temas Su organización 1.-¿Puede describir la misión de su organización? FP7 GA n° 288594 Page 64 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Búsqueda y/o detección de personas sordociegas con el fin de integrarlas en la sociedad y mejorar su calidad de vida. 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? La discriminación, las amistades disminuyen, la familia se aparta la sordera y a ceguera son distintas es necesario para nosotros tener un intérprete. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? En la actualidad hay un display que se conecta a la computadora y traduce en forma braille pero son muy elevados los costos para adquirir este display. Aún no tenemos conocimiento de cómo las tecnologías nos puedadn ayudar a menos que sean teléfonos inteligentes. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? ASOCIP es una asociación civil sin fines de lucro que agrupa a personas sordociegas y con discapacidades asociadas, brinda servicios de formación educativa y ocupacional para personas sordociegas y de capacitación para personas sin discapacidad. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Lo que más necesitamos los sordociegos son interpretes especialistas en dactilología lo cual varía de país en país, pero básicamente es el mismo 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? La ayuda del CONADIS es casi nula así es que es muy difícil insertarse laboralmente sólo tenemos recurso para hacer manualidades en papel y fisioterapia , collares para vender pero es muy difícil el acceso al entorno y mucha competencia se necesita mayor difusión y capacitación. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Si hubiera tecnología que nos ayudaría necesitaríamos capacitación con intérpretes. 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? En nuestro país encontramos mucha indiferencia ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social Las tecnologías nos podrían ayudar a insertarnos socialmente ya que mucho de nosotros nos encontramos aislados sin poder comunicarnos. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades FP7 GA n° 288594 Page 65 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU La falta de educación en el computador para los adultos es muy difícil hay que tener una hipersensibilización. Un sordociego no se puede comunicar sólo necesita de una interprete la cual sepa guiar, escribir y traducir. FP7 GA n° 288594 Page 66 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 1.4 People with Mobility Impairment-interview GUÍA DE ENTREVISTA País: ( ) Brasil ( X ) Perú Grupo: PERSONAS CON DISCAPACIDAD _______________________________________________________________ Nombre de la organización: HOSPITAL HIPÓLITO UNANUE DEPARTAMENTO DE MEDICINA FÍSICA Y REHABILITACIÓN Nombre del entrevistado: Lic. CESAR MARCOS GAMARRA La información de contacto de la persona entrevistada: ( X ) Dirección de correo electrónico [email protected] (X ) Número de teléfono9970799701 Fecha: 28-02-2013 Modo de la entrevista: ( ) Correo electrónico ( x ) Teléfono Preguntas por Temas Su organización 1. ¿Puede describir la misión de su organización? FP7 GA n° 288594 Page 67 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU “Prevenir los riesgos y proteger el daño, recuperar la salud y rehabilitar las capacidades de los pacientes en condiciones de plena accesibilidad”. 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? La mayoría de patologías son osteoarticulares, dolores, algias vertebrales, problemas psicomotores y problemas ocupacionales ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Las tecnologías podrían ayudarnos con el control del dolor, también medir este dolor con la tecnología para poder monitorizar al paciente 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Nuestros pacientes en su mayoría no cuentan con grado de instrucción. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Si estas tecnologías podrían ayudar en la capacitación del paciente y en apoyo psicológico. 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? Estas necesidades son difíciles por la escasa educación y nivel cultural, al perder un miembro ya sea superior o inferior no están preparados para enfrentar una nueva realidad e insertarlos a la sociedad nuevamente se les hace muy difícil. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Apoyo en nuevos campos de trabajo y apoyo emocional. 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? La mayor parte de pacientes los cuales entran en depresiones severas son las mujeres jóvenes ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social Insertándolos socialmente apoyándolos emocionalmente. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades En estos pacientes las necesidades son muchas ya que ellos deben hacer una nueva vida y con nuevas dificultades muchos de ellos no cuentan con recursos para rehabilitarse dejan el tratamiento y se deprimen lo cual los lleva hasta el suicidio. FP7 GA n° 288594 Page 68 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Las tecnologías móviles siendo estas herramientas muy necesarias para el apoyo emocional y para la rehabilitación apoyo tecnológico con nuevos accesorios o aditamentos que puedan contribuir a su mejoría e inserción social. FP7 GA n° 288594 Page 69 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 2 PEOPLE WITH NON- COMMUNICABLE OR PERSISTENT COMMUNICABLE CONDITIONS 2.1 People with non-communicable conditions: Chronic respiratory diseases- interview GUÍA DE ENTREVISTA País: ( ) Brasil ( X ) Perú Grupo: PERSONAS CON ENFERMEDADES RESPIRATORIAS CRÓNICAS _______________________________________________________________ Nombre de la organización: HOSPITAL HIPÓLITO UNANUE UNIDAD DE ASMA Y EPOC Nombre del entrevistado: Asistenta Social: ROSA CUADRA ZAPATA Asistenta Social: AURORA HINOSTROZA La información de contacto de la persona entrevistada: ( X ) Dirección de correo electrónico [email protected] [email protected] [email protected] (X ) Número de teléfono- 9866464662 Fecha: 28-02-2013 Modo de la entrevista: ( ) Correo electrónico ( x ) Teléfono Preguntas por Temas FP7 GA n° 288594 Page 70 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Su organización 1.-¿Puede describir la misión de su organización? “Prevenir los riesgos y proteger el daño, recuperar la salud y rehabilitar las capacidades de los pacientes en condiciones de plena accesibilidad y de atención a la persona desde su concepción hasta su muerte natural” 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? Perú enfrenta una oleada de infecciones respiratorias agudas (Iras), neumonía y gripe A (H1N1) con medidas que asume el Ministerio de Salud (Minsa). Los problemas respiratorios principalmente de origen infeccioso que afecta a las unidades de intercambio gaseoso del pulmón es decir, los alveolos. Puede ser desde un grado leve que amerite solamente antibióticos por vía oral y manejo en casa hasta ser muy serias al grado de amenazar la vida siendo imprescindible el tratamiento en una terapia intensiva. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Las innovaciones tecnológicas están cambiando el panorama del control y la prevención de las enfermedades. La amplia disponibilidad de la tecnología móvil, incluso en numerosos países menos adelantados, constituye una oportunidad excepcional para difundir la utilización de la cibersalud. Pero lo más importante sería ver la capacidad de los costos de esta tecnología. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Las Iras y la neumonía han cobrado desde enero pasado a la fecha 246 víctimas mortales, en su mayoría menores de cinco años de edad que viven en las zonas alto andinas de la región sur por encima de los 3.500 metros sobre el nivel del mar. Los habitantes de esta zona viven en condiciones extremas, en comunidades alejadas de centros poblados, en permanente pobreza y con desnutrición crónica y temperaturas que llegan hasta los 15 grados bajo cero. Este tipo de pacientes son los que vienen derivados a nuestro hospital para ser atendidos. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? Es necesario tener en cuenta que una persona frente a la enfermedad presentará diferentes respuestas emocionales según los momentos que atraviesa en relación a la enfermedad. Así por ejemplo se pondrán en juego diferentes emociones tanto durante la evaluación diagnóstica, en la información del diagnóstico a la persona afectada y su familia, como a lo largo del tratamiento, es por ello que dejaran de trabajar y se convertirán en una carga familiar. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Apoyo en nuevos campos de trabajo y apoyo emocional. FP7 GA n° 288594 Page 71 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? El abordaje eficaz de las dolencias crónicas requiere necesariamente la incorporación de las intervenciones psicológicas, así como la participación activa de la figura del psicólogo en los sistemas sanitarios públicos. Son pacientes de zonas alejados con escasos recursos. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social Educarlos y sensibilizarlos sobre su tratamiento y enfermedad. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades El Minsa desplegó campañas de prevención como el envío de medicinas y abrigo a los habitantes alto andinos, aunque la ayuda llega a "cuentagotas" y con retardo por las difíciles condiciones geográficas y las lejanas distancias, a lomo de mula o mensajeros de centros poblados. Las tecnologías nos ayudarían en la comunicación oportuna sobre prevención y promoción de la salud. 2.2 People with non-communicable conditions: Cardiovascular Diseases- interview GUÍA DE ENTREVISTA País: ( ) Brasil (x ) Perú grupo: __________________________________________________ Nombre de la organización: ESSALUD ESTRATEGIA NACIONAL DE CONTROL DE PCT Y VIH Nombre del entrevistado: Dr. ESPAÑA GUTIÉRREZ, JOSÉ ANTONIO La información de contacto de la persona entrevistada: (X ) Dirección de correo electrónico [email protected] FP7 GA n° 288594 Page 72 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ( X ) Número de teléfono: 9934501195 Fecha: 15-02-2013 Modo de la entrevista: ( X ) Correo electrónico ( X ) Teléfono Preguntas por Temas TEMAS Su organización 1. ¿Puede describir la misión de su organización? Salud “Somos una institución de seguridad social de salud que persigue el bienestar de los asegurados y su acceso oportuno a prestaciones de salud, económicas y sociales, integrales y de calidad, mediante una gestión transparente y eficiente”. 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? Las necesidades de salud son muchas ya que los pacientes no sólo tienen una patología sino varias de ellas las cuales van apareciendo y se desencadenan mayores enfermedades, algunos pierden sus citas y no regresan mas no hay como monitorizarlos. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Tuvieron una sistema de consulta cardiológica por teléfono, la evaluación era un piloto que lo retiraron por que terminó el convenio. Deberíamos tener un directorio electrónico visual y también teleconferencias. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? La mayoría de son de clase media y baja; mucho analfabetismo ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Ocupación La tecnología nos podría ayudar con citas por internet y tener acceso a sus resultados y para los médicos puedan acceder en cualquier lugar la historia clínica del paciente vía internet con algún código especial que sólo los médicos podrían visualizar por el tema de seguridad y derechos de los pacientes. 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? El apoyo psicológico FP7 GA n° 288594 Page 73 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU La atención se da más en pacientes derecho habientes y titulares en menor proporción. Darles consejo vía internet o mediante celular los mantendría informados y tranquilos ya que a veces su diagnóstico no es muy bueno. 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? una. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social (otro) No contamos con personal de psicología ya que es importante si podrían resolver muchos problemas con ayuda tecnológica 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Para nosotros los más beneficiados con las tecnologías serían nuestros pacientes y nuestro personal especialmente los más jóvenes ya que ellos son los que mejor trabajan con tecnología. 2.3 People with non-communicable conditions: Diabetes- interview GUÍA DE ENTREVISTA País: ( ) Brasil ( X ) Perú Grupo: PERSONAS CON ENFERMEDADES NO TRANSMISIBLES DIABETES /HIPERTENSIÓN _______________________________________________________________ Nombre de la organización: MEDICO PAAD-ESSALUD -RIMAC Nombre del entrevistado: Dra. SUSANA PEÑA GOYA La información de contacto de la persona entrevistada: ( X ) Dirección de correo electrónico [email protected] FP7 GA n° 288594 Page 74 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ( ) Número de teléfono947258926 Fecha: 15-02-2013 Modo de la entrevista: ( ) Correo electrónico ( x ) Teléfono Preguntas por Temas TEMAS Su organización 1. ¿Puede describir la misión de su organización? Brindar atención integral de salud en el ámbito del individuo, la familia y la comunidad. 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? Los pacientes que atendemos no sólo sufren de diabetes sino también de retinopatías (glaucomas) muchos de ellos tienen como diagnóstico diabetes e hipertensión. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Educación Las tecnologías podrían ayudar con equipos de última generación y también enviando resultados en segundos. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Actualización permanente ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Ocupación 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? El apoyo psicológico 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social . FP7 GA n° 288594 Page 75 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Tiempo para regular apoyo psicológico a todos los pacientes adultos mayores o de los que se encuentren solo. A través de contacto verbal o virtual. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades Asistenta social que permita conocer a cada individuo o paciente de forma personal como de su entorno. FP7 GA n° 288594 Page 76 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 2.4 People with persistent communicable conditions: HIV/AIDS – interview Interviews: People living with HIV/AIDS - Peru Name of Organization: ASSOCIATION—SUPPORT PROGRAM FOR THE SELF-SUPPORT OF PEOPLE LIVING WITH HIV/AIDS—PROSA. Mission We are an organization of People living with HIV/AIDS whose mission is to improve the quality of life and the respect of the rights of people with HIV, by offering quality services with warmth, developing capacities, promoting self-help and respect of human rights to strengthen the community of people with HIV/AIDS. The work of PROSA is articulated with the community and civil society, within a frame of gender equality and respect for diversity. Health needs How can mobile technologies solve those needs? The basic needs are: • To develop capacities about what it means to start living with HIV/AIDS • The existence of public policies that promote and guarantee rights and access to health as public policy • To develop skills for social surveillance in order to enact citizenship within the frame of the Peruvian state, guaranteeing the accomplishment of the existing norms in relation to access to medicines, reducing stigma and discrimination, empowerment of the people in self-management, etc. • To incorporate informatics systems that allow the management of knowledge and the improvement of information levels that would support the actions and institutional interventions. Mobile technology can support our institutions by: • Establishing better lines of communication between users and health providers • Establishing a better flow of information via Internet and mobile phones in actions related to social surveillance and political incidence • Opening opportunities to report claims and monitor already existing claims related to social and health topics • Reducing the level of working stress, resulting from the lack of social communication mechanisms. • Strengthening the social networks in which the institution and the users participate together by demanding their needs and proposals. Educational needs How can mobile technologies solve those needs? FP7 GA n° 288594 Page 77 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU The educational needs are related to the next items: • Self-management and management of the condition of being a Person living with HIV/AIDS. • Enacting citizenship within a frame of public health. • Human rights and demanding mechanisms • Access to treatment and medicine • How to reduce the levels of stigma and discrimination associated with the condition of living with HIV/AIDS • Enactment of citizenship within a frame of public health Occupational needs How can mobile technologies solve those needs? The occupational needs of the users of Prosa are: • Development of skills related to the formation and functioning of small and medium-size companies (called “PyMes” in Peru) • Development of skills related to the informatics of the current technology (too few use it) With the use of technology, we could: • Develop skills related to the formation of the small and medium size companies; the users could have access to technological tools that would help them create small business. • Use techniques about informatics and mobile technology; the users could create new telephone businesses and this would create social and job stability in their lives. Psychological needs How can mobile technologies solve those needs? The psychological needs are the next ones: • Emotional support at the moment of leaning their HIV+ diagnostic • To have spaces for group therapy and socialization with peers at the beginning of the process of being a Person living with HIV/AIDS • Management skills for emotional, work and social stress • To learn how to manage emotional aspects related to the secondary effects of medicine, treatments, etc, which are related to the condition of being a Person living with HIV/AIDS FP7 GA n° 288594 Page 78 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Other social needs How can mobile technologies solve those needs? (They were mentioned already) 2.5 People with persistent communicable conditions: Tuberculosis- interview GUÍA DE ENTREVISTA País: ( ) Brasil ( X ) Perú Grupo: PERSONAS CON ENFERMEDADES RESPIRATORIAS TUBERCULOSIS _______________________________________________________________ Nombre de la organización: HOSPITAL HIPÓLITO UNANUE UNIDAD DE ASMA Y EPOC PROGRAMA DE CONTROL DE TUBERCULOSIS Nombre del entrevistado: Lic. Lino Ortega La información de contacto de la persona entrevistada: ( X ) Dirección de correo electrónico [email protected] (X ) Número de teléfono9755248001 Fecha: 28-02-2013 Modo de la entrevista: ( ) Correo electrónico ( x ) Teléfono FP7 GA n° 288594 Page 79 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Preguntas por Temas Su organización 1.-¿Puede describir la misión de su organización? “Prevenir los riesgos y proteger el daño, recuperar la salud y rehabilitar las capacidades de los pacientes en condiciones de plena accesibilidad y de atención a la persona desde su concepción hasta su muerte natural” 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? El problema principal es alimenticio y de infraestructura ya que viven en forma asinada. Con la inclusión de la Estrategia Sanitaria Nacional de Tuberculosis en el PPR, se prevé fortalecer la atención de las personas afectadas de Tuberculosis (La universalización progresiva de las Pruebas de Sensibilidad, gratuidad de la radiográfica de tórax, despistaje y tratamiento de Diabetes/TB, gratuidad de tomografía a los afectados TBMDR y TB-XDR y cirugía de tórax en estos afectados y apoyo alimentario entre otros beneficios). El Ministerio de Salud garantiza la gratuidad del tratamiento de la TB sensible, TB-MDR y TB-XDR. Para este último se han incorporado recientemente nuevos medicamentos al petitorio nacional. En resumen se han obtenido importantes logros en el control de la Tuberculosis quedando aun por mejorar aspectos del diagnóstico, resolver el abandono al tratamiento e incrementar el arsenal terapéutico para los casos de TB-XDR. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Depende mucho de la capacidad de los costos del aparato tecnológico ya que estamos hablando de personas de bajos ingresos y si fuesen donados cómo garantizar que este paciente no venda el aparato por eso habría que ver como sensibilizar a los pacientes. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Nuestros pacientes en su mayoría no cuentan con grado de instrucción es por ello más difícil sensibilizarlos a pesar de que su tratamiento es gratuito. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Si estas tecnologías podrían ayudar en la capacitación del paciente y en apoyo psicológico ,emocional dándoles tranquilidad ya que este tratamiento hay que terminarlo para estar con salud y ser dados de alta. 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? Estas necesidades son difíciles por la escasa educación y nivel cultural. La mayoría son personas independientes dedicados a la venta de golosinas, periódicos, estibadores, etc. FP7 GA n° 288594 Page 80 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Apoyo en nuevos campos de trabajo y apoyo emocional. 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? La mayor parte de pacientes los cuales entran en depresiones severas y empiezan a mentir sobre su enfermedad a la familia y llegan a sus casas y por el hacinamiento que viven contagian al grupo familiar. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social Insertándolos socialmente apoyándolos emocionalmente, educarlos y sensibilizarlos sobre su tratamiento y enfermedad. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades Estos pacientes necesitan mucha ayuda, consejos ellos deben ser llamados para verificar si toman su pastilla ya que muchos no terminan su tratamiento es por ello que ya no sólo existe TBC, sino el multidrogo resistente,XMDR. Si con la tecnología podemos monitorizarlos lograríamos mucho en cuanto a la mejoría y termino de su tratamiento. 2.6 People with persistent communicable conditions: Malaria- interview GUÍA DE ENTREVISTA País: ( ) Brasil ( X ) Perú Grupo: PERSONAS CON PERSISTENTES CONDICIONES TRANSMISIBLES MALARIA _______________________________________________________________ Nombre de la organización: HOSPITAL HIPÓLITO UNANUE HOSPITAL NACIONAL DE CHANCHAMAYO DEPARTAMENTO DE INFECTOLOGÍA Nombre del entrevistado: FP7 GA n° 288594 Page 81 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Dr. Julio Cesar Aguinaga Vásquez Médico Jefe de Salud Ocupacional. *Lic. María Hinostroza (Hospital de Chanchamayo) Asistenta Social Marice Rori (Enfermera Salud Ocupacional) 362777 anexo 2016 La información de contacto de la persona entrevistada: ( X ) Dirección de correo electrónico [email protected] [email protected] (X ) Número de teléfono961749419 Fecha: 28-02-2013 Modo de la entrevista: ( ) Correo electrónico ( x ) Teléfono Preguntas por Temas Su organización 1. ¿Puede describir la misión de su organización? La misión de la Oficina de Epidemiología y Salud Ambiental en Seguridad Ocupacional es: Promover el cumplimiento con las normas y reglamentos de Salud, Seguridad Ocupacional y Ambientales. Servir de apoyo y de agente de cambio en el desarrollo de una actitud de prevención y pro activa hacia la seguridad y salud del trabajador de salud. 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? La población asignada de malaria llega a este departamento de Infectología y Epidemiología de todas partes del país. La Malaria, conocida también como paludismo, es una enfermedad parasitaria producida por protozoarios hemáticos del género Plasmoium y transmitida por la picadura de mosquitos hembra del género Anopheles. Sólo cuatro especies del género Plasmodium (P vivax, P falciparum, P malariae, P ovale) producen enfermedad en humanos. FP7 GA n° 288594 Page 82 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Importantísimo en la vigilancia prevención y control. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? La malaria es endémica en el Perú y tiene un patrón definido caracterizado por ser cíclico y estacional y estar asociado geográfica y ecológicamente a zonas tropicales amazónicas y desérticas irrigadas de la costa norte. El 32% de la población nacional se encuentra en riesgo de contraer malaria. Por tal motivo las necesidades educativas son importantes mediante tecnología móvil podrías superar la barrera geográfica y comunicarnos oportunamente con los puestos y centros de salud alejados. 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? El paciente una vez que es dado su diagnóstico se imposibilita de trabajar ya que debe ser internado hasta terminar con su tratamiento ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Utilizar la tecnología para avisar donde están las zonas de vigilancia de las larvas, evitando la propagación verificar en dónde se encuentran los criaderos. 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades Desde hace casi 4 décadas se observa un crecimiento progresivo de casos diagnosticados de malaria en el Perú. Los factores socioeconómicos tales como sistema de servicios de salud, vivienda, ocupación y pobreza juegan un papel muy importante en la transmisión. En general la alteración del medio ambiente hecha por el hombre (Construcción de represas, de estanques, cambios de los cursos de agua, etc.) contribuye a la creación de nuevos habitad larvales. En el Perú son ejemplos los sembríos de arroz en la costa norte y las piscigranjas en zonas cercanas a Iquitos. Las tecnologías podrían jugar un papel importante dando información constante, educando y capacitando a la población teniendo en cuenta que las zonas endémicas son las más alejadas del país como la Selva para mantenerlos monitorizados, dando consejos del cuidado de la forma de transmisión. 3 PEOPLE FROM LOW- INCOME SECTORS FP7 GA n° 288594 Page 83 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 3.0 General GUÍA DE ENTREVISTA País: ( ) Brasil ( X ) Perú Grupo: Movilidad de las personas de bajos ingresos _______________________________________________________________ Nombre de la organización: Sociedad de Beneficencia de Lima Metropolitana Nombre del entrevistado: Dra. Jessica María Flores Barrantes La información de contacto de la persona entrevistada: ( X ) Dirección de correo electrónico [email protected] ( ) Número de teléfono994283564 Fecha: 20-02-2013 Modo de la entrevista: ( x ) Correo electrónico ( x ) Teléfono Preguntas por Temas TEMAS Su organización 1-¿Puede describir la misión de su organización? Brindar atención integral a los niños, adolescentes, madres gestantes, adultos y adultos mayores en abandono, riesgo social y/o situación de extrema pobreza con calidad, calidez y eficacia. 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? FP7 GA n° 288594 Page 84 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Brindamos cuidado integral a personas que han sido víctimas de abandono y que se encuentra en riesgo por su situación económica y social. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Son muchas las ventajas que recibiríamos ya que gracias a la tecnología estaríamos conectados ya que en la actualidad no contamos con redes de conexión entre nuestras mismas instituciones sólo en forma directa como el teléfono, al ser pacientes en abandono y con alguna enfermedad prevalente no hay como monitorizarlos después que se les da de alta. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Son personas de toda clase social desde indigentes hasta las personas que pueden pagar pero no cuentan con un lugar en donde vivir ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? No contamos con todo el equipo médico necesario sólo hay dos psicólogos los cuales no se abastecen para tantos pacientes. Con las tecnologías móviles podríamos conectarnos desde otra sede para consultar algún diagnóstico de una de las pacientes. 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social . Tiempo para regular apoyo psicológico a todos los pacientes adultos mayores o de los que se encuentren solos y también es el caso de los niños A través de contacto verbal o virtual. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades Necesitamos apoyo de voluntariado, el equipo completo de salud y tener una forma de conectarnos con los pacientes y poder acceder a sus historias clínicas. 3.1 Maternity and early years of life - interview Interviews: Maternity and Early Years of Life - Peru Name of Organization: Centre of Technical and Productive Development—CEDETEP FP7 GA n° 288594 Page 85 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Mission: To promote, recognize, re-value the role and fundamental rights of women in the family, in the institutions and in the society as a whole, in order to improve the quality of life based on the values under the frame of sustained development. Vision: To become an institution engaged in the incidence, in an effective way, of poverty reduction in the urban-marginal sectors, in favor of the current and future generations. Health needs • • • • • Focus on teen pregnancy Focus on the health of their babies Problems related to congenital problems. Development control of the babies´ growth Nutritional control of the mom and her child. How can mobile technologies solve those needs? Mobile technologies could help us by having a social support network and by keeping the monitoring of teens when they are at their homes and have to come to the services. Educational needs 1) Continuity of elementary and high schooling 2) Training in productive techniques in the areas of • Textiles-dressmaking • Baking • Knitting • Cosmetology 3) Pre-school education for their kids 4) Provision of services to the new-born babies of teen mothers 5) Provision of early stimulation for the babies 6) Provision of a “game” resources for children ages 3,4 and 5 years old. 7) Training for teachers, student-leaders and fathers, within educational centers of the district in the prevention of teen pregnancy, within the frame of sexual responsibility in values. How can mobile technologies solve those needs? By having access to new technologies, we can have a list of job opportunities and can place 18year-olds in companies. Occupational needs Needs are to generate own financial resources so that women can take care of themselves and their babies. The objective is to self-sustain. How can mobile technologies solve those needs? By monitoring them and sending text messages, emails because most of the teen moms now have a cellular phone and Internet. FP7 GA n° 288594 Page 86 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Psychological needs Teen moms require special services for their emotional recovery and subsequent re-integration to society. • • • • Sessions about adaptation and social adjustment Sessions about personal conflict resolution and strengthening of capacities Sessions of reinforcement of the maternal role Sessions of Plan of Life and Sexual health How can mobile technologies solve those needs? Mobile technologies could help us as “listening lines,” because we don´t have resources to monitor them at the moment. Other social needs Actions regarding the monitoring of moms in general, and those risking their re-integration to society. Work with family, visits, personal documentation (most of teen mothers come from provinces, and lack personal IDs). How can mobile technologies solve those needs? Most of the patients are undocumented; the technologies could help us make errands at RENIEC (personal identity office), keeping us in touch with it. We have Internet at the moment, but our computers use Windows 97 and they are not updated so we cannot access the websites or even receive documents attached to emails, because the system is not compatible with the current version of the software. We can only make out-going phone calls to landlines where we rarely find the teenagers or their families. 3.2 Youth Education- interview Guía de Entrevista País: ( ) Brasil ( X ) Perú Grupo: Educación de Jóvenes _______________________________________________________________ Nombre de la organización: CORPORACIÓN EDUCATIVA CRUZ SACO Nombre del entrevistado: NERIDA DE MARIA GALLARDO NAVARRO La información de contacto de la persona entrevistada: FP7 GA n° 288594 Page 87 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ( X ) Dirección de correo electrónico ( x ) Número de teléfono 7176520 – 989198627 – 411* 6135 Fecha: 18 de febrero del 2013 Modo de la entrevista: ( X ) Correo electrónico [email protected] ( ) Teléfono: Preguntas por Temas TEMAS Su organización 1. ¿Puede describir la misión de su organización? Formación integral de alumnos, educando a los alumnos para ser personas analíticas críticas y reflexivas, con alto sentido social; conocedores de su historia y riqueza ambiental, así como su diversidad cultural y étnica. 2. ¿Cuáles son las necesidades de salud de las personas que su organización representa? Control médico constante, como medio preventivo. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Por ser una entidad particular, cuya población estudiantil pertenece al sector B; la tecnología móvil brindaría no solo la facilidad de obtener información sino también capacitación en temas de salud preventiva. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? No hay un presupuesto para la adquisición de equipos audiovisuales y multimedia en todas las aulas del plantel. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? .La tecnología móvil podría ayudar a ampliar el alcance de una educación alta calidad. equitativa y de 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? No hay personal permanente (programa de tutoría) que detecte y analice las necesidades de conocimientos, formación y competencias de los mismos. FP7 GA n° 288594 Page 88 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Charlas y conferencias virtuales que permitan intercambiar estrategias e identificar las tendencias y necesidades futuras de formación y nuevas ocupaciones que las empresas requieran; en la que los alumnos egresados puedan desarrollar sus capacidades 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? La necesidad de los alumnos de estar a la vanguardia de los tiempos y de su generación. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Llegando a todos los sectores poblacionales y evitando que eso cree desigualdad en la educación de nuestra niñez y juventud. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? Carencia de poder adquisitivo de un 40% de la población para acceder a la tecnología móvil. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades • • El aprendizaje móvil ofrece la oportunidad para abordar y acceder a información importante de manera que los alumnos logren un aprendizaje significativo y motivador. Aunque el aprendizaje móvil proporciona la oportunidad para acceder a nuevas competencias educativas y su evaluación, su implementación debería ser equitativa y al menos alinearse de acuerdo con las necesidades educativas actuales y en todos los sectores. 4.- PEOPLE FROM ISOLATED AREAS 4.1 Amazon: Main Ethnic Groups (Indigenous, Caboclinhos, Ribeirinhos) – Interview data Interview: People living in Isolated Areas: Amazon - Peru Name of Organization: YINE YAME-CEPOXY YINE Mission To have complete spiritual life and life vision for social and human development, based on the principles of justice, reciprocity, equity, solidarity, innovation, respect and discipline. Health needs How can mobile technologies solve those needs? Most of our communities are so far away that we have to take a boat in order to check for endemic diseases. FP7 GA n° 288594 Page 89 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU • Low quality of knowledge about the indigenous health system • There is no state policy that promotes the indigenous health system • There is a progressive increase of child malnutrition • Prevalence of gastrointestinal infections and parasitoids in the Amazon area • Emergence of new and unknown diseases in the communities • There is neither promotion nor harnessing of the elderly knowledge about medicinal plants • There is no appreciation for the work of midwives, or to be assisted, or in cases of emergencies, they can only get help by helicopter. If we had more technological help, distances would be shorter by using cellular phones; yet there are no lines in these areas and we only have electricity a few hours or we use an engine that generates electricity. Educational needs How can mobile technologies solve those needs? • There are no education centres for superior education that are decentralized and at the reach of the indigenous communities. • There is little promotion of policies for the development of Bilingual and Intercultural Education. • There is presence of non-indigenous teachers in indigenous primary schools. • Child malnutrition influences low school performance. • The indigenous communities lack enough human resources in different specialties. • Most of the bilingual schools have only one teacher. • In those schools located in faraway communities, teachers do not meet all the teaching periods for the year. • There is limited indigenous participation in State offices in the Educational administration. • Low quality of children´s education across all educational levels. • The limited income of the parents is one factor limiting youth´s access to superior education in the city. • Low numbers of indigenous teachers with bilingual skills. • Ancient knowledge is increasingly forgotten by the indigenous communities. For the last several decades, access to education is the most important aspiration for all native communities, even for those located in isolated areas. In fact, the formation of communities in the Bajo Urubamba can be explained by the creation of the school, which facilitates children´s daily access to the school. Occupational needs How can mobile technologies solve those needs? • • • We are the sector of extreme poverty in the country. We have not developed awareness about financial self-sustainment. We strongly depend on financial organizations. Psychological needs How can mobile technologies solve those needs? FP7 GA n° 288594 Page 90 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU • • • There is a high rate of alcoholism due to lack of education There is high promiscuity especially among the youth There is a market for trading female children of our communities. Other social needs How can mobile technologies solve those needs? • The State assigns others the ownership of indigenous territories • There are environmental NGOs that separate the woods from the nature of their inhabitants • The state is resistant to acknowledging community reservations • Limited communication between the organization and the population at its basis • Some leaders do not inform or disseminate information to the communities about the activities conducted by the local, regional or national organizations. • Lack of access to communication media (radio, newspapers, television, etc.) • Too few roads at the border areas. • There is no access to Internet in the communities. • Limited cargo and passenger transportation services to the border areas. • Non-regular plane services to the border areas. • The estate lacks a plan for the development of communication media for indigenous communities. We are stronger when we communicate; we are building a web portal, which is the largest in Peru about the indigenous people; most of our social organizations are linked within a network and we would like to develop an intranet with more technology for informatics; and we are especially training our indigenous youth so that the work can be conducted by themselves. 4.2 Andes: Main Ethnic Groups (Quechuas and Aymaras) -interview GUÍA DE ENTREVISTA País: ( ) Brasil ( X ) Perú Grupo: PRINCIPALES GRUPOS ÉTNICOS ( QUECHUAS Y AYMARA) _______________________________________________________________ Nombre de la organización: ASOCIACIÓN DE COMUNIDADES ALTO ANDINAS DE AYACUCHO Nombre del entrevistado: MARINO BARRIOS MIKULLA La información de contacto de la persona entrevistada: FP7 GA n° 288594 Page 91 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ( X ) Dirección de correo electrónico [email protected] ( ) Número de teléfono984907034 Fecha: 26-02-2013 Modo de la entrevista: ( ) Correo electrónico ( x ) Teléfono Preguntas por Temas Su organización 1. ¿Puede describir la misión de su organización? Trabajar Con Poblaciones rurales, periurbanas y Urbanas Promoviendo El Acceso a Una Vida Sana Con Educación, salud, autogeneración y de Ingresos, implementando estrategias para mejorar Su Sistema de Saneamiento y Su inclusión en Espacios Económicos, sociales y el desarrollo de su local. 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? Se observa el aumento de la población mayor de 65 años en la región y prevé que en los siguientes años Ayacucho tendrá una población más envejecida, dato que nos sugiere que habrá mayores necesidades de servicios de salud en los adultos mayores. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Recién se están haciendo convenios para que entre las redes puedan usar RPM a fin de tener comunicación inmediata respecto a la situación de los pacientes y si llegaría más tecnología tendríamos mucha ayuda ya que podríamos comunicar al centro de salud más cercano que estamos enviando un paciente y por ende poder trasladarlo sin demora. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Son muchas las necesidades educativas estamos a más de 4,000 metros sobre la cuenca del río teniendo en cuenta que los centros de salud y colegios están a casi dos horas muchos de nuestros niños se dedican a la siembra y cosecha o pastear a sus animales existe mucho analfabetismo. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Debido a lo agreste de la zona no contamos con servicios móviles dígase internet o teléfonos celulares a veces tenemos dos horas o de lo contrario debemos bajar a la población más cercana. Si la tecnología móvil llegara en primer lugar nos ahorraríamos mucho tiempo y nuestros niños podrían recibir mejor capacitación. FP7 GA n° 288594 Page 92 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? La organización de la tierra es de pequeñas parcelas con propietarios y casi saturada de viviendas. La falta de espacios libres para pastoreo, hace de que los pobladores se desplacen a las partes altas, no solo para asegurar estancias ganaderas, sino también de producción agrícola ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? Estas comunidades ubicadas en las partes altas (punas) de la provincia de Huanta - Ayacucho, han llegado a ser referente emblemático de la violencia política en el Perú ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Social. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades FP7 GA n° 288594 Page 93 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU INTERVIEWS FROM BRAZIL 1.1 People with visual impairment and blindness – Interview data Name of the organization: INSTITUTO SÃO RAFAEL - Brazil Mission: Educate, empower and rehabilitate people with visual impairment with or without other limitations. Health needs How can mobile technology help address these needs? The institution works with adults with recent vision loss and also to people with other forms of disability, including mental retardation and dystrophy. In cases of acquired deficiency it is necessary the work of a multidisciplinary team to support the disabled in the complicated process of acceptance of disability and learning how to live with it. Work which extends to the family of disabled that passes through the same process. The use of technology, mobile or not, with voice features such as mobile phones, watches and internet, to facilitate communication without barriers, has improved the process of accepting and living with disabilities. Educational needs How can mobile technology help address these needs? Ensure that the institutions and teachers are better prepared to work with people with visual impairments. The major problem is how to access the content to be studied. Access to the material that the teacher has available. The student will receive the study material in a timely manner at the appropriate time to follow the lessons. This is difficult considering the demand of material in Braille. The possibility of access to the study material in digital format allows access in a timely manner. The use of a pen-drive, a netbook with appropriate reading software allows the student to study with mp3 files, access to digital books, increases the chances of access to knowledge and the possibility of doing research. But this requires that the visually impaired have access to appropriate technologies with software for reading and knowledge to use them, which implies in a relatively high cost for a group, in general, of low income people and also a greater investment in training the visually impaired to use digital technologies (computer, internet, telephones, etc..). What are the professional needs of the people in your organization? How can mobile technology help address these needs? There is a need to reduce barriers in seeking and access to job openings and also facilitate communication within the work avoiding that a person is left aside. Most disabled people served by the institution do not work and survive of receiving the Continuous Cash Benefit, BPC. FP7 GA n° 288594 Page 94 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU The use of mobile technologies in general opens up new possibilities for communication for the disabled, both for accessing job openings as well as providing support for wellbeing in the workplace. Psychological needs How can mobile technology help address these needs? The handicapped targets of this institution’s work, generally, present very low self-esteem due to their disability and dependency. Actions of multidisciplinary teams in the sense of empowerment and increased self-esteem are fundamental. The learning and use of mobile and digital technologies in general, by itself, increases self-esteem of disabled people supported by this institution, highlighting their ability and independence as they can communicate without the help and mediation of third parties. Being able to use technologies such as cellular phone, address book, computer, and internet, adapted for their needs, is above all a great help to strengthen self-esteem and confidence of disabled people, in addition, to the independence enabled by these tools. Social needs How can mobile technology help address these needs? The visually impaired with or without other disabilities generally fall in the category of low-income population, supported by social benefits. The social exclusion resulting from the scarce resources is magnified with the limitations imposed by disability. The increased accessibility of visually impaired to communication and access to information and knowledge certainly opens new possibilities to get out of this condition of risk of exclusion. Access to mobile technologies makes the disabled feel included. Access to a compatible phone, to software such as Portable Scanner Reader (SLEP), that captures images and reads text to the user or applications to identify colors and money bills. Access to social networks via the Internet enabling communication, long and constant conversations with people anywhere in the world, dramatically increases the sociability of the disabled expanding their social resources in all aspects. This access, however, depends on the possibility to purchase equipment (phones, laptops, etc.), usually more expensive when compatible with existing software and applications tailored for the blind and the availability of these in native language. Not forgetting the demand for training of disabled people to use these technologies, very poorly attended, which reduces the positive results it could produce. 1.2 People with hearing impairment and blindness – Interview data GUÍA DE ENTREVISTA: Grupo: pessoa com deficiencia auditiva _______________________________________________________________ Nombre de la organización: Nombre del entrevistado: Tamiris Aro de Medeiros FP7 GA n° 288594 Page 95 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU La información de contacto de la persona entrevistada: ( x) Dirección de correo electrónico [email protected] ( x) Número de teléfono- 11 45111438 Fecha:10/03/2013 Modo de la entrevista: ( x ) Correo electrónico ( ) Teléfono Preguntas por Temas TEMAS Su organización 1. ¿Puede describir la misión de su organización? 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? Soy una persona con discapacidad auditiva bilateral profunda. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Ayuda a incluir a las personas con una discapacidad determinada, el mundo globalizado. Me ayuda a comunicar con mis amigos a través de mensajes de texto y red sociales. Me ayuda a tener una vida social más fuerte, en mis relaciones con amigos y parientes 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Necesitan aprender a usar las tecnologías, y que los maestros estén preparados para ensenar personas como yo. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Las tecnologías móviles ayudan más como una herramienta para la inclusión y el conocimiento. Se requiere adaptar el contenido para personas como yo. (lenguaje de libras , etc) Podrían tener alguna aplicación para comunicar mejor con personas que son normarles Yo uso SMS (400 por mes) para estar con mis amigos, mi teléfono es uno Samsung C3313T. 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? Son personas que a menudo tienen problemas para vivir en sociedad con otros, las personas normales (oyentes). FP7 GA n° 288594 Page 96 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Tenemos necesidades de una persona normal, pero hay veces que no logramos tener una vida normal por falta de recursos o de herramientas que nos podrían ayudar. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Podrían tener alguna aplicación para comunicar mejor con personas que son normarles Ayuda a tener una comunicación con otras personas, y no a los oyentes que escuchan. 6. ¿Qué otras necesidades sociales de las personas de su organización representa? El tiene que tener una buena relación con la sociedad. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Las tecnologías ayudan a poner a las personas normales y la sociedad globalizada en mejor contacto discapacitados. 2 CHRONIC PATIENTS 2.1 People with persistent communicable conditions: HIV/AIDS – interview data People with persistent communicable conditions: HIV/AIDS - Interview data Name of the organization: Grupo de Apoio e Prevenção aos Portadores da Aids (GRAPPA) - Brazil Mission: The Support Group for Prevention and for Patients with AIDS (GRAPPA) is a civil, philanthropic entity, recognized as municipal and state public utility, founded in 1992 with headquarter in Montes Claros / MG. This city is a receiving pole for treatment of patients with STD / HIV / AIDS throughout the north of Minas. The GRAPPA is the unique institution in this region to meet this population, with the aim of a prevention work oriented to decrease HIV / AIDS epidemic in the region Initially in its functions, the institution had as its goal the development of actions of an essentially humanitarian and assistance. As the years passed, we noticed a change with regard to the epidemiological profile, especially with the discovery of antiretrovirals. These changes demonstrate the need to work the recovering of the individual, building a vital and ongoing debate, targeting the best form of action to seek recovery of the individual and their reintegration into society, in order to break the stigma and prejudice that still exist. It is understood that this transformation process is gradual and in this sense it seeks partnerships that can contribute to the effectiveness of these actions. Since its creation, the GRAPPA has been recognized by local public health agencies as an important entity in support of minorities. Thus, the entity has easy transit routing for necessary treatment in places of care when needed. We also have ten beds for people with HIV / AIDS in the university hospital covenant with SUS. It has a great partnership established with the State Health Department with the supply of condoms, FP7 GA n° 288594 Page 97 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU graphic material, necessary information for the achievement of our activities and agreements signed since 2004. Health needs How can mobile technology help address these needs? Patients living with HIV / AIDS need to have a differentiated approach to health, because they are more vulnerable to getting sick, so the need to be monthly followed by being infectologist. The technology helps a lot, because most live in other cities and use the phone to schedule appointments and tests. Education needs How can mobile technology help address these needs? Like anyone else, not only for people living with HIV / AIDS, education is essential and technology is very important, since many of them make online courses now. Occupation needs How can mobile technology help address these needs? Today users living with AIDS, unfortunately despite profession, suffer much prejudice and often end up being excluded from the labor market. Psychological needs How can mobile technology help address these needs? Everyone needs to be accompanied by therapy to be able to deal with the disease. Mobile technology is one way that they use to look up and meet other testimonials from people who have experienced it and now can be adapted to reality Social needs How can mobile technology help address these needs? Need to have a normal life and be respected, not judged and excluded. Technology can work with the prejudice in the society in general. 4 PEOPLE FROM ISOLATED AREAS 4.1 Amazon: Main Ethnic Groups (Indigenous, Caboclinhos, Ribeirinhos) – Interview data Interviews: People living in Isolated Areas: Amazon - Brazil FP7 GA n° 288594 Page 98 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Name of the organization: Grupo Interdisciplinar de Estudos Sócio-ambientais e de desenvolvimento de Tecnologias Sociais na Amazônia – Grupo Inter-Ação. (Interdisciplinary Group for Social and Environmental Studies and Development of Social Technologies in the Amazon) Questions by Topics TOPICS Mission The Inter-Ação Group (Interdisciplinary Group for Social and Environmental Studies and Development of Social Technologies in the Amazon), created in January 2001, works in the development of studies on social, environmental and organizational dynamics of populations of the Amazon. This Group has been enabling the obtainment of technical, operational and scientific expertise of the reality and actions developed with these communities whether urban or rural areas, aiming at the creation of subsidies for the formulation of public policies in the region. It has as a main premise “have knowledge to act, the continued construction of acting and appreciation of creative and recreative capacity of social actors involved”. In this sense, as a group of university research and extension, we have the following mission: RESEARCH: Produce knowledge about the Amazonian reality to support the formulation of public policies in the region, encouraging the formation of researchers, with ethics and respect for social workers and the environment. The research aims: a) understand the dynamics of social agents and their knowledge, b) systematic development of scientific-technical knowledge in conjunction with popular wisdom. SCOPE: To develop social educational activities based on an instructional and pedagogical dialogue that values the knowledge and skills of social workers, in collective praxis, in dialectical exchange, in an exchange of experience focused on the enrichment of all. Health What are the health needs of individuals your organization represents? The health needs faced by riverside communities are numerous, since the health system does not cover, effectively, these communities due to lack of available goods and services (medicines, equipment, health professionals, among others) to meet demand presented by the local population. Medical care is poor, there is no health center, and limited access to medicines. Although in some cases there is a health worker in the communities, lack of supplies, equipment and qualified personnel to provide assistance or care for the simplest cases of illness. In cases of serious diseases, the major difficulty is the offset to the headquarters of the municipalities of Amazonas State. An alternative found to substitute industrialized medicines is the traditional knowledge from these populations. Medicinal plants, used extensively in this region only for consumption by the community, are prescribed by those who know them well, being used for health problems from accidents to tropical diseases like malaria, for example. Medicinal plants most used by domestic groups in the community are lemon grass, elixir, peppermint, elderberry, holy grass, Boldo, corama, Jambu, jucá, opossum-caá, sacaca, parsley, purple clover, vulture caá, among others. There is even the experience of the Community Garden of Medicinal Plants for treatment and preventive health care with more than 1,500 plants and 150 species, as well as the Community FP7 GA n° 288594 Page 99 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Pharmacy with Medicinal Plants which provides guidance on the management of the herbs, health care and seedlings to the surrounding communities, both are configured as Social Technologies. a. How could mobile technologies help solve these needs? In the case of health, mobile technology can aid in relief (communication) and the agility of the process of mobility both the Public Health team from the city, but also in the dialogue for the displacement of the Community for treatment in the town, for the riverside population, in the most serious cases, since the great difficulty encountered by these populations is the displacement of the sick to the city, as well as in disease diagnosis. Education What are the educational needs of individuals your organization represents? In the Amazon riverside communities access to education is characterized by limits and difficulties arising from the scarcity of public policies in education focused on local reality. Among the limitations and difficulties put to this population to access the education, stands out: The absence of schools in communities, up to primary schooling, when available. The difficult access to grades beyond primary school, due to the need of travelling to the city. The mismatch between school calendar and the need for development of productive activities. Remoteness between local reality and the knowledge disseminated in school as well as teaching materials, whose content is not directed to local realities. Among the many issues identified in the riverside population's access to school, there is the fact that only primary level is offered, since the offering of further education is low compared with the existing demand. In this sense, despite the extensive list of difficulties the level of interest by the community for further studies does not diminish. To achieve this households adopt numerous strategies that often generate losses and family breakdown. Among these strategies is the displacement to the city by the children, adolescents and young adults to attend school. Families do not have adequate financial conditions to keep their children in another location and, moreover, have their relationships weakened by the geographical distance. b. How could mobile technologies help solve these needs? Mobile technologies can be an important tool for educational inclusion of the riverside communities in the Amazon. From appropriate technologies, communities can have access to school without having to travel to the headquarters of the municipality. In addition to enabling learning materials focused on local reality. Occupation What are the occupational needs of individuals your organization represents? FP7 GA n° 288594 Page 100 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Since riverside communities of the state are located in remote areas, which hinders access to the communications systems (telephone, cellular) as well as transportation, since most commonly used are Tail (motorized canoes) and small boats, rural producers struggle on the development of their productive activities (fishing, harvesting, raising animals, handicrafts, agricultural production, among others) mainly in the process of distribution and marketing of products. Most farmers cannot sell their products continuously in the headquarters of the municipality or other municipalities, since in addition to the high cost of transportation the communication system (for many riverside communities in the region communication is accomplished by public phones and local radio) is not always working effectively. The lack of access to such communication system makes it impossible for producers to establish direct contact with buyers and traders in town, thus leading producers to sell their products to middlemen, who in general do not pay for products at a fair price, causing losses and harming the income of farmers. How could mobile technologies help solve these needs? Faced with this situation, the development of mobile technologies favor the farmers by establishing direct and permanent contacts with buyers and traders in town and even in other cities, states or countries, by creating more effective channels of communication. In addition to marketing without the intermediation of middlemen, the farmers have greater possibility to trade their products at a fair price and extend the possibilities of selling their products. Psychological support What are the psychological needs of individuals your organization represents? Due to the lack of means of communication of greater amplitude (internet, cell phone, among others) riverside communities’ population from remote areas, themselves, mostly end up establishing social interaction restricted to the site. However, when these agents leave the social community space for broader social spaces, which requires knowledge about the use of the Internet and other means of communication, these social workers are having difficulty accessing them, and to establish dialogue and social interaction that these means of communication allow. This problem has a direct impact on the possibilities of access to information that is fundamental to the development of the daily activities of the community. c. How could mobile technologies help solve these needs? Proving mobile technologies to riverside communities in the Amazon would enable the community to establish means of communication with social workers from various parts of the world, thus favouring greater social interaction and dialogue with other external social agents. It would also favour more accessibility to training courses / instrumentation, information of local interest, sociopolitical articulation, and commercial, among others. This would create new possibilities for interaction and dissemination of local knowledge. Social (other) FP7 GA n° 288594 Page 101 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU What are other social needs of individuals your organization represents? In the conditions of access to social goods and services by many Amazonian communities prevails the scarcity of basic services. In addition to those already mentioned, there is: energy, water, housing, transport and technical assistance in the productive area. Riverside communities in the Amazon often do not have sanitary infrastructure. The bathroom is usually outside the house, just a hole in the ground, and with no running water. Hygiene conditions of this room in particular, are poor, which sometimes aggravate health conditions. Regarding energy, most communities are served by a power generator. The engine maintenance often is left to the community. The residents themselves apportion fuel costs. The cost of this energy is very high for these populations, which sets a very contradictory situation given that Amazon has a large potential for hydropower production. Regarding water, riverside communities commonly use water directly from the river for daily use and consumption, captured without any treatment. rarely communities have piped water and, according to reports from residents, the only form of water treatment is through the use of hypochlorite, which is rejected by many from the community, due to the taste that it causes to the liquid. d. How could mobile technologies help solve these needs? Among the technologies to meet the demands related to access to social goods and services in the Amazonian communities, there is need for developing a participatory way of the following: In the area of energy, mobile technology can contribute to the production of solar energy by supporting the study and the adaptation of this form of energy in the riverside communities so that they may have access to low cost energy that does not generate financial and environmental impacts and meets their needs in the household and other community facilities (flour house, community center, schools, and others). Regarding improving water distribution, mobile technology can help by supporting the discimination in the means of communication for training / instrumentalization of riverside communities and health workers through the most effective means of implementing the water purification system by introducing the Water Treatment Kit for measuring the health conditions of the water and to render them suitable for human consumption. In relation to housing, mobile technology may support by providing training / instrumentalization for the community for the creation of a Community Ecological Bricks Factory. It is worth noting that this technology does not require burning of wood to cure, nor use cement to mount. It is based on a hydrocure process, i.e., cured with water, thus preventing the use of nine trees for every 1,000 bricks manufactured. Thus, in addition to being a technology less with environmental impact and cost, the production of Eco bricks presents itself as a possible alternative for the construction of housing in rural areas, since the use of wood is decreasing due to scarcity and necessity of preserving it. regarding the technical assistance in the production area, mobile technology can assist by creating more effective means of communication for training / instruments to farmers for the production of Agroecological Community Gardens and Nurseries. These technologies are based on the FP7 GA n° 288594 Page 102 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU sustainable management of native plants in the forest area and the supply of seedlings for the surrounding communities allowing the preservation and dissemination of important native species of Amazonian fauna, based on traditional knowledge. In the area sanitary conditions the group proposes the production of community composting toilets built with bricks ecological. Thus, mobile technology can contribute to a better dissimination of training activities / instrumentation within the sanitary conditions of riverside communities in which the Inter-Ação group promotes alternatives to the development of a participatory structure that are linked to health, water processing and preparation of a Strategic Plan on socio-environmental area, which may result in improved quality of life of the riverside population. 4.2 GUÍA DE ENTREVISTA – CDI AMAZÔNIA País: ( ) Colombia (x) Brasil ( ) Perú Grupo: _______________________________________________________________ Nombre de la organización: Comitê para Democratização da Informática Amazônia Nombre del entrevistado: Cláudia Tavares La información de contacto de la persona entrevistada: Dirección de correo electrónico – [email protected] Número de teléfono – (92) 9217-6075 Fecha: 13/03/2013 Modo de la entrevista: ( ) Correo electrónico ( x ) Teléfono TEMAS Su organización 1. ¿Puede describir la misión de su organización? A missão do CDI Amazônia é transformar vidas e fortalecer comunidades de baixa renda e rurais através do uso das tecnologías da informação e comunicação. Fazemos isso abrindo Centros de Inclusão Digital, onde são passados além do conhecimento FP7 GA n° 288594 Page 103 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU técnico em informática, também noções de cidadania, valores e educação ambiental. 2. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Cerca de 65% da população brasileira ainda se encontra digitalmente excluída, essa exclusão limita o acesso a informação, tira o poder de mobilização e impede a participação mais ativa das pessoas em suas comunidades. Outro grande problema refere-se a empregrabilidade, é quase impossível conseguir um posto de trabalho hoje sem ter noções básicas de informática. No Amazonas não é diferente, muitos dos beneficiados chegam as nossas escolas buscando qualificação profissional, nosso grande objetivo é oferecer as informações técnicas necessárias, mas principalmente disseminar noções de cidadania, valores e educação ambiental, para que o conhecimento técnico aliado aos demais possa ser empregado em benefício do ambiente onde ele está inserido, para que possa servir de alicerce à mobilizações e debates que trarão melhores condições de vida à comunidade. 3. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Nas escolas oferecemos cursos de informática básica e avançada, mas muitas tem dificuldade em acessar a internet, acredito que a tecnologia móvel poderia facilitar o acesso das comunidades a rede e consequentemente trazer mais empoderamento. 4.3 GUÍA DE ENTREVISTA – DESCARTE CORRETO País: ( ) Colombia ( X) Brasil ( ) Perú Grupo: _______________________________________________________________ Nombre de la organización: Descarte Correto Serviço Ambiental Ltda Nombre del entrevistado: Alessandro Dinelli La información de contacto de la persona entrevistada: Dirección de correo electrónico [email protected] FP7 GA n° 288594 Page 104 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Número de teléfono (92) 4102-0013 Fecha: 13/02/2013 Modo de la entrevista: ( ) Correo electrónico (x) Teléfono Preguntas por Temas TEMAS Su organización 1. ¿Puede describir la misión de su organización? Reduzir os impactos ambientais causados pelo descarte incorreto do lixo tecnológico, através da gestão e tratamento de resíduos, fazendo com que estes possam retornar à cadeia produtiva como materia-prima, economizando assim recursos naturais. Além dos serviços de gestão de resíduos, investimos também em ações educativas que tem o objetivo de disseminar o conceito. Realizamos anualmente duas campanhas públicas de sensibilização e arrecadação, uma em junho durante a semana do meio ambiente e outra em dezembro chamada “Semana do Descarte Correto”, como também implantamos pontos de coleta em comunidades que são Centro de Inclusão Digital e em lojas de varejo. 2. ¿Cuáles son las necesidades educativas de las personas de su organización representa? O grande desafio para todos que trabalham no segmento de reciclagem é o fator cultural, as pessoas não tem o costume de descartar os seus resíduos de forma adequada, não há preocupação em separar e reutilizar, o lixo é simplesmemte acumulado e encaminhado para o aterro. Para os resíduos tecnológicos não é diferente, é comum ver materiais que possuem metais perigosos em sua composição como monitores, CPUs e teclados descartados de qualquer forma. Nesse cenário, a grande necessidade do público a que atendemos refere-se a educação, a disseminar o conceito em maior amplitude e garantir que riscos como esse sejam evitados. FP7 GA n° 288594 Page 105 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 3.¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? A tecnologia móvel facilitará a disseminação do conceito, ajudando-nos a sensibilizar um número maior de pessoas, assim como divulgar e localizar os pontos de coleta, tornando o descarte algo mais simples e acessível. FP7 GA n° 288594 Page 106 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU INTERVIEW FROM COLOMBIA GUÍA DE ENTREVISTA País: (X) Colombia () Brasil () Perú Grupo: _______________________________________________________________ Nombre de la organización: LIGA COLOMBIANA DE LUCHA CONTRA EL SIDA Nombre del entrevistado: RICARDO GARCIA GUTIERREZ La información de contacto de la persona entrevistada: AV 32 NUMERO 14- 46 TEUSAQUILLO () Dirección de correo electrónico: rgarcia @ligasida.org.co () Número de teléfono- 3212054085 Fecha: Marzo 6 2013 Modo de la entrevista: (x) Correo electrónico () Teléfono Preguntas por Temas TEMAS Su organización 1. ¿Puede describir la misión de su organización? La Liga Colombiana de Lucha contra el Sida, es una ONG que tiene como fin mejorar la calidad de vida de las personas viviendo con VIH o con Sida, prevenir el avance de la epidemia y controlar sus efectos sociales en la comunidad mediante programas de prevención, diagnóstico, atención y derechos y humanos con personal y una tecnología apropiada. 2. ¿Cuáles son las necesidades de salud de las personas de su organización representa? FP7 GA n° 288594 Page 107 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU La mayoría de nuestros usuarios se encuentran abocados a buscar alternativas de asesoría psicológica, medica, jurídica y de aseguramiento en salud, además de la asesoría para la realización de las pruebas voluntarias en la toma de muestras para VIH, WB Y OTRAS que contribuyan al diagnóstico oportuno, como también de búsqueda activa de medicamentos, algunos por falta de afiliación al sistema de salud y otros por negación en su aseguradora, capacitación a profesionales de la salud y servicio de escucha y orientación para toda la comunidad. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Realmente, solo se utilizan las redes sociales para convocatorias a proyectos, a participación de las pruebas rápidas para iniciar la fase de diagnóstico en VIH y la utilización de fan page para actualidad en vih y servicios. 3. ¿Cuáles son las necesidades educativas de las personas de su organización representa? Existen muchas necesidades frente a la prevención y promoción en la salud sexual y reproductiva, enfocándose en comunidad en general, la idea es que se pueda llegar a todas las personas en cuanto formación e información frente al tema del vih sida, actualmente existen altos índices de analfabetismo, índices oscilan entre un 6.6% en las cabeceras municipales y un 21% en las zonas rurales. En realidad todos sabemos que los índices son mayores, aunque de acuerdo a las cifras oficiales pareciera que existe un cierto avance en la solución de la problemática del analfabetismo. Pero la situación educativa se complica todavía más si abrimos el concepto de analfabetismo a otros campos como el tecnológico e informativo o simplemente a la lectura de los mensajes que circulan en nuestra sociedad a través de las imágenes, mediante los llamados mensajes o textos icónicos. De hecho, un informe de la UNESCO de finales del 2002, sobre las metas establecidas en el foro mundial sobre la educación, realizado en Dakar (Senegal), ubica a Colombia entre los países con riesgo de no reducir a la mitad el número de analfabetas de aquí al 2015. Sumado a ello, encontramos dinámicas sociales que permiten que la población femenina de nuestro país se encuentre en total desventaja frente a la población masculina frente a la toma de decisiones en su salud sexual y reproductiva; mitos, masculinidades entre otros, permiten que no exista una equidad de género frente al tema de la sexualidad y la prevención. Ya una vez diagnosticado el usuario encuentra barreras de acceso a la inclusión al sistema de salud, temores, discriminación, señalamientos entre otros se constituye en principal obstáculo para poder acceder a su servicio y a esto se le suma la problemática del sector salud y sus deficiencias, algunos usuarios poca receptividad en el momento de la entrega de su diagnostico y le permite crear vacios informativos por tanto , lo deseado es contar con guías o herramientas, que permitan orientar paso a paso al usuario en el afrontar un diagnostico , manejo de la información, confidencialidad entre otros. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Siempre la información de la red se constituye en mecanismos de apropiación de la información, algunos contaran con recursos móviles de consulta frente a diferentes páginas de información, FP7 GA n° 288594 Page 108 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU pero otros no cuentan con el recurso para la adquisición de los mecanismos móviles, la facilidad del acceso a la información y la confidencialidad frente a la consulta seria una herramienta que facilitaría la vida a nuestro usuarios. 4. ¿Cuáles son las necesidades ocupacionales de las personas de su organización representa? Oportunidad y acceso a la información de punta, actual y de avanzada. Bienestar social para las personas que trabajamos en vih / sida, generalmente la sobre carga emocional que se vive es grande. Estabilidad económica, ya que muchas de las organizaciones de las que trabajamos en Vih / sida, son ONG que no cuentan con contratos laborales. Recursos limitados, ya que estamos sujetos a los recursos de los proyectos que se ponen en marcha. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Actualmente no contamos con tecnologías móviles a excepción de dispositivos BB, que facilitan procesos de comunicación entre los usuarios internos y externos de LIGA SIDA, falta actualizar algunos mecanismos de comunicación y adoptar nuevas tecnologías que permitan llegar a mas usuarios que necesiten de nuestra intervención y asesorías. 5. ¿Cuáles son las necesidades psicológicas de los individuos de su organización representa? Principalmente las relacionadas con bienestar social, hay sobre carga de emociones, estrés, algunos episodios de depresión relacionados al manejo de la información o relación usuario-asesor y sobretodo la frustración que se puede vivir por querer participar activamente en el desarrollo de competencias educativas que permitan innovar en herramientas pedagógicas para el beneficio de nuestra comunidad. ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Pienso que la facilidad que brindan las tecnologías móviles, permitirían un mejor acceso a las herramientas pedagógicas; mayor y mejor calidad de vida para los individuos de la y las organizaciones que representamos, inclusión a programas de desarrollo, cajas de compensación, programas pensados en y para ONGS 6. ¿Qué otras necesidades sociales de las personas de su organización representa? Inclusión laboral, facilidades para el acceso a una vida digna, vivienda, educación, transporte, cobertura en salud y pensión, para muchos de los usuarios internos y externos ya que contamos con personas seropositivas dentro de las organizaciones que trabajan con vih. Una mejor sede, que facilite mayor beneficio para nuestros usuarios, faltan arreglos locativos para mejorar y brindar un servicio de calidad FP7 GA n° 288594 Page 109 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ¿Cómo las tecnologías móviles ayudan a resolver estas necesidades? Se hace necesario el desarrollo de cooperativas o fondo de empleados para las personas que trabajan en organizaciones en vih/ sida, como para sus usuarios, que permitan facilitar el acceso a todos los beneficios de una economía solidaria (modelo colombiano) o una economía que beneficie a todos los participantes de las mismas organizaciones. FP7 GA n° 288594 Page 110 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ANNEX 5: ONLINE DATA SEARCH IN PERU 1.2 People with Deafness and Hearing Impairment – On-line data Summary - People with Deafness and Hearing Impairment - Peru General Description of Source Summary CALL FOR TECHNOLOGY ALL New Location Services And notice for Dependents Short description Sensory impaired people, deaf and blind, they begin to have mobile terminals adapted to their needs. In addition, technology makes it available to other sectors of the population as the intellectually disabled. Geographic locators provide the location of the person by phone or online. EMERGING HEALTH Deaf people use mobile phones for their CARE TO YOU BY communication skills through short text DISABLED NEW messages called SMS. Our work also has COMMUNICATION included other mobile messages that are TECHNOLOGIES. called MMS (multimedia messages) in addition to the text that you can include a picture or even a video. With this we obtain increasing information and improving communication. DEAFNESS AND The rise of information technology has NEW also influenced teaching methods, TECHNOLOGIES allowing for greater versatility aside in the presentation and access to content and, secondly, the promotion of alternative media: Viewing and voice parameters of speech. MOBILE Movistar offers people with hearing TELEPHONE impairment linked to the Spanish HEARING Confederation of Parents and Friends of IMPAIRED the Deaf (FIAPAS) Induction Loop Nokia LPS-4, a device that allows hearing aid users and cochlear implants connected mode T maintain fluid communications without interference by mobile phone TECHNOLOGY One of the devices that is known to be FP7 GA n° 288594 Source http://www.portalsolidario.net /utopia/seccion_01.php?idrevis ta=55&rowid=863&orden=3&s eccion=Discapacidad http://www.revistaesalud.com/ index.php/revistaesalud/article /view/186/474 http://recursostic.educacion.es /observatorio/web/es/compon ent/content/article/391monografico-sordera-y-nuevastecnologias?start=1 http://www.faqmac.com/noticias/telefoniamovil-para-personasdiscapacidad-auditiva/20245 http://abrahambartual.wordpr Page 111 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU SUPPORT FOR PEOPLE WITH HEARING IMPAIRMENT special in the educational environment for people with deafness is the SUVAG, an instrument that is part of the proposed intervention from the method of Guberina verbotonal. In fact, his system stands for Auditory Verbal Guberina Universal ess.com/ayudas-tecnicas-ensordera/ What health needs are presented and/or discussed Are these needs addressed by mobile technology? The mobile phone being the most current tools and greater use in the general population and in addition, also in the hearing impaired. Deaf people use mobile phones for their communication skills through short text messages called SMS. In our work also has included other mobile messages that are called MMS (multimedia messages) in addition to the text that you can include a picture or even a video. With this we obtain increasing information and improving communication. What educational needs are presented and/or discussed Are these needs addressed by mobile technology? The rise of information technology has also influenced teaching methods, allowing for greater versatility aside in the presentation and access to content and, secondly, the promotion of alternative media: Viewing and voice parameters speech, the automation of certain systems of training or learning, the ability to perform and observe simulations of phenomena that was so far only explained to the students through language; all these resources are very useful for all students but they are especially for those who have limitations in understanding and / or language skills. What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? These actions are intended by both Telefónica FIAPAS to promote and publicize the services and technological advances that improve accessibility to information for people with hearing disabilities, eliminating communication barriers and furthering independent living and integration. What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? None What other social needs are presented and/or discussed Are these needs addressed by mobile technology? The general consideration of the specialized manufacturers that start as the Spanish company is that the current mobile offer dominates the design against usability: it is becoming more sophisticated and difficult to use, especially for people with special needs or any of disability. And there are many: in Europe about 22.5 million people have hearing loss. In Spain there are approximately one million people affected by hearing impairment of varying degree and kind. FP7 GA n° 288594 Page 112 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Summary - People with Deafness and Hearing Impairment - Brazil General Description of Source Name Federação Nacional de Educação e Integração dos surdos Confederação Brasileira de Surdos USP Política Nacional de Educação Especial Hostdeaf FP7 GA n° 288594 Short description National Federation of Education and Integration of Deaf, philanthropic, nonprofit entity with socio-cultural, educational and assistance purpose that aims to defend and fight for the rights of Brazilian deaf community. Affiliated to World Federation of the Deaf. Mission: to spread the Brazilian Sign Language - LIBRAS. CBS - Brazilian Confederation of Deaf, an organization founded on November 22, 2003, aims to create new methods to facilitate and ensure the proficiency of the Portuguese language through the Brazilian Sign Language - LIBRAS, its interest is on improving the process of acquisition and the development of writing skill and understanding of the Portuguese Language for the society, in particular, for deaf children. Study on inclusion of people with special needs and / or the practice of health professionals in this area. The theme proved controversial, some even advocating segregation. Health professionals occupy a prominent place, but some authors also value activities outside the therapeutic setting. The development of the diagnostic has been seen paradoxically: treatment / labeling. Culture is identified as having a central role. Still, people with special needs are barely heard. Complex social process. National Policy on Special Education Perspective of Inclusive Education. Document prepared by the Working Group appointed by the Ministerial Decree No. 555 of June 5, 2007, extended by Ordinance No. 948 of 09 October 2007. website http://www.feneis.org.br/pag e/feneis.asp Portal Hostdeaf develops and hosts, free of charge website for non-governmental organizations and nonprofits, also with focus http://www.hostdeaf.com.br/ http://www.cbsurdos.org.br/a ssociacoes.htm http://www.revistasusp.sibi.us p.br/scielo.php?script=sci_pdf &pid=S167851772005000300009&lng=pt& nrm=iso&tlng=pt PDF http://www.revistasusp.sibi.us p.br/pdf/psicousp/v16n3/v16 n3a09.pdf http://portal.mec.gov.br/sees p/arquivos/pdf/politica.pdf Page 113 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU on social inclusion with sites for deaf entities. What health needs are presented and/or discussed Are these needs addressed by mobile technology? What educational needs are presented and/or discussed Positive point was the public policies for the official use of the Brazilian Sign Language – LIBRAS, but, they still need improvements for inclusive education for deaf people Are these needs addressed by mobile technology? What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? What other social needs are presented and/or discussed Are these needs addressed by mobile technology? http://www.publico.pt/Sociedade/vodafone-cria-primeiro-servico-de-atendimento-para-surdosno-pais-1545491 1.3 People with Mobility Impairment – On-line data Summary - People with Mobility Impairment - Peru General Description of Source Summary Short description INVESTIGATE NEW APPLICATIONS OF MOBILE TECHNOLOGIES IN EDUCATION In 2016, smartphones and tablets will be the http://guiacirugiaestetica. main arena of health care strategies, risk com/necesita-su-clinicamanagement, medical monitoring and estetica-un-director-demarketing and sales for health care providers. movilidad/ TELEFÓNICA REINFORCES ITS BET FOR HEALTH WITH A NEW BUSINESS UNIT Telefonica announced today the package of products and services that make a digital health division, which includes seven applications that allow decentralization of clinical processes, virtual care to patients with mobility disabilities and contact for videoconferencing professionals. In recent years, thanks no doubt to his own Exclusion or efforts, people with disabilities (PWD) and their discrimination? relatives have been, through their The Case of People FP7 GA n° 288594 Source http://www.hoytecnologia .com/noticias/Telefonicaredobla-apuestasalud/186630 http://www.eumed.net/cu rsecon/ecolat/pe/smz.htm Page 114 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU with Disabilities in organizations, capturing the attention of the the Peruvian Labor State and the rest of Peruvian society regarding Market the acute conditions of marginalization and social exclusion that they face daily and have had a particularly effect on their living conditions and access to welfare RESEARCH OF Education applications of mobile technologies http://www.solociencia.co APPLIED MOBILE "have a greater impact the lower the age of the m/informatica/11071686. TECHNOLOGIES TO students," so it seeks to employ these htm EDUCATION technologies from the earliest stages. PRESENTATION OF THE WHITE BOOK FOR THE DESING OF MOBILE TECHNOLOGY— ACCESIBLE AND EASY TO USE The information society is becoming more ubiquitous thanks to the development of mobile communications: multimedia devices and 3G data traffic, among other technologies that allow the user access to services that integrate themselves increasingly, making the user less dependent on the use of a traditional computer (desktop) connected to the Internet via cable. http://blog.amovil.es/AM ovil http://blog.amovil.es/AM ovil What health needs are presented and/or discussed Are these needs addressed by mobile technology? Peruvian Law 27050, known as the "General Law of Persons with Disabilities," establishes a legal regime of protection, health care, work, education, rehabilitation, social security and prevention for the disabled to achieve their development through economic and social integration. Telefonica statement: "Health will occupy in the very near future a significant part of the daily activity of Telefonica in all countries where we operate" What educational needs are presented and/or discussed Positive point was the public policies for the official use of the Brazilian Sign Language – LIBRAS, but, they still need improvement for inclusive education for deaf people Are these needs addressed by mobile technology? None What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? This is particularly relevant in the case of the working conditions of the disabled. In a national consultation on the implementation of the rights of disabled conducted by the Special Committee on Disability Studies, Congress of the Republic (CEEDIS) found that about 60% of disabled respondents said they never fulfill their right to decent work, while 39% indicated that this occurred only occasionally. FP7 GA n° 288594 Page 115 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Telefonica, which currently participates in more than 80 telemedicine and telecare projects in nine countries, has in this division of health, Intel and Cisco as technology partners. What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? Unlike the classic studies of discrimination in the case of PWD, it should be noted that the presence of a disability can be related to loss of productivity; therefore these needs affect PCD psychologically. Among the applications, the unit of eHealth offers physicians working sessions and real-time virtual and home telecare service for elderly and disabled who live alone or are at risk, which can communicate with specialists in the form of a button medallion or bracelet. What other social needs are presented and/or discussed Are these needs addressed by mobile technology? Telefonica predicted that in 2020 13.5% of the world population -980 000 000 people-will be over 65 years, and 60% suffer chronic and degenerative diseases, and noted that the shortage of specialists must take into account that they spend between one 30% and 50% of their time in administrative activities not care. In this sense, Telefonica praised the importance of greater integration of health networks and the processes through ICT. Summary - People with Mobility Impairment - Brazil General Description of Source Name UERJ FP7 GA n° 288594 Short description website Education and Health: whole support and http://www.eduinclusi promotion of a better quality of life for people with vapesqhandicap uerj.pro.br/livros_artig os/pdf/edu_saude.pdf Education and Health are interrelated fields in the support to people with special needs, particularly those with handicap, and it is necessary an articulation of the actions of these two areas in order to promote a better quality of life for this population. Special Education has been constituted based on a clinical or medical model, which was predominant up to the 70s, taking afterwards its own trajectory. Approaching this theme, the present article has as its goal to discuss the relation between Education and Health, focusing on the education and therapeutic services and supports for the handicapped. This text presents an historical account of the development of these services. It Page 116 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU discusses also the role of the Education and Health professionals in the families of their clients and students. Secretaria da pessoa com deficiência de SP Programa Viver Melhor – Governo do Amazonas Federação Nacional das APAES O Papel Do Psicólogo Na Inclusão Social Dos Portadores FP7 GA n° 288594 Secretariat of the Rights of Persons with Disabilities http://www.pessoaco – São Paulo mdeficiencia.sp.gov.br MISSION /Ensuring access of people with disabilities in the State of Sao Paulo to all goods, products and services in society. VISION Becoming a world reference in the joint, implementation and monitoring of social inclusion of disabled people by 2015. The Program Living Better is coordinated by the Secretariat of the Rights of Persons with Disabilities - Amazonas (Seped), created by the Governor Omar Aziz and it is divided into three subprojects – 1. Living Better Accessibility, 2. Living Better Rehabilitation and 3.Living Better Motor Activities. The aspect of accessibility includes the reconstruction of homes of people with disabilities by the State Department of Infrastructure (Seinfra), which defines the adaptation project in conjunction with the Secretaries of State for Social Welfare (Seas) and Health (Susam) according to needs of beneficiaries. The Living Better Accessibility includes the distribution of materials and equipment to facilitate the day-to-day and welfare of the disabled person. The State Government also intends to stimulate the production of technological equipment in favor of independence and / or autonomy of persons with disabilities. http://www.amazonas .am.gov.br/2011/12/g overnador-omar-azizlanca-programa%E2%80%98vivermelhor%E2%80%99para-pessoas-comdeficiencia/ http://www.apaebrasil National Federation of Apaes (Association of .org.br/ Parents and Friends of Exceptional Children) - Mission To promote and coordinate actions to defend the rights of persons with disabilities and represent the movement towards the national and international organizations, to improve the quality of services provided by Apaes from the perspective of social inclusion of its users. It's difficult dealing with the different, opening http://www.artigonal. doors and breaking down borders yet when we live com/psicologiaautoin a world of prejudiced. Not everyone is open ajuda-artigos/o-papelPage 117 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU De Necessidades Especiais Manual pessoas deficientes – Ethos minded and able to accept and learn to live with the differences of the other. For patients with special needs is not easy to be integrated into society, because every day is a new difficulty, either locomotion, prejudice to the other or even with their own limitations, already a major barrier for them. Special education is based on the service exclusively for students with certain disabilities. "Access of people with disabilities to the world that surrounds it: the physical world and the world of social relations, the school world, the world of work, the world of culture, sport and leisure" (Amaral, 1994, p.36 .) do-psicologo-nainclusao-social-dosportadores-denecessidadesespeciais1532262.html Manual of Disabled Persons, coordinated by sociologist Marta Gil, Network SacI / Cecae-USP. The Ethos Institute believes that the inclusion is part of the ethical commitment to promote diversity, respect difference and reduce social inequalities. This puts the inclusion of disabled people among the most important issues to be addressed by companies. http://www.ethos.org. br/_uniethos/docume nts/manual_pessoas_ deficientes.pdf What health needs are presented and/or discussed Are these needs addressed by mobile technology? What educational needs are presented and/or discussed The associations are mobilizing the society to guarantee the existence of Special Schools Are these needs addressed by mobile technology? What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? What other social needs are presented and/or discussed Are these needs addressed by mobile technology? 2.2 People with non-communicable conditions: Chronic respiratory diseases – On-line data Summary - People with Chronic Respiratory Diseases – Peru FP7 GA n° 288594 Page 118 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU General Description of Source Summary Short description APPLICATIONS OF TELEMEDICINE AND EHEALTH TO PNEUMOLOGY: TELECONSULTATIO N PULMONOLOGY Even without knowing it, probably many of us have made telemedicine without realizing it. How many times have we all been consulted on an illness, a family member or friend over the phone line? or how many problems we will share with a colleague over the phone? Well, it's as simple as solving certain remote medical questions via the telephone line is also telemedicine. However, today there are great possibilities in the field of telecommunications and telematics. There are many tools with which to make telemedicine today. These tools have changed over time, but the concept of telemedicine and tele-medicine has not done so, defining it in practice as the application of information technology and telecommunications in order to provide good medical care, continuing medical education or health education, regardless of distance and where you are, the patient medical history, the clinician or the temporary variable. SPANISH DOCTORS A group of Spanish doctors have presented the HAVE AN 'APP' ON first application for 'iPhone' and 'iPad' aid in the RESPIRATORY diagnosis of respiratory diseases at the XIII DISEASES Symposium on Chronic Obstructive Pulmonary Disease, held in Barcelona. This technology, called EBUS is a pioneer in Spanish and the first in the world on the use of ecobroncoscopia in these pathologies. Source http://www.revistaesa lud.com/index.php/re vistaesalud/article/vie w/434/292 http://www.entrebits. com/noticias/movil/m edicos-espanolespresentan-una-appsobre-enfermedadesrespiratorias.html PREVENTION OF NON COMMUNICABLE CHRONIC DISEASES None TELEMEDICINE APPLIED TO EMERGENCY CARE: METHODOLOGICAL AND PRACTICAL Currently Telemedicine (TM) is a reality in the http://www.semes.org daily work of many medical specialties. The /revista/vol21_4/9.pdf development and the increased availability of new technologies information and communication, along with the flexibility of connectivity of medical FP7 GA n° 288594 http://www.entrerios. gov.ar/msalud/preven cion-deenfermedadescronicas-notransmisibles/ Page 119 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU equipment enables the medical care of patients who have difficulty access to a hospital. One of the most important applications of TM is the assistance in Emergency Medicine. The experience gained by different medical specialties has allowed a large increase in the possibilities of urgent care, in which TM can be applied in the hospital environment. What health needs are presented and/or discussed Are these needs addressed by mobile technology? O2 is a product "off the charts" and has been recognized worldwide for its efficiency and for being a carrier of Health. Its main benefits are: 12. Increases cellular respiration through the chemical reaction that provides oxygen at the cellular level. 13. Can help stimulate your metabolism functions of nutrient absorption and elimination of "junk". 14. You can help raise energy levels by allowing the body to function cleanly and effectively served by mobile technology. Dr. Roland also points out that "more and more doctors are working with new technologies and it is clear that tools such as EBUS will contribute positively to improving the diagnosis and treatment of disease. What educational needs are presented and/or discussed Are these needs addressed by mobile technology? None What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? None What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? None What other social needs are presented and/or discussed Are these needs addressed by mobile technology? Thus, patient registration, monitoring systems or real-time electronic medical records are some examples of the impact of ICTs in the patient care services urgencias7. FP7 GA n° 288594 Page 120 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Summary - People with non-communicable conditions: Chronic respiratory diseases - Brazil General Description of Source Name Doenças Respiratórias Crônicas no BrasilAliança Global contra Doenças Respiratórias Crônicas - Brasil (GARD Brasil) Short description Chronic respiratory diseases affect all ages and represent a substantial load for both the individual and the society. In Brazil, 15 million people are affected by asthma, allergic rhinitis has 20 million and five million Brazilians aged over 40 have COPD. These figures show that two out of every 10 Brazilians are affected by a chronic respiratory disease. Global Alliance against Chronic Respiratory Diseases - Brazil (GARD Brazil) Many cities in various regions of Brazil have developed programs that provide facilities for health care, education and medication at no cost, but this is still beyond the reach of most people. Among Latin American countries, Brazil is the pioneer in creating an Alliance against Chronic Respiratory Diseases at the national level. This alliance brings together experts in Brazilian chronic respiratory diseases and other health professionals to work for the common goal of improving lung health, as part of the work and effort of the Global Alliance against Chronic Respiratory Diseases. Sociedade The Brazilian Society of Pulmonology and Brasileira de Phthisiology (SBPT) is a nonprofit medical Pneumologia e association, scientific, cultural and Tisiologia (SBPT) representative, founded in 1937. The SBPT is the representative association of experts in the field of respiratory diseases, including pulmonologists, thoracic surgeons, pulmonologists and respiratory endoscopists, represented by their departments. The SBPT has the goal of disseminating knowledge about the various diseases of the respiratory system, the update on the expertise and professional defense of its members with the objective of improving the health of our population. website http://www.who.int/respir atory/gard/events/FINAL% 20Q&A%20GARD%20Brazil %20Portuguese%2003_10_ 06.pdf http://www.sbpt.org.br/?o p=itLeitura&id_srv=2&id_tp c=0&nid_tpc=&id_grp=1&a dd=&lk=1&nti=677&l_nti=S &itg=S&st=&dst=3 http://www.scielo.br/scielo Qualidade de The present study has the following objectives: .php?script=sci_arttext&pid vida de pessoas to identify the significance of the quality of life FP7 GA n° 288594 Page 121 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU com doença people with chronic illness and verify its crônica interference in their quality of life. We have studied 71 people of both sexes, attended in the clinical settings of 2 public hospitals. The most common diagnoses were high blood pressure and diabetes mellitus. The significance of quality of life to interviewed people was related mainly to material comfort (40,9%); physical comfort (23,9%) and emotional comfort (11,2%). Chronic illness interfered in their quality of life because it has changed, especially, their physical capacity (67,6%), their work/study/home activities (64,8%) and their self-esteem (53,5%). Based on the results, we emphasize the importance of nursing in the adaptation process of people and their relatives considering the limitations of chronic illness. TELEIntegration, universality, decentralization, HOMECARE E efficiency, accountability, autonomy, MONITORIZAÇ humanization are some of the precepts of TeleÃO A homecare. Objectives: To review the concepts, DISTÂNCIA: objectives, facilitators, tools and literature on UMA tele-homecare in Pediatrics. Materials and FERRAMENTA Methods: A literature review on Medline and the DE PROMOÇÃO Cochrane Library Database from 1990 to 2009. DA SAÚDE DA Results: review found few studies involving TeleCRIANÇA E DO homecare and Pediatrics at the national and ADOLESCENTE international. Discussion: The telehomecare approach provides health care to patients and their families, based on the concept of self-care. Let’s keep this care at home or close to this, reaching even the rural areas difficult to access, quality, lower costs, reducing the number of admissions, length of hospitalization and the incidence of nosocomial infections. The factor that favors the population is aging, and increased prevalence of chronic diseases in this age group own, but the extension to the pediatric population is essential if we are to build quality health since the beginning of life. =S010411691996000300002&lng= pt&nrm=iso http://cbtms.org.br/congre sso/trabalhos/089.pdf What health needs are presented and/or discussed Are these needs addressed by mobile technology? What educational needs are presented and/or discussed FP7 GA n° 288594 Page 122 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Are these needs addressed by mobile technology? What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? What other social needs are presented and/or discussed Are these needs addressed by mobile technology? FP7 GA n° 288594 Page 123 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU 2.3 People with non-communicable conditions: Cardiovascular Diseases – On-line data Summary - People with Cardiovascular Diseases - Peru General Description of Source Summary Short description MOBILE CAMPAIGN OF THE AMERICAN HEART ASSOCIATION PROVIDES HEART HEALTH INFORMATION TO HISPANICS Heart disease is no laughing matter. But now the American Heart Association is using humor to combat these health ills. This is a new campaign that combines mobile technology, heart health councils, and the sparkling humor of two of the most popular comedians of today. INVESTIGATE NEW APPLICATIONS OF MOBILE TECHNOLOGIES IN EDUCATION The University of Valladolid will research, through various departments, new applications of mobile technologies in the field of education, from infancy to university. This line of work is included in the recently released Telefonica Chair at the University of Valladolid, whose director of the Science Park is Salvador Dueñas, which has three objectives, as detailed in statements to DiCYT, "training, research and dissemination activities. " CELL PHONES For this study, researchers took advantage of the MAY HELP TREAT wide penetration of mobile telephony in Latin CHRONIC America and compared with low-cost phone calls DISEASES over the Internet. The service used a computer link method for "cloud" so that the program can be provided from a central location to low-income countries around the world without a strong technology infrastructure. DESIGN OF A Apply telemetry monitoring of biomedical signals PROTOTYPE OF allows to control continuous parameter of APPLIED TO RF preventing future complications in patients, their MODULE health, and raising the efficiency of medical TELEMEDICINE personnel, thanks to these systems, MONITORING IN ECG SIGNALS HOSPITALS AND NURSING HOMES Source http://www.hispanicpr wire.com/News/es/142 53/18/campana-detelefonia-movil-de-laamerican-heartassociation-brindainformacion/ http://www.agenciasin c.es/Noticias/Investigan -nuevas-aplicacionesde-las-tecnologiasmoviles-en-laeducacion http://www.intramed.n et/contenidover.asp?co ntenidoID=73302 http://tesis.pucp.edu.p e/repositorio/bitstream /handle/123456789/22 8/CHIRINOS_RAMIREZ_ ROCIO_DISENO_PROTO TIPO_M%C3%93DULO_ RF_TELEMEDICINA.pdf? sequence=1 What health needs are presented and/or discussed FP7 GA n° 288594 Page 124 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Are these needs addressed by mobile technology? The use of telecommunications in Medicine seeks to provide health services that are easily accessible to people and reduce costs and overcome distances between patients and physicians. So this is where we talk about telemedicine, an area meeting the technological advances of telecommunications with the knowledge of the doctor. What educational needs are presented and/or discussed Are these needs addressed by mobile technology? None What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? None What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? None What other social needs are presented and/or discussed Are these needs addressed by mobile technology? The remote assistance is a major growth area with applications in telemedicine that are primarily focused on facilitating access to the elderly and chronically ill patients and to support home care, avoiding time and travel costs. The development of the Internet has allowed the proliferation of public and private initiatives, deployment and improvement of access to telecommunications services (ADSL, VADSL, cellular radio, cable), and momentum policy in some countries with specific programs. Logically, the interest varies across countries, reflecting differences in service organization health. Summary - People with non-communicable conditions: Cardiovascular Diseases – Brazil Name CARTA BRASILEIRA DE PREVENÇÃO INTEGRADA NA ÁREA DA SAÚDE FP7 GA n° 288594 Short description website Prevention means anticipating, background http://www.confef.org.b reading and identification of inappropriate r/extra/conteudo/defaul social situations that in the short, medium t.asp?id=30 and long term could bring harm to the population and, therefore, impose its control. The sport, gymnastics, dance, martial arts, capoeira, the struggles, strength training, present themselves as economically viable practices for health promotion and social inclusion, revealing icons of integrated and holistic prevention. The number of Page 125 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU chronic / degenerative diseases is considered a major health problem today. Also smoking, hypertension, stress, obesity and sedentary lifestyle risk factors make to the health of the general population, reaching a significant portion of children. Physical inactivity is recognized as one of the most determinant risk factors for the emergence of cardiovascular disease. It has, also, that obesity must be tackled preventively, since it reveals a health problem in Brazil worse than hunger. IBGE data for 2004 indicate that 10% of Brazilians are obese and 5% are malnourished. Equity, Social Cardiovascular disease (CVD) is a leading Determinants and public health problem that contributes 30% Public Health – WHO ( to the annual global mortality and 10% to the World Health global disease burden. While there are Organization) downward trends in CVD mortality in most developed countries, the mortality trends in low- and middle-income countries are rising. Evidence on social determinants and inequities related to CVD, mainly from developed countries, indicates an inverse relationship between socioeconomic status and CVD incidence and mortality. http://portal.saude.gov. br/portal/arquivos/pdf/ publicacao_oms_05_01. pdf Política Nacional de The working conditions, housing, food, Promoção da Saúde environment and leisure, among others, determine our greater or lesser health. Health promotion is one of the strategies of the health sector to seek the improvement of the quality of life. Its goal is to produce a shared management between users, social movements, workers of the health sector and other sectors, producing autonomy and coresponsibility. The National Policy on Health Promotion (PNPs), adopted on March 30, 2006, gives guidelines and suggests strategies for organizing health promotion activities in the three management levels of the Unified Health System (SUS) to ensure the full care. http://bvsms.saude.gov. br/bvs/publicacoes/polit ica_nacional_promocao _saude_3ed.pdf PROGRAMA PARA A good way to avoid losses of human lives http://www.cgeti.deti.uf DISPOSITIVOS MÓVEIS due to cardiovascular diseases is through c.br/monografias/EDVAL PARA COMUNICAÇÃO early diagnosis of them. This work has the DO_BEZERRA_PEREIRA_J FP7 GA n° 288594 Page 126 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU E CONTROLE DE UM ELETROCARDIÓGRAFO PORTÁTIL Portal do Coração CADERNOS DE ATENÇÃO BÁSICADAB/MS PREVENÇÃO CLÍNICA DE DOENÇA CARDIOVASCULAR, CEREBROVASCULAR E RENAL CRÔNICA FP7 GA n° 288594 aim of developing a program for mobile %C3%9ANIOR.pdf devices that could be able to control, via Bluetooth, an acquisition system of heart bio potentials and advice on finding the correct positioning of the electrodes of this system; display the signal on acquisition time, obtained via Bluetooth, and allow the storage or transition of the examination for a central located in a hospital or doctor’s office through the interface GPRS or 3G in the mobile device. The results obtained through tests made by specialists indicate that the proposed approach is capable of providing efficiency and practicality in the early diagnosis of cardiovascular diseases. Thus, it is possible to conclude that medical software for mobile devices show us how they could be a simple solution with low costs in construction of medical instrumentation. The Portal of the Heart was developed by a http://portaldocoracao. multidisciplinary team composed of doctors uol.com.br/tags/doenca and other health professionals. Using a s-cardiacas simple and objective language, its pages have a scientific and ethical character, validated by the HON Code seal. The site is intended for the general public and various professionals working in health, and who wish to obtain information related to cardiovascular diseases, general health, and welfare. The content of the materials of the Portal of the Heart are merely informative and illustrative. No information obtained from its content should replace, in terms of ethical or legal, the guidance of a doctor or other health professional. The intensity of the preventive interventions http://189.28.128.100/d should be determined by the degree of ab/docs/publicacoes/ca cardiovascular risk estimated for each dernos_ab/abcad14.pdf individual and not by the value of a particular factor. In practical terms, it is usual to classify individuals into three risk levels - low, moderate and high - to develop major cardiovascular events. Events traditionally include computed death due vascular cause, myocardial infarct and cerebral vascular Page 127 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU accident. 2.4 People with non-communicable conditions: Diabetes – on-line data Summary - People with Diabetes - Peru General Description of Source Summary Short description MOBILE PHONE TECHNOLOGY IS USED TO CONTROL DIABETES A study of the Faculty of Medicine, University of Maryland (USA) has released an effective computer program that, incorporated into the mobile phone, helps control type 2 diabetes. It is the first work done on this issue and includes a control group and followed the patients for one year. Be published in the September issue of Diabetes Care. “Mobile telephony: a tool for early diagnosis and self-care support for people with type 2 diabetes." THE MOBILE PHONE COMES AS A SUPPORT TOOL IN THE DIAGNOSIS AND SELF-CARE FOR PEOPLE WITH DIABETES TELEMATICS APPLICATION IN CONSULTATIONS WITH DIABETES MOBILE TELEPHONES CAN HELP IN THE TREATMENT OF DIABETES AND OTHER DISEASES IN THE DEVELOPING COUNTRIES FP7 GA n° 288594 the use of new technologies (internet and mobile mainly), has changed the customary practice in monitoring and control of patients with diabetes. Innovation is in the way of the exchange of information between the personal health and patient in some cases. Cell phones may contribute to an interactive and efficient management in terms of cost of chronic diseases among the rural poor, according to a study by the University of Michigan. Source http://www.diariomedico.co m/2011/08/01/areacientifica/especialidades/tec nologia/tics/tecnologia-deltelefono-movil-se-usa-paracontrolar-diabetes http://www.uc.cl/es/launiversidad/noticias/1679la-telefonia-movil-surgecomo-herramienta-deapoyo-al-diagnostico-yautocuidado-para-personascon-diabetes http://www.uc.cl/es/launiversidad/noticias/1679la-telefonia-movil-surgecomo-herramienta-deapoyo-al-diagnostico-yautocuidado-para-personascon-diabetes http://www.umich.edu/Es/n ews/11/pr110517.php http://www.umich.edu/Es/n ews/11/pr110517.php Page 128 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU What health needs are presented and/or discussed Are these needs addressed by mobile technology? ANN ARBOR, Mich.-A new study by the System of Health Care of Veterans Affairs in Ann Arbor and the University of Michigan indicates that mobile phones could help low-income patients worldwide in the management of diabetes and other chronic diseases. "The programs 'telehealth' have proved to be effective in a variety of contexts, but one of the major constraints to the provision of these services in the developing world has been the lack of infrastructure," said study lead author John D. Piette, a VA research scientist and professor of internal medicine at the School of Medicine at the UM. To test the researchers enrolled patients with diabetes at a clinic in a semi-rural area of Honduras. Patients received weekly phone calls, automated, interactive, and the vast majority said the program had helped them improve their management of diabetes and general health care. What educational needs are presented and/or discussed Are these needs addressed by mobile technology? None What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? None What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? None What other social needs are presented and/or discussed Are these needs addressed by mobile technology? We wanted to show that it is possible to provide a high-tech program from UM to very vulnerable patients with diabetes in Honduras with only the local cell phone service," said Piette. The developing world faces a crisis of cardiovascular disease as the "fast food" spreads everywhere and people move to urban centers and adopt modern lifestyle with less physical activity. It is estimated that worldwide, the number of people with diabetes will rise from 285 million currently to about 439 million in 2030. Summary - People with non-communicable conditions: Diabetes – Brazil General Description of Source Summary FP7 GA n° 288594 Short description Source Page 129 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Associação de Organization founded by a group of parents of http://www.adj.org.br/site/defa Diabetes children and adolescents with diabetes. Its aim ult.asp is to promote education in this field for Juvenil patients, relatives, health professionals and community. The ADJ also seeks to promote the quality of life. Serves people with all types of diabetes, regardless of age and socioeconomic class. It offers an integrated work done by a multidisciplinary team consisting of psychologists, nutritionists, nurses and volunteers (with diabetes or family). Sociedade Brasileira de Diabetes Study of scientific publications dealing with the http://www.diabetes.org.br/ number of diabetics in Brazil. Since a large study by the Ministry of Health in collaboration http://www.diabetes.org.br/sal a-de-noticias/2116-sao-12with the Brazilian Diabetes Society in the late milhoes-de-diabeticos-no-brasil 80's called CENSUS OF DIABETES, until the present day. Updating the data found for CENSUS-IBGE - the Brazilian population in 2010 reached the estimated number of diabetics in Brazil: 12,054,827 (Twelve million fifty-four thousand eight hundred twenty four). This is the problem size will increase significantly in coming years. Associação Nacional de Assistência de Diabético http://www.anad.org.br/indexI nicio.asp 15° Congresso da Associação de Diabetes http://www.acquacon.com.br/a dj2012/index.php What health needs are presented and/or discussed Are these needs addressed by mobile technology? What educational needs are presented and/or discussed Are these needs addressed by mobile technology? FP7 GA n° 288594 Page 130 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? What other social needs are presented and/or discussed Are these needs addressed by mobile technology? 2.5 People with persistent communicable conditions: Tuberculosis – on-line data Summary - People with Tuberculosis – Peru General Description of Source Summary Short description CREATE ONLINE WEB SYSTEM TO DIAGNOSE MULTIDRUGRESISTANT TUBERCULOSIS IN LESS THAN 15 SECONDS A process to transmit medical images via the mobile phone has been developed by researchers at the Universities of Jerusalem and Berkeley. To do so, have created a data acquisition device with limited features, located on the side of the patient, sent through the mobile information to a central server (anywhere in the world) responsible for converting the data in medical imaging. Then the central server sends back images to the mobile phone for analysis by a specialist. The method, according to its creators, could be very useful for millions of people in remote areas of the developing world who do not have modern medical equipment. By Raúl Morales. A process to transmit medical images via the mobile phone has been developed by researchers at the Universities of Jerusalem and Berkeley. To do so, have created a data acquisition device with limited features, located on the side of the patient, sent through the mobile information to a central server (anywhere in the world) responsible for converting the data in medical imaging Mobile technology is an opportunity for CREATE A TECHNOLOGY THAT TRANSMITS MEDICAL IMAGES ON THE PHONE MHEALTH: MOBILE FP7 GA n° 288594 Source http://www.perureport a.pe/vidaysalud/medici na/542-tbc.html http://www.tendencias 21.net/Crean-unatecnologia-quetransmite-imagenesmedicas-por-elmovil_a2238.html http://www.rizomatica. Page 131 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU TECHNOLOGY, AN OPPORTUNITY FOR HEALTH FINANCE IN MOBILE AND DEVELOPMENT LATIN AMERICA increased health throughout the world and especially for third world countries (in the process of development under the current name) Telefónica's commitment to development in Latin America is one of the pillars for our longterm presence in the region. Beyond being one of the biggest investors and generators of employment, work daily with the objectives of improving the quality of life of people, facilitate business development and contribute to the advancement of society through the extension of Information Technology and Communications. net/mhealth-latecnologia-movil-unaoportunidad-para-lasalud/ http://es.scribd.com/d oc/35477845/Telefonia -movil-y-desarrollofinanciero-en-AmericaLatina-estudiocompleto What health needs are presented and/or discussed Are these needs addressed by mobile technology? Set in a distant health center, very poor, where no Internet or a technician trained in interpreting the patterns of cultures of the bacillus of tuberculosis, but the cell phone signal, Dr. Zimic Peralta said that a technician may put the plate in the microscope and take a picture, which digitally captures and then up the phone to transmit to the server, which performs the analysis, and in less than a minute to get the result through a text message, a mail and a posting on a secure website. He explained that to implement this system requires an inverted microscope trade costs between 5 and 10 thousand dollars, which is inaccessible in many cases. Digital inverted microscope valued at $ 400. Therefore, the research team has developed an inverted microscope and digital, valued at $ 400, which performs quite well as it has been recently recognized by the scientific journal PLoS ONE. Comparison revealed that the MODS method costs less than a dollar per test, and to determine the TB multidrug required an investment of just under $ 3 per sample. What educational needs are presented and/or discussed Are these needs addressed by mobile technology? None What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? None What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? None What other social needs are presented and/or discussed FP7 GA n° 288594 Page 132 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Are these needs addressed by mobile technology? Researchers from the Universities of Jerusalem and Berkeley have demonstrated the effectiveness of a process to transmit medical images via cell phone. According to its creators has the potential to provide sophisticated radiological diagnosis and even treatment. Millions of people living in developed countries or in rural areas, where they have access to similar technology or even a medical center could benefit from this new development. Summary - People with persistent communicable conditions: Tuberculosis – Brazil General Description of Source Rede Brasileira de Pesquisa em Tuberculose The Brazilian Network of Tuberculosis Research http://redetb.org/sobre (REDE-TB) is a Non-Governmental Organization -a-redetb (NGO) of private non-profit organization concerned with not only assist in the development of new drugs, new vaccines, new diagnostic tests and new control strategies TB, but also in the validation of these technological innovations, prior to its commercialization in the country and / or its implementation in TB Control Program in the Country. In order to fulfill its mission as an NGO, Rede-TB has been providing a greater interaction between government entities related to Tuberculosis Control, the regulatory agencies (such as ANVISA), the civil society organizations such as the Brazilian Partnership against TB (Stop TB Initiative) and NGOs, advocacy and assistance, research institutions, corporations class, international cooperation and national and international companies. For this, the REDE-TB established, in a pioneering way, a platform for research and technological development for evaluating and incorporating new technologies. Tratamento diretamente supervisionado (DOTS) contribui para a adesão ao tratamento da Directly Observed Therapy (DOTS) contributes to http://sumarios.org/site s/default/files/pdfs/493 the adherence to tuberculosis treatment? 64_5864.PDF The study is part of the research line that uses the analytical category of adherence, one of the aspects of the CNPq Research Group "Adherence, FP7 GA n° 288594 Page 133 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU tuberculose? needs and vulnerability in Public Health." Studies (1-3) made the point that adherence to treatment goes beyond the approach that reduces the health needs of clinical and biological aspects, especially when it comes to tuberculosis, which is directly related to social structure. The integration of people in society determines conditions for the strengthening / limitations to life, and social inequalities make individuals vulnerable to the development of disease (4-5). Tuberculosis, a disease with deep social roots, http://www.opas.org.br Programa Nacional /prevencao/site/Upload de Controle da closely linked to poverty and unequal income distribution, and the stigma that implies the nonArq/ProgramaTB.pdf Tuberculose adherence of patients and / or family members / contacts. The appearance of the AIDS epidemic and outbreaks of multidrug-resistant tuberculosis further increase the problem of the disease worldwide. Considering the current situation, there is need for investment in the training of health services, training of human resources for surveillance activities, evaluation and control, in order to expand the diagnostic capability through the bacilloscopy, promote healing, increase search of the respiratory symptoms and contacts of patients in Brazilian cities and especially in the priority municipalities for the National Program of Tuberculosis Control. What health needs are presented and/or discussed Are these needs addressed by mobile technology? What educational needs are presented and/or discussed Are these needs addressed by mobile technology? What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? FP7 GA n° 288594 Page 134 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? What other social needs are presented and/or discussed Are these needs addressed by mobile technology? 2.6 People with persistent communicable conditions: Malaria – on-line data Summary - People with Malaria - Peru General Description of Source Summary Short description DETECTION OF MALARIA VIA MOBILE An application for smartphones to diagnose malaria through a quick and easy process. This technology, called "Lifelens Project" has been created by researchers from different universities in North America and promises to be a good tool to detect the disease without requiring major medical knowledge DEVELOP A GAME "ON-LINE" FOR MALARIA DIAGNOSIS Technology Group of Biomedical Imaging & CIS Moncloa universities of Madrid Polytechnic have designed a game 'on-line' that teaches Internet to find malaria parasites in real images digitized samples of blood, thus establishing a community of citizen scientists or players who can help diagnose this disease as 'on-line'. DIAGNOSE MALARIA WITH MOBILE Evaluate an imaging test, monitor glucose levels, to detect a skin disease ... All these medical 'tasks' can be made quick and easy with the simple aid of a mobile phone. This is the project 'Lifelens Project, conducted from the U.S., and according to its creators, the technology that is implemented is able to detect the disease quickly and more accurately than existing rapid diagnostic test. MOBILE PHONE USE TO DIAGNOSE MALARIA AN ONLINE GAME WILL HELP DIAGNOSE MALARIA IN THE WORLD FP7 GA n° 288594 Spanish scientists have released a set of collaboration between users, MalariaSpot.org, in order to help diagnose cases of malaria worldwide, from the search for parasites located in digitized real images of blood samples. Source http://www.muyinteres ante.es/deteccion-de-lamalaria-a-traves-delmovil http://www.telemadrid. es/?q=noticias/sociedad /noticia/desarrollan-unjuego-line-paradiagnosticar-la-malaria http://www.elmundo.es /elmundosalud/2012/01 /05/noticias/132579470 4.html http://bienestar20.blogs pot.com/2012/01/usodel-movil-paradiagnosticar-la.html http://elcomercio.pe/te cnologia/1406373/notici a-juego-internetayudara-diagnosticarmalaria-mundo Page 135 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU What health needs are presented and/or discussed Are these needs addressed by mobile technology? Health applications increasingly gaining ground in the growing world of smartphones and some of these new proposals have the potential to improve diagnostic techniques and even access to care in many parts of the world. The application also is designed so that it is possible to use without great technical expertise, namely by simply using a mobile, so as to send the device directly to the affected areas. Therefore, the authors believe that increased global connectivity, specifically the presence of wireless networks, allows distribution of images over the Internet from medical centers in the affected regions in order to establish a rapid remote diagnosis of malaria with the possibility of large-scale expansion. What educational needs are presented and/or discussed Are these needs addressed by mobile technology? None What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? This has been explained to the Service of Information and Science News (SINC), the researcher Miguel Luengo-Oroz, promoter of this initiative, who say that this is a "simple" experiment with which you can "explore for the first time opportunities they can offer collaborative games and social networks in global health issues" What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? None What other social needs are presented and/or discussed Are these needs addressed by mobile technology? The application, they say, is accessible to anyone who can use a mobile phone. "This opens the possibility of sending devices directly to the affected areas, and you do not need special training or a certain linguistic skills to use it." This team of creators, which includes doctors, engineers, designers and marketing specialists, have received several awards for his initiative, as the 'Use Imagine Cup 2011' or 'Harvard Pitch for a change'. Some of them are still students or recent graduates. According to the World Health Organization, almost half the world population is at risk of contracting malaria. Without doubt, the most affected continent is Africa, where the disease kills a child every 45 seconds. Summary - People with persistent communicable conditions: Malaria - Brazil FP7 GA n° 288594 Page 136 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU General Description of Source Name Short description website http://portal.saude.go VIGILÂNCIA EM Any suspicion of malaria should be notified to v.br/portal/arquivos/p SAÚDE health authorities, both in endemic areas, the df/abcad21.pdf Information System of Epidemiological Dengue, Surveillance of Malaria (Malaria-Sivep), as in Esquistossomose, non-endemic area, the Information System Hanseníase, Notifiable Diseases (Sinan) Malária, Tracoma e Tuberculose CADERNOS DE ATENÇÃO BÁSICADAB/MS Malaria is associated http://www.malariajo Approximately 40% of the world's population is with poor school urnal.com/content/8/ at risk for malaria. In highly endemic tropical performance in an 1/230 areas, malaria is a major cause of morbidity and endemic area of the mortality during infancy. There is a complex Brazilian Amazon interrelationship between malaria, malnutrition and intestinal helminths, and this may impair cognitive development in children. The aim of this study was to determine the relationship between malaria and school performance in children living in an endemic area where Plasmodium vivax is the species responsible for most of the cases. Malaria Diagnosis and Hospitalization Trends, Brazil http://wwwnc.cdc.gov The study of malaria prevalence in the state of /eid/article/13/10/07Amazonas and city of Manaus indicates an 0052_article.htm increase in the percentage of hospitalized Plasmodium vivax patients and an overall increase in malaria cases caused by this parasite. Our observations on malaria epidemiology and case treatment suggest that the increased hospital admissions are associated with a higher frequency of severe disease associated with P. vivax infections. Amazonas includes most of the Brazilian Amazon Region, where malaria has been controlled but never eradicated. Since the 1980s, there has been a re-emergence of malaria, which appears to coincide with changing malaria control policies associated with the ending of the Malaria Eradication Campaign http://www.scielo.br/s The article discusses a set of pictures that cielo.php?script=sci_ar illustrate public health activities, practices, and Malária, fotografia FP7 GA n° 288594 Page 137 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU e saúde pública no Brasil campaigns against malaria in Brazil from 1918 ttext&pid=S0104through 1956. Exemplary of certain key moments 59702002000400011 in this history, the illustrations belong to three archives from the Casa de Oswaldo Cruz/Fundação Oswaldo Cruz collection: Arquivo Belisário Penna, Arquivo Fundação Rockefeller ("Serviço de Malária do Nordeste" series), and Arquivo Rostan Soares. The article links these photographic records to their specific historicalpublic health contexts and to the campaign models and strategies represented by each archive. It also draws relations with the 20thcentury history of the photographic medium itself. It is argued that these images of malaria constitute prime sources in constructing a visual history of the disease in 20th-century Brazil and of the country's public health history. Aplicativo diagnostica malária com foto de amostra de sangue A group of graduate students at the University of Central Florida created an application that enables physicians to diagnose malaria simply by taking a picture, marking yet another attempt to bring mobile technology to combat diseases. The device has a special microscopic lens attached to the camera. When it takes a picture of a blood sample, the lens processes the data to determine whether the malaria parasites are present, calculates the amount of disease in the sample, and then draw a red square around the parasitic outbreaks, notifying how many were found. http://timedicina.blog spot.com.br/2011/05/ aplicativo-diagnosticamalaria-com-foto.html What health needs are presented and/or discussed Are these needs addressed by mobile technology? What educational needs are presented and/or discussed Are these needs addressed by mobile technology? What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? What other social needs are presented and/or discussed Are these needs addressed by mobile technology? Youth Education – on-line data FP7 GA n° 288594 Page 138 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Summary – Youth Education – Peru General Description of Source Summary Short description THE CONCEPTUAL DEVELOPMENT OF MOBILE LEARNING TECHNOLOGY INFLUENCE OF CELL PHONE USE AS A MASS MEDIUM Using the conceptual development of mobile learning technology, UNESCO seeks to define what specific mobile technologies are suitable to support the achievement of Education for All, in order to understand which aspects work well and why they do. To speak properly on mobile phones, we must handle the basics on this topic. We will describe in simple terms of the various devices involved and how they work. The first thing is to know that mobile phones basically consist of two parts: A communications network (or mobile network) and terminals (or cell phones) that allow access to that network. For all this, it seems very logical that wireless technologies are essential in education. Schools have adapted to technological development and most offer wireless network in their buildings so that students can enjoy unlimited access. This technology was introduced to improve the quality of life of children and young people without realizing that you can have the opposite effect that we seek, affecting health. MOBILE “Everyone has a cell" is a phrase that describes the COMMUNICATI general perception about the widespread use of ONS AND mobile phones in the world. Today, in Argentina, the ECONOMIC penetration of the mobile, ie the number of active DEVELOPMENT lines per hundred people, reaches 120. In Peru, one IN LATIN of the most backward in the region, cellular AMERICA penetration reached the figure of 80 per 100 inhabitants. In contrast to the "bricks" that carried the executives in the early nineties, we now have mobile terminals that meet a set of features that are becoming smaller. Source http://www.unesco.or g/new/es/unesco/the mes/icts/m4ed/mobile -learning-technologyconcept-development/ http://www.monografi as.com/trabajos62/tel efonia-celular-mediocomunicacionmasivo/telefoniacelular-mediocomunicacionmasivo2.shtml http://www.revistaala mbre.com/Articulos/A rticuloMuestra.asp?Id =15 http://www.revistargu mentos.org.pe/comuni caciones_moviles_y_d esarrollo_socioecono mico_en_america_lati na.html What health needs are presented and/or discussed FP7 GA n° 288594 Page 139 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Are these needs addressed by mobile technology? None What educational needs are presented and/or discussed Are these needs addressed by mobile technology? These technologies are inexpensive, easily distributed and therefore have great potential to reach marginalized groups and give them access to new stages of learning and development Mobile technologies are an attractive instrument and easy to maintain newly acquired skills in reading, writing and arithmetic, and constant access to information. Mobile technologies facilitate distance learning in joints in which difficult or interrupted access to education due to geographic location or in post-conflict and natural disasters. What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? None What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? None What other social needs are presented and/or discussed Are these needs addressed by mobile technology? UNESCO is ready to establish new joint initiatives such as the one with Nokia, which is based on the principle that a mobile phone is not just an appliance, but also a path to more education and information. The activities of this association began in May 2011. Summary - Youth Education - Brazil General Description of Source Name Relatório de Desevolvimento Juvenil no Brasil 2007 FP7 GA n° 288594 Short description Using the databases of the National Household Sample Survey (IBGE), the Mortality Information Subsystem (Ministry of Health) and the National System of Evaluation of Basic Education (MEC), the study develops a broad overview of the situation of youth in 27 states. From this analysis, the Report proposes a synthetic indicator of living conditions of young people called Youth Development Index (YDI). For its construction are used similar criteria to the Human Development Index (HDI), the United Nations Development Programme (UNDP) - website http://www.andi.org.br /infancia-ejuventude/pauta/relato rio-dedesenvolvimentojuvenil-2007-foilancado-no-dia-19passado PDF: http://www.juventude. gov.br/conjuve/docum Page 140 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU A GESTÃO DA POBREZA JUVENIL: UMA ANÁLISE DE UM PROGRAMA FEDERAL DE INCLUSÃO SOCIAL PARA JOVENS POBRES O PARADIGMA DA INCLUSÃO NA EDUCAÇÃO INFANTIL: REPRESENTAÇÕES SOCIAIS DE COORDENADORAS DE CMEI PROGRAMA DE INCLUSÃO SOCIAL DE CRIANÇAS E ADOLESCENTES EM SITUAÇÃO DE RUA A educação pela comunicação como estratégia de inclusão social: o caso da Escola Interativa education, health and work - adapting them in order to address specific issues related to young people. entos/relatorio-dedesenvolvimentojuvenil YOUTH MANAGEMENT OF POVERTY: AN ANALYSIS OF A FEDERAL PROGRAM OF SOCIAL INCLUSION FOR POOR YOUNG http://cgca.com.br/use rfiles/file/Uma%20anali se%20de%20um%20pr ograma%20%20Anped. pdf THE PARADIGM OF INCLUSION IN EARLY CHILDHOOD EDUCATION: SOCIAL REPRESENTATIONS OF coordinators CMEI http://www.pucpr.br/e ventos/educere/educer e2009/anais/pdf/2920_ 2072.pdf SOCIAL INCLUSION PROGRAM OF CHILDREN AND TEENS IN STREET SITUATION http://www.proforient a.com.br/trabalhos/aqu ilea.doc The education by communication as a strategy for social inclusion: the case of the Interactive School http://www.centroruibi anchi.sp.gov.br/usr/sha re/documents/LucianoS imoesdeSouza.pdf What health needs are presented and/or discussed Are these needs addressed by mobile technology? What educational needs are presented and/or discussed Are these needs addressed by mobile technology? What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? What other social needs are presented and/or discussed FP7 GA n° 288594 Page 141 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Are these needs addressed by mobile technology? Summary – People living in isolated areas – Brazil – on-line data General Description of Source Name Short description SEIND - The State Secretariat for Indigenous Peoples is an Secretaria dos organ of the direct administration of the executive Povos power of Amazonas government and was created by Indígenas Law No. 3403 of July 7, 2009, in order to formulate, execute and implement the policy of sustainable ethnodevelopment and preservation of cultural and historical values, defined and approved by the State Council of Indigenous Peoples. FUNAI RPF Povos Floresta website http://portaldaseind.bl ogspot.com.br/2011/05 /jecinaldo-satere-nalista-triplice-para.html National Indian Foundation - created by Law No. http://www.funai.gov.b 5371 of December 5, 1967, under the Ministry of r/ Justice, an entity with its own assets and legal entity of private law, it is the federal agency responsible for establishing and implementing indigenous policy in Brazil in compliance with which determines Brazilian Federal Constitution of 1988. Rede The Forest Peoples Network is a social movement http://www.redepovos da that combines traditional and indigenous dafloresta.org.br/ communities, united by a common ideal of preserving the environment, their traditional cultures and their original territories. ACRA - Association of native people that lives near the river Associação dos (Caboclos and Ribeirinhos) of Amazônia, an Caboclos e organization dedicated, among others, the Ribeirinhos da promotion of public policies in favor of the natives Amazônia descendants of Indians and other Amazonian populations, to strengthen their unity, the recognition of these populations as cultural and territorial heirs of the native peoples and the protection against attacks on their rights of origin. Parque The Technological Park for Social Inclusion: Network Tecnológico Research, Extension and Technological Innovation, para Inclusão from UFAM (Federal University of Amazonas), is FP7 GA n° 288594 http://www.oocities.or g/br/caboco_amaz/ http://portal.ufam.edu. br/index.php/arquivode-noticias/638Page 142 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Social: Rede de focus on generate income for local populations, it projeto-do-parquePesquisa, comes with the firm purpose to promote technical tecnologico-atinge-oExtensão e and scientific production, dissemination, sharing and interior-do-estado Inovação exchanging of knowledge between different social Tecnológica - actors who comprise society. The project was UFAM designed through a participatory construction that was prioritized social inclusion. UFAM COMPARATIVE ANALYSIS INDICATORS OF CITIZENSHIP, DEVELOPMENT, POVERTY AND INCOME IN RIVERSIDE COMMUNITIES, STRETCH-URUCU COARI MANAUS, THE STATE OF AMAZON. (Rio Solimões, Amazônia Ocidental, Brasil). Empirical basis of this search was make comparative analysis among socioeconomic indicators to evaluate effectiveness of Piatam indicators while instruments evolution of Citizenship, Development, Income and Poverty in nine riverside communities located in the confluence of Solimões and Negro rivers in the State of Amazonas. http://www.ppgcasa.uf am.edu.br/pdf/disserta coes/2009/Frandiney% 20dos%20Reis.pdf What health needs are presented and/or discussed Are these needs addressed by mobile technology? What educational needs are presented and/or discussed Are these needs addressed by mobile technology? What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? What other social needs are presented and/or discussed 4.2 Andes: Main Ethnic Groups (Quechuas and Aymaras) – on-line data Summary - People living in the Andes - Peru General Description of Source FP7 GA n° 288594 Page 143 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Summary Short description PERUVIAN CELL MENU WILL BE IN QUECHUA AND AYMARA Mobile phones in Peru will have their menus in Quechua and Aymara, the two most spoken languages in the country after the Spanish to facilitate communication of about 15% of the population, reported Monday one of the telecommunications operators. Peru has 29 million inhabitants, of whom 13% speak Quechua communities in the Andes, which run north to south, and 2% is reported in Aymara, specifically in the southern highlands of the country. One objective of this study was to analyze the current state of education of the indigenous population, according to results of the last National Census Population and Housing 2007 and the figures from other surveys of the National Institute Statistics and Informatics (INEI) and the Ministry of Education, to identify their educational needs and make recommendations appropriate policy and relevant. In the framework of this international scientific event, among the tens of seminars and working groups based thematically and on academic disciplines, took place the cultural and scientific fact that we opened an unprecedented way to knowledge. Organized by the Institute for the Study of Culture and Technologic Indians (IECTA), In Latin America there are several examples of projects and programs that exploit the potential of technologies of information and communication technologies (ICTs) for poverty reduction, trying to improve access for lowincome sectors of the markets, financial services, government services local training and health. Effective use of ICT in business, government and education, has increasingly become an important element of the ability of nations to participate in the global economy and, therefore, is a key driver of economic competitiveness. The ability to integrate ICT meaningfully with social, educational and economic is expressed in the concept Readiness for the Networked World. The preparation examines a variety of factors including Network Access, Network Learning, Networked Society, Networked Economy and INDIAN CHILDREN AND INTERCULTURAL EDUCATION KNOW YOUR HANDS DIGITAL OPPORTUNITIES EQUITY AND ANDEAN PREPARATION FOR THE NETWORKED WORLD FP7 GA n° 288594 Source http://www.elnacional.com/www/sit e/p_contenido.php?q= nodo/91780/Tecnolog %C3%ADa/Celularesperuanostendr%C3%A1nmen%C3%BA-enquechua-y-aymara http://www.savethechil dren.org.pe/wpcontent/uploads/2010/ 06/ninez-indigenaeducacioninterculturalbilingue.pdf http://es.scribd.com/d oc/21439951/manossabias http://www.eclac.cl/pu blicaciones/xml/7/2428 7/lcl2459e.pdf http://cyber.law.harvar d.edu/itg/libpubs/ande s%20pubs/Region_Andi na.pdf Page 144 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Policy Network, and is a central element of competitiveness. HIGHER Higher education is developing in a turbulent EDUCATION environment requiring major changes to its VIRTUAL, LATIN structure and functioning, and the dynamics of its AMERICA AND projection to society. One such change is related THE CARIBBEAN to new requirements of a society that again is geared towards knowledge management as the main source of production and wealth, which includes the generation, conservation, exchange and knowledge transfer and ongoing transformation of information and data in knowledge. PREPARATION OF After assessing the degree of development in the THE ANDEAN implementation and use of technologies of COUNTRIES TO information and communications technology (ICT) INTEGRATE in Peru, it is concluded that progress in Peru in the NETWORKS use of them is still limited although there are INFORMATION sophisticated developments. In Peru there is no TECHNOLOGY: THE unified national strategy systematized as such for CASE OF PERU integrating ICT, as the various efforts are isolated and not take advantage of potential synergies to establish a common strategy. ANDES: NEW The digital divide faced by Quechua-speaking INITIATIVES TO communities of the Andes could be reduced to REDUCE DIGITAL two initiatives that create content in this language DIVIDE and for the lack of Internet connectivity with offline versions. A project sponsored by the One Laptop Per Child Association (OLPC by its acronym in English), an offline version works based on the Wikipedia online in Quechua, so that it could be used by students who speak that language and have no Internet connectivity. "The wiki page in Quechua is too good and it is wasted because most people Quechua speakers do not have Internet access," he told SciDev.Net Odiard Gonzalo, the Association OLPC and Sugar Labs project, global initiative, which uses a computer learning platform for children to learn together through the computer. http://tecnologiaedu.us .es/cuestionario/bibliov ir/EducVirtual.pdf http://www.cid.harvard .edu/archive/andes/do cuments/workingpaper s/it/it_peru.pdf http://m.scidev.net/es/ latin-america-andcaribbean/news/andesnuevas-iniciativas-parareducir-brechadigital.html What health needs are presented and/or discussed Are these needs addressed by mobile technology? The program Hispano-American Health Link (EHAS), led by the University Polytechnic de Madrid and the Spanish NGO Engineers without Borders, has developed systems of low-cost FP7 GA n° 288594 Page 145 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU telecommunications and information services designed specifically for the rural health workers in remote areas in countries of Latin America. The first pilot project has been held since September 2001 in the isolated Peruvian Alto Amazonas province, with the cooperation of the Catholic University and the University of Peru Cayetano Heredia. What educational needs are presented and/or discussed Are these needs addressed by mobile technology? These new digital technologies have had an impact on all institutional areas of society and higher education is no exception. The distance education and traditional classroom education, education non-virtual and virtual, can now be articulated in a new environment of intense interaction between actors involved in the process of teaching and learning and other processes of institutions and education systems. What occupational needs are presented and/or discussed Are these needs addressed by mobile technology? The information technologies have contributed to the development of force labour. To successfully establish business to business relationships (business to business - B2B), it is essential to have a skilled workforce, and content advertising network relevant. This gradually reduces search costs, information and assessment for companies and their customers. What psychological needs are presented and/or discussed Are these needs addressed by mobile technology? None What other social needs are presented and/or discussed Are these needs addressed by mobile technology? Effective use of ICT in business, government and education, has increasingly become an important element of the ability of nations to participate in the global economy and, therefore, is a key driver of economic competitiveness. The ability to integrate ICT meaningfully with social, educational and economic is expressed in the concept Readiness for the Networked World. The preparation examines a variety of factors including Network Access, Network Learning, Networked Society, Networked Economy and Policy Network, and is a central element of competitiveness. FP7 GA n° 288594 Page 146 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ANNEX 6 M- inclusion Value Chain – Peru/ Brazil – Search descriptions M-INCLUSION VALUE CHAIN - EDUCATION, HEALTH, OCCUPATION REGULATORS Peru National Level Name Ministry of Health Ministry of Labour Ministry of Labour and Social Promotion Ministry of Education (Peru) Presidency of the Council of Ministers Short Description Website Sector executive in charge of the health area. An innovative service that uses text messaging (SMS) to cell phones to promote healthy lifestyles among people, such as physical activity, launched by the Ministry of Health (MoH) through the campaign Move Peru Mobile Ministries of Labour must be the change agents, acting in concert with other social actors involved in vocational training. This will be achieved because it is the meeting place for employers and workers, given its sensitivity to the needs of these. The world shrinks, as communications technology allows not only an increase of information but it is accessible to all and shared quickly. This has restored relations between the countries, companies (within and between them), customers, suppliers and their environments www.minsa.gob.pe / The Ministry of Education of Peru is the area of executive power responsible for Education in the Nation http://www.minedu.g It is the meeting of all Ministers of State http://www.peru.gob. pe/directorio/pep_dir ectorio_detalle_institu cion.asp?cod_instituci on=145 http://www.minsa.gob .pe/portada/prensa/n otas_auxiliar.asp?nota =10882 http://www.dsalud.co m/index.php?pagina=a rticulo&c=601 http://www.mintra.go b.pe/archivos/file/CNT PE/Diagnostico_final_ en_proceso.pdf ob.pe/ Ministry of Institution responsible for regulating the services and http://www.mtc.gob.p Transport and transportation corridors, as well as National e/ Communications communications. (Peru) FP7 GA n° 288594 Page 147 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Brazil Name Ministry Education Short Description Policy for interactive computers and tablets of the of Ministry of Education, whose goal is to provide tools and training for teachers and managers of public schools to the intensive use of information and communication technologies (ICTs) in teaching and learning. The Brazilian government created in 2007, the Commission of Program One Computer per Student (PROUCA), which Education and aims to be a project using educational technology, Culture including digital and intensification of the commercial production chain in Brazil. The program aims to distribute a mobile computer for public school students. UNESCO The UNESCO Office in Brazil is a country office of the Latin American region. Its main purpose is to assist the formulation and operation of public policies that are consistent with agreed strategies between the Member States of UNESCO. Brazil has a National Policy of Telehealth, built in a Ministry of more accelerated over the past five years and Health formalized in 2010, through Ordinance No. 402, Ministry of Health (MOH). Ordinance No. 402 establishing, at the national level, the Telehealth Program Brazil to support the Family Health Strategy (FHS) in the Unified Health System In 2011, Ordinance No. 2546, MS, redefines and expands the Telehealth Program Brazil, which is now called the National Telehealth Networks Brazil (Brazil Telehealth Networks). Ordinance No. 2546 regulates under the Unified Health System (SUS), the following points: • providing professionals and workers to the following services: teleconsulting, Telediagnosis, Second Opinion Formative and Tele-education; • The management and operation at the federal, state and local SUS. Commission on Social Security and Family in the Commission of Chamber of Deputies (Parliament), responsible for Social Security matters relating to health, social security and welfare and Family in general; institutional organization of health in FP7 GA n° 288594 Website www.mec.gov.br http://portal.mec.gov. br/index.php?option=c om_content&view=art icle&id=17479 http://www2.camara. gov.br/atividadelegisla tiva/comissoes/comiss oespermanentes/cec http://www.uca.gov.b r http://www.unesco.or g/new/pt/brasilia/ www.saude.gov.br http://portal.saude.go v.br/portal/arquivos/p df/portaria_2546_com pleta_2011.pdf http://www2.camara. gov.br/atividadelegislativa/comissoes/ comissoesPage 148 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Brazil; health policy and planning process in health, health care system. OPAS/OMS Ministry of Agrarian Development The Pan American Health Organization is an international public health organism with a century of experience, dedicated to improving the health of the Americas. The integration to the United Nations happens when the entity becomes the Regional Office for the Americas of the World Health Organization, PAHO / WHO is also part of the systems of the Organization of American States (OAS) and the United Nations (UN). The Ministry of Agrarian Development (MDA) operates in the areas of agrarian reform, promoting sustainable development of rural sector composed of farmers, and identification, recognition, delimitation, demarcation and titling of lands occupied by remnants of quilombo Commission of Agriculture, Livestock, Rural Commission of Development and Supply. Technical organ of the Agriculture Legislative Power, consisting of parliamentarians, in order to discuss and vote on law proposals related to agriculture, livestock, water supply and rural development that are submitted to the Câmara. permanentes/cssf/atri buicoes.html http://new.paho.org/b ra/ http://www.mda.gov. br http://www2.camara. gov.br/atividadelegisla tiva/ comissoes/comissoesp ermanentes/capadr FUNDERS Peru Name BID, Cayetano Heredia University 40 ONGS PERUANAS, THE TRUST FOR THE AMERICAS FP7 GA n° 288594 Short Description Cayetano Heredia University is a private university located in the city of Lima, Perú.Lider in basic and applied biomedical research.Through mobile technology WAWANET project, IDB, Universidad Cayetano Heredia and Telefonica Movistar seek to improve the access of 5,000 pregnant women in poor health system. In partnership with The Trust for the Americas, has been organized and involved over 40 NGOs in Peru. This union with Microsoft has been essential for local and grassroots organizations have access to technology for POET training centers operating in 20 countries in Latin America and the Caribbean Website http://www.upch.edu. pe/ http://www.gestrategi ca.org/templates/noti cias_detalle.php?id=29 4 http://tecnologia.com. pe/software/microsoft -apoya-a-ongs-ypromueve-eldesarrollo-inclusivo/ Page 149 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Ministry of Transportation and Communication Broadband, defined as access to high-speed Internet, combines connection capacity (bandwidth) and speed of data traffic (expressed in bits per second-bps), allowing users to access different content, applications and services. http://www.mtc.gob.p e/portal/proyecto_ban da_ancha/INFORME% 2001%20BANDA%20A NCHA.pdf Ministry of Sector executive in charge of the health area. www.minsa.gob.pe/ Health World Bank Vital source of financial and technical assistance to WWW.bancomundial. Development developing countries around the world org/ Telefonica Fixed telephony services. www.telefonica.com.p e/ AFI Foundation Evaluation of Peruvian microfinance capabilities to http://movilybanca.afi provide financial services through mobiles .es/ Brazil Name Fundo Social do Banco Nacional de Desenvolviment o Econômico e Social (BNDES) Short Description Social Fund established as part of the annual profits of the Banco Nacional de Desenvolvimento Economico e Social (BNDES), which supports social projects in the areas of employment and income generation, urban services, health, education and sports, justice, environment, rural development and linked to other regional and social development. Website http://www.bndes.gov. br/SiteBNDES/bndes/b ndes_pt/Institucional/A poio_Financeiro/Progra mas_e_Fundos/Fundo_ Social/index.html CNPq The National Council For Scientific and Technological Development (CNPq), agency of the Ministry of Science, Technology and Innovation (MCTI), whose main assignments to promote scientific and technology research and encourage the formation of Brazilian researchers. It has outstanding performance in financial support to major research groups working in the field of ICT. Given the importance of these groups justifies the detailed survey to identify the groups / projects being funded as part of technology mapping. http://cnpq.br FP7 GA n° 288594 Page 150 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU FINEP FAT The Financier of Studies and Projects (FINEP) operates several programs, and the Subvention Program is one of the most important lines for nonrepayable funding of research projects and innovation of private enterprises. The aim of the Subvention Program is to promote a significant increase in activities of innovation and increasing competitiveness of enterprises and the economy. Several development projects were funded ICT within the Subvention and justifies the detailed survey to identify the companies / projects being funded as part of technology mapping. The Worker Assistance Fund - FAT is a special fund for financial accounting nature, under the Ministry of Labor and Employment - MTE, used to pay the Unemployment Insurance Program, the allowance Pay and Financing of the Economic Development Programs. http://www.finep.gov.b r/programas/subvenca o_economica.asp http://portal.mte.gov.b r/fat9 HARDWARE VENDORS Peru Name ASOCIACIÓN DE LA TECNOLOGÍA DE LA INFORMACIÓN ITAA COMMISSION'S TELECOMMUNICA TIONS MARKET FP7 GA n° 288594 Short Description As defined by the association of information technology of America (ITAA) is "The study, design, Development, implementation, support or direction computerized information systems, software and hardware Including application of computers." Addresses the use of computers and software to convert, store, protect, process, transmit and retrieve information. Advancement of human knowledge using new technological tools to allow effectively meet the needs of individuals and organizations, reaching an optimal level of response. The mobile phone market was especially dynamic in 2011 with records and record portability with a net gain of 1,554,351 lines, representing an increase of 3.4% over the previous year. Meanwhile, fixed broadband net adds totaled 526,080, which increased the number of lines by 5%, thanks to the efforts of alternative operators. As regards fixed telephony, registered a further decline for the fourth consecutive year, according to published data reflect Market Commission Website http://es.scribd.com/d oc/13735708/GestionTecnologica- http://www.cecalc.ula. ve/internetprioritaria/d ecreto825.html http://www.consumer. es/web/es/tecnologia/ 2012/02/11/207151.ph p Page 151 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU (CMT). VoIP CGAP FUNDACIÓN FRANCE TELEOM ESPAÑA A market in poor health before the prominence acquired by VoIP, the market for conventional voice showed signs of a mature business in a highly dynamic and competitive industry such as telecommunications. Mobile telephony has changed the way we live, work, communicates, and has achieved penetration rates unthinkable a priori and high profitability. Now faces a changing scenario that combines the new and / or more versatile competitors, technological convergence logic, value of the investments necessary to provide new services to its customers and changing regulation For customers, the mobile banking presents a delicate balance between a powerful opportunity theory (which allows transactions at any time and place) and practical problems (complicated sequences menu on a small screen and tiny buttons http://www.msspain.co m/PDF/ESP/VOIPconvergencia.pdf http://www.cgap.org/g m/document1.9.6159/FN48_SP.pdf http://es.scribd.com/d oc/34881077/Lacontribucion-de-latelefonia-movilPresente-y-futuro Brazil Name Apple Short Description Website http://www.apple.com Ericsson http://www.ericsson.co m.br Motorola http://www.motorola.c om Nokia FP7 GA n° 288594 The Nokia Data Gathering (NDG) is open source software, developed by Nokia Technology Institute (INDT) and that helps organizations collect data from field research to quickly and send them in real time. This technology, which replaces paper forms, provides more reliable results. The NDG was used to build some mobile solutions, for example, an application that helped the State Department of Health of the Amazon (SUSAM) to reduce cases of http://www.indt.org/pr ojects/inovacao-queajuda-a-salvar-vidas / http://www.nokia.com/ br-pt Page 152 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU dengue - the SUSAM recorded in 2009, a major reduction in cases of dengue in the metropolitan region of Manaus. Samsung http://www.samsung.c om/br CONTENT PROVIDERS Peru Name Short Description Website Universida Cayetano Heredia University is a private university http://www.upch.edu.p Peruana located in the city of Lima, Perú. Leader in basic and e/ Cayetano applied biomedical research. Heredia Telefonica Fixed telephony services. www.telefonica.com.pe / M-Health en la GSMA. In 2017, mobile technology is a key enabler for services to health care to reach all corners of the planet, "said Jeanine Vos, executive director of mHealth in the GSMA. "With the need for developed countries to reduce the cost of universal health care, and developing countries trying to launch services that save the lives of needy communities, mobile technology offers the ability to provide care to health highly effective, scalable and affordable, beyond the confines of a hospital or clinic of a doctor. " http://www.teleseman a.com/blog/2012/02/1 5/para-el-2017-elmercado-de-mhealthalcanzara-un-valor-deus23-000-millones/ MOBILE OPERATORS Governments, regulators and providers of health care need to work with mobile operators and organizations in the broader ecosystem of mHealth, including device vendors and developers of content and applications, in order to support the launch and adoption of new m-Health services. This includes several key factors. As part of the decisions for the new year, Agile Health - the solution provider of mobile technology care provided to employers and other marketers of health plans-in combination with its technology partners and HSA GeneXus USA Global has launched to market a program that has been clinically tested rhttp://www.ganarsalu d.com/news2/news.ph p?newsid=1313 GeneXus USA y HSA Global FP7 GA n° 288594 http://www2.gxtechnic al.com/portal/hgxpp00 1.aspx?15,1,53,O,S,0,P AG;CONP;53;2;P;63757; 1;PAG;, Page 153 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU MLEARNING and uses motivational text messages, as an interactive way to help those who want to quit the cigarette habit Case studies of mobile health around the world, mobile education (m-Learning) and reproductive health strategies, the use of information technology as a tool to strengthen research, data collection and monitoring, and training of human resources in research m-Health and e-Health. http://mhealth.andean quipu.org/download/re porte_espanol.pdf Brazil Name Brazilian Association of Distance learning Short Description The Brazilian Association of Distance Education is a scientific society and non-profit organization dedicated to the development of open, flexible and on distance education, created in June 21, 1995 by a group of educators interested in distance education and new learning technologies. Mission ABED: "Contributing to the development of the concept, methods and techniques that promote the flexible open and distance education, aiming the access of all Brazilian to education" Website http://www2.abed.org. br/institucional.asp?Ins titucional_ID=1 Editacuja Editacuja is a transmedia publishing toward the education and culture. It has three main lines: development of content for various types of devices, integration technologies and, finally, education and training in the use of technology educational. In line education and training, the Editacuja were developed different projects, including the Design workshop education for Mobiles, What happens in Brazil and abroad, and is toward the formation multipliers http://www.editacuja.c om.br Publisher Mobility develops electronic books in EPUB format 3 and sells its titles through its website and also by the iBookstore Apple Inc. One of the differences Mobility is to offer our educational content across multiple platforms, ensuring the student MOBILITY in the learning process. http://www.mobilitybr. com/Educacao/20 Mobility Editora FP7 GA n° 288594 Page 154 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU The Brazilian Institute of Instructional Design (IBDIN) The Brazilian Institute of Instructional Design (IBDIN) http://ibdin.com.br/no is a company focused on training and support the vosite/index.php use of new information and education technology with a focus on practical application and development of e-learning solutions. Virtual Library TeleHealth Brasil National Programm of TeleHealth Brazil Network – Ministry of Health http://www.telessaude brasil.org.br/ Embrapa The Brazilian Agricultural Research Corporation (Embrapa), linked to the Ministry of Agriculture, Livestock and Supply, is responsible for solutions enable research, development and innovation for sustainable agriculture. http://www.embrapa.b r/ APPLICATION DEVELOPERS Peru Name EHAS PROGRAM IN PERU ADVANCED MOBILE PHONE SYSTEM) Short Description Telemedicine has benefits such as reduced service times, More timely diagnosis and treatment, improved service quality, reducing transportation costs, continuing care, treatments appropriate risk mitigation professionals interconsultation possibility, greater coverage, appropriate prevention campaigns among many other virtues. The cell phone today is not only an indispensable tool for business people but also an essential element for communication between people. The rapid technological development, reducing costs and increasing expectations of the people, have led an invasion of cell phones in society, level to revolutionize the activities that people do every day. Website http://www.comunidad andina.org/telec/Docu mentos http://revista.info.unlp. edu.ar/tesinas/tesis14. pdf Brazil FP7 GA n° 288594 Page 155 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Name Apple store Short Description Apple's online store for selling applications for its products (iPhone, iPad, etc..). Website http://itunes.apple.com Google play Google shop for selling applications for devices using the Android operating system. https://play.google.co m/store?hl=pt- SBIS – Sociedade Brasileira de Informática Médica The Brazilian Society of Medical Informatics (SBIS) is attentive to the expansion of Internet usage as a possibility to advance the use of ICT in Brazil Health, which includes the M-Health. This issue has gained importance in conferences organized by the SBIS. http://sbis.org.br/ Datasus PLATFORM DEVELOPERS Peru Name Short Description Website APTRA Adaptation of work stations, recommendations www.fundaciononce.es/ and support products (technical aids) EN/ Research2Guidance consulting firm specializing in research on mobile technologies, has prepared a detailed report on the market of mobile applications for health and provides data, key figures of the market, technological and social trends that have been obtained by analyzing and surveying the main actors of this market and reviewing the figures for a sector that is expected to grow by 807% by 2013, move 17.5 billion dollars in 2012 and reach 500 million people using mobile medical applications in 2015. More Americans appear to depend increasingly on their smartphones, a study released Monday shows the increasing use of these mobile devices to resolve a dispute, arrange a meeting, choose a restaurant or get information. Several studies that analyze in depth the market for each of the sectors that comprise the digital content industry in both the global and European context as in Spanish (16), and while in the http://guiacirugiaestetic a.com/estudio-sobre-elimpacto-de-lasaplicaciones-moviles-enla-industria-medica-yde-la-salud/ MOBILE HEALTH MARKET REPORT Wayra MADRIDNETWO RK FP7 GA n° 288594 http://aulasyportaleswe b.net/inicio/tecnologiamovil http://www.madridnetw ork.org/Info/Audiovisual /Documentos/Contenido s_digitales.pdf Page 156 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU following sections we will extract the some highlights that they seem particularly relevant, we will focus our analysis on the new uses, challenges and future trends in the various sectors of the digital content industry. Brazil Name Google Short Description Website Microsoft Oracle INTERNET PROVIDERS Peru Name Short Description Website TRADE The Comercio.pe reports on news, politics, http://elcomercio.pe/ elections, food, entertainment and sports. Google Search results focusing on this country and www.google.com.pe/ internationally in both Spanish and English Yahoo It is a global media company based in the U.S., www.yahoo.com whose mission is "to be the service most essential global Internet consumer The Worldwide State of the Móbile Web FP7 GA n° 288594 Under the context of telecommunications, universal service refers to providing a basic level of telecommunications services for all residents of a country, including those located in rural, remote and high cost. Enterprises and service providers can quickly deploy any Windows application or desktop on public clouds, private and hybrid Mark Templeton, Citrix president and CIO, announced at Synergy 2012, event held in San Francisco, Project Avalon, the next http://www.itu.int/itune ws/manager/display.asp?l ang=es&year=2008&issue =07&ipage=20&ext=html http://www.cioal.com/ Page 157 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Viettelve phase enterprises and service providers can quickly deploy any Windows application or desktop on public clouds, private and hybrid Mark Templeton, Citrix president and CIO, announced at Synergy 2012, event held in San Francisco, Avalon project, the next phase in the evolution of transforming any application. The Minister of Transport and Communications, Enrique Cornejo, estimated that the supply of Viettel Group an investment cost of about $ 27 million (in 4,045 schools to serve more the 1.3 million). On the other hand, Cornejo announced in June it will launch the tender for the right to use the band for the 4G technology. http://elcomercio.pe/eco nomia/705249/noticiavietnamita-viettel-cuartooperador-telefonia-movilpais Brazil Name NIC Short Description The Center for Information and Coordination Point BR is a civil, non-profit entity, since December 2005 it implements the decisions and projects of the Internet Steering Committee in Brazil. Website http :/ / www.nic.br MOBILE SERVICES PROVIDERS Peru Name Movistar Short Description Fixed telephony services, Speedy Movistar Movistar TV, Cell Prepaid, postpaidAlpha Website http://www.movistar.com. pe/ Claro Claro is a trademark belonging to the Mexican http://www.claro.com.pe/ company America Movil's mobile phone industry Nextel GSMA FP7 GA n° 288594 portal/pe/ Service provider and data communication two- http://www.nextel.com.pe way radio and cellular telephony. /portal/server.pt Mobile Money Americas 2012 will offer a unique view on how to launch its mobile money service in a number of important markets in Latin America including Brazil, Mexico, Peru, Ecuador, Colombia, Nicaragua, Honduras, Haiti and the Caribbean Islands http://www.mobilemoneygateway.com/mobilemoney-americas-2012 Page 158 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU ASOCIACIÓN DE USUÁRIOS DE INTERNET DEL PERÚ INDOTEL THE MINISTRY OF EDUCATION, MINISTRY OF LABOUR AND EMPLOYMENT PROMOTION, THE NATIONAL ASSEMBLY OF GOVERNORS (ANR), THE NATIONAL COUNCIL FOR THE INTEGRATION OF PERSONS WITH DISABILITIES (CONADIS) AND LOCAL GOVERNMENT UNE EPM leading provider of broadband Internet and general in Colombia A cabin Internet is the means by which the Peruvians are connected, but not all are equal and some have many problems http://www.aui.pe/ The Dominican Telecommunications Institute (INDOTEL), Alliance Global Systems Mobile (GSMA) and the National Commission for Information Society and Knowledge (CNSIC) announced today the conclusion of the seminar "Towards a children's cyber security policy and adolescents in the Dominican Republic. Law to Promote Internet Access for People with Disabilities and Physical Space Adequacy in Public Internet booths, an Act to take into account the public Internet booths. http://lonegroyblanco.blo gspot.com/2011_10_01_a rchive.html Public agencies and universities should incorporate into their websites and Internet portals access options for people with visual disabilities to access the information they contain. http://www.vidadigitalradi o.com/une-epm-primerproveedor/ http://aui.pe/noticiaspara cabinasylocutorios.htm Brazil Name Claro Short Description Website Oi Developed by Oi Future in partnership with Brazilian universities for over ten years, Oi Tonomundo transforms schools into centers to http://www.oifuturo.or g.br/educacao/oitonomundo/ FP7 GA n° 288594 Page 159 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU leverage benefits for community projects. The program has created a methodology of teaching through computers and train teachers to transfer learning for children of public schools are collaborative content for use in the classroom, from the virtual environment Oi Connects. Tim Vivo The success of Kantoo (http://kantoo.com/KantooEnglish/pr-index.html) course in English and Spanish by phone, opened the eyes of Vivo for a market still little explored in Brazil: mobile content services that effectively transform people's lives. A director of the company says it will be the main focus of the company in the segment of mobile content in 2012 - he refers to products related to education, health and safety, especially. http://www.mobiletim e.com.br/09/02/2012/ m-education-eprioridade-na-vivoesteano/ 261799/news.aspx PROJECT OWNERS/DEVELOPERS Peru Name Short Description Website Universidad Cayetano Heredia University is a private university http://www.upch.edu.p Cayetano located in the city of Lima, Peru. Leader in basic e/ Heredia and applied biomedical research. Red Quipu The dynamic portal engine and content http://www.e- management system. quipu.pe/upch/inicio/ The challenges facing the health sector in Latin America and the Caribbean defined the potential of eHealth in the region. Theoretically, in many cases this seems to be the most equitable, effective and efficient way to increase access, timeliness of care, alert generation, saving costs and more effective diagnosis and treatment. http://www.eclac.cl/pub licaciones/xml/5/41825/ di-salud-electrinicaLAC.pdf TIC FP7 GA n° 288594 Page 160 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU M-Health MHEALTH FOR DEVELOPMENT SAG ESMAYOY MINISTRY OF NATIONAL EDUCATION OFFICE OF PLANNING AND FINANCE ADVISORY REPUBLIC OF COLOMBIA ORGANIZACIÓN PANAMERICANA DE LA SALUD GLOOGLE FP7 GA n° 288594 In relation to eHealth in Peru in the last decade has been substantial progress in research and training (Curious and others, 2009a). Following the privatization of telecommunications, it has experienced great development and there is room for further growing, especially outside of Lima and in rural areas. Technological Design, Description of technology, type of research, technical analysis and data collection, analysis results, collection system requirements, Operational Economic and Social Feasibility, Methodology to be used for system development At present for the entire organization is essential to use the computer, because it really is a significant tool for the implementation of systems to comply with certain features like having rapid, timely and specific, enabling efficient decision making, effective and low cost to organizations, since this will depend the success or failure thereof. ISIS: usa la tecnología NFC para realizar pagos en línea con tarjetas http://www.ongei.gob.p e/estudios/publica/estu dios/Lib5151/Libro.pdf Advice and technical support to sub national public health in the generation and control laws and regulations. http://www.paho.org/sp anish/dpm/shd/hp/FESP _06.htm Google has just released details of their research in augmented reality glasses. The images show a device minimalist design, with a microphone and a partially transparent screen in which information is placed so it can be seen by the user's right eye. Product developers sought views on his idea, without indicating when it might exit the market or how much it would cost http://dineroenmovimie nto.wordpress.com/cate gory/tecnologia-al-dia2/page/ http://www.chileatiende .cl/fichas/ver/2572 http://forja.softwarelibr e.gob.ve/docman/view. php/38/362/proyecto+e smayoy+FINAL.pdf http://www.mineducaci on.gov.co/1621/articles139911_archivo_pdf.pdf Page 161 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Alcenit Corporation Game loft, a leading international publisher and developer of digital and social games, announced a catalog of 11 games for the BlackBerry ® platform 10. Shark Dash, N.O.V.A. 3: Near Orbit Vanguard Alliance, Ice Age: The Village and Oregon Trail: American Settlers are some games that are optimized for the new platform by using the BlackBerry ® 10 Native SDK (software development kit). http://www.industriamo vil.com Brazil Name Ministry Short Description Website State Secretary Municipal Secretary National Center for Research in Information Technology for Agriculture (CNPTIA). Institutions of Technical Assistance and Rural Extension Universities/ICT FP7 GA n° 288594 In Brazil, the operation of the public health system is the responsibility of 5,565 municipalities and nearly always organized by the municipal secretariats of health. It is a reference center for the development of projects in information technology applied to agribusiness and acts in areas of engineering software systems, scientific computing, communication technology, bioinformatics and agro-climatology, and the use of open standards and systems development for the web. Institutions of Technical Assistance and Rural Extension -MG Mission: Promoting Sustainable Development through Technical Assistance and Rural Extension, ensuring improved quality of life of the Minas Gerais society. Focus of Action: Implement policies that promote sustainable development, focusing on family agriculture, aligned to the Minas Gerais Integrated Development Plan of the Government of Minas Gerais, to the State Policy on Agriculture, Livestock and Supply and to the National Policy on Technical Assistance and Rural Extension. School of the Future - University of São Paulo (USP) - http://www.cnptia.embrapa. br/ http://www.emater.mg.gov.b r/portal.cgi?flagweb=site_tpl _paginas_internas&id=6 http://futuro.usp.br/portal/w ebsite.ef Page 162 of 163 D4.1 – Benchmark on End-Users needs Dissemination level - PU Digital Education Research Group (GPedU) UNISINOS / CNPq - Research group whose main theme Digital Education and Culture, both in school and non school settings. http://gpedunisinos.wordpre ss.com/ SEMENTE Center - The Center of the Universidade Federal Rural de Pernambuco (UFRPE) - aims to describe the development of educational materials with the use of Information and Communication Technologies (ICT). Moreover, the SEMENTE provides consulting and assistance activities the public and private schools in teaching chemistry and the use of ICTs in education. FP7 GA n° 288594 Page 163 of 163