August, 2016 Newsletter - Down Syndrome Association of Central

August, 2016 Newsletter - Down Syndrome Association of Central

July/August 2016
Volume 16, No. 4
the eXtra!
A publication of Down Syndrome Association of Central California
Our mission is to enhance the quality of life for all people whose lives are touched by Down syndrome.
Down Syndrome Association of Central California presents
Tools for Success Conference 2016
We are excited to invite you to our 1- day conference for
Parents, Caregivers, Educators, Health care providers,
Case managers and Professionals. The day will provide
you with information on current issues and topics impacting
the special needs community. Participants will leave with tools, expertise,
and a better understanding of the landscape of disabilities at large, to help
enhance your knowledge and serve as a resource for others.
Saturday, September 17, 2016
Registration $60 per person
*price includes light breakfast & lunch
Double Tree by Hilton
Fresno Convention Center
2233 Ventura Street Fresno, CA 93721
More details & registration form available on page 8 & 9
SAVE THE DATE!
Family Festival of Super Heroes!
Join us for a SUPER evening filled with Food, Games,
Face Painting, Bounce Houses and MORE!
•Friday, September 9, 2016 from 6-9pm
•at the Well Church-Fig Garden Campus: 4545 N Palm Ave, Fresno 93704
•Cost is $1 per person, 2 yrs & older
Please RSVP at www.dsacc.org/events/family_festival
or contact DSACC staff at 559.228.0411
Tickets will be available at the door
If you have Down syndrome and are interested in performing on stage at the event
contact coordinator, Nancy Martin @ 559.759.4420 for details!
Saturday, October 22, 2016
at the Clovis Rodeo Grounds
5K Timed run/walk
& 1 Mile awareness walk
* Kid Zone *
* Live Entertainment *
* Exhibitor Area *
* Face Painting *
* Food Court & more!
REGISTER TODAY!
Registration form & more walk
details on page ...10
If you are a vendor interested in
participating in our vendor area or
sponsoring the event, please contact
DSACC staff at 559.228.0411
In this issue...
Family Festival............. P. 1
Recaps....................... P. 3
Conference................. P. 1 &8-9
Step Up for Ds............ P. 10 & 11
Birthdays & Kid Corner. P. 4
DSACC Updates......... P. 2
Fort Knox................... P. 12-13
Blaze Pizza................. P. 5 &19
Board meeting schedule P. 2
Calendario de eventos. P. 14-15
Calendar of Events...... P. 6-7
Office Hours............... P. 2
1
Donate Today.............
P. 7
Artículos en español ... P. 16-19
DSACC Updates
Introducing Office Manager, Cindy Volpa
The Extra is funded in part by
The Fansler Foundation.
Contact Information:
Down Syndrome Association
of Central California
1491 W. Shaw Avenue
Fresno, CA 93711
Phone: (559) 228-0411
Fax: (559) 228-0414
E-mail: [email protected]
Website: www.dsacc.org
Jennifer Whiting- Program Director
Cindy Volpa- Office Manager
Lourdes Arias: Spanish Language
Editor, [email protected]
Statement of Policy and
Disclaimer:
The Extra is the periodic newsletter of
(DSACC) Down Syndrome Association
of Central California, which serves
Central California. Subscription
is free to members & friends of the
Association.
DSACC is affiliated with N.D.S.C and
N.D.S.S. The Extra reports items of
interest related to Down syndrome, so
that the reader may make informed
decisions concerning Down syndrome
related issues. Any opinions, findings
and conclusions, or recommendations
expressed in The Extra are those of
the individual authors and do not
necessarily reflect the views of the
officers, Board of Directors, DSACC
organization or its membership.
All medical related issues should
be thoroughly discussed with your
doctor before being implemented.
DSACC does not endorse the writings
of any individual, professional, or
organization.
2016 Officers & Board of
Directors
Denise Allshouse - President
Deepali Desai- Treasurer
Chandel Perkins- Secretary
Beth Ford - Member at Large
Shelly Schmidt- Member at Large
Anytime you're near the DSACC
office, please come in to say
hello! I'm so happy to join
Jennifer as the new Office
Manager.
After almost 20 years in Fresno
Unified as a regular education
teacher at Figarden Elementary,
I recently retired and have been
enjoying my time reading,
hiking, gardening, volunteering
and raising a golden retriever
puppy. My two children are
grown and live in northern and
southern California. During my
teaching career I loved making
connections with children and
their families and still stay in
contact with many students in
high school and beyond. I look
forward to meeting all of you at
our upcoming events or talking to
you when you call in.
NEW BOARD MEETING
SCHEDULE
At a recent board meeting, a
new schedule for general board
meetings was adopted and
approved.
Please note the new General
Board Meeting Schedule that will
be effective immediately. Meetings
will now take place January,
March, April, August, September,
and December each year.
Meetings will be announced at
the closing of each board meeting
and through written or oral
correspondence. Board meetings
are open to the public if you are
ever interested in attending and
providing input on the direction of
the organization.
Be sure to check page 2 of the
newsletter in future additions for
meeting dates.
2016 Board Meeting Dates
Wednesday, August 17, 2016
Wednesday, September, 21,
2016
Wednesday, December 21, 2016
I'm excited to take part in all
the upcoming fun scheduled
Meetings are from 6-8 pm at the
this fall, be sure to check out all
DSACC office: 1491 W. Shaw
the information on upcoming
Avenue Fresno, CA 93711
Sib Shops, Creating A Plan:
Footprints for the Future, Family
•Office Hours•
Festival of Super Heroes, the
Mon. thru Wed. from 10 am - 3:00 pm
Tools for Success Conference,
or by appointment.
and Step up for Down Syndrome
Thurs. & Fri. by appointment only
and so much more! All the
or for scheduled events.
details can be found in the
calendar section and other
DSACC will be CLOSED:
pages of this edition of the eXtra!
Monday, July 4, 2016
Look forward to meeting you!
Cindy Volpa
2
If you need to reach someone at the
DSACC office, please call
(559) 228-0411 or E-mail
[email protected] and someone will
respond as soon as possible
Fresno Grizzlies Game
Thank you to everyone who came
out to enjoy some Fresno Grizzlies
baseball on May 27... while the
Grizzlies bats were cold, our three
advocates who threw out the first
pitch were ON FIRE! Tony Phillips,
Emily Star Ford and Stephen
Zimmerman each threw out a first
pitch and wowed the crowds! It
was a wonderful evening!
5 & Under Socials Recap
from City of Merced.
This year we held three socials;
Fresno, Merced and Visalia. At
the Fresno area social we had an
incredible time at The Little Gym in
Fresno with a HUGE turnout and lots
of new families coming out for the first
time! Thank you to Deepali Desai who
managed everything the day of the
event, and to the great staff at Little
Gym who entertained and wore our
little ones out!
In Visalia, we had Imagine U
In Merced we had some wonderful
families turn out at the Rossotti Ed-ZooCation center in Applegate Park. The
afternoon was filled with fun bounce
houses, food, bubbles and new
friends! We even got to meet and
pet some animals that were out at the
park celebrating Earth Day with staff
Save a tree and sign up to
receive the eXtra
electronically at
www.dsacc.org!
(opt-in field is on the base of home page)
Have you seen the incredible photo
books created for DSACC events?
You can purchase your own copies by
visiting our Shutterfly Share account at
www.dsacc.shutterfly.com!
You will need to login or create your
own Shutterfly account to place the
order. Enjoy!
Interactive Children's Museum all to
ourselves! What an incredible facility
and we thank the few families who
came out to enjoy the evening of
science, play and food! Thank you
Thrivent Financial for doing free child
fingerprint and safety cards for our
families!
These events would not have been
possible without the support of First 5
Merced County, First 5 Tulare County,
The Little Gym of Fresno, Rosa's
Italian Restaurant, Tyler Hirschkorn of
Thrivent Financial, City of Merced and
the wonderful volunteers who set up,
cleaned up and had a whole lot of fun
in the middle! We can't wait for next
year!
Looking for some DSACC gear?
We have some great merchandise for sale!
• I 5 DSACC shirt ..
• Countdown to awesome shirt ...
• Love doesn't count chromosomes .
• DSACC blue drink tumbler • DSACC socks.......
• DSACC portable phone charger
Purchase them at the DSACC office or
at any of our events until they are
sold out!
Contact DSACC staff for more info
559.228.0411 or [email protected]
3
$15
$20
$20
$10
$10
$15
Birthdays
If your birthday is not listed here, please call us and let us know. We will publish missed birthdays.
Abel Ramirez
Adam Mercado
Aishwarya Lopez
Alejandro Venegas
Alexis Fajardo
Alondra M Baez
Andres Mendoza Galvan
Angel Vaca Aguilar
Anna Cruz
Anthony Sierra
Anwar Youssef
Ariana Silguero
Aron Cortes-Martinez
Asanti Lara
Austin Lopez
Ava Lindsey Rivera
Axel Sanchez-Santiago
Baby Girl Cruz
Baby Girl Segura
Breece Campbell
Brisa Avalos
Cambria Travis
Carlos Murillo Jr.
Damion Kiessling
Daryl Huang
Delia Romero
Dionicia Carston
Dulce Cruz
Dustin Franks
Elizabeth Allan
Elizabeth Galindo
Emilio Ramirez
Emma Jackson
Everett Spuhler
Ezra Lee Baca
Faith Lopez
Faith Tienken
Franco
Franco Valdepena
Genesis Gutierrez
Gladys Hernandez
Hannah Stidham
Hope Elias
Hugo Torrez
Icelia Rivera
Indyka Margaret Sanchez
Isaac Valle
Isaiah Flores
Jack Fuguglietti
Jaileen Rodriguez
Hernandez
Jaime Mesillas
Jaleena Rayas
Jason Moreno
Jayden Hernandez
Jimena Sanchez
Jordan Isaac MartinezRodriguez
Jovanni Hamirano
Kaitlin Kaycee Johnson
Kastle Keala
Kayloni Bernal
Lamberto Contreras
Liam Baugh-Jasso
Lily Gerawan
Lucille Noel Conto-Jones
Luis Angel Basilio
Madelen Fox
Madison De Leon
Manny Duran
Maria Figueroa
Marian Morales
Marian Puente
Marissa Herrera
Matthew Hovda
Melody Degadillo
Mereyda Mancilla
Michael DeMaira
Miguel Verduzco
Mordecai Aden Green
Natali Poudrier
Natasha Rodriquez
Nichola Moreno
Nicholas Geston
Noah Mendoza
Noella Rivas-Comlos
Oscar Ramirez
Pablo Antonio Perez Jr.
Pablo Ibarra Jr
Patrick Jordan
Randed Hernandez
Rhiannon Kumulian
Ryan Allshouse
Samantha Morales
Sammy Silva
Sarai Arellan
Savannah Scott
Selene Ortiz
Sincere Harris Roberts
Spencer Medina
Stella Elizabeth Lopez
Stella Lopez
Steven Jones
Teagan Feist
Teegan Mora
Victor Trujillo
Victoria Martinez
Violet Cano
Wyatt Perkins
Xitlali Bautista
Yanexil Romero
KID'S CORNER. . . SUNDAE FUN DAY! 3 Ways to chill this summer
Frozen Yogurt Fruit Bark
•1 large container of plain yogurt
•1 Tablespoon vanilla
•2 cups chopped fruit
•*sweetener like honey or agave
can be used if you like your
yogurt sweeter
Instructions
Line a large baking sheet with
parchment paper.
Mix the plain yogurt with vanilla.
Pour the yogurt onto the baking
sheet and spread a little to even.
Sprinkle on the chopped fruit and
freeze for 3-4 hours until frozen
solid.
Slice up and enjoy!
Frozen Coconut Fruit Cups
•Dixie Cups
•1-2 cups fresh-diced fruit
•Coconut water
Instructions
Place chopped fruit into Dixie
Cups. Pour coconut water over fruit,
freeze until solid (overnight) and
enjoy!
Chunky Money Popsicles
Popsicles:
•Dixie cups
•1/4 cup chocolate syrup
•3/4 cup milk
•2 tablespoons peanut butter
Magic Shell Coating:
•3/4 cup chocolate chips
•2 tablespoons coconut oil
Toppings:
•1 banana
•1/2 cup chopped peanuts
Instructions
Combine chocolate syrup, peanut
butter and milk in a blender and
4
blend until combined. Set aside..
Slice a banana into thin slices.
Place the banana slices onto the
inside walls of the Dixie cup
Pour the chocolate and peanut
butter milk mixture into the Dixie
cup, filling each ¾ full.
Place popsicle sticks in mixture,
and place whole cup in the freezer
until firm (overnight).
When the popsicles frozen,
combine chocolate chips and
coconut oil in a glass measuring
cup. Microwave on high at 30
second intervals until the chocolate
is melted.
Roughly chop the peanuts and
place into a small bowl. Cut and
remove paper cup from frozen
popsicle. Dip the frozen popsicles
into the melted chocolate and
quickly dredge them through
the chopped peanuts. Keep the
popsicles frozen in a ziplock bag
until you are ready to serve them.
BE SURE TO SAVE AND SHARE WITH ALL YOUR FRIENDS & FAMILY!
Organization name:
Down Syndrome Association
Date:
August 19, 2016
Time:
5 pm to 10pm
Location:
Blaze Pizza – Fresno
1089 E Shaw Ave, Fresno, CA 93710
5
Calendar of Events
Grupo Latino
Stay tuned for the next date!
If you have questions about the group,
please contact Grupo leader, Lourdes
Arias at [email protected]
Parent2Parent
This (all ages) group offers emotional
support, insight, and understanding
to parents of children with any special
needs. The group meets the first
Wednesday of every month from 7-9
pm at the DSACC office. Meetings are
led by Carolyn Tellalian, LCSW
•July: NO MEETING
•Wednesday, August 3, 2016
•Wednesday, September 7, 2016
Childcare provided with at least 5
days advance notice of meetingplease call us at 559.228.0411
South Valley 5 & Under
Parent Education and
Support Group
Meets the first Thursday of the month
from 10:00-11:30 am at the Liberty
Center, 11535 Avenue 264 in Visalia,
in partnership with Bright Start
•July: NO MEETING
•August: NO MEETING
•September 1, 2016: Behavior
Issues with Bethany
Fresno Play Group
This playgroup is for our families with
kids 5 yrs and younger looking to
connect with other parents in a casual
play setting. Groups are held from
10-11:30 am the second Tuesday
of every month at the DSACC office
located at 1491 W Shaw Avenue
Fresno, CA 93711. Families with kids
slightly older than 5 yrs are always
welcome to join as well.
•July: NO MEETING
•August 9, 2016: Free Play
•September 13, 2016: TBA
DSACC Self Advocate
committee
We are still looking for adults with
Down syndrome to join our advocate
Important 2016 dates to take note of...
•Fresno Sib Shops ....................................................... July 16, 2016
•Visalia Sib Shops ...................................................October 1, 2016
•Family Festival ................................................... September 9, 2016
•DSACC Conference 2016.................................. September 17, 2016
•Relationship Training ........................................ September 22, 2016
•Fresno Creating A Plan: Footprints .......................September 22, 2016
•Visalia Creating A Plan: Footprints ..........................October 27, 2016
•Step Up for Down Syndrome.................................. October 22, 2016
Please note, dates may be subject to change
committee. On the committee, they
will learn public speaking skills, create
their own "story" about their life to
share with the community, social skills,
and be a voice for members with
Down syndrome. UPDATED! Meetings
will be the third Tuesday of the month
from 3-4pm at the DSACC office
unless noted.
•July: NO MEETING
•August: NO MEETING
•Tuesday, September 20, 2016:
TBA
If you are interested, please contact
Jennifer at the DSACC office for
more information or an application,
559.228.0411 or [email protected]
Sib Shops
Sib Shops acknowledge that being
a sibling of a person with special
needs is for some a good thing, others
a not-so-good thing, and for manysomewhere in between. Participants
are led through a variety of games
and discussions to foster new
friendships, knowledge & acceptance.
•Saturday, July 16, 2016
• CVRC Fresno: 4615 N Marty
Avenue Fresno, CA 93722
•Young Sibs (5-12 yrs) from 9-11:30
6
am
•Teen Sibs (13+) from 1-3 pm...Ice
cream Social
Please sign up for the Sib Shops
by contacting the DSACC office by
Wednesday, July 13, 2016. Call
559.228.0411 or [email protected],
or online at www.dsacc.org/events/
other.
2016 Sib Shops:
October 1 @ CVRC Visalia
Down Syndrome & Dementia
Support Group
CVRC in partnership with UCSF
Fresno Alzheimer & Memory Center
offers a support group for parents as
caregivers or those directly caring
for those with Down syndrome and
dementia.
All meetings held the third Wednesday
of the month from 1-3 pm at UCSF
Fresno Alzheimer & Memory Center:
6137 N Thesta Street, Suite 101 B
Fresno, CA
For more information, please call
559.227.4810
Relationship Training: Adult
Session and Teen Session
DSACC is excited to announce the
next sessions of Relationship Training;
one for teens (14-18yrs) and a second
for adults (18 yrs & older) funded
in part by a grant from the Fansler
Foundation.
People with developmental disabilities
are the victims of sexual, physical
and verbal abuse at a rate that is
alarmingly higher than their peers
without a developmental disability.
A primary objective of this course is
to empower our loved ones with the
information and coping mechanisms
to prevent becoming a victim of sexual
abuse. Overall, the course will provide
information about relationships;
the boundaries and responsibilities
associated with them in a teaching
setting that will respect participant's
different learning styles and abilities.
The curriculum includes lessons
about different kinds of feelings and
behaviors that occur in each kind of
relationship, as well as discussions
about appropriate public and private
talk. We'll explore how relationships
grow and move from friendship to
a partner/sweetheart, and learn
ways to talk about feelings and solve
problems when in a relationship. The
class will also explore how to identify
if your relationship has gone bad and
examine ways to end a relationship
and deal with your feelings in a
healthy way. Family values and
sensitivity are of utmost concern and
if concerns or specific issues surface
during the course, it will be important
to share those with either of the course
facilitators. Throughout this course,
participants will have topics that are
designed to promote and encourage
family discussions. We hope that you
will support this process and be an
active participant!
•Weekly sessions are scheduled to
begin: Thursday, September 22,
2016 and will continue for 8 weeks
(every Thursday)
•Teens: 4:00-5:00 pm
•Adults: 5:15-6:15 pm
The course will be limited to ten spots.
To register, please go online to www.
dsacc.org/events or contact the office
at 559-228-0411 or email info@
dsacc.org
*Relationship training is FREE for
participants
Creating a Plan: Footprints
for the Future (Fresno &
Visalia)
This program is aimed to help you
plan for the future when you will not
be around to take care of your child
or loved one with Down syndrome or
other disabilities. It is never too early
to start planning and we are here to
help make the process as painless as
possible.
There will be 4 sessions. Each will
have a professional from the covered
field to assist you with planning for
the future. Please register for the series
by contacting the DSACC office at
559.228.0411, [email protected] or
register online at www.dsacc.org/
events/other. Registration is FREE!
Fresno Sessions will begin Thursday,
September 22, 2016 from 6:30-8:00
pm
Sessions will be held on consecutive
Thursdays from 6:30-8 pm at the
Fresno Area:
CVRC office: 4615 N Marty
Avenue Fresno, CA 93722
•Thurs., September 22, 2016
from 6:30-8:00 pm, Session 1:
Footprints for the Future workbook
& intro
•Thurs., September 29, Session 2:
Wills & Special Needs Trusts
•Thurs., October 6, Session 3:
Social Security 101 & Impact of the
ABLE Act
Please note sessions are subject to
change.
Visalia Area:
Visalia CVRC office: 5441 W
Cypress Visalia, CA 93277
Sessions will be held on consecutive
Thursdays from 6:30-8pm at the
Visalia CVRC office: 5441 W Cypress
Visalia, CA 93277
•Thurs., October 27, Session 1:
Footprints for the Future workbook
& intro
•Thurs., November 3, Session 2:
Wills & Special Needs Trusts
•Thurs., November 10, Session 3:
Social Security 101 & Impact of the
7
ABLE Act
Please note sessions are subject to
change.
-----------------------------------------------------------------Do you have an event or program to
share with DSACC readers? You can
submit written information for approval
to [email protected] by July 11, 2016
-------------------------------------------------------------------
DONATE TODAY!
DSACC’s mission is to enhance the quality of
life for all people whose lives are touched by
Down syndrome.
La misión de DSACC es de aumentar la
calidad de la vida para todas las personas
cuyas vidas son tocadas por síndrome de
Down.
I would like to assist DSACC support their
mission. Please accept my donation of..../
Querría ayudar DSACC apoya su misión.
Acepte por favor mi donativo de. ...
$10
$25
$50
$100
$______________________
Name/Nombre
Address/Domicilio
City/State/Ciudad/Estado
ZIP/Código
Phone/Teléfono:
E-mail
Checks can be made payable to/
Los cheques pueden ser hechos pagaderos
a: DSACC
1491 W. Shaw Avenue
Fresno, CA 93711
Thank you for your support!
Down Syndrome Association of Central California presents
Tools for Success Conference 2016
Saturday, September 17, 2016
Registration $60 per person
*Price includes light breakfast & lunch
Double Tree by Hilton Fresno Convention Center
2233 Ventura Street Fresno, CA 93721
Registration/Check-in: 8:00-8:30 am
Keynote/Welcome: 8:30 - 10:00 am
Breakout(s) A: 10:15-11:45 am
Youth A: Keys to Student Success in Inclusive Settings with Patti McVay
Adult A: Relationships 101: Tools to deal with friendships, sexuality and adulthood with Susan
Akbiyikian
Health Track A: Aging & Alzheimer's: Warning signs, Diagnostic Process/Evaluation, Behavioral
management techniques, & Research updates" with Dr. Loren I. Alzing, MD, Director/Neurologist
UCSF Alzheimer & Memory Center, Marcy Johnson, PhD, UCSF Alzheimer & Memory Center, & Deby
Hergenrader, Executive Director/Founder, Break the Barriers
Lunch: 11:45- 1:15 pm: Panel Discussion with our speakers
Breakout(s) B: 1:30-3:00 pm
Youth B: Social Building Blocks: teaching your child about behaviors & relationships from the
very beginning with Susan Akbiyikian
Adult B: "Transitioning from School to Independence" with Patti McVay and Laurie Pachl
Health Track B: Down syndrome health care guidelines and updates
**Youth Track (geared towards children birth-12yrs with any disability)
**Teen/Adult Track (geared towards persons13 yrs + with any disability)
*If you would like to attend but cannot afford the registration, please contact DSACC Staff for available
scholarship registrations.
Register today at www.dsacc.org/events/conferences
Or send check and completed registration to:
DSACC at 1491 W Shaw Avenue Fresno, CA 93711
**Mailed registrations must be received by Friday, September 9, 2016
Thank you to our 2016 Sponsors
Central Valley Regional Center * The Hillblom Foundation * Double Tree by Hilton
8
Tools for Success Conference continued...
Patti McVay is an international speaker, trainer and author supporting students with
Down Syndrome and other disabilities. Patti has spoken in Japan, Canada and South
Africa, so also brings a world view of the great needs our children have for respect and
equality. Patti recently retired as the Director of Education for the Linda Crnic Institute
and Sie Center for Down Syndrome at the University of Colorado. Patti has been both
a principal and special education director and together with Laurie Pachl, is providing
support, training and resources to children and adults with Down syndrome and other
disabilities, their families, schools and communities around the United States. Patti has
been on the Colorado State Special Education Advisory Board and recently joined the
board for Rocky Mountain Deaf School. Patti has been an educator all of her life and often speaks to the
invaluable voice of parents in creating partnerships and success for their children. Patti & Laurie work tirelessly
with families and educators to make lasting change for all kids.
Laurie Pachl is a community leader making a difference in the lives of children and young people
throughout the nation. Laurie not only partners with Patti, but serves on the Colorado Hands & Voices Board
of Directors, is a State Winning Softball Coach, and is a supervisor for the Aurora Recreational Sports Park.
Laurie also served as a member of the Colorado State Special Education Advisory Board and is a member
of Exceptional Student Services Unit as a member of the Special Education Improvement Plan. As a member
of the Nationally recognized Arapahoe Sheriff’s office Victim’s Advocate Team, Laurie also works to support
individuals, such as those involved in school shootings or other crisis events, giving her very diverse and
significant skills when it comes to promoting and supporting all kids, families and educators. Laurie as
also authored articles and newsletters to encourage other parents and educators. Laurie brings a wealth of
experience and information and the invaluable voice of a parent.
Susan Akbiyikian is a local retired clinical psychologist, specializing in behavior for individuals with
developmental issues over the last 25+ years. Akbiyikian has worked extensively over the last 10 years
through DSACC and other local agencies, to provide support and education to teens and adults with
developmental disabilities understand relationships, social interactions and how to understand and cope with
their own emotions.
Dr. Loren I. Alzing, MD, Director/Neurologist UCSF Alzheimer & Memory Center, Marcy
Johnson, PhD, UCSF Alzheimer & Memory Center, & Deby Hergenrader, Executive Director/
Founder, Break the Barriers
Conference Registration 2016
NAME(s):
ADDRESS:
PHONE:
EMAIL:
Check which you sessions will be attending:
Breakout Session A: Youth A ____ Adult A _____ Health Track A ____
Breakout Session B: Youth B ____ Adult B _____ Health Track B ____
Enclosed is $__________ ($60 each) for _____# of participants
Cash/Check/CC accepted (credit cards processed by contacting DSACC staff at 559.228.0411
Tell us about yourself, I am a... (circle all that apply)
Parent/Caregiver
Professional
Medical Professional
Educator Case Manager
Service Provider Other: ________________________
How did you hear about the conference: Email 9
Newsletter
Advertisement
Friend
Other __________
Time to lace up your sneakers and STEP UP for Down Syndrome!
10
Thank you to our 2016 Step Up Sponsors!
Beacon Associates
Commercial Asset
Management
Download
Sponsor & Exhibitor
info online @ www.
dsacc.org/events/
Step_Up
Show us your Down syndrome Pride!
Imagine the PossABILITIES!
Teams can compete for the title of “Largest Team” or
“Biggest Fundraiser” in the following categories: Individual/family, School or Business. One team will be
named “Most Spirited” at the event, selected by our
guest emcee!
We are looking for display boards and/or art pieces
& photos of our loved ones with Down syndrome to feature in our PossABILITIES tent at Step Up. Displays should
showcase the lives, talents, hobbies and abilities of our
superstars... showing the world what our friends with Down
syndrome are capable of ! The possABILITIES are endless!
Category winners will be decided by the donations and
registrations received in office by October 1, 2016.
The first 4 Individual/Family Teams to raise over $2,000
by October 10, 2016 will win an iPad
for their team captain!
Please contact the DSACC office to let us know if you will
be bringing something to showcase so we can plan space
accordingly. If you need help creating or need inspiration,
we are glad to help! 559.228.0411, [email protected]
Step Up Fundraising Tips & Tricks
by Sally Fernandes, 2015 Step Up Largest Fundraiser
Step Up for Down Syndrome
fundraising, where do I begin? Well
if your family and friends are anything
like ours, they think your child with
Down syndrome is amazing, but also
wish they could help you in some way.
Some people help if you have sick
children in the hospital, trying times at
school, or just need a listening ear. But
one thing everyone can do is donate!
We were blessed in 2009 to join the
Down syndrome community with the
birth of our daughter Ava. We have
helped raise funds for DSACC every
year since, even the few years we were
unable to attend Step Up for Down
Syndrome, because we understand
the importance of this organization’s
support and presence. Thankfully, our
family and friends also recognize this
importance and regularly donate. We
live in Tulare, so although we are not
always able to gather a large team to
spend the day in Fresno at Step Up, we
can always count on continued support.
Here’s a few things we do:
• On the fundraising website I always
give a summary of Ava’s health and
school progress, and include activities
she participates in. People love the
annual update and a reminder
of what awesome things people
with Down syndrome can
achieve!
• I also include that the money
donated stays local. People love
knowing where their money goes, happy
to give to an organization without a lot
of overhead.
• I share the fundraising website
through e-mail and Facebook.
This is the easiest way to reach the
greatest number of people. I also post
our fundraising progress, maybe once
a week, as a reminder to some who
haven’t donated yet and also thank
those who have generously given.
Over the years we have built a steady
“team” of donors, and always seem to
recruit a few new ones. I even have
people ask me when they can donate
before I have set up the fundraising
page yet! Fall rolls around, they know
it’s coming, and they are eager to give.
People who don’t like to pay online will
just give a check. Whether it’s $5 or
$500, every donation is a gift they can
feel good about.
Here is our write-up from last year...
Team Ava is ready to STEP UP!!
Help us STEP UP and raise awareness for Down syndrome and raise funds for Down Syndrome Association
of Central California.
Here is an update on Ava... She just started 1st grade! She's returned to Mission Valley School with her
wonderful teachers and friends. This past year she showed her first heifer (named Butter), took ballet and
tap class, played Miracle League baseball, learned to swim with no floaties, and enjoyed a week of Vacation
Bible School along with lots of other fun activities this summer. She had surgery to remove tonsils and
adenoids with a surprisingly speedy recovery, and no more snoring!! She still has her g-tube to supplement fluids but we are
using it less as she progresses to drink more by mouth. We thank God every day that our sick little baby has grown to become a
strong and smart little girl.
All funds raised stay in the Central Valley to support the programs, services and social events provided by the Down Syndrome
Association of Central California. Programs and services include family support, education for professionals, members, and
caregivers to create a community that accepts, includes and appreciates individuals with Down syndrome. We are thankful for
your donation so that new and existing families blessed with an extra chromosome can benefit from these programs.
With much love from the Fernandes family,
11
Josh, Sally, Luke, Gianna, & Ava
Creating “Fort Knox” – The Right Amount of Security for Your Child
By: A loving mother of a cutie with Down syndrome
Often times, when describing
characteristics of an individual
with special needs you may hear
the terms runner or eloper. When
we first had our son, we were not
familiar with these terms in the
context they were being used.
What exactly do these terms
mean?
................................
Eloper: (of a person with a mental
disorder or cognitive impairment)
to leave or run away from a safe
area or safe premises.
Runner: a person that runs
................................
Today our son is three years old
and until a few months ago I
would not have classified him as
either of these. Sure, he likes to
walk up ahead of us, but always is
looking back to see where we are.
He may run for the chase, thinking
he’s funny, but never to really
take off from us. This has since
changed…
One early morning in March,
I woke up to get him ready for
school, as I do every day, around
6:30 am. On this particular
morning when I went into his room
to wake him, he was not there.
Slightly panicked at this point and
thinking something was not right, I
quickly checked the other rooms in
our house looking for him. Maybe
he decided to sleep in sister’s
room, or snuggle up on the couch
in the middle of the night. I even
checked the bathtubs, making sure
he wasn’t hiding somewhere. He
was nowhere to be found! As I
came up to our front door I saw
that the child lock on the doorknob
had been broken off and the dead
bolt was turned to the unlocked
position. In full panic, I ran outside
screaming his name, checking the
neighbors’ front porches, while
dialing 911. Within a minute of
calling them, I had found out that
our son was safe, in CPS custody
and they would be sending
officers to question us. My
husband and I were so relieved he
was safe and all right; this was all
that truly mattered!
After a very long day, we did get
our son safely back in our arms.
CPS deemed that we were a safe
house and had not put our child
in danger; it was a true accident.
Things we found out that day: he
had gotten out around 3:30 in
the morning, he had closed the
front door behind him so when
the police were looking for an
open door early in the morning
to see where he might belong,
they couldn’t find the house. Our
neighbor a few doors down who
was up early had been questioned
by police with “Do you know if
any of your neighbors have a little
boy with Down syndrome?” His
response was “No.” He knew we
had a little boy, but did not realize
he had Down syndrome. CPS is an
agency I never want to have visit
us again, thankfully our son was
not alarmed by any of the events
that took place that day.
I am not writing our story out to
12
scare any of you reading this.
The reason I am sharing what
happened to us is to help others
in our community become better
prepared so that this never
happens to another family.
What we have taken away from
our experience:
1. Even though you might not
think your child is old enough, tall
enough, or able to do something,
be prepared before they learns
how to do it. For us unfortunately,
the time our son was determined
enough to figure out his escape,
was the time he was successful
and we were sleeping. Secure
your house, even if you think it’s
“too early, or not necessary yet.”
Better to be ahead of the game
then a little too late.
2. Introduce your children to
your neighbors up and down
your street and make sure your
neighbors know if your child has
a diagnosis and what it is. We
now have introduced our son to
all our neighbors as, “This is our
son ______. He happens to have
Down syndrome. I do not usually
introduce him with his diagnosis
attached to it, but in case the
neighbors are ever asked if they
know him, and where he lives.”
3. Our house is “Fort Knox” – fully
secured as of that same evening.
Below are a range of safety tools
you and yours may want to look
into to secure your home and
child.
Five Affordable Safety Tools
CONTINUED FROM P. 12
1) Door/Window Alarms: These
battery-operated alarms are super
easy to install and
can be found at
many retail outlets
including Home
Depot, Walmart
and Radio Shack.
It also can be
found on Amazon
in a 2-pack for $9.99.
2) Shoe ID Tags: These are
especially good for our kids
who can’t tolerate wearing an ID
bracelet. They’re water-resistant
and attach easily to shoes
with Velcro. Using a Sharpie,
you can write your emergency
contact information and medical
conditions onto the inside of the
tags.
•ifIneedhelp.org - $10-15/shoe
tag
•smartkidsid.com - $9.95/shoe
tag
•roadid.com - $19.99/each
3) Stop Signs: A visual prompt
that makes your child stop – or
even pause for
a moment - can
be critical to
preventing a
tragedy. A Stop
Sign is included
for you to make
copies and put
up around your
house where you
may want your
child to STOP and not continue.
4) Guardian Lock: The Guardian
Lock is a portable lock you can
use on any exterior door – and
you can take it with you when you
travel. Regular doors and sliding
glass door locks are available
too. Sold at
Walmart $17.60
5) Temporary
Tattoos: Lost
and Found
temporary
tattoos
are great for school field trips,
vacations or an outing to the
park, zoo, or even the mall. The
tattoos last for several days.
safetytat.com – Lasts for 2 weeks
- $10.99/6 pack & $20.99/18
pack
Higher Cost Safety Tools or ones
with Monthly Fees
1) Alarmed
tracking device
– Guardian
Angel for 2 Kid’s
Tracker, Child
Locator Alarm
This is a take as
your on-the-go
proximity alarm.
No monthly
servicing, but not
GPS tracked. $54.99/Amazon
2) Personal GPS tracking devices
with monitoring – www.safewise.
com lists the pros and cons of
10 devices. They all have an up
front purchase cost and some also
have a monthly monitoring fee
that ranges from $5 - $30 per
month
3) Home alarm system with/
without monitoring – There are
many companies you can chose
to go with. They all have up front
installation costs, depending on
your individual house needs, but
many have promotional deals at
13
different times. You also can have
the alarm monitored for a monthly
cost that usually ranges between
$30-$60/month depending on
what service you would like.
Companies include, but are not
limited to: ADT, Frontpoint, Vivint,
LifeShield, Protect America, and
the list goes on.
I received a “Tool Kit” for
caregiver’s and parents with
special needs children from
the Fresno Police Department’s
Missing Person Unit. It is geared/
written towards children with
autism, but is very applicable to
all with a loved one with special
needs. If you would like a copy
of the “Tool Kit” emailed to you
please email the DSACC office
at [email protected] and one will be
forwarded to you.
If this information helps at least
one other family then sharing my
story has been worth it!
Signed – A loving mother of a
cutie with Down syndrome
Sources
1. Dictionary.com 2. Big Red
Safety Box; National Autism
Association
Calendario de eventos
Junta del Grupo Latino
Esté atento a nuestra siguiente cita. Si
tiene preguntas acerca del grupo, por
favor contacte a la Líder del Grupo,
Lourdes Arias al correo electrónico
[email protected]
De Padre a Padre
Este es un grupo para todas (las
edades) que ofrece apoyo emocional,
comprehensivo y entendimiento a
padres de niños con necesidades
especiales. El grupo se reunirá el
primer miércoles de cada mes de
7-9 pm en la oficina de DSACC.
Las juntas serán presentadas por
Carolyn Tellalian, LCSW y oradores
ocasionales.
•Julio: No hay reunión
•Miércoles 3 de Agosto del 2016
•Miércoles 7 de Septiembre del
2016
Habrá cuidado de niños si nos deja
saber con 5dias de anticipo antes
de la junta – favor de llamar a
559.228.0411
Grupo de Juego de Fresno
Este grupo de juego es para nuestras
familias con niños de 5 años y más
jóvenes que buscan conectarse con
otros padres en un ambiente de
juego casual. Los grupos se celebrará
del 10-11: 30 am el segundo martes
de cada mes en la oficina DSACC
situado en 1,491 W Shaw Avenida
Fresno , CA 93711
•Julio: No hay reunión
•9 de Agosto del 2016: Juego
Libre
•13 de Septiembre del 2016
Sur del Valle menores d 5
Grupo Educacional de Apoyo
para Padres
Juntas el primer Jueves de cada
mes de 10:00 a 11:30am en el
Liberty Center: 11535 Avenue 264
en Visalia, en Sociedad con Bright
Start. Cada reunión ofrece diversión
y actividades informativas, además
de pláticas con expertos en temas
relevantes.
•Julio: No hay reunión
•Agosto: No hay reunión
•1 de Septiembre: Temas sobre La
Conducta con Bethany
Comité de Consejería de
DSACC
Estamos todavía buscando adultos
con Síndrome de Down que quieran
unirse a nuestro comité de consejería.
En el comité, aprenderán habilidades
para hablar en público, a crear su
propia historia sobre su vida, para
compartirla con la comunidad,
habilidades sociales, y ser una voz
para ser miembros con Síndrome de
Down. ACTUALIZADO, Las reuniones
se llevarán a cabo el tercer martes
de cada mes de 3:00 a 4:00pm en
la oficina de DSACC, cambios con
previo aviso.
•Julio: No hay reunión
•Agosto: No hay reunión
•Martes 20 de Septiembre del
2016: TBA
Si usted está interesado, por favor
contacte a Jennifer en la oficina de
DSACC para más información al
teléfono 559.228.0411 o solicite una
aplicación a [email protected]
Sib Shops
Sib Shops sabiendo que ser hermano
de una persona con necesidades
especiales, es algo muy bueno, y
a veces no tan bueno, por eso y
otras cosas más. Los participantes
serán guiados por medio de diversos
juegos y pláticas para fomentar
nuevas amistades, conocimiento y
aceptación.
•Sábado 16 de Julio del 2016
•CVRC de Fresno: 4615 N. Marty
Ave. Fresno, CA 93722
•Hermanos menores (de 5 a 12
años) de 9:00 a 11:30am
•Hermanos (13 años en adelante)
de 1:00 a 3:00pm… Convivio
Social con nieve.
Por favor regístrese para asistir al
Sib Shops, llamando a la oficina de
DSACC antes del 13 de Julio del
14
2016, al teléfono 559-228-0411 o al
correo electrónico [email protected] o
en la página de internet www.dsacc.
org/eents/other
•Sib Shops 2016: 1 de Octubre en
el CVRC de Visalia
Grupo de Apoyo de Síndrome
de Down y Demencia
CVRC en colaboración con la
UCSF Fresno Centro de Alzheimer y
Memoria ofrece un grupo de apoyo
para los padres como cuidadores o
personas que cuidan directamente a
personas con síndrome de Down y
demencia.
Todas las reuniones se llevan a cabo
el Tercer Miércoles de cada mes de
1-3 pm en la UCSF Fresno Centro
de Alzheimer y Memoria: 6137 N
Thesta Street, Suite 101 B Fresno, CA
Para obtener más información, por
favor llame al 559.227.4810
Inviten a todos sus seres queridos
a desayunar! Coman y Apoyen a
DSACC
Curso Sobre Relaciones: Sesión
para Adultos y Sesión para
Adolescentes
DSACC está feliz de anunciar la
siguiente sesión del Curso sobre
Relaciones; la primera sesión es para
adolescentes (de 14 a 18años) y
la segunda para adultos (de 18 en
adelante) creado en parte por un
fondo otorgado por la fundación
Fansler.
Personas con Discapacidad de
Desarrollo mental son víctimas de
abuso sexual, físico y abuso verbal
en un promedio que es alarmante,
máxime que sus compañeros que
no tienen alguna discapacidad de
desarrollo mental. El objetivo primario
de este curso es darles a nuestros
seres queridos toda la información
y que reconozcan todos los
mecanismos para revenir convertirse
en víctima de abuso sexual. Sobre
todo, el curso proveerá información
sobre relaciones; los límites y las
responsabilidades asociadas a las
relaciones, enseñando en una forma
que respetara las diferentes formas,
estilos y habilidades de aprendizaje
de los participantes.
El itinerario del curso incluye
diferentes lecciones acerca de
diversas formas de sentimientos y
conductas que ocurren en cada tipo
de relación, así como discusiones
sobre pláticas apropiadas en lugares
públicos o en lugares privados. Se
explicará cómo crecen las relaciones
y como pasan de ser una amistad a
un compañero o enamorado, además
aprender las formas de platicar sobre
los sentimientos, y como resolver
problemas cuando están en una
relación. El curso también explorará
como identificar si tu relación se ha
deteriorado y examinaremos formas
de terminar una relación y lidiar
con tus sentimientos en una forma
sana. Los valores familiares y la
sensibilidad de los temas que se
discutirán en el curso están fuera de
los temas específicos del curso, pero
será importante que compartan sus
preocupaciones con los exponentes
del curso. Durante este curso, los
participantes se enfrentarán a
temas que han sido diseñados para
promover y encausar platicas en
familia. Esperamos que apoye este
proceso y que sea un participante
activo.
•Los cursos semanales están
agendados para iniciar el 22
de Septiembre del 2016 y
continuarán por 8 semanas (cada
jueves).
•Adolescentes: de 4:00 a 5:00pm
•Adultos: de 5:15 a 6:15pm
•El curso está limitado a 10
lugares. Para registrarse, por favor
visite nuestra página de internet
www.dsacc.org/events o llame
a la oficina al 559-228-0411 o
mande un correo electrónico a
[email protected]
El Curso de Relaciones es GRATIS
para los participantes
Creando un plan: Pasos hacia
el futuro (Fresno y Visalia)
Las Sesiones en Fresno comenzaran
el jueves 22 de Septiembre del 2016
de 6:30 a 8:00pm
Las sesiones se llevaran a cabo
consecutivamente cada Jueves de
6:30 a 8:00pm en la oficina del
CVRC de Fresno ubicada en: 4615
N. Marty Ave. Fresno, CA 93722
•Sesión 1, el 22 de Septiembre:
Pasos para el Futuro, Introducción
y Libro de Trabajo
•Sesión 2, el 29 de Septiembre:
Testamento y Fideicomiso para
personas con necesidades
especiales.
•Sesión 3, el 3 de Octubre: Seguro
Social 101 y el Impacto de la Ley
ABLE
Nota: las sesiones están sujetas a
cambios.
Las Sesiones en Visalia comenzaran
el jueves 27 de Octubre del 2016 de
6:30 a 8:00 pm
Las sesiones se llevaran a cabo
consecutivamente cada Jueves de
6:30 a 8:00pm en la oficina del
CVRC de Visalia ubicada en: 5441
W Cypress Visalia, CA 93277
•Sesión 1, el 27 de Octubre: Pasos
para el Futuro, Introducción y Libro
de Trabajo
•Sesión 2, el 3 de Noviembre:
Testamento y Fideicomiso para
personas con necesidades
especiales.
•Sesión 3, el 10 de Noviembre:
Seguro Social 101 y el Impacto de
la Ley ABLE
Nota: las sesiones están sujetas a
cambios.
Regístrese en línea en www.dsacc.
org/events/other o llame a la oficina
de DSACC al teléfono 559-228-0411
¡APARTA LA FECHA!
Festival Familiar de Súper Héroes
Estaremos celebrando a todos
nuestros súper héroes favoritos en el
Festival Familiar.
• Viernes 9 de Septiembre del
2016, de 6:00 a 9:00pm en
Well Church de Fig Garden
Únase a una Súper Tarde llena de
Juegos, Comida, Caritas Pintadas,
Brincolines y mucho más! Puede usar
el disfraz de su Súper Héroe Favorito!
El costo es de 1 dólar por persona
15
Niños menores de 2 años entran
GRATIS
Por favor reserve en línea en www.
dsacc.org/events/family_fesival o
llame a la oficina de DSACC al 559228-0411
Habrá boletos disponibles en la
entrada
-----------------------------------------------------------------¿Tienes un evento o algún programa
para compartir con los lectores
de DSACC? Puedes mandar la
información por escrito, para ser
aprobado a [email protected] antes del
31 de Mayo del 2016
-----------------------------------------------------------------DSACC estará cerrada
El Lunes 4 de Julio del 2016,
con motivo del 4 de Julio
Nueva Tarjeta del
horario de reunión
En una reciente junta de la Mesa
Directiva, se adoptó y se aprobó
un nuevo horario de juntas. Por
favor anote la nueva agenda de
juntas de la Mesa Directiva que
será efectiva inmediatamente.
Ahora las juntas se llevarán a
cabo en Enero, Marzo, Abril,
Agosto, Septiembre y Diciembre
cada año.
Las Juntas se anunciarán al final
de cada Junta de la Mesa
Directiva, a través de
correspondencia escrita o
correspondencia oral. Las Juntas
de la Mesa Directiva están
abiertas al público, si está usted
interesado en venir y proveer
puntos interesantes para la
dirección de la organización.
Asegúrese de checar la página
2 de nuestro boletín informativo
regularmente, para checar las
fechas de las juntas.
16
Thank you to our 2016 Step Up Sponsors!
Beacon Associates
Commercial Asset
Management
Demuestra tu orgullo por el
Síndrome de Down
Los equipos pueden competir por el título de “El
equipo más grande” o “El fondo más grande
recaudado” en las siguientes categorías: individual/
familia, Escuela o Negocio. Un equipo será
nombrado “El más energético” en el evento,
seleccionado por nuestro maestro de ceremonia
invitado. Los ganadores de cada categoría
serán elegidos de acuerdo a las donaciones y
registraciones recibidas en la oficina antes del 1 de
Octubre el 2016.
Los primeros 4 equipos individuales/o de Familias en
recaudar $2,000 antes del 10 de Octubre del 2016,
ganarán un Ipad para el capitán del equipo.
Download
Sponsor & Exhibitor
info online @ www.
dsacc.org/events/
Step_Up
La Carpa PossHABILIDADES
Estamos buscando piezas de arte para mostrar y
fotografías de nuestros seres queridos con Síndrome
de Down para ser presentadas en nuestra carpa
de Poss Habilidades en LA CAMINATA. Queremos
mostrar las vidas, los talentos, los pasatiempos y
habilidades de nuestras súper estrellas… mostrando
al mundo de lo que son capaces nuestros amigos
con síndrome de Down. Las pos habilidades son
interminables.
Por favor contacta la oficina de DSACC para
hacernos saber si a usted le gustaría presentar algo
para la exhibición, así podemos planear el espacio
para todos. Si usted necesita ayuda para crear algo o
necesita inspiración, nos encantaría ayudar. 559-2280411, [email protected]
La Asociación de Síndrome de Down del Centro de California Presenta:
Herramientas Para Triunfar
Sábado 17 de septiembre de 2016 en el Double Tree Hotel
in Downtown Fresno
2233 Ventura Street Fresno, CA 93721
Registración $60 por persona
*El costo incluye un desayuno ligero y la comida
Si está interesado en asistir, pero no puede pagar la registración, por favor llame a la oficina de DSACC
para la condonación de dicho pago para la registración.
Estamos contentos de invitarlo a nuestra conferencia de un día, para los papás, proveedores de cuidado,
educadores, proveedores de salud, trabajadores sociales, y a los profesionistas. Se les dará información
acerca de temas de actualidad, y temas relacionados que impactan las necesidades especiales en nuestra
comunidad. Los participantes se llevarán consigo herramientas, experiencia, así como una mejor comprensión
del panorama de las discapacidades a largo plazo, para ayudar a mejorar su conocimiento, así como poder
ser de ayuda para los demás.
Oradores Principales: Patti Mc Vay y Lauri Pachl
Oradores Invitados:
Susan Akbiyikian, Psicóloga Clínica retirada; Dr. Loren I. Alzing, Ph.D, Directora y Neuróloga de UCSF
Alzheimer & Memory Center; Marcy Johnson – Administradora de USCF Alzheimer & Memory Center; Deby
Hergenrader – Directora Ejecutiva y Fundadora de Break the Barriers, Inc.
17
Registro/Registrarse: 8:00-8:30 am
La conferencia ofrece tres partes.
Una parte se enfoca en los jóvenes (De recién nacido a los 12
años), adolescentes y adultos, y por último una parte exclusiva
para la salud de las personas con síndrome de Down. Parte
del receso para comer será para hacer comentarios con los
oradores invitados.
La parte de los niños (gira alrededor de los recién nacidos hasta
la edad de 12 años, así como para cualquier discapacidad)
Las sesiones cubrirán:
La clave para que los estudiantes con un ambiente de inclusión,
tengan éxito. Con Patti McVay y Lauri Pachl.
Bloques de Construcción Social. Se la ensenará a sus hijos
acerca de “La Conducta y Sociabilidad desde el comienzo”, con
Susan Akbiyikian.
La Parte para los Adolescente y Adultos (Gira alrededor de
los 13 en adelante, además de cualquier discapacidad). Las
sesiones cubrirán:
“La transición de la escuela a su independencia” con Patti
McVay y Lauri Pachl
“Las Relaciones 101”: Herramientas para saber llevar una
amistad, la sexualidad y la mayoría de edad” con Susan
Akbiyikian
La pista para la salud de las personas con síndrome de Down:
Las sesiones cubrían:
los cambios actuales en “El cuidado de la salud del síndrome de
Down y el crecimiento en las gráficas”
“El envejecimiento y el Alzheimer” Señales de advertencia,
diagnóstico, Proceso/Evaluación, técnicas del manejo o control
de la conducta y las investigaciones recientes con la Dr. Loren
I. Alzing, y con la Dra. Marcy Johnson, PhD Y con Deby
Hergenrader.
Bienvenido: 8:30 - 10:00 am
Desbloqueos A: 10:15-11:45 am
Juventud A: La clave para que los estudiantes
con un ambiente de inclusión, tengan éxito con Patti
McVay
Adulto A: Las Relaciones 101”: Herramientas para
saber llevar una amistad, la sexualidad y la mayoría
de edad” con Susan Akbiyikian
Pista de la salud A: “El envejecimiento y el
Alzheimer” Señales de advertencia, diagnóstico,
Proceso/Evaluación, técnicas del manejo o control de
la conducta y las investigaciones recientes con la Dr.
Loren I. Alzing, y con la Dra. Marcy Johnson, PhD Y
con Deby Hergenrader.
Lunch: 11:45- 1:15 pm:
Desbloqueos B: 1:30-3:00 pm
Juventud B: Bloques de Construcción Social. Se
la ensenará a sus hijos acerca de “La Conducta
y Sociabilidad desde el comienzo”, con Susan
Akbiyikian.
Adulto B: "Transitioning from School to
Independence" with Patti McVay and Laurie Pachl
Pista de la salud B: los cambios actuales en
“El cuidado de la salud del síndrome de Down y el
crecimiento en las gráficas”
Registro 2016
Nombre(s):
DIRECCIÓN:
TELÉFONO:
EMAIL:
Comprobar qué sesiones que va a asistir
Sesión A: Juventud A ____ Adulto A _____ Pista de salud A ____
Sesión B: Juventud A ____ Adulto A _____ Pista de salud A ____
Adjunto$__________ ($60 cada) para _____# of participantes
Cash/Check/CC accepted (Poner en contacto precesión con tarjetas de crédito DSACC staff at 559.228.0411
Cuéntanos acerca de tí.. (círculo todo lo que corresponda)
Padre / cuidador
Profesional
Profesional médico
Educador Administrador de casos
Proveedor de servicio Otro: ________________________
¿Cómo se entero de la conferencia? __________________________________________________________
Gracias a nuestros patrocinadores
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Central Valley Regional Center * The Hillblom
Foundation * Double Tree by Hilton
Organization name: Down Syndrome Association
Date:
19 de Agosto de 2016
Time:
5 pm to 10pm
Location:
Blaze Pizza – Fresno
1089 E Shaw Ave, Fresno, CA 93710
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1491 W. Shaw Avenue
Fresno, CA 93711
Change Service Requested
What's Inside
Step Up for Down Syndrome
Tools for Success Conference
Family Festival of Superheroes
Creating a Plan: Footprints for the Future
Relationship Training
Sib Shops & more!
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Online @ www.dsacc.org