July – August, 2015 Newsletter

July/August 2015
Volume 15, No. 4
the eXtra!
A publication of Down Syndrome Association of Central California
Our mission is to enhance the quality of life for all people whose lives are touched by Down syndrome.
Step Up for Down
Syndrome 2015!
decided by the donations and
registrations received in office
by October 9, 2015.
•The first 5 Individual/Family
Teams to raise over $2,000
will win an iPad for their team
captain!
Saturday, October 24, 2015
@the Clovis Rodeo Grounds
On your marks, get set, GO! It’s
time again to Step Up for Down
Syndrome. We are excited to
announce we have added
a NEW 5K timed run/walk
the morning of Step Up,
in addition to our 1-mile
awareness walk! The day will
also feature our Down Syndrome
Walk of Fame, exhibitor area,
food court, kids zone and live
entertainment.
The 5K timed run/walk is not just
another race, participants will
cross a SECOND finish line 0.11
miles after the official 3.1 miles for
a total of 3.21 miles to represent
Trisomy 21 (Down syndrome)! We
invite everyone to show up a little
earlier to cheer on our runners as
they finish the Down syndrome
distance!
Please note a few changes in
the way you will register for Step
Up this year…prices, registration
dates and every participant must
submit a SIGNED entry/release
In this issue...
Step Up Walk of Fame
form, and minors must have their
parent’s signature. If you need a
large group registration form, you
can download one online at www.
dsacc.org/events/step_up_for_
down_syndrome .... each participant
must submit their signature next to
their name on the group form. So
please review the registration form
carefully!
REGISTRATION FORM ON PAGE 8
Show us your
Down syndrome Pride!
Teams can compete for the title
of “Largest Team”or “Biggest
Fundraiser” in the following
categories: Individual/family, School
or Business. One team will be
named “Most Spirited” at the event,
selected by our guest emcee!
•Category winners will be
13” x 19” Color posters of our
superstars with Down Syndrome
will be featured along the Step Up
walk route for the whole city to
see! To be featured in the Walk of
Fame, please mail $25 to DSACC
at: 1491 W. Shaw AvenueFresno, CA 93711.
You will need to send a high
resolution photo (head shot) of
your superstar to [email protected]
by October
14, 2015.
* Price
includes
an extra
copy to take
home.
Step Up for Ds............... P. 1,
Tee Up recap................. P. 4
Un socia en Cuidado...... P. 7
DSACC Updates............ P. 2
5 & Under recap............ P. 5
Step Up Registration....... P. 8
Office Hours.................. P. 2
Donate Today................ P. 5
Registracion de Step Up.. P. 9
Education Corner........... P. 3
Birthdays . .................... P. 4
Calendar of Events......... P. 6-7
Calendario de eventos.... P. 10-11
1
DSACC Updates
A Letter from the Program Director, Jennifer Whiting
The Extra is funded in part by
The Fansler Foundation.
Contact Information:
Down Syndrome Association
of Central California
1491 W. Shaw Avenue
Fresno, CA 93711
Phone: (559) 228-0411
Fax: (559) 228-0414
E-mail: [email protected]
Website: www.dsacc.org
Jennifer Whiting- Program Director
Lourdes Arias: Spanish Language
Editor, [email protected]
Statement of Policy and
Disclaimer:
The Extra is the periodic newsletter of
(DSACC) Down Syndrome Association
of Central California, which serves
Central California. Subscription is free to
members & friends of the Association.
DSACC is affiliated with N.D.S.C and
N.D.S.S. The Extra reports items of
interest related to Down syndrome, so
that the reader may make informed
decisions concerning Down syndrome
related issues. Any opinions, findings
and conclusions, or recommendations
expressed in The Extra are those of the
individual authors and do not necessarily
reflect the views of the officers, Board
of Directors, DSACC organization or its
membership. All medical related issues
should be thoroughly discussed with
your doctor before being implemented.
DSACC does not endorse the writings
of any individual, professional, or
organization.
2015 Officers & Board of
Directors
Steven Ueltzen - President
Open - Vice President
Rachel Hitz- Treasurer
Chandel Perkins- Secretary
Denise Allshouse - Member at Large
Beth Ford - Member at Large
Jeremy Bishel - Self Advocate
Tony Phillips - Self Advocate
Marissa Erickson- Self Advocate
Liza Torres- Self Advocate
I hope everyone has had a
wonderful summer so far and hasn't
melted in the heat!
We are up to our eyeballs in event
planning here at DSACC with
Step Up just around the corner in
October and with the addition of a
5K timed Run/Walk, there are lots
of things to do and we need your
help! If you are interested in joining
the Step Up planning committee,
please email or call the office at
[email protected] or 559.228.0411.
We would love the help... big or
small jobs available!
In addition to Step Up, we need
helping planning for our annual
"Family Festival". This year is a
carnival theme- featuring an outdoor
movie, games, food and lots of
fun! If you are any of the following:
artistic, crafty, handy, organized,
good at getting donations... we
need your help! We need to build
some photo props, games and
solicit hot dogs, buns, condiments,
•Office Hours•
Mon. thru Wed. from 10 am - 2:30 pm
or by appointment.
Thurs. & Fri. by appointment only
or for scheduled events.
Adjusted hours:
July 1: Open 5-9 pm
DSACC will be CLOSED:
July 3-4: Happy 4th of July!
NO BOARD MEETING in JULY
If you need to reach someone at the
DSACC office, please call
(559) 228-0411 or E-mail
[email protected] and someone will
respond as soon
2 as possible
popcorn, seasonings, popcorn
machines, cotton candy machine,
shaved ice machine and all the
supplies! Please contact us at info@
dsacc.org or 559.228.0411 to see
how you can get involved!
Have a safe summer and a not too
traumatic return to school!
Jennifer Whiting- Program Director
Need some DSACC attire?
We have some great
merchandise for sale!
• I 5 DSACC shirt ................ $15
• DSACC glitter shirt ............. $25
• DSACC tumbler.................. $10
• DSACC socks..................... $10
• Step Up wristband................ $2
• DSACC portable charger
$15
Purchase them at the DSACC office or at
any of our events until they are sold out!
Contact DSACC staff for more info
559.228.0411 or [email protected]
Down Syndrome Association of
Central California relies entirely on
private contributions to offer free or
close to free programs, events, and
services. You have the power to
impact DSACC’s efforts & ensure our
continued growth and success.
Visit www.dsacc.org
to donate today!
You Can Make a Difference!
Sign up to receive
the eXtra
electronically at
www.dsacc.org!
(opt-in field at base of home page)
Education corner:
Getting Ready to Launch
As promised from our first article,
Valley Children’s Healthcare is very
excited as we finalize the launch of
the Down Syndrome resources for
providers and families on the Valley
Children’s website (valleychildrens.
org). As an initial service for
providers and families, we have
established a Down Syndrome
Support line (559)353-8880 and
a Down Syndrome Support e-mail
should families or providers have any
questions regarding coordination of
care, access to resources, questions,
on the tools, or general questions
regarding Down syndrome. Questions
and concerns will be responded to
immediately as well as monitored by
the Down Syndrome Subcommittee
as we continue to develop our
partnership with families and
providers.
In early July, Valley Children’s will be
adding to the website a Community
Resource Guide authored by Carolyn
HIGHER EDUCATION:
TILE Program at Fresno City College
The TILE Program is a partnership
between Fresno City College’s
Disabled Students Program & Services
and Central Valley Regional Center. It
is a 2 year program for Independent
Living and Higher Education for
students with intellectual disabilities.
Students graduate from TILE with
a Certificate of Participation and
transition to college classes with
appropriate skills and/or transition
into employment with support from
the Department of Rehabilitation.
In 2012, the TILE Program was
featured in a Program Spotlight for
the Community College Consortium
on Autism and Intellectual Disabilities
(CCCAID).
published Down Syndrome Checklists.
Our hope is to provide a continuing
education event that would include a
panel of subspecialty expertise from
Valley Children’s Medical Group in the
areas of Genetics, Cardiology, ENT,
Gastroenterology, and Ophthalmology.
Lastly, because of the success of the
Valley Children’s sponsored continuing
education lecture given by Dr. Dennis
McGuire, Ph.D, Director of Psychosocial
Services for the Adult Down Syndrome
Center of Lutheran General Hospital,
in suburban Chicago (USA) this past
February, we are working diligently to
Down Syndrome Resources: If you have any
questions about Down syndrome please call
prepare another continuing education
(559) 353-8880 or
event for our providers. Look forward
[email protected]
to further DSASS newsletter articles on
how this continuing education event is
Tellalian, LCSW, Patient & Family
developing.
Services and a Down syndrome
Checklist (Birth – 1 year, 1-5 years,
Valley Children’s is looking forward to
6-12 years, and 13-21 years) with
our participation in the DSACC Step of
corresponding Patient Family Brochures
Down Syndrome event October 24th.
(in both English and Spanish) developed We will be there with our booth and our
by Carmela Elaine Sosa, MD who is
team with our resources, trinkets, and
the Co-Chairman for Valley Children’s
who knows…..maybe even George!
Down Syndrome Sub-Committee.
Thank you for allowing us to have a
We are working on hosting a
column and contribute to the DSACC
community provider breakfast in mid
newsletter. Should you have questions
to late August or early September to
about our efforts, please feel free to
discuss the care and management of
contact me at (559) 353-5401 or at
Down Syndrome as well as providing
[email protected]
education on how to use the newly
The TILE Program, who are the founders
and facilitators of the Kiwanis Circle K
International Club on the FCC campus
(coordinated by Ms Kathleen Moroney),
received the award for Most Active
Club Off Campus and the high honor
of FCC Club of the Year in 2015. In
addition, one of the TILE alumni received
the 2015 East Fresno Kiwanis Student
Scholarship in the amount of $500.00.
We are very proud of Ms. Moroney and
the TILE Program for their contributions
to Fresno City College and these
recognitions.
To be eligible for the TILE Program a
student must:
•be a CVRC client,
•be 18 years of age and have a high
school diploma or 22 years of age
3
•be able to function without college
attendant care
•possess a desire to live independently
•possess self-help skills and be able to
learn to function independently
•be able to arrange own transportation
The program consists of 19 modules and
operates 11 months per year, Monday
through Friday, 9:00am to 3:00pm
for 2 years. Students will be eligible
for graduation from the program when
they complete the 19 modules, typically
done in twenty-two (22) months, and
demonstrate the necessary skills to live
independently or semi-independently.
The TILE Program is funded through a
grant awarded by the Central Valley
Regional Center (CVRC).
Please contact Karan Dhillon-TILE
counselor to sign up for a tour, at 559442-8237 ext. 8355.
Birthdays
If your birthday is not listed here, please call us and let us know. We will publish missed birthdays.
Able Ramirez
Adam Mercado
Aishwarya Lopez
Alejandro Venegas
Alexis Fajardo
Alondra M Baez
Andres Mendoza
Galvan
Anna Cruz
Anwar Youssef
Ariana Silguero
Aron Cortes-Martinez
Asanti Lara
Austin Lopez
Ava Lindsey Rivera
Axel Sanchez-Santiago
Baby Girl Segura
Breece Campbell
Brisa Avalos
Cambria Travis
Carlos Murillo Jr.
Damion Kiessling
Daryl Huang
Delia Romero
Dionicia Carston
Dustin Franks
Elizabeth Allan
Elizabeth Galindo
Emilio Ramirez
Emma Jackson
Everett Spuhler
Ezra Lee Baca
Faith Tienken
Franco Valdepena
Genesis Gutierrez
Gladys Hernandez
Hannah Stidham
Hope Elias
Hugo Torrez
Icelia Rivera
What an amazing event- thank you
to all the golfers who came out on
June 15 for our 7th Annual Tee Up
for Down Syndrome golf tournament
at Sunnyside Country Club in Fresno.
We had a wonderful day... Firestone
Walker Beer joined us to do beer
tastings on course, two beverage
tables were hosted by the Law Offices
of Philip M. Flanigan, there was the
opportunity to win a FREE 2 year
lease on a New 2015 Ford Mustang
courtesy of Future Ford of Clovis (a
couple close shots but unfortunately
Manny Duran
Isaac Valle
Maria Figueroa
Isaiah Flores
Marian Morales
Jack Fuguglietti
Marian Puente
Jaime Mesillas
Marissa Herrera
Jaleena Rayas
Matthew Hovda
Jarvis Gray
Melody Degadillo
Jayden Hernandez
Mereyda Mancilla
Jimena Sanchez
Michael DeMaira
Jordan Isaac MartinezMiguel Verduzco
Rodriguez
Mordecai Aden Green
Jovanni Hamirano
Natali Poudrier
Kaitlin Kaycee Johnson
Natasha Rodriquez
Kastle Keala
Nichola Moreno
Kayloni Bernal
Nicholas Geston
Lily Gerawan
Noah Mendoza
Lucille Noel ContoNoella Rivas-Comlos
Jones
Oscar Ramirez
Luis Angel Basilio
Pablo Antonio Perez Jr.
Madelen Fox
Patrick Jordan
Madison De Leon
no one sank a hole in one).
Congratulations to our winners of
the on course challenges… Longest
Drive: Cal Cain; Closest to the Pin:
Leido Wells; and Accuracy Drive:
Randy Prescott and a big round
of applause for our Tournament
Champions: Phil Flanigan, Jack Du
Beau, Greg Funk and Ed Luethke!
This event would not have been
possible without our amazing
sponsors. Thank you to our Ben
Hogan Sponsors: Lithia Nissan
Hyundai of Fresno & Bank of
the Sierra; to our Exclusive Hole
Sponsors: Tracey Turner of Topaz
Heights,LLC / Jenusse Global, the
Law Offices of Philip M Flanigan;
to our Hole Sponsors: J Quistad
4
Randed Hernandez
Rhiannon Kumulian
Ryan Allshouse
Samantha Morales
Sammy Silva
Sarai Arellan
Savannah Scott
Selene Ortiz
Sincere Harris Roberts
Spencer Medina
Steven Jones
Teagan Feist
Teegan Mora
Victor Trujillo
Victoria Martinez
Violet Cano
Wyatt Perkins
Xitlali Bautista
Yanexil Romero
in Memory of Mel, Riley Chaney
Farms, Harris Ranch Inn & Restaurant,
DeMera Demera Cameron LLP, Leist &
Associates; and to our food sponsors:
O’Sullivan’s & Dayka Hackett LLC.
And a HUGE thank you thank you
thank you to the volunteers and
committee members who made the
event run so smoothly: Terasa Reyes,
Chandel Perkins, Kim Wellendorf,
Mel Wong, John Schneider, Tom
Schneider, the Dayka Family, Natalie
Gomez, Cara Houlding, and all the
others who helped behind the scenes.
Thank you to our 2015 Tee Up
Sponsors & Supporters!
Ben Hogan Sponsor:
Exclusive Hole Sponsor:
5 & Under Socials recap
DONATE TODAY!
Thank you to everyone who came out the 5
& Under Socials this year! We had amazing
weather and for once, we didn't melt from the
heat! It was wonderful to meet and speak with
some of our newest families, enjoy some amazing
food from Las Palmas & Trevino's, and bounce for
joy in the bounce houses! Thank you to Tulare
FFA for sending some amazing volunteers to the
South Valley social, and thank you Alida, Julian
and Alex for helping in Merced!
Thank you First5 Tulare County and First5 Merced
County for sponsoring the socials this year, your
support is greatly appreciated!
DSACC’s mission is to enhance the quality of life for all
people whose lives are touched by Down syndrome.
La misión de DSACC es de aumentar la calidad de la
vida para todas las personas cuyas vidas son tocadas por
síndrome de Down.
I would like to assist DSACC support their mission. Please
accept my donation of..../ Querría ayudar DSACC apoya
su misión. Acepte por favor mi donativo de. ...
$10
$25
$50
$100
$______________________
Name/Nombre
Address/Domicilio
Hole Sponsors:
DeMera DeMera Cameron LLP
Future Automotive Group
Harris Ranch Inn & Restaurant
J. Quistad In Memory of Mel
Leist & Associates: Investigations & Consulting
Riley Chaney Farms
Supporters:
Bay Area industrial Filtration
John Schneider
Dayka Hackett
Valley Type & Design,
Roger Dunn Golf
City/State/Ciudad/Estado
ZIP/Código
Phone/Teléfono:
E-mail
Checks can be made payable to/
Los cheques pueden ser hechos pagaderos a:
DSACC
1491 W. Shaw Avenue
Fresno, CA 93711
Thank you for your support!
5
Calendar of Events
Parent2Parent
This (all ages) group offers emotional
support, insight, and understanding
to parents of children with any special
needs. The group meets the first
Wednesday of every month from 7-9
pm at the DSACC office. Meetings
are led by Carolyn Tellalian, LCSW
•Wednesday, July 1, 2015
•Wednesday, August 5, 2015
•Wednesday, September 2, 2015
Childcare provided with at least 5
days advance notice of meetingplease call us at 559.228.0411
South Valley 5 & Under
Parent Education and
Support Group
Please note we are switching the
date and location in August for some
summer fun!
•July: NO MEETING....
•Wednesday, August 5, 2015: Due
to Bright Start being closed for the
summer, we will be doing an offsite play date at Boingo in Visalia!
Space is limited so please RSVP by
July 31 to [email protected] or call
Jennifer at 559.228.0411
Fresno Play Group
Enjoy your summer vacation!
Club 321 & Junior 321
social group for high school students
and teens. If you would like to be
added to the mailing list to stay up
to date with Club321 events, please
email us at: [email protected]
Come cool off this summer with
DSACC & River Sports Center of
Fresno for a day of supervised
paddle boarding & kayaking!
Trained instructors will do a land
demonstration on water safety and
how-to's, and then take us into the
shallow river waters of Fresno (in
town) for some fun!
•Saturday, August 22, 2015 from
9-2pm
•$10 per person or $20 for family
of 4 ......................... ***Lunch
included.
•Participants must provide their own
Important 2015 dates to take note of...
•
•
•
•
•
•
SibShops
September TBD
Relationship Training: Adults & Teens
August/September 2015
Family Festival . ........................................ September 18, 2015
Down Syndrome Awareness Month
October
Step Up For Ds @ Clovis Rodeo Grounds
October 24, 2015
Sweetheart Luncheon & Fashion Show
February 6, 2016
Please note, dates may be subject to change
transportation and swim apparel
(life jackets will be provided). It
is recommended to wear swim
shoes, pack your own sunscreen,
hat, towel, and lots of water.
Junior321 members must be
accompanied by parent/adult.
This activity is for our members
with Ds (and their parental
supervisor) only or Club321
members.
For exact location you MUST RSVP by
August 14, 2015 to [email protected]
or 559.228.0411
Relationship Training
DSACC is excited to announce it's
next sessions of Relationship Training;
one for teens (14-18yrs) and a second
for adults (18 yrs & older) funded
in part by a grant from the Fansler
Foundation.
People with developmental disabilities
are the victims of sexual, physical
and verbal abuse at a rate that is
alarmingly higher than their peers
without a developmental disability.
A primary objective of this course is
to empower our loved ones with the
information and coping mechanisms
to prevent becoming a victim of sexual
abuse. Overall, the course will provide
information about relationships;
the boundaries and responsibilities
associated with them in a teaching
setting that will respect participants
different learning styles and abilities.
The curriculum includes lessons
about different kinds of feelings and
behaviors that occur in each kind of
relationship, as well as discussions
6
about appropriate public and private
talk. We'll explore how relationships
grow and move from friendship to
a partner/sweetheart, and learn
ways to talk about feelings and solve
problems when in a relationship. The
class will also explore how to identify
if your relationship has gone bad and
examine ways to end a relationship
and deal with your feelings in a
healthy way. Family values and
sensitivity are of utmost concern and
if concerns or specific issues surface
during the course, it will be important
to share those with either of the course
facilitators. Throughout this course,
participants will have topics that are
designed to promote and encourage
family discussions. We hope that
Down Syndrome & Dementia
Support Group
CVRC in partnership with UCSF
Fresno Alzheimer & Memory Center
offers a support group for parents as
caregivers or those directly caring
for those with Down syndrome and
dementia.
All meetings held the Third
Wednesday of the month from 1-3 pm
at UCSF Fresno Alzheimer & Memory
Center: 6137 N Thesta Street, Suite
101 B Fresno, CA
For more information, please call
559.227.4810
_______________________________
Do you have an event or program to
share with DSACC readers? You can
submit written information for approval
to [email protected] by June 1, 2015
Save the Date for DSACC's
Family "Circus" Festival!
Friday, September 18, 2015 from
6-9 pm in Fresno
(location to be announced)
$10 entry fee per car
Join us under the big evening sky
for some circus theme fun, food and
an outdoor movie the whole family
will enjoy! More details in the next
newsletter so stay tuned!
Un socio en Cuidado
Por: Roberta B. Baranda, RHIA,
Director CHP, Servicios Ambulatorios
Valley Children’s Health Care se
ha comprometido a colaborar con
los proveedores de referencia en
toda nuestra área de servicio para
coordinar la atención para los
pacientes con Síndrome de Down.
De hecho, creemos que es un
imperativo estratégico. Para hacer
frente a la iniciativa estratégica para
Valley Children’s, se estableció un
Subcomité de Síndrome de Down
del Comité de Gestión de Atención
Complejo Pediátrica. El Subcomité es
centrado en la familia de atención
multidisciplinar centrado en la gestión
de los bebés, niños pequeños y
adultos jóvenes con síndrome de
Down. El objetivo de la comisión es
proporcionar atención sistemática y
preventiva donde subespecialistas del
Valley Children’s en conjunto con
el médico de atención primaria del
paciente, ayudar a las familias que
gestionan asuntos médicos al tiempo
que proporciona una conexión con los
recursos comunitarios.
Síndrome de Down Subcomité
membresía incluye:
•Michael Allshouse, MD, Presidente,
Director, Cirugía Pediátrica
•Carmela Sosa, MD, Co-Presidente,
Pediatra, Clínica Charlie Mitchel
Every little bit helps...
If you are able to donate 1 or more of
the items on our wish list, we would
greatly appreciate it!
Every little bit of help makes a
difference!
•Standard sized copier paper (white)
•Legal sized copier paper (white)
•Cases of bottled water
•Cases of soda
•Joseph Shen, MD, Genética
•Marcos Rowe, MD,
otorrinolaringólogo
•Michelle Grazulis, NP, Charlie
Clínica Mitchel
•Sharon Beck, RN, Navigator,
Maternal Fetal Center
•Carolyn Tellalian, RSU, Trabajador
Social y Padres
•Alissa Villard, Ambulatoria Gerente
General
•Teda Arunrut, MD, Residente
•Albert Chow, MD, Residente
•Roberta Baranda, RHIA, CHP,
Director, Operaciones Ambulatorios
Con ese fin, Valle Children’s ha
comenzado a trabajar en una serie
de esfuerzos para cumplir con este
objetivo:
Carmela Sosa, MD, nuestro médico
de Síndrome de Down Campeón
organizó y fue autor de Plan de
Atención de Síndrome de Down de
Valley Children’s para proveedores
como un recurso para los pediatras.
El Plan de Atención de Síndrome de
Down de Valley Children’s se basa en
las directrices clínicas de la Academia
Americana de Pediatría con un mayor
detalle para ayudar al pediatra sobre
la base de la experiencia del Valley
Children’s con el cuidado de estos
niños.
Para complementar el plan de
atención, ella fue autor de cinco
guías (5) Padres a la atención médica
diseñados para ayudar a las familias
a lo largo de los hitos importantes
en la vida de sus hijos y en la edad
adulta.
7
•Rubber bands
•Stamps: forever and postcard
amounts
•K-cup coffees
•Gift cards for anything or anywhere
•Silent auction items
•Board members
You can drop items by the DSACC
office at 1491 W Shaw Ave Fresno
CA or arrange for us to pick them up,
call 559.228.0411. Thank you!
Valley Children’s dará el lanzamiento
de una página de Internet para
localizar recursos relacionados con el
síndrome de Down desarrollado por
la organización de pediatras, padres
/ cuidadores y la comunidad. El sitio
Web tendrá una guía de recursos
para las familias y los pediatras con
las descripciones que son significativos
para las familias que buscan tipos
específicos de ayuda (es decir,
financiero, educativo, de servicios de
salud)
Valley Children’s patrocinó una
conferencia de educación continua
impartida por el Dr. Dennis
McGuire, Ph.D, Director de Servicios
Psicosociales para el Centro de
Síndrome de Down de adulto Lutheran
General Hospital, en los suburbios de
Chicago (EE.UU.) para los médicos
del hospital basados incluyendo
los médicos de subespecialidades
y residentes y médicos de la
comunidad. El evento de educación
continua fue muy bien recibido con
altos índices de satisfacción.
El trabajo continúa. En un futuro muy
cercano esperamos poder anunciar
la línea de recursos para los padres
y proveedores de la comunidad que
tengan preguntas sobre el Síndrome
de Down. Estamos trabajando muy
duro para mejorar la programación
de citas por mejores citas de
coordinación para comodidad de
la familia. Si tiene alguna pregunta
acerca de nuestros esfuerzos, no dude
en ponerse en contacto conmigo en el
(559) 353-5401 o al
[email protected]
STEP UP FOR DOWN SYNDROME
SATURDAY, OCTOBER 24, 2015 @ CLOVIS RODEO GROUNDS
Step Up 1-mile awareness walk
Entry Fees & Deadlines
Step Up 5K timed run/walk
Entry Fees & Deadlines
•Early Bird Registration: July 22- August 5,
2015... $12 per walker
•Registration: August 6 - October 9, 2015... $17
•Late Registration: October 9- October 22,
2015... $20
•Day of Registration: October 24, 2015... $25
•Event shirt not guaranteed for Day of Registrations
•Participants with Down syndrome... FREE!
•Early Bird Registration: July 22- August 5,
2015... $20 per walker
•Registration: August 6 - October 9, 2015... $25
•Late Registration: October 9- October 22,
2015... $30
•Day of Registration: October 24, 2015... $35
•Event shirt not guaranteed for Day of Registrations
•Participants with Down syndrome... $15
Packet Pick Up
Packet pick up available Thursday, October 22, from 1-7 pm & Friday, October 23, from 12-5 pm
@ the DSACC Office or at the event. Group registration pick up available.
You must notify us if you are picking up packets for 4 or more runners by e-mail by Oct. 9, 2015 at [email protected]
REGISTER AND RAISE FUNDS ONLINE AT www.dsacc.org/events and click the link to STEP UP!
One Participant Per Entry Form!
Don’t forget to sign the waiver at the bottom! Photocopies accepted
Team name: Team Captain:
Participant Name:
Address:
City/State/Zip:
Email:
Phone:
Male/Female:
Birthday:
Shirt Size:
Walker with DS? yes/no
(Youth XS-Adult XXXL)
1 Mile Walk
5K (MM/DD/YY)
Walk of Fame Poster
$25 per superstar
(Check all that apply) Runners: you do not need to pay for the walk portion, stay for the fun!
Enclosed $ ________________and includes $________for # ______ of Walk of Fame posters.
I cannot participate in the walk but please accept my donation of $ _____________
Please mail this form with checks payable to Down Syndrome Association of Central CA:
1491 W. Shaw Avenue, Fresno, CA 93711
LIABILITY WAIVER AND RACE AGREEMENT: In consideration of your acceptance of my entry, I, intending to be legally bound do
hereby for myself, my heirs, executor, and administrators, waive and release forever any and all rights to claims or damages I may have
against Down Syndrome Association of Central CA and all other parties with this event. I attest to being fully trained and fit to participate
and have full knowledge of the risks involved. I also give my permission for the free use of my name(s), photo and/or voice in any broadcast,
telecast, print account or any other account in any medium of this event. I understand that all entry fees are non-refundable and nontransferable. All events take place rain or shine. You agree not give or sell your number to another individual, if you do this it could result in
your disqualification.
I understand that I am relinquishing substantial rights, including the right to sue, and I intend this agreement and waiver to be an unconditional
release of all liability to the greatest extent permitted by law.
Signature/Date:
8
STEP UP FOR DOWN SYNDROME
sabado 24 de octubre de 2015 @ CLOVIS RODEO GROUNDS
Step Up 1-milla Caminata de Diversión
Comisiones y Plazos de Entrada
Step Up 5k
Comisiones y Plazos de Entrada
•Inscripción anticipada: Julio 22- 05 de agosto 2015
$12 per walker
•Inscripción anticipada: Julio 22- 05 de agosto 2015
$20 per walker
•Registro: 6 agosto a 9 octubre 2015 ... $17
•Registro: 6 agosto a 9 octubre 2015 ... $25
•Inscripción tarde: Octubre 9- 22 de octubre 2015 ... $20
•Inscripción tarde: Octubre 9- 22 de octubre 2015 ... $30
•Día de Inscripción: October 24, 2015 ... $25
•Camisa de eventos no está garantizada para el día del
evento
•Los participantes con síndrome de Down ... ¡GRATIS!
•Día de Inscripción: Octubre 24, 2015 ... $35
•Camisa de eventos no está garantizada para el día del
evento
•Los participantes con síndrome de Down ... $15
Recoger paquete
Recogida de paquetes disponibles Jueves, 22 de octubre, 1-7 pm y viernes 23 de octubre de 12 a 5 pm en la Oficina
DSACC o en el dia del evento. Recogida de paquetes de grupo también es disponible. Usted debe notificarnos si usted va
a recoger los paquetes de 4 o más corredores por e-mail antes del 09 de octubre 2015 en [email protected]
Registrarse y recaudar fondos linea en www.dsacc.org/events y haga clic en el enlace a STEP UP!
Una participante Formulario de Inscripción por !
No se olvide de firmar la renuncia en la parte inferior ! Fotocopias aceptadas
Nombre del equipo:
Capitán del equipo:
Nombre del participante:
Dirección:
City/State/Zip:
Email:
Teléfono:
Hombre / Mujer: Cumpleaños:
(MM/DD/AA)
Talla de Camiseta: (XS para jóvenes-adultos XXXL)
1 milla a pie
5K Caminante con DS ? si no
Paseo de la Fama Póster
$25 per superstar
(Check all that apply) Runners: you do not need to pay for the walk portion, stay for the fun!
Encerrado $ ________________y incluye $ ________ para # ______ Carteles de Paseo de la Fama .
No puedo participar en la caminata, pero por favor, acepte mi donación de $ _____________
Por favor envíe este formulario con cheques al nombre de la Asociación de Síndrome de Down de CA central:
1491 W. Shaw Avenue, Fresno, CA 93711
RENUNCIA DE RESPONSABILIDAD Y ACUERDO DE CARRERA: En consideración de la aceptación de mi entrada, yo, con la intención de estar
legalmente sometido a este medio por mí mismo, mis herederos, albacea y administradores, renunciar y liberar para siempre a cualquier derecho
a reclamación o daño que pueda tener contra la Asociación Síndrome de Down de Ca Central y todos los demás partidos con este evento. Me
dan fe de contar con una formación adaptarse a participar y tener pleno conocimiento de los riesgos que implica. También doy mi permiso para
el libre uso de mi nombre (s), foto y / o voz en cualquier emisión, transmisión, cuenta de impresión o cualquier otra cuenta en cualquier medio
de este evento. Entiendo que todos los derechos de inscripción no son reembolsables ni transferibles. Todos los eventos se llevaran acabo llueva o
haga sol. Usted acepta no dar o vender su número a otro individuo, si usted hace esto podría dar lugar a su descalificación.
Entiendo que estoy renunciando a derechos substanciales, incluyendo el derecho a demandar, y tengo la intención de este acuerdo y la renuncia a
ser una liberación incondicional de toda responsabilidad en la mayor medida permitida por la ley.
Firma/Date:
9
Calendario de eventos
Step Up para el Síndrome
de Down 2015!
¡En sus marcas, listos, ya! Es
hora de nuevo para Step Up
para el Síndrome de Down y este
año estamos muy contentos de
anunciar que han añadido una
nueva carrera de 5 kilómetros
cronometrada / y una caminata
por la mañana antes de Step
Up, además de nuestra caminata
de una milla de conciencia! La
jornada también contará con
nuestra Síndrome de Down Paseo
de la Fama, zona de expositores,
patio de comidas, zona de niños
y entretenimiento en vivo.
¡La carrera / caminata de 5K
cronometrado no es sólo otra
carrera, los participantes cruzarán
una línea de meta SEGUNDO
0,11 millas después de las 3,1
millas oficiales para un total de
3,21 millas de representar a la
trisomía 21 (síndrome de Down)!
¡Invitamos a todos a llegar
un poco más temprano para
animar a nuestros corredores que
terminen la distancia síndrome de
Down!
¡Por favor, tenga en cuenta
algunos cambios en la forma
de registración de Step Up este
año ... los precios, fechas de
inscripción y cada participante
debe presentar un formulario de
entrada / autorización firmada,
y menores de edad deben tener
la firma de sus padres. Si usted
necesita una forma de registro de
grupo, puede descargar una en
línea en www.dsacc.org/events/
step_up_for_down_syndrome
pero cada participante aún
debe presentar su firma junto a
su nombre en el formulario de
grupo. Así que por favor revise
el formulario de inscripción con
cuidado!
Step Up Paseo de la Fama
¡13 "x 19" pósters en Color
de nuestras superestrellas con
Síndrome de Down se presentarán
a lo largo de la ruta de Step up
por toda la ciudad para ver! Para
ser presentado en el Paseo de la
Fama, por favor enviar por correo
$ 25 a DSACC en: 1491 W. Shaw
Avenue- Fresno, CA 93711.
También tendrá que enviar una
foto de alta resolución (foto de
cabeza) de su superestrella a
[email protected] antes del 14 de
octubre de 2015. * El precio
incluye una copia extra para
llevar a casa.
¡Muéstranos tu síndrome de
Down orgullo!
Los equipos pueden competir
por el título de "Equipo Mayor"
o "recaudación de fondos
más grande" en las siguientes
categorías: individual / familia,
escuela o negocio. Un equipo se
llamará "La mayoría de espíritu
" en el evento, seleccionados por
nuestro maestro de ceremonias
invitado! ¡Categoría ganadores
serán decididos por las
donaciones y las inscripciones
recibidas en la oficina antes
de 09 de octubre 2015. Los
primeros 5 Equipos individuales /
familiares al recaudar más de $
2,000 ganarán un iPad para su
capitán de equipo!
¡Guarde la fecha para el
Festival Familiar de “Circo”
de DSACC!
Viernes, 18 de septiembre 2015
de 6-9pm en Fresno (lugar que se
anunciará en el próximo boletín)
$10 de entrada por coche
¡Únase a nosotros bajo el gran
cielo de la tarde para diversión
temática de circo, comida y un
cine al aire libre que toda la
10
familia podrá disfrutar!
¡Más detalles en el próximo
boletín así que estar atentos!
De Padre a Padre
Este es un grupo para todas
(las edades) que ofrece apoyo
emocional, comprehensivo y
entendimiento a padres de niños
con necesidades especiales.
El grupo se reunirá el primer
miércoles de cada mes de 7-9
pm en la oficina de DSACC.
Las juntas serán presentadas
por Carolyn Tellalian, LCSW y
oradores ocasionales.
•Miércoles, 01 de julio 2015
•Miércoles, 05 de agosto 2015
•Miércoles, 02 de septiembre
2015
Cuidado de niños será
proporcionado si nos lo notifica
por lo menos 5 días antes de
la reunión- pro favor llame al
559.228.0411
Gracias Dayka Hackett, LLC por
patrocinar este programa
Sur del Valle menores d
5 Grupo Educacional de
Apoyo para Padres
¡Tenga en cuenta que se están
cambiando la fecha y lugar
en agosto para la diversión de
verano!
•Julio: NO ENCUENTRO
•Miércoles, 05 de agosto 2015:
¡Debido a que Bright Start está
cerrado para el verano, haremos
una cita para jugar fuera de
las instalaciones en Boingo en
Visalia! El espacio es limitado
así que por favor confirmar su
asistencia antes del 31 de julio
al [email protected] o llame al
559.228.0411 Jennifer
Grupo de Juego de Fresno
¡Disfrute de sus vacaciones de verano!
Junior321 & Club 321:
¡Diversión del verano
Conjunto!
Junior321 es un grupo de aventura
educativa para niños de 8-14 años
de edad y sus padres o cuidadores.
Si le gustaría estar al tanto sobre las
actividades de Junior 21 ; favor de
mandarnos un correo electrónico al
[email protected]
El Club 321 es un grupo social
para estudiantes de secundaria y
adolescentes. Si a usted le gustaría
ser agregado a la lista de correo para
estar al día con los acontecimientos de
Club321, por favor envíenos un correo
electrónico a: [email protected]
¡Venga a refrescarse este verano
con DSACC & River Sports Center
de Fresno para un día de embarque
y kayak supervisado! Instructores
capacitados harán una demostración
de la tierra en la seguridad del agua,
y luego nos llevarán a las aguas
poco profundas del río de Fresno (en
la ciudad) para la diversión!
•Sábado, 22 de agosto 2015 de
9-2pm
•$ 10 por persona o $ 20 para
una familia de 4 *** Almuerzo
incluido.
Los participantes deben proporcionar
su propio transporte y ropa de
baño(se proporcionarán chalecos
salvavidas). Se recomienda el uso
de zapatos de natación, empacar su
propia protección solar, gorra, toalla,
y un montón de agua. Miembros de
Junior321 deben estar acompañados
por el padre / adulto. Esta actividad
es para nuestros miembros con Ds (y
su supervisor de padres) solamente o
los miembros del Club321.
Para conocer la ubicación
exacta TIENE QUE confirmar
su asistencia antes del 14 de
agosto 2015 a [email protected] o
559.228.0411
ENTRENAMIENTO DE
RELACION
DSACC se complace en anunciar
que la próxima sesión de
ENTRENAMIENTO DE RELACION
para estudiantes de secundaria
y jóvenes adultos, y adultos
patrocinado en parte por la
fundación Fansler.
Personas con discapacidad son
víctimas de abuso sexual, físico y
verbal a un ritmo alarmante más
alto que el de sus compañeros que
no tienen una discapacidad. Un
objetivo primordial de este curso es
capacitor a nuestros seres queridos
con los mecanismos de información y
afrontamiento para evitar ser víctimas
de abuso sexual.
En general, el curso proveerá
información acerca de las relaciones;
los limites y las responsabilidades
asociadas con ellos en un entorno
de enseñanza que respetara las
diferentes habilidades y estilos de
aprendizaje de los participantes. El
plan de estudios incluye lecciones
sobre diferentes clases de sentimientos
y comportamientos que ocurren en
cada tipo de relación, así como
discusiones sobre cómo hablar
apropiadamente en público o en
privado. Exploraremos como las
relaciones crecen de una amistad a
formar un noviazgo, aprenderán a
hablar sobre sentimientos y resolver
problemas en una relación. La clase
también explorara como identificar si
su relación ha ido mal y examinara
los medios para poner fin a una
relación y lidiar con sus sentimientos
de manera saludable. Los valores
familiares y la sensibilidad son de
máxima preocupación. Si tiene
alguna preocupación o surge durante
el curso. Sera importante que se lo
comunique con cualquiera de los
facilitadores.
lo largo de este curso , los
participantes tendrán temas que están
diseñados para promover y fomentar
las discusiones familiares. Esperamos
que apoye este proceso y sea un
participante de apoyo activo!
11
Sesiones semanales están
programadas para comenzar:
• Adultos (18 & Mayores):
Empanzando el jueves 13
de agosto, 2015
• de 5:15 pm- 6:15 pm
• Adolescentes (18 &
Menores): Empezando el
jueves13 de agosto, 2015
• de 4:00 pm -5:00 pm
Y continuara por 8 semanas (cada
jueves). El curso está limitado a diez
participantes.
Para registrarse, por línea valla a
www.dsacc.org/events. Contacte
a la oficina al 559-228-0411 o
[email protected]. *Entrenamiento
de relación GRATIS para los
participantes.
Grupo de Apoyo de
Síndrome de Down y
Demencia
CVRC en colaboración con la
UCSF Fresno Centro de Alzheimer
y Memoria ofrece un grupo de
apoyo para los padres como
cuidadores o personas que cuidan
directamente a personas con
síndrome de Down y demencia.
Todas las reuniones se llevan a
cabo el Tercer Miércoles de cada
mes de 1-3 pm en la UCSF Fresno
Centro de Alzheimer y Memoria:
6137 N Thesta Street, Suite 101 B
Fresno, CA
Para obtener más información, por
favor llame al 559.227.4810
¡Guarde la fecha para el
Festival Familiar de “Circo”
de DSACC!
•Viernes, 18 de septiembre
2015 de 6-9pm en Fresno
•(lugar que se anunciará en el
próximo boletín)
•$10 de entrada por coche
¡Únase a nosotros bajo el gran cielo
de la tarde para diversión temática
de circo, comida y un cine al aire
libre que toda la familia podrá
disfrutar! Más detalles en el próximo
boletín así que estar atentos!
1491 W. Shaw Avenue
Fresno, CA 93711
Change Service Requested
What's Inside
Step Up for Down Syndrome
Family Festival
Event recaps & more!
12