NDSC 41st Annual Convention
Transcripción
NDSC 41st Annual Convention
NDSC 41st Annual Convention Taking our Convention a Mile High July 19-21, 2013 • Denver, Colorado CauseCation Vacation at a Higher Level 2013 Convention at a Glance Thursday, July 18 9:00 a.m. 6:00 p.m. 7:00 p.m. Global Down Syndrome Foundation Research and Medical Care Day Registration Opens Diversity Outreach Social Friday, July 19 7:30 8:00 1:30 3:00 3:15 3:30 6:30 8:00 a.m. Kids’ Camp Session 1 a.m. Pre-Conference Sessions p.m. Sharing Sessions p.m. Kids’ Camp Session 2 p.m. Y&A and B&S Kick-Off p.m. Sharing Sessions p.m. Opening General Session p.m. Opening Reception and Just Dance! Saturday, July 20 7:30 8:00 8:30 1:15 6:30 9:00 a.m. Kids’ Camp Session 3 a.m. Y&A and B&S Conferences a.m. General Convention p.m. Kids’ Camp Session 4 p.m. Reception/Awards Banquet p.m. Dance Sunday, July 21 7:30 8:00 8:00 8:30 1:00 2:05 a.m. a.m. a.m. a.m. p.m. p.m. Kids’ Camp Session 5 Y&A Talent Show B&S Off-Site Trip General Convention Convention Closes Colorado Rockies Baseball Game General Convention The General Convention programming includes a mix of plenary sessions and breakout workshops. The Convention officially begins Friday evening with keynote presentations for all attendees on a variety of topics. Attendees can participate in five workshop cycles Saturday and Sunday, with 14 sessions available during each cycle. A complete, age-organized workshop list is available both at www.ndsccenter.org, and within the Souvenir Journal to guide you in making selections. Pre-Conference Sessions These valuable assemblies present the first, and arguably most in-depth, learning opportunity of the weekend. More information about available Pre-Conference Sessions is listed on pages 4-5. Sharing Sessions Sharing Sessions mark the unofficial beginning of the General Convention. Taking place Friday afternoon from 1:30–3 p.m. and again from 3:30–5 p.m., these sessions facilitated by seasoned parents, encourage participants to connect informally around common age groups and interests, and share similar needs, joys, concerns, resources and strategies. Kids’ Camp The educational playground of the convention, Kids’ Camp was created for children ages 6 months – 14 years to participate in activities while their parents are attending workshops. The camp is offered in five separate sessions. All children must be pre-registered. Space is limited so register early. About Denver Nestled at the base of the Rocky Mountains, Denver is where city lights meet the Wild West. Best known as the Mile High City (the 13th step of the state capitol is at 5,280 feet above sea level), Denver is the ideal summer vacation destination. Warm days, mild nights and low humidity lend themselves to getting out and exploring. Catch a Rockies game or gaze at a buffalo herd in Denver’s Mountain Park System. Enjoy the excitement of the Elitch Gardens downtown amusement and water parks or the mile of dining, shopping and attractions at the 16th Street Mall – both near our hotel. If you have a few extra days, explore Rocky Mountains National Park, take the cog railway to the summit of Pikes Peak, or check out the lifestyles of the rich and famous in Aspen and Vail. There are museums, exhibits and events aplenty – more than you will have time to do. Catch a concert at Red Rocks Amphitheatre. Or maybe tour the home of the “Unsinkable” Molly Brown, and learn more about the life and times of this famous Titanic survivor. Whatever your interest, Denver and Colorado have something for you and your family! To start planning your trip, visit www.denver.org today! Youth and Adults Conference Attendees must be 15 years old by July 19, 2013 Considered “the heart and soul of the Convention weekend,” the annual Youth and Adults (Y&A) Conference is a fun, empowering, enriching and safe environment for attendees with DS age 15 and up. Announcing Two New Workshop Tracks: Co-Occurring DS and Autism Spectrum Disorders (DS-ASD or DS+Complex Behaviors) Registration for the Y&A Conference will close June 7, or earlier if capacity is reached. Please note that Y&A Conference registration is not available on-site. We encourage interested attendees to register early, as we typically reach capacity before the deadline date. The NDSC cares deeply about serving the needs of all families, including those with loved ones with co-occurring autism, autism-like behaviors, or complex needs. As a result the NDSC has collaborated with Down SyndromeAutism Connection to offer a speciallydesigned DS-ASD/Complex Behaviors track at this year’s convention. Experts in the field of DS-ASD will be presenting on important issues and will be available to answer questions and provide much needed support. Brothers and Sisters Conference Adult Siblings For those entering 6th through 12th grade in 2013-14, as well as college-age conference alumni The role of a brother or sister changes dramatically as parents age. This track of workshops is designed to give adult siblings the tools they’ll need, whether that day has come, or whether it’s well in the future. Packed with experts in financial planning, guardianship, trusts, adult transition, aging and mental health, coupled with a few social networking opportunities, adult sibs will leave feeling prepared, supported and empowered. The Y & A Conference is planned and presented by self advocates. The event begins with a Friday afternoon kickoff party, followed by workshops, open mic sessions, empower hour and panel presentations on Saturday (lunch is not included). The Conference closes on Sunday with the popular talent show, but not before attendees elect one of their peers to serve on the NDSC’s Board of Directors. The sibling connection is most often the longest-lasting family relationship attendees have. As a result, it’s important that brothers and sisters feel supported, and know how to advocate for their sibling with DS. The B&S Conference begins with a Get Acquainted Session Friday afternoon. The group additionally meets all day Saturday (including lunch), and will break concurrently with the General Convention and Y&A Conference. On Sunday, B&S attendees will travel off-site to explore a local Denver attraction. Social Events and Other Activities What would an NDSC Convention be without a dance or two? All attendees are invited to join Friday night’s Just Dance! event, following the Opening Session. Saturday evening’s events include our annual Awards Banquet (a ticketed event), followed by another dance for all attendees (no ticket required). We will also host a vendor Exhibit Area featuring the latest books, toys, teaching aids, apparel, software and more. Our Film Festival showcases the best films, clips and documentaries featuring the Down syndrome community. After the Convention closes Sunday, consider heading to the ballpark to see the Colorado Rockies take on the Chicago Cubs. NDSC families can purchase discounted tickets during Convention registration to sit in our reserved section. 2013 Pre-Conference Sessions Pre-conference sessions enable you to dig deeper into one specific topic with nationally-known speakers. The sessions are structured to share best practices and proven “how to” strategies, while providing research-based content. All sessions will include time for Q & A, and coffee and pastries will be provided. Pre-cons will be held on Friday, July 19 from 8:00am 12:30pm. Separate registration is required. Pre-conference handouts are only issued to the person registered for the session. Space may be limited in some sessions, so register early. On-site registration cannot be guaranteed. PRE-CON A: DS Parenting 101: The Straight Scoop, with Tools and Rules Natalie Hale, Educator, Author, Founder of Special Reads for Special Needs, Mother of a Son with DS, Los Angeles, CA In this session, Natalie Hale, author of the new book, “DS Parenting 101: Must-Have Advice for Making Your Life Easier,” will cover the gamut of an extraordinary parenting journey, from a child’s birth to independent living. Special attention will be given to understanding oppositional behaviors and learning the tools for parenting those behaviors. This session will include a parent panel, role-playing, and short videos, as well as a “Non-Compliant Tool List.” As one parent has said, “I can’t get this kind of information anywhere else in this country. Standard parenting books fall “way short for me.” This unique session gives hard-won tools and insights which can make our parenting lives smoother and even more rewarding. PRE-CON B: Try Reading Again…or for the First Time DeAnna Horstmeier, Ph.D., Author, Mother of a Son with DS, Worthington, OH Do you have a struggling student who has given up trying to read, or pretends to read, or who has some sight words but can’t figure out new words? Does that student protest that the books are babyish or just boring? DeAnna Horstmeier will present a savvy method for teaching beginning reading tailored to the interests and vocabulary of upper elementary and secondary students. The Try Reading Again method consists of three important components: stories written in the student’s own language (language experience), phonics, and age-appropriate structured stories (written by others). Participants will walk away with new strategies to make reading a reality. PRE-CON C: What Autism Looks Like in a Child with DS Susan Hepburn, PhD, Associate Professor, University of Colorado School of Medicine, Director of Research for JFK Partners, University of Colorado School of Medicine, Aurora, CO This presentation will explore the connection between DS and Autism, and provide a variety of resources to help navigate this complex diagnosis. Participants will learn how behavioral characteristics intersect to create unique challenges for screening and evaluation, as well as implications for intervention. Dr. Hepburn will provide an overview of the differences in behaviors presented with a cooccurring diagnosis. PRE-CON D: Developing a Good Foundation for Speech and Language: Birth to First Grade Libby Kumin, Ph.D., CCC-SLP, Professor of Speech-Language Pathology and Author, Loyola University, Baltimore, MD This session will focus on the differences between communication, language and speech, what prepares your child to speak, and how your child progresses from sounds to words to conversation. Dr. Kumin will provide and demonstrate activities you can do at home to help your child develop skills they will need to master. Additionally, Dr. Kumin will share effective techniques for working with teachers and SLPs in preschool and elementary school settings. PRE-CON E: Curriculum, Visuals, Behavior – Are You Sure this Child can be Included? Patti McVay, M. ED., Director of Education, Linda Crnic Institute for DS Anna & John J Sie Center for DS, Instructor, Department of Pediatrics University of Colorado School of Medicine This session will examine key ways for students to become true participating members of their general education classroom. Participants will learn how to make modifications and accommodations that can benefit multiple students in the classroom, examine how visuals support success, and learn alternate processes and perspectives to ensure behavior is not a barrier for inclusion. This session will include parent perspectives and time to develop plans to support your child or student using inclusive best practices. PRE-CON F: PRE-CON I: Doing the Detective Work to Create Positive Behavior Change (Con interpretación simultánea al español) Scott Shepard, Director of Avenues Supported Living Services, Professor at CSU Northridge, Cal-TASH Board Member, Valencia, CA Proceso evolutivo de la afectividad y la sexualidad en personas con síndrome de Down Dra. Teresa Aguilasocho Montoya, Médico Gineco- Obstetra, Presidenta de la Fundación Síndrome de Down de Nuevo León A.C., Monterrey, N.L. México y Beatriz Garvía, Psicóloga Especialista en Psicología Clínica Centro Médico Down, Fundación Catalana Síndrome de Down, Barcelona. España Positive behavior change is possible! This session will lead you to discover why your child behaves a certain way and more importantly how you can make positive changes. Participants will receive an overview of functional assessment, learn how to identify behavioral motivations and teach replacement behaviors and skills as an alternative to challenging behavior. Attendees will take home a variety of “tools” to get started on the right path, with principles that can be applied with children and adults of all ages. PRE-CON G: Self-Promotion: A Good Idea for Your Health Brian Chicoine, MD, Medical Director, Adult DS Center of Lutheran General Hospital, Park Ridge, IL and Dennis McGuire, PhD, Director Psychosocial Services, Adult DS Center of Lutheran General Hospital, Park Ridge, IL and Christine Maxwell, Self Advocate, Evanston, IL Good health is both a gift and a process. Optimizing both mental and physical health requires active participation in that process. As the world expands for people with DS, there is both opportunity and challenge to improve health. Health promotion for adolescents and adults with DS will be addressed. This session will provide special emphasis on self-promotion of health by people with DS. La vida afectiva y sexual de las personas con síndrome de Down está sometida a una serie de mitos, prejuicios y fantasmas que inquietan a familias y profesionales. Pero no dejan de ser eso: prejuicios y miedos, porque la sexualidad de la persona con síndrome de Down es sexualidad humana, no es una sexualidad especial, no existen diferentes sexualidades. La sexualidad y la afectividad son dimensiones de la personalidad que están presentes en el comportamiento, son funciones biológicas y afectivas. PRE-CON J: *Affiliates LEAD 101: A “Basic Foundations” Workshop for Leadership, Education, Advancement and Direction This session is designed specifically for local DS organization leaders (both volunteer and staff) who may be new to the world of non-profits or whose organization is relatively new. We’ll start the day with a presentation on communication: social media, email marketing, blogging—you know, what all the cool kids are doing! Then we’ll go really interactive, and spend our time networking and sharing your ideas and concerns through a “table top graffiti” session. LEAD 101 will leave attendees inspired and motivated! PRE-CON H: PRE-CON K: The Joy of Work: How Finding a Job and Starting a Career Can be FUN! Amy Dwyre, Senior Associate, TransCen, Inc., Sister to a Brother with ID, Rockville, MD *Affiliates LEAD 201: A “Beyond the Basics” Workshop for Leadership, Education, Advancement and Direction There is a job out there for anyone who wants one, regardless of disability, need for support, or economic vitality of a community. But more importantly, the journey to a career can be fun and exciting! This session will teach strategies that families and jobseekers themselves can use to jumpstart the job search process and help case managers do a better job. After this session, participants will understand the importance of the individual discovery process, how to approach and partner with businesses, how to negotiate and customize an awesome job position, and how to stay focused on a career path. Participants will also walk away with the start of an individualized “Positive Personal Profile” and a personalized marketing script! Keeping in mind the more seasoned non-profit leader, this session will address topics “beyond the basics”. Along with attendees from the LEAD 101 session, we’ll start the day learning more about the importance of communication: social media, email marketing, blogging—and how to move our message beyond the basics. Next, we’ll hear from non-profit professionals on critical areas such as financial oversight and strategic thinking. LEAD 201 will also provide the opportunity to network with other experienced DS organization leaders. *NDSC Affiliate Members receive two complimentary registrations for either Pre-con J or K. Register Now! Register Online Meal Plan Airlines Visit www.NDSCCenter.org; click “Annual Convention”; and select “Register” Attendees can register for an optional meal plan that will provide four meals throughout the weekend – dinner Friday evening, breakfast and lunch Saturday, and breakfast Sunday. Menus have been pre-selected (gluten-free is available), and can be viewed on our website. The cost is $68 per person for the fourmeal package (meals cannot be ordered separately), and may not be available to purchase on-site. If you are interested, please order during registration to ensure availability. American Airlines - Promo Code: 6973DP 5% Discount; Book online at www.AA.com or call (800)-443-1790 Convention Headquarters Ground Transportation Colorado Convention Center 700 14th St. Denver, CO 80202 Avis Rental Car is pleased to provide a convention discount to NDSC families. The AWD code is J944711 - call (800) 331-1600 or book online at http://bit.ly/101Ms44. Register by Mail Access downloadable forms at www.NDSCCenter.org, or contact us at (800) 232-6372 or [email protected] to request hard copy registration forms. These forms can be completed and returned (with payment) by mail to the address listed on the back cover. Convention Hotel Delta Airline - Promo Code: NMFJ7 (domestic/Canada) and NMFNK (international) 5 - 10% Discount; Book online at www.delta.com or call (800) 328-1111 *Surcharges apply for booking via phone Hyatt Regency Denver at the Colorado Convention Center 650 15th St. Denver, CO 80202 (303) 436-1234 Visit the NDSC website for details on how to reserve a room in the convention block. 2013 Registration Fees By June 7 By June 26 On-Site General Convention Individual $140 $190 $240 General Convention Family (up to 3 people – one additional adult can be added for $50) $230 $280 $330 Pre-Conference $75 $75 $100 Youth & Adults w/DS Conference $85 closed closed Brothers & Sisters Conference $85 closed closed Kids' Camp $30 per session closed closed Options By June 26 On-Site Post-Convention Extra compendium $20 not guaranteed not guaranteed Adult Banquet Ticket $45 not guaranteed N/A Child Banquet Ticket (12 and under) $19 not guaranteed N/A Conference Recordings $45 $45 $45 Meal Plan (4 meals) $68 closed N/A Convention T-Shirt $10 $15 N/A *If you are not an NDSC member, $35 will be added to your total registration at checkout. CONVENCIÓN ANUAL DEL NDSC Convención General El programa de la Convención General consiste en dos sesiones plenarias y talleres que se presentarán durante el fin de semana. La convención comienza el Llevamos Nuestra Convención a lo Más Alto viernes con la primera sesión plenaria. Se ofrecerán talleres el sábado y el domingo en 5 ciclos. Cada ciclo contará con 14 talleres. Un taller será impartido en español y otro con interpretación simultánea al español. Las descripciones de cada taller estarán disponibles en el portal del NDSC y estarán agrupados por edades. Equipo de interpretación disponible en la mesa de información en español. Pre-Conferencias Los seminarios de 4 horas y media cada uno se presentarán simultáneamente el viernes 19 de julio de 8 a.m. a 12:30 p.m. por lo que solo es posible asistir a uno. Cada seminario tiene un costo de $75 USD y se requiere previa inscripción. Solo una de las pre-conferencias será impartida en español la Letra I Proceso efectivo de la sexualidad en personas con síndrome de Down Ponentes:Dra. Teresa Aguilasocho y la Psic. Beatriz Garvía. Otra de las pre-conferencias estará disponible con interpretación simultánea al español Letra F Estrategias para fomentar cambios positivos en el comportamiento de su hijo. Ponente: Scott Shepard. Servicio de café incluido y espacios limitados. Encuentros para familias de habla hispana Estos encuentros se llevarán a cabo el viernes 19 de julio de 3:30 p.m. a 5:00 p.m. El objetivo primordial es proveer a las familias provenientes de diversas ciudades de Estados Unidos y Latinoamérica una magnífica oportunidad para conocerse e intercambiar experiencias. Los encuentros serán dirigidos por padres de familia. Programa para Jóvenes y Adultos con síndrome de Down Participantes deberán tener un mínimo de 15 años de edad El programa para jóvenes y adultos con síndrome de Down es en si el corazón y el alma de la Convención y tiene como objetivo el proveer a los participantes un fin de semana lleno de aprendizaje y diversión el cual les proporcionará valiosas aptitudes para su vida futura en un ambiente seguro. El programa arranca el viernes por la tarde con una divertida reunión y el sábado consiste en talleres, sesiones generales y presentaciones de panel. No incluye almuerzo. El domingo los jóvenes participarán en el popular festival de talentos. Todos los ponentes y participantes en este programa son personas con síndrome de Down qué cuentan con el apoyo del NDSC y un maravilloso equipo de voluntarios. Se requiere documentación y autorización de los padres. La documentación nos permite conocer a cada uno de los participantes y entender sus necesidades para brindarles el mejor apoyo posible. Espacios limitados e inscripción cierra el 7 de junio. Reunión de Hermanos Pueden participar hermanos desde 6to al 12vo y hermanos universitarios La reunión de hermanos consiste en un divertido fin de semana en el cual los participantes tienen la oportunidad de aprender sobre el síndrome de Down, intercambiar información y experiencias así como conocer nuevos amigos. Las actividades comienzan el viernes con una reunión para que los participantes se conozcan. El sábado se reunirán durante todo el día (almuerzo incluido) y terminan simultáneamente a la Convención General y al programa de jóvenes y adultos con síndrome de Down. El domingo está planeado un paseo a una atracción Informes: [email protected] turística en la ciudad Página web: convention.ndsccenter.org/en-espanol de Denver. Eventos Sociales y Otras Actividades Cóctel de Bienvenida jueves 18 de julio 7 p.m.- 8:30 p.m. Reunión para dar la bienvenida oficial a las familias a la 41ª Convención Anual del NDSC. Se requiere reservación previa al momento de inscribirse a la Convención General. Reunión de Asociaciones y Grupos de Apoyo viernes 19 de julio 1:30 p.m. – 3:00 p.m. El objetivo de esta reunión es conocer los proyectos de cada uno e intercambiar programas, logros y lo que es primordial unificar esfuerzos a favor de las personas con síndrome de Down. Enviar correo a: [email protected] para confirmar asistencia y recibir más información. Just Dance! El viernes por la noche recuerden venir cómodos para bailar y disfrutar del popular Just Dance! Cena de Premiaciones (Se requiere boleto a la entrada). El sábado por la noche se celebrará la ceremonia de premiaciones y cena de gala. Al terminar le sigue el tradicional baile y todos los asistentes a la convencion general están invitados. Sala de Expositores más de 60 expositores se darán cita durante el fin de semana para presentar lo más novedoso y reciente en libros, materiales didácticos, juguetes educativos, programas de computación, entre otras cosas más. Festival del Cine Maravillosa oportunidad para disfrutar de los mejores filmes y documentales en las que los protagonistas son personas con síndrome de Down. El Festival del Cine se llevará a cabo durante los ciclos de los talleres del sábado y el domingo. Kids Camp Es un campamento de niños con el propósito de brindarles alegría y diversión Se requiere inscripción y pago adicional. Los lugares son limitados y las inscripciones cierran el 7 de junio. Edades: desde los 6 meses hasta 14 años de edad. Plan de Comidas Este plan es opcional e incluye cuatro comidas: cena del viernes por la noche, desayuno y almuerzo del sábado y desayuno del domingo. El costo por persona es $68 USD. Special Thanks The National Down Syndrome Congress would like to thank our 2013 Host Committee Partners for their assistance in providing local support and coordination of the 41st Annual Convention. Adam’s Camp ARC Thrift Stores Colorado Springs Down Syndrome Association Denver Adult Down Syndrome Clinic Down Syndrome-Autism Connection Global Down Syndrome Foundation The Rise School of Denver Rocky Mountain Down Syndrome Association Global Down Syndrome Foundation Research & Medical Care Roundtable State of the Union – What you should know for your child or adult On Thursday, July 18, from 9am to 4pm we are hosting the Global Down Syndrome Foundation Research & Medical Care Roundtable. Co-organized with the National Down Syndrome Congress and supported by the Down Syndrome Medical Interest Group, this roundtable will feature top scientists and medical professionals working to better the lives of people with Down syndrome. Topics will include sleep apnea, immune deficiency, heart and pulmonary problems, cognition, and Alzheimer’s disease. After the roundtable, we have organized a major musical concert free of charge for all attendees to the roundtable from 6:30 – 9:30 pm. We hope to welcome you to Denver in July. Look for the link for Roundtable Registration on www.ndsccenter.org to reserve your spot now — seating is limited. Sincerely, Michelle Sie Whitten Executive Director, Global Down Syndrome Foundation NDSC 41st Annual Convention July 19-21, 2013 Our Youth and Adults Conference always fills up quickly, and registration may close in advance of the June 7 deadline. 30 Mansell Court, Suite 108 Roswell, GA 30076 Toll Free: (800) 232-NDSC (6372) Local: (770) 604-9500 Fax: (770) 604-9898 Email: [email protected] www.NDSCcenter.org twitter.com/NDSC facebook.com/thendsc youtube.com/NDSCCENTER
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