Health Hotlines Health Hotlines

Transcripción

Hotlin
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• Toll-Free Numbers From •
The National Library of Medicine’s
DIRLINE Database
NATIONAL LIBRARY OF MEDICINE
National Institutes of Health
The National Library of Medicine is pleased to offer
this booklet listing toll-free telephone numbers for
health-related organizations. This revised edition is
bilingual and lists the organization names in both
English and Spanish. It also indicates if services
and/or publications are available in Spanish.
NLM is the world’s largest medical library with
unparalleled collections in the health sciences. Using
the World Wide Web, the Library’s resources are now
available to health professionals in every part of the
United States. The listings in this pamphlet are from
our online database, DIRLINE.
Donald A.B. Lindberg, M.D.
Director
http://www.nlm.nih.gov
Health Hotlines:
Toll-free Numbers from DIRLINE
Health Hotlines is a compilation of organizations with
toll-free telephone numbers. It is derived from DIRLINE,
the National Library of Medicine's Directory of Information
Resources Online. This database contains descriptions of
more than 9,000 biomedical information resources including
organizations, databases, research, resources, etc.
Some of the subject areas included in Health Hotlines are
AIDS, cancer, maternal and child health, aging, substance
abuse, disabilities, and mental health. Health Hotlines
also lists a variety of groups disseminating information on a
number of specific diseases and disorders. Organizations fall
into many categories including Federal, State and local
government agencies, information and referral centers,
professional societies, support groups, and voluntary
associations.
Health Hotlines is provided as a community service to
assist the public in locating health-related information. The
toll-free telephone numbers in Health Hotlines were
provided by the organizations and verified at the time of
printing. The National Library of Medicine has not reviewed
or evaluated the services of the organizations listed.
DIRLINE on the Web: http://dirline.nlm.nih.gov
Health Hotlines on the Web:
http://sis.nlm.nih.gov/hotlines
The inclusion of an organization in this publication does not
constitute a recommendation or endorsement by the
Federal Government of an organization's services or views.
March 2003
National Library of Medicine
Líneas Telefónicas de Información sobre la
Salud: Números Gratuitos de DIRLINE
Líneas Telefónicas de Información sobre la Salud es una
recopilación de organizaciones con números para hacer
llamadas gratuitas. Esta recopilación se deriva de DIRLINE
(Directory of Information Resources Online), Directorio de
Medios de Información computarizada de la Biblioteca
Nacional de Medicina. Esta base de datos contiene las
descripciones de más de 9,000 recursos sobre información
biomédica, incluyendo organizaciones, bases de datos y
recursos de investigación, además de otra información útil.
Algunos de los temas incluídos en las Líneas Telefónicas
de Información sobre la Salud son el SIDA, el cáncer, la
salud materno-infantil, la vejez, la drogadicción, la
discapacidad y la salud mental. Las Líneas Telefónicas de
Información sobre la Salud también contienen una variedad
de números de teléfonos de grupos encargados de distribuir
información acerca de enfermedades específicas y trastornos de la salud. Estas organizaciones se agrupan bajo
varias categorías incluyendo agencias de los gobiernos
locales, estatales y federales, centros de información y
referencia, asociaciones de profesionales, grupos de apoyo,
y asociaciones de voluntarios.
Las Líneas Telefónicas de Información sobre la Salud se
provee como un servicio a la comunidad para asistir al
público a localizar información relacionada con la salud. Los
números de teléfonos gratuitos que aparecen en las Líneas
Telefónicas de Información sobre la Salud fueron
provistos por las organizaciones y verificados al momento
de imprimirse. La Biblioteca Nacional de Medicina no ha
revisado ni evaluado los servicios prestados por las
organizaciones aquí nombradas.
DIRLINE en el sitio Web: http://dirline.nlm.nih.gov
Lineas de Información sobre la salud se encuentran
en el sitio Web: http://sis.nlm.nih.gov/hotlines
El gobierno Federal no está recomendando o endorsando
los servicios o los puntos de vista de las organizaciones
que se incluyen en esta publicación.
Marzo del 2003
Biblioteca Nacional de Medicina
AARP [+*]
Asociación Americana de Personas Jubiladas
(800) 424-2277
601 E Street NW
Washington, DC 20049
www.aarp.org
AARP Grief and Loss Program [*+]
Programa de Pérdida y Duelo de AARP
(866) 797-2277
601 E Street NW
www.aarp.org/griefandloss
ABLEDATA
(Product information for the handicapped and
disabled)
(Product Informacíon acerca de productos para las
personas minusválidas y discapacitadas)
(800) 227-0216
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
www.abledata.com
AboutFace [+]
AboutFace (Organización que provee apoyo emocional e
información a personas con problemas faciales y a sus
familias)
(Facial Disfigurement-Support)
(Grupo de apoyo para la desfiguración facial)
(888) 486-1209
(800) 665-3223
P.O. Box 969
Batavia, IL 60510
www.aboutfaceusa.org
Adopt a Special Kid/AASK-America
Adopte un Niño Especial / AASK-America
(888) 680-7349
7700 Edgewater Drive, Suite 320
Oakland, CA 94621
www.adoptaspecialkid.org
1
Adoptive Parents Committee
Comité para Padres Adoptivos
(800) 207-0660
P.O. Box 3525
Church Street Station
New York, NY 10008-3525
www.adoptiveparents.org
After Loss
Después de la Pérdida
(Bereavement)
(Duelo)
(800) 423-8811
(888) 443-5732 (Fax)
79-301 Country Club Drive, Suite 100
Bermuda Dunes, CA 92201
www.afterloss.com
Agency for Health Care Research and
Quality [*+]
Agencia para la Calidad e Investigación de la Atención
Médica
(800) 358-9295
(888) 586-6340
P.O. Box 8547
Silver Spring, MD 20907-8547
www.ahrq.gov
AirLifeLine [*+]
AireLineadeVida
(Air transport for the needy)
(Transporte aéreo para las personas necesitadas)
(800) 446-1231
(877) AIRLIFE (247-5433)
50 Fullerton Court, Suite 200
Sacramento, CA 95825
www.airlifeline.org
2
Al-Anon, Alateen Family Group
Meeting Information Line [*+]
Línea de Información sobre Grupos de
Familias Al-Anon, Alateen
(888) 4-AL-ANON (425-2666)
1600 Corporate Landing Parkway
Virginia Beach, VA 23454-5617
www.AL-ANON.Alateen.org
Allergy and Asthma Network/Mothers of
Asthmatics [*+]
Red de Alergias y Asma/Madres de Asmáticos
(800) 878-4403
2751 Prosperity Avenue, Suite 150
Fairfax, VA 22031
www.aanma.org
Allergy to Latex Education and Resource Team
American Latex Allergy Association [+]
Equipo de Educación y Recursos para la Alergia al Látex,
Asociación Americana de Alergia al Látex
(888) 97ALERT (972-5378)
P.O. Box 13930
Milwaukee, WI 53213
www.latexallergyresources.org
Alpha-1 Foundation [*+]
Fundación Alfa-1
(877) 228-7321
(888) 825-7421 (TTY)
2937 Southwest 27th Avenue
Miami, FL 33133
www.alphaone.org
Alzheimer's Disease and Related Disorders
Association [*+]
Asociación para la Enfermedad de Alzheimer y los
Trastornos relacionados con la Enfermedad
(800) 272-3900
919 North Michigan Avenue, Suite 1100
Chicago, IL 60611
www.alz.org
3
Alzheimer's Disease Education and Referral
Center [*+]
Centro para la Educación y Consulta sobre la
Enfermedad de Alzheimer
(800) 438-4380
P.O. Box 8250
Silver Spring, MD 20907-8250
www.alzheimers.org
America's Job Line
National Federation of the Blind
Línea de Trabajo de América
Federación Nacional de Ciegos
(800) 414-5748
1800 Johnson Street
Baltimore, MD 21230
www.nfb.org/jobline/enter.htm
American Academy of Allergy, Asthma, and
Immunology [*+]
Academia Americana de Alergias, Asma, e Inmunología
(800) 822-2762 (Voice and TTY)
611 East Wells Street
Milwaukee, WI 53202
www.AAAAI.org
American Academy of Facial Plastic and
Reconstructive Surgery [+]
Academia Americana de Cirugía Plástica y Reconstrucción
Facial
(800) 332-FACE (332-3223)
(800) 523-FACE (523-3223) (Canada)
310 South Henry Street
Alexandria, VA 22314
www.aafprs.org
American Academy of Family Physicians [*]
Academia Americana de Médicos Generales
(800) 274-2237
11400 Tomahawk Creek Parkway
Leawood, KS 66211
www.aafp.org
4
American Academy of Ophthalmology
Academia Americana de Oftalmología
(Elderly/Low Income Helpline)
(Línea de Información para las Personas Mayores/ Bajo
Ingreso)
(800) 222-EYES (222-3937)
P.O. Box 7424
San Francisco, CA 94120-7424
www.eyenet.org
American Art Therapy Association [+]
Asociación Americana de Terapia de Arte
(888) 290-0878
1202 Allanson Road
Mundelein, IL 60060-3808
www.arttherapy.org
American Association for Active Lifestyles and
Fitness
Asociación Americana para un Estilo de Vida Activo y en
Forma
(800) 213-7193
1900 Association Drive
Reston, VA 20191-1502
www.aahperd.org
American Association for Functional Orthodontics
Asociación Americana para la Ortodoncia Funcional
(800) 441-3850
106 South Kent Street
Winchester, VA 22601
www.aafo.org
American Association of Kidney Patients [+]
Asociación Americana de Pacientes con Enfermedades
del Riñón
(800) 749-2257
3505 East Frontage Road, Suite 315
Tampa, FL 33607
www.aakp.org
5
American Association of the Deaf-Blind
Asociación Americana de Sordo-Ciegos
(800) 735-2258
814 Thayer Avenue
www.aadb.org
American Association on Mental Retardation [*]
Asociación Americana para el Retraso Mental
(800) 424-3688
444 North Capitol Street, Suite 846
Washington, DC 20001-1512
www.aamr.org
American Autoimmune Related Diseases
Association, Inc. [*+]
Asociación Americana de las Enfermedades Relacionadas
a la Autoinmunidad, Inc.
(800) 598-4668
22100 Gratiot Avenue
East Detroit, MI 48021
www.aarda.org
American Behcet's Disease Association, Inc.
Asociación Americana de la Enfermedad de Behcet, Inc.
(800) 7-BEHCET (723-4238)
P.O. Box 19952
Amarillo, TX 79114
www.behcets.com
American Board of Medical Specialties
Consejo Americano de Especialidades Médicas
(866) ASK-ABMS (275-2267)
1007 Church Street, Suite 404
Evanston, IL 60201-5913
www.abms.org
American Brain Tumor Association [*]
Asociación Americana sobre Tumores del Cerebro
(800) 886-2282
2720 River Road, Suite 146
Des Plaines, IL 60018
www.abta.org
6
American Burn Association [*+]
Asociación Americana de Víctimas de Quemaduras
(800) 548-2876
Chicago, IL 60611
www.ameriburn.org
American Chiropractic Association [*]
Asociación Americana de Quiroprácticos
(800) 986-4636
1701 Clarendon Boulevard, 2nd Floor
Arlington, VA 22209
www.acatoday.com
American College of Foot and Ankle Orthopedics
and Medicine
Colegio Americano de Medicina y Ortopédicos del Pie y el
Tobillo
(800) 265-8263
3525 Ellicott Mills Drive, Suite N
Ellicott City, MD 21049-4547
www.acfaom.org
American Council for Drug Education [*+]
Consejo Americano para Educación sobre la Drogadicción
(800) 488-DRUG (488-3784)
164 West 74th Street
New York, NY 10023
www.drughelp.org
American Council for Headache Education
Consejo Americano para la Educacion sobre el Dolor de
Cabeza
(800) 255-ACHE (255-2243)
19 Mantua Road
Mount Royal, NJ 08061
www.achenet.org
7
American Council of the Blind
National Legislative Hotline [*]
Consejo Americano del Invidente Línea de Información
Nacional sobre Legislación
(800) 424-8666
1155 15th Street NW, Suite 1004
www.acb.org
American Council on Alcoholism
Consejo Americano sobre el Alcoholismo
(800) 527-5344
2730 Watson Road
St. Louis, MO 63139
www.aca-usa.org
American Diabetes Association [*+]
Asociación Americana de la Diabetes
(800) 342-2383
1701 North Beauregard Street
www.diabetes.org
American Dietetic Association [*+]
Asociación Americana de Dietéticos
(800) 877-1600
216 West Jackson Boulevard, Suite 800
Chicago, IL 60606-6995
www.eatright.org
American Environmental Health Foundation
Fundación Americana de Salud Ambiental
(800) 428-2343
8345 Walnut Hill Lane, Suite 225
Dallas, TX 75231
www.aehf.com
8
American Foundation for Suicide Prevention
Fundacion Americana para la Prevencion del Suicidio
(888) 333-AFSP (333-2377)
120 Wall Street, 22nd Floor
New York, NY 10005
www.afsp.org
American Foundation for the Blind
Fundación Americana para los Invidentes
(800) AFB-LINE (232-5463)
11 Penn Plaza
New York, NY 10005
www.afb.org
American Health Assistance Foundation [*]
Fundación Americana de Asistencia para la Salud
(Age related and degenerative diseases)
(Enfermedades degenerativas y relacionadas con la edad)
(800) 437-2433
22512 Gateway Center Drive
Clarksburg, MD 20873
www.ahaf.org
American Heart Association [*+]
Asociación Americana del Corazón
(800) 242-8721
7272 Greenville Avenue
Dallas, TX 75231-4596
www.americanheart.org
American Hemochromatosis Society [*]
Sociedad Americana de Hemocromatosis
(888) 655-IRON (655-4766)
4044 West Lake Mary Boulevard, # 104, PMB 416
Lake Mary, FL 32746-2012
www.americanhs.org
9
American Humane Association
Children's Division
Asociación Humanística Americana/División Pediátrica
(Protection of children from abuse and neglect)
(Protege a los niños contra el abuso y el abandono)
(800) 227-4645
63 Inverness Drive East
Englewood, CO 80112-5117
www.americanhumane.org
American Institute for Cancer Research
Nutrition Hotline [*+]
Instituto Americano para la Investigación del Cáncer
Línea de Información sobre Nutrición
(800) 843-8114
1759 R Street NW
www.aicr.org
American Institute for Preventive Medicine [+]
Instituto Americano para la Medicina Preventiva
(800) 345-AIPM (345-2476)
30445 Northwestern Highway, Suite 350
Farmington Hills, MI 48334
www.healthylife.com
American Institute of Ultrasound in Medicine
Instituto Americano de Ultrasonidos en Medicina
(800) 638-5352
14750 Sweitzer Lane, Suite 100
Laurel, MD 20707-5906
www.aium.org
American Leprosy Missions, Inc.
Misiones Americanas sobre la Lepra, Inc.
(800) 543-3135
1 ALM Way
Greenville, SC 29601
www.leprosy.org
10
American Liver Foundation
Hepatitis Hotline [*+]
Fundación Americana del Hígado Línea de Información
sobre la Hepatitis
(800) GO LIVER (465-4837)
(888) 4HEPUSA (443-7872)
(800) 223-0179
(800) 4HEPABC (443-7222)
75 Maiden Lane, Suite 603
New York, NY 10038
www.liverfoundation.org
American Lung Association [*+]
Asociación Americana del Pulmón
(800) 586-4872
1740 Broadway
New York, NY 10019
www.lungusa.org
American Medical Rehabilitation Providers
Association
Asociación Americana de Proveedores de Rehabilitación
Médica
(888) 346-4624
1710 N Street NW
www.amrpa.org
American Osteopathic Association [+]
Asociación Americana de Osteopatía
(800) 621-1773
142 East Ontario Street
Chicago, IL 60611
www.aoa-net.org
American Parkinson's Disease
Association, Inc. [*+]
Asociación Americana de la Enfermedad de Parkinson
(800) 223-2732
1250 Hylan Boulevard, Suite 4B
Staten Island, NY 10305
www.apdaparkinson.com
11
American Podiatric Medical Association
Asociación Médica Americana de Podiatría
(800) FOOT-CARE (366-8227)
9312 Old Georgetown Road
Bethesda, MD 20814-1698
www.apma.org
American Red Cross, HIV/AIDS Teen Hotline [*+]
Cruz Roja Americana, Línea de información sobre el
VIH/SIDA para jóvenes
(Open Friday evenings and Saturdays)
(abierto los viernes en la tarde y los sábados)
(800) 440-8336
101 Ephesus Church Road
Chapel Hill, NC 27514
www.arccrop.redcross.org
American Red Cross, Youth and Community
Services [*+]
Servicios de los Jóvenes y de la Comunidad, Cruz Roja
Americana
(800) 375-2040
8111 Gatehouse Road
Falls Church, VA 22042-1203
www.redcross.org
American Running Association
American Running Association (Asociación Americana
para Deportistas)
(800) 776-2732
4405 East-West Highway, Suite 405
Bethesda, MD 20814
www.americanrunning.org
American Society for Colposcopy and Cervical
Pathology [+]
Sociedad Americana para la Colposcopia y Patologia
Cervical
(800) 787-7227
20 West Washington Street, Suite 1
Hagerstown, MD 21740
www.asccp.org
12
American Society for Deaf Children
Sociedad Americana Para Niños Sordos
(800) 942-ASDC (942-2732)
P.O. Box 3355
Gettysburg, PA 17325
www.deafchildren.org
American Society of Plastic Surgeons [+]
Sociedad Americana de Cirujanos Plásticos
(888) 4PLASTIC (475-2784)
Executive Office
444 East Algonquin Road
Arlington Heights, IL 60005
www.plasticsurgery.org
American Speech-Language-Hearing Association
Consumer Helpline [*+]
Asociación Americana del Habla-Lenguaje-Audición Línea
de Ayuda al Consumidor
(800) 638-8255 (consumers)
(800) 498-2071 (members)
10801 Rockville Pike
Rockville, MD 20852
www.asha.org
American Sudden Infant Death Syndrome
Institute [*]
Instituto Americano del Síndrome de Muerte Súbita
Infantil
(800) 232-SIDS (232-7437)
2480 Windy Hill Road, Suite 380
Marietta, GA 30067
www.sids.org
American Syringomyelia Alliance Project
Proyecto de la Alianza Americana de Siringomielia
(800) ASAP-282 (272-7282)
P.O. Box 1586
Longview, TX 75606-1586
www.asap.org
13
American Tinnitus Association [+]
Asociación Americana de Tinitus
(800) 634-8978
P.O. Box 5
Portland, OR 97207
www.ata.org
American Trauma Society
Sociedad Americana de Traumatología
(800) 556-7890
8903 Presidential Parkway, Suite 512
Upper Marlboro, MD 20772
www.amtrauma.org
Americans with Disabilities Act
Information Technology Center [*+]
Ley de Americanos con Discapacidades Centro de
Información Tecnológica
(800) 949-4232
451 Hungerford Drive, Suite 607
Rockville, MD 20850
www.adainfo.org
Amputee Coalition of America [+]
Coalición Americana de Personas Amputadas
(888) 267-5669
900 East Hill Avenue, Suite 285
Knoxville, TN 37915
www.amputee-coalition.org
Amyloidosis Network International, Inc.
Amyloidosis Network International, Inc (Red
Internacional de Amiloidosis)
(888) AMYLOID (269-5643)
7118 Cole Creek Drive
Houston, TX 77092-1421
www.amyloidosis.org
14
Amyotrophic Lateral Sclerosis
Association [*]
Asociación de la Esclerosis Lateral Amiotrófica
(800) 782-4747
27001 Agoura Road, Suite 150
Calabasa Hills, CA 91301-5104
www.alsa.org
Angel Flight East
(Medical air transport for the needy)
(Transporte aéreo médico para las personas necesitadas)
(800) 383-WING (383-9464)
501 Office Center Drive, Suite 015
Fort Washington, PA 19034
www.angelflighteast.org
Angelman Syndrome Foundation [*+]
Fundación del Síndrome de Angelman
(800) 432-6435
414 Plaza Drive, Suite 209
West Mount, IL 60559
www.angelman.org
Aplastic Anemia and MDS International
Foundation, Inc. [*+]
Fundación Internacional de la Anemia Aplásica y MDS,
Inc.
(800) 747-2820
P.O. Box 613
Annapolis, MD 21404
www.aamds.org
Arc of the United States [+]
El Arca de los Estados Unidos
(Mental retardation)
(Retardo mental)
(800) 433-5255
1010 Wayne Avenue, Suite 650
www.thearc.org
15
ARCH National Respite Locator Service
Servicio Nacional para Encontrar Ayuda o Alivio
Temporal para los Encargados de Cuidar a los Enfermos
(800) 773-5433
Chapel Hill Training Outreach Project
800 Eastowne Drive, Suite 105
www.respitelocator.org
Architectural and Transportation Barriers
Compliance Board
Junta para la Implementación de Acuerdos Respecto a
las Barreras Arquitectónicas y de Transporte
(800) USA-ABLE (872-2253)
1331 F Street NW, Suite 1000
www.access-board.gov
Arthritis Foundation [*+]
Fundación para la Artritis
(800) 283-7800
1330 West Peachtree Street
Atlanta, GA 30309
www.arthritis.org
Ask-A-Nurse
Pregunte a la Enfermera
(814) 452-5500
(800) 326-8080
Saint Vincent Health System
Erie, PA 16544
www.svhs.org
ASPCA National Animal Poison Control Center
Centro Nacional para el Control del Envenanamiento de
los Animales ASPCA
(800) 548-2423
(888) 426-4435
1717 South Philo Road, Suite 36
Urbana, IL 61802
www.napcc.aspca.org
16
Association for Children for Enforcement of
Support [+]
Asociación para la Ejecución de las Leyes de
Manutención Infantil
(800) 738-2237
2260 Upton Avenue
Toledo, OH 43606
www.childsupport-aces.org
Association of Late Deafened Adults
Asociación de los Adultos que han Perdido el Oído
(877) 348-7537
1131 Lake Street, #204
Oak Park, IL 60301
www.alda.org
Asthma and Allergy Foundation of America [+]
Fundación Americana del Asma y las Alergias
(800) 7-ASTHMA (727-8462)
www.aafa.org
Ataxia Telangiectasia (A-T) Children's Project [*]
Proyecto de Ataxia Telangiectasia de Niños
(800) 5-HELP-A-T (543-5728)
668 South Military Trail
Deerfield Beach, FL 33442
www.atcp.org
Attention Deficit Disorder and Dyslexia Challenge
Reto para el Trastorno de Deficiencia de Atención y
Dislexia
(800) 233-2322
P.O. Box 742
Webster, NY 14580
www.adhdchallenge.com
17
Auto Safety Hotline
National Highway Traffic Safety
Administration [*]
Línea de Información acerca de la Seguridad
Automovilística Administración Nacional para la
Seguridad del Tráfico en las Carreteras
(800) 424-9393
400 7th Street SW, Room 5319
www.nhtsa.dot.gov
Back to Sleep Program Hotline
National Institute of Child Health and Human
Development [*+]
Línea de Información sobre el Programa para Volverse a
Dormir Instituto Nacional de Salud Infantil y Desarollo
Humano
(800) 505-CRIB (505-2742)
31 Center Drive, Building 31, Room 2A32
www.nichd.nih.gov
Batten Disease Support and Research
Association [+]
Asociación para el Apoyo y la Investigación de la
Enfermedad de Batten
(800) 448-4570
120 Humphries Drive, Suite 2
Reynoldsburg, OH 43068
www.bdsra.org
Beckwith-Wiedemann Support Network
Red de Apoyo de Beckwith-Wiedemann
(800) 837-2976
2711 Colony Road
Ann Arbor, MI 48104
www.beckwith-wiedemann.org
18
Best Start Social Marketing [*+]
Mercadeo Social para el Buen Comienzo
(Promotes breastfeeding for the economically
disadvantaged)
(Promueve la lactancia para los niños en desventaja
económica)
(800) 277-4975
4809 East Busch Boulevard, Suite 104
Tampa, FL 33617
www.beststartinc.org
Better Hearing Institute
Hearing Helpline
Instituto para una Buena Audición Línea de Información
del Instituto para una Buena Audición
(888) 432-7435
515 King Street, Suite 420
www.betterhearing.org
Blind Children's Center [*+]
Centro para Niños Ciegos
(800) 222-3566
(800) 222-3567 (within California)
4120 Marathon Street
Los Angeles, CA 90029
www.blindchildrencenter.org
Blinded Veterans Association [*]
Asociación de Veteranos Ciegos
(800) 669-7079
477 H Street NW
www.bva.org
19
Braille Institute [*]
Instituto Braille
(800) BRAILLE (272-4553)
741 North Vermont Avenue
Los Angeles, CA 90029-3594
www.brailleinstitute.org
Brain Injury Association, Family Helpline [*+]
Asociación de Lesiones Cerebrales, Línea de Información
Familiar
(800) 444-6443
105 North Alfred Street
www.biausa.org
Brain Tumor Society
Sociedad de Tumorores Cerebrales
(800) 770-8287
124 Watertown Street, Suite 3H
Watertown, MA 02472
www.tbts.org
Bureau for At-Risk Youth [+]
Agencia para la Juventud en Riesgo
(800) 999-6884
135 Dupont Street
Plainview, NY 11803-0760
www.at-risk.com
Cancer Care [*+]
Cuidado del Cancer
(800) 813-HOPE (813-4673) (Línea de consejería)
275 7th Avenue
New York, NY 10001
www.cancercare.org
20
Cancer Hope Network
Red de Esperanza para el Cáncer
(Patients and families dealing with cancer and
treatment)
(Pacientes y familiares enfrentados al cáncer y su
tratamiento)
(877) HOPE-NET (467-3638)
2 North Road, Suite A
Chester, NJ 07930
www.cancerhopenetwork.org
Cancer Hot Line and R.A. Bloch Cancer
Foundation [*+]
Linea de Información del Cáncer y Fundación de Cancer
R.A. Bloch
(800) 433-0464
4400 Main Street
Kansas City, MO 64111
www.blochcancer.org
Cancer Information Service [*+]
Servicio de Información sobre el Cáncer
(800) 4-CANCER (422-6237)
(800) 332-8615 (TTY)
National Cancer Institute Public Inquiries Office
31 Center Drive, Room 10A03
www.cancer.gov
Candlelighters Childhood Cancer Foundation [+]
Fundación Candlelighters para el Cáncer Infantil
(800) 366-CCCF (366-2223)
3910 Warner Street
Kensington, MD 20895
www.candlelighters.org
21
CDC National AIDS Hotline [*+]
Línea Directa Nacional del SIDA, Centro para el Control
de las Enfermedades (CDC)
(800) 342-AIDS (342-2437)
(800) 344-SIDA (344-7432) (Spanish)
(800) AIDS-TTY (243-7889) (Hearing impaired)
P.O. Box 13827
Research Triangle Park, NC 27709
www.ashastd.org
CDC National Immunization Information Hotline
American Social Health Association [*+]
Línea Directa de Información sobre las Vacunas del
Centro para el Control de las Enfermedades, Asociación
Americana de Salud Social
(800) 232-2522 (English)
(800) 232-0233 (in Spanish)
(800) 243-7889 (TTY)
P.O. Box 13827
www.vaccines.ashastd.org
CDC National Prevention Information
Network [*+]
Red Nacional de Información sobre la Prevención del
Centro para el Control de las Enfermedades
(800) 458-5231
(800) 243-7012 (TTY)
P.O. Box 6003
Rockville, MD 20849-6003
www.cdcnpin.org
Center for Bloodless Medicine and Surgery [*+]
Centro para Medicina y Cirugía sin sangre
(800) 664-2533
Jackson Memorial Hospital
1611 Northwest 12th Avenue
Miami, FL 33136
www.noblood-miami.com
22
Charcot-Marie-Tooth Association [+]
Asociación de Charcot-Marie-Tooth
(Inherited neuromuscular disorder)
(Desorden neuromuscular hereditario)
(800) 606-2682
2700 Chestnut Street
Chester, PA 19013
www.charcot-marie-tooth.org
CHARGE Syndrome Foundation [*+]
Fundación del Síndrome CHARGE
(Coloboma heart malformations, afresia of the
choanoe, retardation of growth or development,
genital hypoplasia and ear anomalies)
(Coloboma, malformación del Corazón, atreasia del coana,
retardo en el crecimiento o desarrollo, hipoplasia genital y
anormalidades del oído)
(800) 442-7604
2004 Parkade Boulevard
Columbia, MO 65202
www.chargesyndrome.org
Chemical Referral Center
National Chemical Response and
Information Center [*+]
Centro de Referencia Química, Centro Nacional de
Información y Respuesta Química
(800) 424-9300
1300 Wilson Boulevard
Arlington, VA 22209
www.chemtrec.com
Child Find of America, Inc.
Encuentre al Niño de América
(Locating missing children)
(Búqueda de niños perdidos)
(800) I-AM-LOST (426-5678)
P.O. Box 277
New Paltz, NY 12561
www.childfindofamerica.org
23
Childhelp USA [*+]
Ayuda para el Niño, USA
(National Child Abuse Hotline)
(Linea Nacional de Ayuda para el Niño Maltratado)
(800) 4-A-CHILD (422-4453)
(800) 2-A CHILD (222-4453)
15757 North 78th Street
Scottsdale, AZ 85260
www.childhelpusa.org
Children and Adults with Attention
Deficit /Hyperactivity Disorder [+]
Niños y Adultos con Trastorno de Deficiencia de
Atención/Hiperactividad
(800) 233-4050
8181 Professional Place, Suite 201
Landover, MD 20785
www.chadd.org
Children of Aging Parents
Niños de Padres Envejecientes
(800) 227-7294
1609 Woodbourne Road, Suite 302-A
Levittown, PA 19057
www.caps4caregivers.org
Children's Craniofacial Association
Asociación Craneofacial de Niños
(800) 535-3643
13140 Coit Road, Suite 307
Dallas, TX 75240
www.ccakids.com
Children's Defense Fund [*]
Fondo para la Defensa de los Niños
(800) 233-1200
25 E Street NW
www.childrensdefense.org
24
Children's Hospice International
Hospicio Internacional para Niños
(800) 242-4453
901 North Pitt Street, Suite 230
www.chionline.org
Children's Memorial Hospital
Division of Genetics [*+]
Children's Memorial Hospital, División de Genética
(800) KIDSDOC (543-7362)
2300 Children's Plaza
Chicago, IL 60614
www.childrensmemorial.org/depts/genetics
Children's PKU Network [+]
Red de Niños con Fenilcetonuria (PKU)
(800) 377-6677
3790 Via De La Valle, Suite 120
Del Mar, CA 92014
www.pkunetwork.org
Christopher Reeve Paralysis Foundation [*]
Fundación de Parálisis Christopher Reeve
(800) 225-0292 (fundraising)
(800) 539-7309 (resource center)
500 Morris Avenue
Springfield, NJ 07081
www.christopherreeve.org
Chromosome Deletion Outreach, Inc. [+]
Programa de educación sobre delección del cromosoma
(888) CDO-6880 (12-7 pm ET)
P.O. Box 724
Boca Raton, FL 33429-0724
www.chromodisorder.org
25
Chronic Fatigue and Immune Dysfunction
Syndrome (CFIDS) Association [+]
Asociación del Síndrome de la Fatiga Crónica y el
Síndrome de Disfunción Inmunitaria
(800) 442-3437
P.O. Box 220398
Charlotte, NC 28222
www.cfids.org
Citizens for Better Care
Ciudadanos para un mejor cuidado
(Nursing home advocacy and information)
(Información y apoyo de los asilos)
(800) 833-9548
4750 Woodward Avenue, Suite 410
Detroit, MI 48201-1308
www.cbcmi.org
Cleft Palate Foundation [*+]
Fundación del Labio Leporino
(800) 24-CLEFT (242-5338)
104 South Estes Drive, Suite 204
www.cleftline.org
Cocaine Anonymous World Service Office, Inc. [*]
Oficina Mundial de Servicios para Cocainómanos
Anónimos, Inc.
(800) 347-8998
3740 Overland Avenue, Suite C
Los Angeles, CA 90034-6337
www.ca.org
Community Transportation Association of America
Asociación Comunitaria de transporte de América
(800) 527-8279
1341 G Street NW, 10th Floor
www.ctaa.org
26
Compassionate Friends [+]
Amigos Compasivos
(Grief resolution after death of a child)
(Solución a la pena después de la muerte de un niño)
(877) 969-0010
P.O. Box 3696
Oak Brook, IL 60522-3696
www.compassionatefriends.org
Compeer [+]
(Volunteer friends for children and adults who
receive mental health treatment)
(Compañero-Amigo de niños o adultos que reciben
tratamiento mental)
(800) 836-0475
Monroe Square
259 Monroe Avenue
Rochester, NY 14507
www.compeer.org
Concerned United Birthparents, Inc.
(Grupo de personas conmovidas por la adopción)
(Adoption issues)
(asuntos sobre adopción)
(800) 822-2777
P.O. Box 230457
Encinitas, CA 92023
www.cubirthparents.org
Cooley's Anemia Foundation
Fundación de Anemia Cooley
(800) 522-7222
129-09 26th Avenue, Suite 203
Flushing, NY 11354
www.cooleysanemia.org
Cornelia de Lange Syndrome Foundation [+]
Fundación del Síndrome Cornelia de Lange
(Birth defects information)
(Información sobre defectos congénitos)
(800) 223-8355
(800) 753-2357 (Connecticut and Canada only)
302 West Main Street, Suite 100
Avon, CT 06001-4331
www.cdlsusa.org
27
Corporate Angel Network, Inc.
(Flights on corporate jets to and from recognized
cancer treatment centers)
(Vuelos en aviones corporativos hacia y desde centros de
tratamiento de cáncer reconocidos)
(800) 328-4226
(866) 328-1313
Westchester County Airport
1 Loop Road
White Plains, NY 10604
www.corpangelnetwork.org
Covenant House [*+]
La Casa del Convenio
(Homeless youth-various locations in United States
and Canada)
(Centros en Estados Unidos y Canadá para jóvenes sin
hogar)
(800) 999-9999
(800) 999-9915 (TTY)
New York, NY 10011
www.covenanthouseny.org
Crohn's and Colitis Foundation of
America, Inc. [*]
Fundación de la Enfermedad de Crohn y Colitis de
América, Inc.
(800) 932-2423
386 Park Avenue South
New York, NY 10016
www.ccfa.org
Cystic Fibrosis Foundation [*+]
Fundación para la Fibrosis Cística
(800) 344-4823
6931 Arlington Road, Suite 200
Bethesda, MD 20814
www.cff.org
28
Cystinosis Foundation, Inc.
Fundación de Cistinosis, Inc.
(800) 392-8458
604 Vernon Street
Oakland, CA 94610
www.cystinosisfoundation.org
Danny Foundation [+]
Fundación Danny
(Baby crib safety)
(Seguridad cuando el bebé duerme)
(800) 83-DANNY (833-2669)
P.O. Box 680
Alamo, CA 94507
www.dannyfoundation.org
Dave Thomas Foundation for Adoption
Fundación para la Adopción Dave Thomas
(800) 275-3832
4288 West Dublin Granville Road
Dublin, OH 43017
www.davethomasfoundationforadoption.org
DB-LINK: National Information Clearinghouse on
Children Who are Deaf-Blind [*+]
Enlace DB: Centro Nacional de Distribución de
Información sobre Niños Sordo-Ciegos
(800) 438-9376
(800) 854-7013 (TTY)
345 North Monmouth Avenue
Monmouth, OR 97361
www.tr.wou.edu/dblink
Department of Housing and Urban Development
HUD USER [+]
Departamento de Vivienda y Desarrollo Urbano
(Database searches, bibliographies, document
delivery)
(Búsqueda de datos, bibliografía y entrega de documentos)
(800) 245-2691
(800) 483-2209 (TTY)
P.O. Box 23268
www.huduser.org
29
Depression After Delivery-National
Grupo Nacional shobre la Depresión Posparto
(800) 944-4773
P.O. Box 27891 East Somerset Street
Raritan, NJ 08869
www.depressionafterdelivery.com
Depression and Bipolar Support
Alliance [*+]
Alianza de Apoyo para la Depresión y el Trastorno
Bipolar (DBSA)
(800) 82-NDMDA (826-3632)
730 North Franklin Street, Suite 501
Chicago, IL 60610
www.DBSalliance.org
Devereux Foundation [+]
Fundación Devereux
(Treatment of emotionally, developmentally, and
mentally handicapped)
(Tratamiento ara personas con discapacidades emocionales,
de desarrollo y mentales)
(800) 345-1292
444 Deveroux Drive
Villanova, PA 19085
www.devereux.org
Disabilities Information Access Line (DIAL) [*+]
Línea de Acceso a Información sobre Discapacidades
(800) 922-3425
P.O. Box 3455
Baton Rouge, LA 70821-3455
www.laddc.org/dial.htm
Disabled and Alone/Life Services for the
Handicapped [*]
Solo y Discapacitado/Servicios vitales para el Minusválido
(800) 995-0066
352 Park Avenue South, 11th Floor
New York, NY 10010
www.disabledandalone.org
30
EAR Foundation
Fundación del Oído
(800) 545-HEAR
1817 Patterson Street
Nashville, TN 37203
www.earfoundation.com
Easter Seals National Headquarters [*+]
Oficina Nacional de Easter Seals
(800) 221-6827
230 West Monroe Street, Suite 1800
Chicago, IL 60606
www.easter-seals.org
Eastern Paralyzed Veterans Association [*+]
Asociación de Veteranos Paralíticos del Oriente
(800) 444-0120 (Publications)
75-20 Astoria Boulevard
Jackson Heights, NY 11370-1177
www.epva.org
Eldercare Locator
National Association of Area Agencies
on Aging [*+]
Centro Localizador de Servicios de Cuidado para el
Anciano Asociación Nacional de Agencias para el
Envejeciente
(800) 677-1116
927 15th Street NW, 6th Floor
www.n4a.org
Elizabeth Glaser Pediatric AIDS Foundation [*+]
Fundación Elizabeth Glaser para el SIDA Pediátrico
(888) 499-HOPE (499-4673)
2950 31st Street, #125
Santa Monica, CA 90405
www.pedaids.org
31
Endometriosis Association [+]
Asociación de la Endometriosis
(800) 992-ENDO (992-3636)
International Headquarters
8585 North 76th Place
Milwaukee, WI 53223
www.endometriosisassn.org
Epilepsy Foundation of America [*+]
Fundación Americana de la Epilepsia
(800) EFA-1000 (332-1000)
4351 Garden City Drive, Suite 406
Landover, MD 20785
www.epilepsyfoundation.org
Epilepsy Information Service
Wake Forest University School of Medicine [*+]
Servicio de Información sobre la Epilepsia Facultad de
Medicina de la Universidad Wake Forest
(Comprehensive epilepsy program)
(Programa completo sobre la epilepsia)
(800) 642-0500
Medical Center Boulevard
Winston-Salem, NC 27157-1078
www.wfumc.edu/neuro/epilepsy/information.htm
FACES: The National Craniofacial Association
CARAS: Asociación Nacional Craneofacial
(800) 3-FACES-3 (332-2373)
P.O. Box 11082
Chattanooga, TN 37401
www.faces-cranio.org
Families Anonymous [+]
Familias Anónimas
(Families coping with drug abuse and alcohol)
(Familias enfrentadas a la drogadicción y el alcoholismo)
(800) 736-9805
P.O. Box 3475
Culver City, CA 90231-3475
www.familiesanonymous.org
32
Families of Spinal Muscular Atrophy [*+]
Familias de Personas con Atrofia Musculoespinal
(800) 886-1762
P.O. Box 196
Libertyville, IL 60048-0196
www.fsma.org
Family Caregiver Alliance [+]
Alianza de Familias que Cuidan o Atienden a los
Enfermos
(800) 445-8106
690 Market Street, Suite 600
San Francisco, CA 94104
www.caregiver.org
Family Empowerment Network Supporting
Families Affected by FAS/FAE
Red de Apoyo para Familias Afectadas por el Síndrome
de Alcoholismo Fetal/Efectos del Alcoholismo fetal
(800) 462-5254
610 Langdon Street, Room 519
Madison, WI 53703
www.dcs.wisc.edu/pda/hhi/fen
Family Voices [+]
Voces de Familia
(Children with special health needs)
(Niños con necesidades médicas especiales)
(888) 835-5669
3411 Candelaria Road NE, Suite M
Albuquerque, NM 87107
www.familyvoices.org
Farm Safety 4 Just Kids
Prevención de accidentes de niños en tareas rurales
(800) 423-5437
P.O. Box 458
Earlham, IA 50072
www.fs4jk.org
33
Federal Citizen Information Center [*+]
Centro Federal de Información para Ciudadanos
(800) FED-INFO (333-4636)
Department WWW
Pueblo, CO 81009
www.pueblo.gsa.gov
Fibromyalgia Network [*+]
Red de Información sobre la Fibromialgia
(800) 853-2929
P.O. Box 31750
Tucson, AZ 85751-1750
www.fmnetnews.com
Food Allergy Network [+]
Red de Información sobre Alergias a los Alimentos
(800) 929-4040
10400 Eaton Place, Suite 107
Fairfax, VA 22030-2208
www.foodallergy.org
Food and Drug Administration
Division of Drug Information
Administración de Alimentos y Medicamentos de los
Estados Unidos, División de Información sobre
Medicament
(800) 238-7332
(888) Info-FDA (463-6332)
5600 Fishers Lane, (HFE-88)
Rockville, MD 20857
www.fda.gov/oca/oca.htm
Forward Face
Cara En alto
(Charity foundation for children with craniofacial
problems)
(Fundación benéfica para niños con problemas
craneofaciales)
(800) FWD-FACE (393-3223)
317 East 34th Street, Suite 901A
New York, NY 10016
www.forwardface.org
34
Foundation Fighting Blindness
Fundación para la Lucha contra la Ceguera
(800) 683-5555
(800) 683-5551 (TTY)
11435 Cronhill Drive
Owings Mills, MD 21117-2220
www.blindness.org
Foundation for Nager and Miller Syndromes
(FNMS)
Fundación para los Síndromes Nager y Miller
(800) 507-FNMS (507-3667)
1827 Grove Street, #2
Glenview, IL 60025-2913
www.nagerormillersynd.com
Foundation for Spinal Cord Injury Prevention,
Care and Cure (FSCIPCC)
Fundación para la Prevención, Cuidado y Curación de
Lesiones de la Médula Espinal
(800) 342-0330
11230 White Lake Road
Fenton, MI 48430
www.fscip.org
Fox Chase Cancer Center [+]
Centro de Cáncer Fox Chase
(888) 369-2427
7701 Burholme Avenue
Philadelphia, PA 19111
www.fccc.edu
Friend's Health Connection [*]
Friend’s Health Connection (Grupo de apoyo para poner
en contacto a personas con problemas de salud
similares)
(800) 483-7436
P.O. Box 114
New Brunswick, NJ 08903
www.friendshealthconnection.org
35
Funeral Service Consumer Assistance Program
Programa de Asistencia al Consumidor para Servicios de
Funeraria
(800) 662-7666
P.O. Box 486
Elm Grove, WI 53122-0486
www.fsef.org
Genetic Alliance
Alianza Genética
(800) 336-4363
4301 Connecticut Avenue NW, Suite 404
www.geneticalliance.org
Genetic and Rare Diseases Information Center
National Human Genome Research Institute
Centro de Información Genética y de Enfermedades Poco
Frecuentes, Instituto de Investigación del Genoma
Humano
(888) 205-2311
(888) 205-3223 (TTY)
P.O. Box 8126
Gaithersburg, MD 20898-8126
Gilda Radner Familial Ovarian Cancer Registry
Roswell Park Cancer Institute [*]
Registro Gilda Radner de Cáncer Ovárico de Familia del
Instituto de Cáncer Roswell Park
(800) OVARIAN (682-7426)
Elm and Carlton Streets
Buffalo, NY 14263
www.ovariancancer.com
Girls and Boys Town National Hotline [*+]
Línea de Información Nacional de Boys Town
(800) 448-3000
13940 Gatowski Road
Boys Town, NE 68010
www.girlsandboystown.org
36
Gladney Center for Adoption [*]
Centro de Adopción Gladney
(Maternity home and infant placement agency)
(Hogar de maternidad y agencia de adopción infantil)
(800) GLADNEY (452-3639)
6300 John Ryan Drive
Fort Worth, TX 76132
www.gladney.org
Glaucoma Research Foundation [+]
Fundación para la Investigación de la Glaucoma
(800) 826-6693
200 Pine Street, Suite 200
www.glaucoma.org
Good Samaritan Project
Teen Teaching AIDS Prevention Program
(TeenTAPP)[*+]
Proyecto de Adolescentes el Buen Samaritano Programa
Educativo para Prevenir el SIDA
(800) 234-8336
3030 Walnut Street
Kansas City, MO 64108
Grandparent Information Center
American Association of Retired Persons [*+]
Centro de Información para los Abuelos, Asociación
Americana de Jubilados
(800) 424-3410
601 E Street NW
www.aarp.org/grandparents/home
Guide Dogs for the Blind, Inc.
Perros Guías para Ciegos
(800) 295-4050
P.O. Box 151200
San Rafael, CA 94915-1200
www.guidedogs.com
37
Guide Dogs of America [*]
Perros Guía de América
(800) 459-4843
13445 Glenoaks Boulevard
Sylmar, CA 91342
www.guidedogsofamerica.org
Health Care for the Homeless
Information Resource Center [+]
Centro de Información de Cuidado Médico para Personas
sin Hogar
(888) 439-3300, ext 247
345 Delaware Avenue
Delmar, NY 12054
www.hchirc.bphc.hrsa.gov
Health Resource Center on Domestic Violence
Family Violence Prevention Fund [*+]
Centro de Información sobre Violencia Doméstica, Fondo
de Prevención de Violencia Familiar
(888) 792-2873
383 Rhode Island Street, Suite 304
www.endabuse.org
Health Resources and Services Administration
Information Center [*+]
Centro Nacional para la Distribución de Información
sobre la atención primaria de la Salud
(888) ASK-HRSA
2070 Chain Bridge Road, Suite 450
Vienna, VA 22182
www.ask.hrsa.gov
HEAR NOW
ESCUCHE AHORA
(800) 648-HEAR (648-4327)
6700 Washington Avenue South
Eden Prarie, MN 55344
www.sotheworldmayhear.org
38
Heart Information Service
Texas Heart Institute[*+]
Servicio de Información sobre el Corazón Instituto de
Cardiología de Texas
(800) 292-2221
6770 Bertner Avenue
Houston, TX 77030
www.texasheartinstitute.org
Heartspring [*]
Manantial del Corazón
(Programs for multiply disabled children)
(Programas para niños con múltiples discapacidades)
(800) 835-1043
8700 East 29th Street North
Wichita, KS 67226-2169
www.heartspring.org
Hemophilia and AIDS/HIV Network for the
Dissemination of Information (HANDI) [*+]
Red para la Diseminación de Información sobre la
Hemofilia y el VIH/SIDA
(800) 424-2634
116 West 32nd Street, 11th Floor
New York, NY 10001
www.hemophilia.org
Hepatitis Foundation International [+]
Fundación Internacional de la Hepatitis
(800) 891-0707
504 Blick Drive
www.hepatitisfoundation.org
Hereditary Hemorrhagic Telangiectasia
Foundation International
Fundación Internacional de Telangiectasia Hemorrágica
Hereditaria
(800) 448-6389
P.O. Box 8087
New Haven, CT 06530
www.HHT.org
39
Hermansky-Pudlak Syndrome Network, Inc.
Red de Información del Síndrome Hermansky-Pudlak
(800) 789-9477
1 South Road
Oyster Bay, NY 11771
medhelp.netusa.net/web/hpsn.htm
Herpes Resource Center [+]
Centro de Información sobre el Herpes
(877) 411-4377
P.O. Box 13827
www.ashastd.org/hrc
Histiocytosis Association of America [+]
Asociación Americana de la Histiocitosis
72 East Holly Avenue, Suite 101
Pittman, NJ 08071
www.histio.org
Hospice Education Institute [*+]
Instituto de Educación sobre Hospicios
(One-to-one support for patients and families)
(Apoyo personalizado para los pacientes y sus familias)
(800) 331-1620
3 Unity Square
P.O. Box 98
Machiasport, ME 04655
www.hospiceworld.org
Human Growth Foundation [+]
Fundación del Crecimiento Físico Humano
(Child growth abnormalities)
(Ofrece ayuda a niños con problemas del crecimiento)
(800) 451-6434
997 Glen Cove Avenue
Glen Head, NY 11545
www.hgfound.org
40
Huntington's Disease Society of America [*+]
Sociedad Americana de la Enfermedad de Huntington
(800) 345-4372
158 West 29th Street, 7th Floor
New York, NY 10001
www.hdsa.org
Hydrocephalus Association [+]
Asociación de Hidrocefalia
(888) 598-3789
870 Market Street, Suite 705
www.hydroassoc.org
Immune Deficiency Foundation [+]
Fundación para la Deficiencia Inmunitaria
(800) 296-4433
40 West Chesapeake Avenue, Suite 308
Towson, MD 21204
www.primaryimmune.org
Indoor Air Quality Information
Clearinghouse [*+]
Centro de Información Acerca de la Calidad del Aire en el
Interior de las Viviendas y los Negocios
(800) 438-4318
P.O. Box 37133
www.epa.gov/iaq/
Inspector General's Hotline
Department of Health and Human Services [*]
Línea Directa de Información de la oficina del Inspector
General Departamento de Salud y Servicios Sociales
(Reporting fraud, waste, and abuse in HHS
programs)
(Comunicación de fraude, desperdicio y abuso en los
programas del HHS)
(800) HHS-TIPS (447-8477)
P.O. Box 23489
www.hhs.gov
41
Insurance Information Institute [*+]
Instituto de Información sobre Seguros
(800) 331-9146 (Property Casualty)
(800) 942-4242 (Consumer Helpline)
110 William Street
New York, NY 10038
www.iii.org
International Association of Laryngectomees
Asociación Internacional de Pacientes de Laringectomía
(866) IAL-FORU (425-3678)
8900 Thornton Road, Box 99311
Stockton, CA 95209
www.larynxlink.com
International Cancer Alliance [*+]
Alianza Internacional del Cáncer
(800) ICARE-61 (422-7361)
4853 Cordell Avenue, Suite 11
Bethesda, MD 20814
www.icare.org
International Childbirth Education Association [+]
Asociación Internacional de Educación sobre el Parto
(800) 624-4934
P.O. Box 20048
Minneapolis, MN 55420-0048
www.icea.org
International Dyslexia Association [+]
Asociación Nacional de Dislexia
8600 LaSalle Road, Suite 382
Chester Building
Baltimore, MD 21286-2044
www.interdysk.org
42
International Essential Tremor Foundation [+]
Fundación Internacional de Tremor Esencial
(888) 387-3667
P.O. Box 14005
Lenexa, KS 66285
www.essentialtremor.org
International Foundation for Functional
Gastrointestinal Disorders (IFFGD)
Fundación Internacional para el Desorden
Gastrointestinal Funcional
(888) 964-2001
P.O. Box 170864
Milwaukee, WI 53217-8076
www.iffgd.org
International Hearing Society
Hearing Aid Helpline
Sociedad Internacional de la Audición Línea de
Ayuda /Información sobre Aparatos de Audición
(800) 521-5247
16880 Middlebelt Road, Suite 4
Livonia, MI 48154
www.ihsinfo.org
International Myeloma Foundation [+]
Fundación Internacional del Mieloma
(800) 452-CURE (452-2873)
12650 Riverside Drive, Suite 206
North Hollywood, CA 91607-3421
www.myeloma.org
International Rett Syndrome Association [+]
Asociación Internacional del Síndrome de Rett
(800) 818-7388
9121 Piscataway Road, Suite 2B
Clinton, MD 20735
www.rettsyndrome.org
43
Interstitial Cystitis Association [+]
Asociación de la Cistitis Intersticial
(800) HELP-ICA (435-7422)
110 North Washington Street, Suite 340
Rockville, MD 20850
www.ichelp.org
Job Accommodation Network [*+]
Red de Información para la Ubicación de Empleo
(For persons with disabilities seeking employment)
(Para personas con disacapacidades en busca de empleo)
(800) 526-7234
P.O. Box 6080
Morgantown, WV 26506-6080
www.jan.wvu.edu
Johns Hopkins Hereditary Colorectal Cancer
Registry
Registro del Cáncer Colorrectal Hereditario de Johns
Hopkins
(888) 77-COLON (772-6566)
550 North Broadway, Suite 108
Baltimore, MD 21205-2011
www.coloncancer.org/HCCR.htm
Juvenile Diabetes Research Foundation
International [*+]
Fundación Internacional de la Diabetes Juvenil
(800) 533-2873
120 Wall Street, 19th Floor
New York, NY 10005
www.jdrf.org
Juvenile Justice Clearinghouse
Department of Justice [*+]
Centro de Información sobre Justicia Juvenil
Departamento de Justicia
(800) 638-8736
P.O. Box 6000
www.ncjrs.org
44
Kidney Cancer Association [+]
Asociación de Cáncer del Riñón
(800) 850-9132
1234 Sherman Avenue, Suite 230
Evanston, IL 60202
www.kidneycancerassociation.org
Kidsrights [+]
Derecho Infantil
(Children's rights and family issues)
(Derecho infantil y asuntos familiares)
(800) 892-5437
8902 Otis Avenue
Indianapolis, IN 46216
www.kidsrights.com
La Leche League International [*+]
Liga Internacional La Leche
(Breastfeeding)
(Lactancia)
(800) LA LECHE (525-3243)
1400 North Meacham Road
P.O. Box 4079
Schaumburg, IL 60173-4808
www.lalecheleague.org
Lamaze International [*+]
Lamaze Internacional
(800) 368-4404
2025 M Street, Suite 800
www.lamaze.org
Laser Institute of America [*]
Instituto Laser de América
(800) 34-LASER (345-2737)
13501 Ingenuity Drive, Suite 128
Orlando, FL 32826
www.laserinstitute.org
45
Leader Dogs for the Blind [*+]
Perros Guía para Ciegos
(888) 777-5332
P.O. Box 5000
Rochester, MI 48307
www.leaderdogs.org
Les Turner Amyotrophic Lateral Sclerosis
Foundation, Ltd.
Fundación para la Esclerosis Lateral Amiotrópica
(888) ALS-1107 (257-1107)
8142 Lawndale Avenue
Skokie, IL 60676-3322
www.lesturnerals.org
Leukemia and Lymphoma Society [*+]
Sociedad Americana de la Leucemia
(800) 955-4LSA (955-4572)
1311 Mamaroneck Avenue
www.leukemia-lymphoma.org
LifeNet
Red de Vida
(organ and tissue donation)
(Donación de órganos y tejidos)
(800) TISSUE-1 (847-7831)
5809 Ward Court
Virginia Beach, VA 23455
www.lifenet.org
Lighthouse International [+]
Gente Pequeña de América
(800) 829-0500 (Voice and TDD)
111 East 59th Street
New York, NY 10022-1202
www.lighthouse.org
46
Little People of America [*+]
Fondo de Investigación sobre la Gente Pequeña
(888) LPA-2001 (572-2001)
P.O. Box 65030
Lubbock, TX 79464
www.LPAonline.org
Little People's Research Fund [*+]
(800) 232-LPRF (232-5773)
80 Sister Pierre Drive
Towson, MD 21204
www.lprf.org
Living Bank [*+]
Banco de Vida
(Organ donation)
(Donación de órganos)
(800) 528-2971
P.O. Box 6725
Houston, TX 77265-6725
www.livingbank.org
Look Good...Feel Better
American Cancer Society [*+]
Luzca Bien...Siéntase Mejor, Sociedad Americana del
Cáncer
(800) 395-LOOK
(800) 227-2345
1599 Clifton Road NE
Atlanta, GA 30329
www.lookgoodfeelbetter.org
Lupus Foundation of America [*+]
Fundación Americana del Lupus
(800) 558-0121
1300 Piccard Drive
Rockville, MD 20850
www.lupus.org
47
Lymphoma Research Foundation [*]
Fundación de Investigación del Linfoma
(800) 235-6848
111 Broadway, 19th Floor
New York, NY 10006
www.lymphoma.org
Macular Degeneration Foundation
Fundación para la Degenearación Macular
(888) 633-3937
(800) 924-4393
P.O. Box 531313
Henderson, NV 89053
www.eyesight.org
Macular Degeneration International
Degeneración Macular Internacional
(800) 393-7634
2968 Ina Road
Tucson, AZ 85741
www.maculardegeneration.org
MAGIC Foundation for Children's Growth
Fundación MAGIC para el Crecimiento de los Niños
(800) 3MAGIC3 (362-4423)
6645 West North Avenue
Oak Park, IL 60302
www.magicfoundation.org
Make Today Count
Haga Valer el Día de Hoy
(Self-help support groups)
(Grupos de Apoyo de Autoayuda)
(800) 432-2273
Mid-American Cancer Center
1235 East Cherokee Street
Springfield, MO 65804
48
Malignant Hyperthermia Association of the United
States [+]
Asociación Estadounidense de la Hipertermia Maligna
(800) 98-MHAUS (986-4287)
P.O. Box 1069
11 East State Street
Sherbourne, NY 13460-1069
www.mhaus.org
March of Dimes Birth Defects Foundation [*+]
Fundación March of Dimes para los Defectos Congénitos
(Information on pregnancy, birth defects, and
genetics)
(Información sobre el embarazo, los defectos congénitos y
la genética)
(888) MODIMES (663-4637)
(800) 925-1855 (Spanish-speaking line)
1275 Mamaroneck Avenue
www.marchofdimes.com
Medic Alert Foundation International [*+]
Fundación Internacional de Alerta Médica
(Identification system for medical conditions)
(Sistema de identificación de condiciones médicas)
(800) ID-ALERT (432-5378)
2323 Colorado Avenue
Turlock, CA 95382-2018
www.medicalert.org
Medical Genetics
Genetica en la Medicina
(Genetic testing and counseling)
(Consejería y pruebas genéticas)
(800) 998-4785
Cleveland Clinic Foundation
Medical Genetics/Risk Assessment
9500 Euclid Avenue
Cleveland, OH 44195
www.clevelandclinic.org/medgen
49
Medicare Issues Hotline
Health Care Financing Administration [+]
Línea Directa de Información sobre Asuntos de
MEDICARE Administración para el Financiamiento del
Cuidado de la Salud
(800) MEDICARE (633-4227)
7500 Security Boulevard
Baltimore, MD 21244
MedWatch [*]
Alerta Medica
(The FDA Medical Products Reporting Program)
(Programa de información sobre productos médicos de la
FDA)
(800) 332-1088
5600 Fishers Lane
www.fda.gov/medwatch
Memorial Sloan-Kettering Cancer Center [*+]
Centro de Cancer Memorial Sloan-Kettering
(800) 525-2225
1275 York Avenue
New York, NY 10021
www.mskcc.org
Mended Hearts, Inc.
Organización para enfermos del corazón y sus familias
(888) heart99 (432-7899)
7272 Greenville Avenue
Dallas, TX 75231-4596
www.mendedhearts.org
Meningitis Foundation of America [+]
Fundación de Meningitis de América
(800) 668-1129
6610 North Shadeland Avenue, Suite 220
Indianapolis, IN 46220
www.musa.org
50
Mercy Medical Airlift
Transporte aéreo para pacientes y sus familias
(Charitable medical air transportation)
(Transporte aéreo médico de caridad)
(800) 296-1217
P.O. Box 1940
Manassas, VA 20108-0804
www.mercymedical.org
Mothers Against Drunk Driving [*+]
Madres en Contra de Conductores Embriagados
(800) GET-MADD (438-6233)
511 East John Carpenter Freeway, Suite 700
Irving, TX 75062
www.madd.org
Multiple Sclerosis Association of America [*]
Asociación Americana de Esclerosis Múltiple
(800) LEARN-MS (532-7667)
706 Haddonfield Road
Cherry Hill, NJ 08002-2652
www.msaa.com
Multiple Sclerosis Foundation [*+]
Fundación para la Esclerosis Múltiple
(800) 441-7055
6350 North Andrews Avenue
Fort Lauderdale, FL 33309
www.msfacts.org
MUMS National Parent-to-Parent Network
Mothers United for Moral Support, Inc.
Red Nacional de Padres a Padres MUMS, Madres Unidas
para Apoyo Moral, Inc.
(877) 336-5333
150 Custer Court
Green Bay, WI 54301-1243
www.netnet.net/mums
51
Muscular Dystrophy Association [*+]
Asociación de la Distrofia Muscular
(800) 572-1717
3300 East Sunrise Drive
Tucson, AZ 85718-3208
www.mdausa.org
Myasthenia Gravis Foundation of
America, Inc. [+]
Fundación Americana de la Miastenia Grave, Inc.
(800) 541-5454
5841 Cedar Lake Road, Suite 204
Minneapolis, MN 55416
www.myasthenia.org
NAMI (National Alliance for the Mentally Ill) [*+]
NIAMI (Alianza Nacional para el Enfermo Mental)
(888) 999-NAMI (999-6264)
Colonial Place Three
2107 Wilson Boulevard, Suite 300
Arlington, VA 22201
www.nami.org
National Abortion Federation Hotline [*+]
Federación Nacional del Aborto
(800) 772-9100
www.prochoice.org
National Adoption Center
Centro Nacional para la Adopción
(800) 862-3678
1500 Walnut Street, Suite 701
www.adopt.org
National Adoption Information
Clearinghouse [*+]
Centro Nacional de Distribución de Información sobre la
Adopción
(888) 251-0075
330 C Street SW
www.calib.com/naic
52
National Aging Information Center
U.S. Administration on Aging
Centro de Información Nacional sobre la Vejez,
Administración de Asuntos de la Vejez de los Estados
Unidos
(800) 877-8339 (TTY)
330 Independence Avenue SW, Room 4656
www.aoa.dhhs.gov/naic
National AIDS Fund [+]
Fondo Nacional del SIDA
(888) 234-AIDS (234-2437)
www.aidsfund.org
National Alliance of Breast Cancer
Organizations [+]
Alianza Nacional de Organizaciones de Cáncer de Seno
(888) 80-NABCO (806-2226)
9 East 37th Street, 10th Floor
New York, NY 10016
www.nabco.org
National Aphasia Association
Asociación Nacional de Afasia
(800) 922-4622
29 John Street, Suite 1103
New York, NY 10038
www.aphasia.org
National Association for Children of Alcoholics
Asociación Nacional para Hijos de Alcohólicos
(888) 554-COAS (554-2627)
11426 Rockville Pike, Suite 100
Rockville, MD 20852
www.nacoa.org
53
National Association for Continence (NAFC) [*+]
Asociación Nacional para la Continencia
(800) 252-3337
P.O. Box 8310
Spartanburg, SC 29305
www.nafc.org
National Association for Family Child Care [*+]
Asociación Nacional para Guarderías Infantiles de Tipo
Familiar
(800) 359-3817 (child care)
(800) 628-9163 (day care)
5200 Pinemont Drive
Murray, UT 84123
www.nafcc.org
National Association for Parents of the Visually
Impaired (NAPVI) [*+]
Asociación Nacional para Padres de Hijos con Problemas
Visuales
(800) 562-6265
P.O. Box 317
Watertown, MA 02471
www.napvi.org
National Association for the Dually Diagnosed
(NADD)
Asociación Nacional para las Personas con Doble
Dianóstico
(800) 331-5362
132 Fair Street
Kingston, NY 12401-4802
www.thenadd.org
National Association for the Education of Young
Children [*+]
Asociación Nacional para la Educación de los Niños
pequeños
(800) 424-2460
1509 16th Street NW
www.naeyc.org
54
National Association of Radiation Survivors
Asociación Nacional de Sobrevivientes de la Radiación
(800) 798-5102
P.O. Box 1587
Marysville, CA 95901
www.radiationsurvivors.org
National Batten Disease Registry
Registro Nacional de Enfermedad de Batten
(800) 952-9628
1050 Forest Hill Road
Staten Island, NY 10314-6399
National Bone Marrow Transplant Link [*]
Conexión Nacional para Transplantes de Médula Osea
(800) LINK-BMT (546-5268)
20411 West 12 Mile Road, Suite 108
Southfield, MI 48076
www.nbmtlink.org
National Braille Press Inc. [+]
Publicaciones Braille
(800) 548-7323
88 Saint Stephen Street
Boston, MA 02115
www.braille.com
National Brain Tumor Foundation [*+]
Fundación Nacional de Tumores del Cerebro
(800) 934-CURE (934-2873)
414 13th Street, Suite 700
Oakland, CA 94612-2603
www.braintumor.org
National Cancer Information Center [*+]
(800) ACS-2345 (227-2345)
1825-B Kramer Lane, Suite 200
Austin, TX 78758
www.cancer.org
55
National Center for Complementary and
Alternative Medicine Clearinghouse [*+]
Medicina Alternativa y Complementaria
(888) 644-6226 (Voice and TTY/TDD)
(866) 464-3615 (TTY)
(866) 464-3616 (fax)
P.O. Box 7923
www.nccam.nih.gov
National Center for Learning Disabilities
Centro Nacional para las Personas con Problemas de
Aprendizaje
(888) 575-7373
381 Park Avenue South, Room 1401
New York, NY 10016-8806
www.ncld.org
National Center for Missing and Exploited
Children [*+]
Centro Nacional de Niños Desaparecidos y Abusados
(800) THE-LOST (843-5678)
699 Prince Street
www.missingkids.com
National Center for Stuttering
Centro Nacional para la Tartamudez
(800) 221-2483
200 East 33rd Street
New York, NY 10016
www.stuttering.com
National Center for Victims of Crime [*]
Centro Nacional para Víctimas del Crimen
(800) FYI-CALL (394-2255)
2000 M Street NW, Suite 480
www.ncvc.org
56
National Child Care Information Center [*+]
Centro Nacional de Información para el Cuidado de Niños
(800) 616-2242
(800) 516-2242 (TTY)
243 Church Street NW, 2nd Floor
Vienna, VA 22180
www.nccic.org
National Child Safety Council
Childwatch[+]
Concilio Nacional para la Seguridad del Niño Vigilancia
del Niño
(800) 222-1464
4065 Page Avenue
P.O. Box 1368
Jackson, MI 49204
National Clearinghouse for Alcohol and Drug
Information [*+]
Centro Nacional de Información sobre el Alcohol y las
Drogas
(800) SAY-NOTO (729-6686)
(800) 487-4889 (TTY)
P.O. Box 2345
Rockville, MD 20847
www.health.org
National Clearinghouse on Child Abuse and
Neglect [*+]
Centro Nacional de Información sobre el Abuso y
Negligencia Infantil
(800) FYI-3366 (394-3366)
330 C Street SW
www.calib.com/nccanch
National Coalition Against Domestic Violence [+]
Coalición Nacional Contra la Violencia Doméstica
(800) 799-7233
P.O. Box 18749
Denver, CO 80218
www.ncadv.org
57
National Committee to Preserve Social Security
and Medicare [*+]
Comité Nacional para Mantener el Seguro Social y
Medicare
(800) 998-0180
10 G Street NE, Suite 600
www.ncpssm.org
National Council for Single Adoptive Parents
Consejo Nacional para Padres Adoptivos Solteros
(888) 490-4600
P.O. Box 567
Mount Herman, CA 95041
www.adopting.org/ncsap.html
National Council on Alcoholism and Drug
Dependence Hopeline [+]
Línea de Esperanza del Consejo Nacional sobre la
Dependencia del Alcohol y las Drogas
(800) NCA-CALL (622-2255)
20 Exchange Place, Suite 2902
New York, NY 10005
www.ncadd.org
National Council on Problem Gambling [*+]
Consejo Nacional sobre el Vicio del Juego
(800) 522-4700
208 G Street NE
www.ncpgambling.org
National Criminal Justice Reference Service
National Institute of Justice [*+]
Servicio Nacional de Referencia sobre la Justicia Criminal
Instituto Nacional de Justicia
(Clearinghouse for criminal justice information and
referrals)
(Centro de Información y Consultas sobre Justicia Criminal)
(800) 851-3420
P.O. Box 6000
www.ncjrs.org
58
National Cued Speech Association [+]
Asociación Nacional del Habla con Clave
(800) 459-3529
23970 Hermitage Road
Cleveland, OH 44122-4008
www.cuedspeech.org
National Diabetes Information Clearinghouse [+]
Diabetes
(800) 860-8747
1 Information Way
www.niddk.nih.gov
National Domestic Violence Hotline [*+]
Línea Nacional de Información sobre Violencia Doméstica
(800) 787-3224
(800) 799-SAFE (799-7233)
P.O. Box 161810
Austin, TX 78716
www.ndvh.org
National Down Syndrome Congress [+]
Congreso Nacional del Síndrome de Down
(800) 232-NDSC (232-6372)
1370 Center Drive, Suite 102
Atlanta, GA 30338
www.ndsccenter.org
National Down Syndrome Society [*+]
Sociedad Nacional del Síndrome de Down
(800) 221-4602
666 Broadway
New York, NY 10012
www.ndss.org
National Drinking Water Clearinghouse [*+]
Centro Nacional de Informacion sobre el Agua Potable
(800) 624-8301
West Virginia University
P.O. Box 6064
Morgantown, WV 26506-6064
www.nesc.wvu.edu/ndwc
59
National Drug and Alcohol Treatment
Routing Service
National Institute on Drug Abuse [*+]
Servicio Nacional de Tratamiento para el Alcohol y las
Drogas Instituto Nacional para el Abuso de las Drogas
(800) 662-HELP (662-4357)
11426-28 Rockville Pike, Suite 200
Rockville, MD 20852
www.health.org
National Eating Disorders Association [+]
Asociación Nacional de Trastornos Alimentarios
(800) 931-2237
603 Stewart Street, Suite 803
Seattle, WA 98101
www.nationaleatingdisorders.org
National Family Association for Deaf-Blind
Asociación Nacional de Familias de Sordos-Ciegos
(800) 255-0411
111 Middle Neck Road
Sands Point, NY 11050
www.nfadb.org
National Family Caregivers Association [*]
Asociación Nacional de Familias Proveedoras de Cuidado
(800) 896-3650
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895
www.nfcacares.org
National Fire Protection Association, Inc. [*+]
Asociación Nacional para la Protección de Incendios, Inc.
(800) 344-3555
1 Batterymarch Park
P.O. Box 9101
Quincy, MA 02269-9101
www.nfpa.org
60
National Foundation for Cancer Research, Inc.
Fundación Nacional para la Investigación del Cáncer, Inc.
(800) 321-CURE (321-2873)
Bethesda, MD 20814
www.nfcr.org
National Foundation for Depressive Illness [*+]
Fundación Nacional de las Enfermedades Depresivas
(800) 248-4344
P.O. Box 2257
New York, NY 10116
www.depression.org
National Foundation for Transplants
Fundación Nacional de Transplantes
(800) 489-3863
1102 Brookfield, Suite 200
Memphis, TN 38119
www.transplants.org
National Fragile X Foundation [+]
Fundación Nacional del Cromosoma X Frágil
(800) 688-8765
P.O. Box 190488
www.fragilex.org
National Fraud Information Center
National Consumers League
Centro Nacional de Información sobre Fraudes Liga
Nacional del Consumidor
(Telemarketing fraud)
(Fraude en telemercadeo)
(800) 876-7060
1701 K Street NW
www.fraud.org
61
National Gaucher Foundation [+]
Fundación Nacional de la Enfermedad de Gaucher
(800) 925-8885
5410 Edson Lane, Suite 260
Rockville, MD 20852
www.gaucherdisease.org
National Hansen's Disease Programs [*+]
Programas Nacionales para la Enfermedad de Hansen
(Leprosy)
(Lepra)
(800) 642-2477
1770 Physicians Park Drive
Baton Rouge, LA 70816
www.bphc.hrsa.gov/nhdp
National Headache Foundation [+]
Fundación Nacional para el Dolor de Cabeza
(800) 843-2256
820 North Orleans, Suite 217
Chicago, IL 60614
www.headaches.org
National Health Information Center [*+]
Centro Nacional de Información sobre la Salud
(800) 336-4797
P.O. Box 1133
www.health.gov/nhic
National Hemophilia Foundation [*+]
Fundación Nacional de la Hemofilia
(800) 424-2634
116 West 32nd Street, 11th Floor
New York, NY 10001
www.hemophilia.org
62
National Highway Traffic Safety Administration
Department of Transportation [*+]
Administración Nacional para la Seguridad del Tráfico en
las Autopistas, Departamento de Transporte
(888) 327-4236
400 Seventh Street SW, Room 5110-NAD-40
www.nhtsa.dot.gov
National Hospice and Palliative Care
Organization [+]
Organización Nacional de Hospicios y Cuidados Paliativos
(800) 646-6460
1700 Diagonal Road, Suite 300
www.nhpco.org
National Information Center for Children and
Youth with Disabilities [*+]
Centro Nacional de Información para Niños y Jóvenes
con Discapacidades
(800) 695-0285
P.O. Box 1492
www.nichcy.org
National Inhalant Prevention Coalition [+]
Coalición Nacional para la Prevención de Inhalantes
(800) 269-4237
2904 Kirby Lane
Austin, TX 78703
www.inhalants.org
National Institute for Occupational Safety
and Health (NIOSH)
Centers for Disease Control and Prevention[*+]
Instituto Nacional para la Seguridad y la Salud en el
Trabajo Centros para el Control y la Prevención de las
Enfermedades
(800) 356-4674
4676 Columbia Parkway , C-19
Cincinnati, OH 45226
www.cdc.gov/niosh
63
National Institute for Rehabilitation
Engineering [*]
Instituto Nacional de Ingeniería Rehabilitativa
(Devices for the severely and multiply handicapped)
(Aparatos para personas con discapacidades múltiples y
severas)
(800) 736-2216
P.O. Box 1088
Hewitt, NJ 07421
www.theoffice.net/nire or www.angelfire.com/nj/nir
National Institute of Mental Health (NIMH)
Information Resources and Inquiries Branch [*+]
Instituto Nacional de Salud Mental División de Fuentes
de Información e Investigación
(800) 64-PANIC (647-2642)
6001 Executive Boulevard, MSC 9663
Bethesda, MD 20892
www.nimh.nih.gov
National Institute of Neurological Disorders and
Stroke (NINDS) [*+]
Instituto Nacional de las Enfermedades Neurológicas y la
Apoplejía
(800) 352-9424
P.O. Box 5801
Bethesda, MD 20824
www.ninds.nih.gov
National Institute on Aging Information
Center [*+]
Centro de Información sobre el Instituto Nacional de la
Vejez
(800) 222-2225
(800) 222-4225 (TTY)
P.O. Box 8057
www.nih.gov/nia
64
National Institute on Deafness and Other
Communication Disorders (NIDCD)
Information Clearinghouse [*+]
Centro de Información sobre el Instituto Nacional de la
Sordera y otros Problemas de Comunicación
(800) 241-1044
(800) 241-1055 (TTY)
1 Communication Avenue
www.nidcd.nih.gov
National Institutes of Health (NIH)
Clinical Center Infoline[*]
Institutos Nacionales de la Salud Línea de Información
del Centro Clínico
(800) 243-7644
9000 Rockville Pike
Bethesda, MD 20892
National Jewish Medical and Research Center
LUNG LINE [*+]
Línea del Pulmón del Centro Nacional Judío de Medicina
e Investigación
(800) 222-LUNG (222-5864)
1400 Jackson Street
Denver, CO 80206
www.nationaljewish.org
National Keratoconus Foundation
Fundación Nacional de Keratoconus
(800) 521-2524
8733 Beverly Boulevard, Suite 201
Los Angeles, CA 90048
www.nkcf.org
National Kidney Foundation [*+]
Fundación Nacional del Riñón
(800) 622-9010
30 East 33rd Street
New York, NY 10016
www.kidney.org
65
National Lead Information Center Hotline and
Clearinghouse [*+]
Centro Nacional de Información sobre el Plomo
(800) 424-LEAD (424-5323)
801 Roeder Road, 3600
www.epa.gov/lead/nlic.htm
National Life Center, Inc. [*]
Centro Nacional de Vida, Inc.
(800) 848-LOVE (848-5683)
686 North Broad Street
Woodbury, NJ 08096
National Lymphedema Network [+]
Red Nacional del Linfedema
(800) 541-3259
1611 Telegraph Avenue, Suite 1111
Oakland, CA 94612
www.lymphnet.org
National Marfan Foundation [+]
Fundación Nacional del Síndrome de Marfan
(800) 8-MARFAN (862-7326)
22 Manhasset Avenue
Port Washington, NY 11050
www.marfan.org
National Marrow Donor Program [*+]
Programa Nacional para Donantes de Médula Ósea
(800) MARROW-2 (627-7692)
(800) 654-1247
3001 Broadway Street NE, Suite 500
Minneapolis, MN 55413
www.bmtinfo.org
66
National Mental Health Association Information
Center [*+]
Centro de Información de la Asociación Nacional de
Salud Mental
(800) 969-6642
(800) 433-5959 (TTY)
20001 North Beauregard Street
www.nmha.org
National Mental Health Consumer
Self-Help Clearinghouse [*+]
Centro Nacional de Información de Autoayuda para
Problemas de Salud Mental
(800) 553-4539
1211 Chestnut Street, Suite 1207
www.mhselfhelp.org
National Mental Health Information Center [*+]
Centro Nacional de Información sobre Salud Mental
(800) 789-2647
P.O. Box 42490
www.mentalhealth.samhsa.gov
National Minority Organ Tissue Transplant
Education Program (MOTTEP)
Howard University Hospital [*+]
Programa Nacional Para Educar a las Minorías sobre los
Transplantes de Órganos y Tejidos Hospital de la
Universidad Howard
(800) 393-2839
Ambulatory Care Center, Suite 3100
2041 Georgia Avenue NW
www.nationalmottep.org
National Multiple Sclerosis Society [*+]
Sociedad Nacional de la Esclerosis Múltiple
(800) 344-4867
733 3rd Avenue, 6th Floor
New York, NY 10017-3288
www.nmss.org
67
National Neurofibromatosis Foundation [*+]
Fundación Nacional de la Neurofibromatosis
(800) 323-7938
95 Pine Street, 16th Floor
New York, NY 10005
www.mf.org
National Organization for Albinism and
Hypopigmentation [+]
Organización Nacional del Albinismo y la
Hipopigmentación
(800) 473-2310
P.O. Box 959
East Hampstead, NH 03820-0959
www.albinism.org
National Organization for Rare Disorders [*]
Organización Nacional de las Enfermedades Poco
Comunes
(800) 999-6673
P.O. Box 1968
Danbury, CT 06813
www.raredisorders.org
National Organization for Victim Assistance [+]
Organización Nacional de Ayuda a las Víctimas
(800) TRY-NOVA (879-6682) (Victims/Survivors only)
1730 Park Road NW
www.try-nova.org
National Parkinson Foundation [*+]
Fundación Nacional de la Enfermedad de Parkinson
(800) 327-4545
(800) 433-7022 (within Florida)
(800) 522-8855 (within California)
1501 Northwest 9th Avenue
Miami, FL 33136-1494
www.parkinson.org
68
National Pediatric HIV Resource Center [*+]
Centro Nacional de Recursos sobre el VIH Pediátrico
(Technical Support for Healthcare Professionals)
(Apoyo técnico para los profesionales del cuidado de la
salud)
(800) 362-0071
30 Bergen Street, ADMC 4
Newark, NJ 07103
www.pedhivaids.org
National Pesticide Information Center [*+]
Centro Nacional de Información sobre Pesticidas
(800) 858-7378
Oregon State University
333 Weniger Hall
Corvallis, OR 97331-6502
www.npic.orst.edu
National Psoriasis Foundation [+]
Fundación Nacional de la Psoriasis
(800) 723-9166
6600 Southwest 92nd Avenue, Suite 300
Portland, OR 97223-7195
www.psoriasis.org
National Public Safety Information Bureau
Agencia Nacional de Información sobre Seguridad
Pública
(800) 647-7579
P.O. Box 365
Stevens Point, WI 54481-0365
www.safetysource.com
National Reference Center for Bioethics Literature
Kennedy Institute of Ethics [+]
Centro Nacional de Referencia sobre Literatura Bioética
Instituto de Ética Kennedy
(888) BIO-ETHX (246-3849)
(800) MED-ETHX (633-3849)
(888) GEN-ETHX (436-3849)
Georgetown University
P.O. Box 571212
www.bioethics.georgetown.edu
69
National Rehabilitation Information Center
Centro Nacional de Información sobre la Rehabilitación
(800) 34-NARIC (346-2742)
4200 Forbes Boulevard, Suite 202
Lanham, MD 20706
www.naric.com
National Resource Center for Health and Safety in
Child Care
Centro Nacional de Recursos para la Salud y la Seguridad
del Cuidado de los Niños
(800) 598-KIDS (598-5437)
University of Colorado Health Sciences Center
P.O. Box 6508
Aurora, CO 80045
nrc.uchsc.edu
National Resource Center on Domestic
Violence [*+]
Centro Nacional de Recursos sobre la Violencia
Doméstica
(800) 537-2238
(800) 553-2508 (TTY)
6400 Flank Drive, Suite 1300
Harrisburg, PA 17112-2778
www.PCADV.org
National Resource Center on Homelessness and
Mental Illness [*+]
Centro Nacional de Recursos sobre Enfermedades
Mentales y la Falta de Vivienda
(800) 444-7415
Public Research Associates, Inc.
345 Delaware Avenue
Delmar, NY 12054
www.nrchmi.com
National Reye's Syndrome Foundation, Inc. [+]
Fundación Nacional del Síndrome de Reye, Inc.
(800) 233-7393
426 North Lewis
Bryan, OH 43506
www.reyessyndrome.org
70
National Runaway Switchboard [*+]
Central Telefónica Nacional para Fugitivos del Hogar
(Offers a service that can translate any language)
(Ofrece servicios de traducción a cualquier idioma)
(800) 621-4000
3080 North Lincoln Avenue
Chicago, IL 60657
www.nrscrisisline.org
National Scoliosis Foundation, Inc. [+]
Fundación Nacional de Escoliosis, Inc.
(800) 673-6922
5 Cabot Place
Stoughton, MA 02072
www.scoliosis.org
National Spasmodic Dysphonia Association [+]
Asociación Nacional de Disfonía Espasmódica
(800) 795-6732
One East Wacker Drive, Suite 2430
Chicago, IL 60601-1905
www.dysphonia.org
National Spasmodic Torticollis Association
Asociación Nacional de la Torticolis Espasmódica
(800) HURTFUL (487-8385)
9920 Talbert Avenue, Suite 233
Fountain Valley, CA 92708
www.torticollis.org
National Spinal Cord Injury Association
Resource Center [*+]
Asociación Nacional de Lesiones de la Médula Espinal
(800) 962-9629
6701 Democracy Boulevard , Suite 300-9
Bethesda, MD 20817
www.spinalcord.org
National Stroke Association [*+]
Asociación Nacional de Accidentes Cerebrovasculares
(800) 787-6537
9707 East Easter Lane
Englewood, CO 80112-3747
www.stroke.org
71
National Stuttering Project
Projecto Nacional de la Tartamudez
(800) 364-1677
5100 East La Palma, Suite 208
Anaheim Hills, CA 92807
www.nsastutter.org
National Tay-Sachs and Allied Diseases
Association [*+]
Asociación Nacional de Tay-Sachs y Enfermedades
Aliadas
(800) 90-NTSAD (906-8723)
2001 Beacon Street, Suite 204
Boston, MA 02135
www.ntsad.org
National Temporal Bone, Hearing and Balance
Pathology Resource Registry
Massachusetts Eye and Ear Infirmary
Registro Nacional de Recursos de Patología del Hueso
Temporal, de la Audición y del Equilibrio, del Centro de
Cuidado de Ojos y Oídos de Massachusetts
(800) 822-1327
(888) 561-3277
243 Charles Street
Boston, MA 02114-3096
www.tbregistry.org
National Transplant Assistance Fund
Fondo Nacional de Asistencia para Transplantes
(800) 642-8399
3475 Westchester Pike, Suite 230
Newtown Square, PA 19073
www.transplantfund.org
National Tuberous Sclerosis Alliance [+]
Asociación Nacional de la Esclerosis Tuberosa
(800) 225-6872
801 Roeder Road, Suite 750
www.ntsa.org or www.tsalliance.org
72
National Urea Cycle Disorders Foundation [*]
Fundación Nacional de Enfermedades del Ciclo de Urea
(800) 386-8233
4841 Hill Street
La Canada, CA 91011
www.nucdf.org
National Vaccine Information Center
Centro Nacional de Infomación sobre Vacunas
(800) 909-7468
421 East Church Street
Vienna, VA 22180
www.909shot.com
National Veterans Services Fund, Inc.
Fondo Nacional de Servicios para los Veteranos, Inc.
(800) 521-0198
P.O. Box 2465
Darien, CT 06820-0465
National Women's Health Information
Center [*+]
Centro Nacional de Información sobre la Salud de la
Mujer
(800) 994-9662
8550 Arlington Boulevard., Suite 300
Fairfax, VA 22031
www.4woman.gov
National Women's Health Resource Center
Centro Nacional de Recursos sobre la Salud de la Mujer
(877) 986-9472
120 Albany Street, Suite 820
New Brunswick, NJ 08901
www.healthywomen.org/
Neurofibromatosis, Inc.
Neurofibromatosis, Inc.
(800) 942-6825
8855 Annapolis Road, Suite 100
Lanham, MD 20706-2924
www.nfinc.org
73
Noonan Syndrome Support Group, Inc. [+]
Grupo de Apoyo para el Síndrome de Noonan, Inc.
(888) 686-2224
P.O. Box 145
Upperco, MD 21155
www.noonansyndrome.org
North American Riding for the Handicapped
Association (NARHA)
Asociación Norteamericana de Equitación para
Minusválidos
(800) 369-7433
P.O. Box 33150
Denver, CO 80233
www.narha.org
Office for Victims of Crime Resource Center [*+]
Centro de Recursos para las Víctimas del Crimen
(800) 627-6872
(877) 712-9279 (TTY)
P.O. Box 6000
www.ncjrs.org
Office of Environmental Justice
Environmental Protection Agency [*+]
Oficina para un Medioambiente Justo Agencia para la
Protección del Medio Ambiente
(800) 962-6215
1200 Pennsylvania Avenue NW
Arielros Building
www.epa.gov/compliance/environmentaljustice
Office of Minority Health Resource Center
U.S. Department of Health and Human
Services [*+]
Centro de Recursos de la Oficina de Salud para las
Minorías, Departamento de Salud y Servicios Sociales de
los Estados Unid
(800) 444-6472
P.O. Box 37337
www.omhrc.gov
74
Office of National Drug Control Policy
Clearinghouse [*+]
Centro Nacional de Información de la Oficina de Políticas
sobre las Drogas
(800) 666-3332
P.O. Box 6000
www.whitehousedrugpolicy.gov
Office of Orphan Products Development
Food and Drug Administration [*+]
Oficina para el Desarrollo de Productos Farmacéuticos
con Poca Demanda Administración de Alimentos y
Medicamentos
(800) 300-7469
5600 Fishers Lane, Room 873 (HF35)
Rockville, MD 20857
www.fda.gov/orphan
Office on Smoking and Health [*+]
Oficina del Tabaquismo y la Salud
(888) 232-3299
Centers for Disease Control and Prevention
4770 Buford Highway NE, Mailstop K-50
Atlanta, GA 30341-3717
www.cdc.gov/tobacco
Older Women's League
Liga de Mujeres Mayores de Edad
(800) 825-3695
www.owl-national.org
Oley Foundation for Home Parenteral and Enteral
Nutrition[*+]
Fundación Oley para Proveer Nutrición Parenteral y
Enteral en el Hogar
(800) 776-OLEY (776-6539)
214 Hun Memorial, MC28
Albany Medical Center
Albany, NY 12208
www.oley.org
75
Operation Lifesaver [+]
Operación Salvavidas
(Safety at highway-rail intersections)
(Para la seguridad del tráfico en las intersecciones de
carreteras y vías ferroviarias)
(800) 537-6224
1420 King Street, Suite 401
www.oli.org
Osteogenesis Imperfecta Foundation [+]
Fundación de la Osteogénesis Imperfecta
(800) 981-BONE (981-2663)
804 West Diamond Avenue
Gaithersburg, MD 20878
www.oif.org
Osteoporosis and Related Bone Diseases
National Resource Center (NIAMS)[*+]
Institutos Nacionales de Salud, Centro Nacional de
Recursos de la Osteoporosis y Enfermedades
Relacionadas con los Huesos
(800) 624-BONE (624-2663)
1232 22nd Street NW
www.osteo.org
Oxalosis and Hyperoxaluria Foundation
Fundación de Oxalosis e Hiperoxaluria
(888) 721-2432
5718 Holly Hills
St. Louis, MO 63109
www.ohf.org
Paget Foundation for Paget's Disease of Bone and
Related Disorders
Fundación para la Enfermedad de Paget y otras
Enfermedades Óseas
(800) 23-PAGET (237-2438)
120 Wall Street, Suite 1602
New York, NY 10005
www.paget.org
76
Paralyzed Veterans of America [*+]
Veteranos Paralíticos de America
(800) 424-8200
801 18th Street NW
www.pva.org
Parent Project for Muscular Dystrophy
Research [+]
Proyecto Pilot para las Investigaciones de la Distrofia
Muscular
(800) 714-KIDS (714-5437)
1012 North University Boulevard
Middletown, OH 45042
www.parentprojectmd.org
Parents of Murdered Children, Inc. [+]
Padres de Niños Asesinados, Inc.
(888) 818-7662
100 East Eighth Street, Suite B-41
Cincinnati, OH 45202
www.pomc.com
Parkinson's Disease Foundation [*+]
Fundación para la Enfermedad de Parkinson
(800) 457-6676
William Black Medical Research Building
Columbia Presbyterian Medical Center 710 West 168 Street
New York, NY 10032
www.pdf.org
Partnership for Caring
Sociedad para Cuidado
(End-of-life-care)
(Cuidado para los últimos días de vida)
(800) 989-9455
1620 Eye Street NW, Suite 202
www.partnershipforcaring.org
77
Pathways Awareness Foundation [+]
Pathways Awareness Foundation (Fundación de apoyo a
niños con trastornos de movilidad, neurológicos y
metabólicos)
(Children with movement and physical challenges)
(Niños con retos físicos y de movimiento)
(800) 955-2445
(888) 795-5884 (Fax)
Chicago, IL 60601
www.pathwaysawareness.org
Paws With a Cause
Perros al Rescate
(Assistance dogs for people with disabilities)
(Perros de asistencia para los Minusválidos)
(800) 253-7297
4646 South Division Street
Wayland, MI 49348-9727
www.pawswithacause.org
Phoenix House National Substance Abuse
Helpline [*+]
Casa Phoenix Línea Nacional de Ayuda sobre el Abuso de
Sustancias Controladas
(800) 488-3784
(800) DRUGHELP (378-4435)
New York, NY 10023
www.drughelp.org
Phoenix Society for Burn Survivors [+]
Sociedad Fénix para los Sobrevivientes de Quemaduras
(800) 888-2876
2153 Wealthy SE, Suite 215
East Grand Rapids, MI 40950
www.phoenix-society.org
78
PKD Foundation [+]
Fundación para la Enfermedad Poliquística del riñón
(PDK)
(Polycystic Kidney Disease)
(Enfermedad poliquística del riñón)
(800) PKD-CURE
4901 Main Street, Suite 200
Kansas City, MO 64112-2634
www.pkdcure.org
Planned Parenthood Federation of
America, Inc. [+]
Federación Americana Para la Planificación Familiar
(800) 829-7732 (National Office)
(800) 230-7526 (for nearest local office)
810 7th Avenue
New York, NY 10019
www.plannedparenthood.org
PMS Access [*]
Acceso al Programa Radial de Asuntos de Salud de la
Mujer ( PMS Access )
(800) 222-4PMS (222-4767)
(888) 898-7412 (Fax)
1289 Deming Way
P.O. Box 259690
Madison, WI 53725
www.womenshealth.com
Prader-Willi Syndrome Association, USA [*+]
Asociación Estadounidense del Síndrome de Prader-Willi
(800) 926-4797
5700 Midnight Pass Road, Suite 6
Sarasota, FL 34242
www.pwsausa.org
Pregnancy Risk Network
Red de Riesgo del Embarazo
(800) 724-2454
976 Delaware Avenue
Buffalo, NY 14209
www.pregnancyrisknetwork.org
79
Prevent Child Abuse America [*+]
América Prevee el Abuso a los Niños
(800) 835-2671
332 South Michigan Avenue, Suite 1600
Chicago, IL 60604
www.preventchildabuse.org
Project Inform [+]
Proyecto Informar
(Treatment Information for HIV/AIDS)
(Información sobre el tratamiento del VIH/SIDA)
(800) 822-7422
205 13th Street, # 2001
www.projectinform.org
Pulmonary Hypertension Association [*]
Asociación de Hipertensión Pulmonar
(800) 748-7274
850 Sligo Avenue, #800
www.phassociation.org
Reach to Recovery Program American Cancer
Society [*+]
Programa de Recuperación al Alcance, Sociedad
Americana del Cáncer
(800) 227-2345
1599 Clifton Road NE
Atlanta, GA 30329
www.cancer.org
RFB and D (Recording for the Blind and Dyslexic)
Learning through Listening [+]
Audiograbaciones para los Ciegos y los Disléxicos
(800) 221-4792
20 Roszel Road
Princeton, NJ 08540
www.rfbd.org
80
Rubinstein-Taybi Parent Group
Grupo de Padres Rubinstein-Taybi
(888) 447-2989
P.O. Box 146
Smith Center, KS 66967
www.rubinstein-taybi.org
Safe Drinking Water Hotline
U.S. Environmental Protection Agency [*+]
Línea de Información sobre Agua Potable Agencia
Estadounidense para la Protección ambiental
(800) 426-4791
4601 Ariel Rios Building
1200 Pennsylvania Avenue NW
www.epa.gov/safewater
Save the Children Federation [*+]
Federación para Salvar la Vida de los Niños
(800) 728-3843
54 Wilton Road
Westport, CT 06880
www.savethechildren.org
Scleroderma Foundation [+]
Fundación de la Escleroderma
(800) 722-HOPE (722-4673)
12 Kent Way, Suite 101
Byfield, MA 01922
www.scleroderma.org
Scleroderma Research Foundation (SRF)
Fundación para la Investigación sobre la Escleroderma
(800) 637-4005
P.O. Box 200
Columbus, NJ 08022
www.srfcure.org
81
Senior's Eye Care Program [+]
Proyecto Nacional para el Cuidado de los Ojos
(Medical and surgical care for the elderly at no outof-pocket expense)
(Atención médica y quirúrgica gratuita para los ancianos)
(800) 222-EYES (222-3937)
P.O. Box 429098
www.eyecareamerica.org
Severe Chronic Neutropenia International
Registry [+]
Registro Internacional de Neutropenia Crónica Grave
(800) 726-4463
600 Stewart Street, Suite 1503
Seattle, WA 98101
www.depts.washington.EDU/Registry
SHARE Pregnancy and Infant Loss Support [+]
Apoyo en el Embarazo y en la Pérdida de un Niño,
SHARE
(800) 821-6819
Saint Joseph Health Center
300 1st Capitol Drive
Saint Charles, MO 63301-2893
www.nationalshareoffice.com
SHARE: Self-Help for Women With Breast or
Ovarian Cancer [*+]
SHARE: Self-Help for Women With Breast or Ovarian
Cancer (Autoayuda para las Mujeres con Cáncer de Seno
o del Ovario)
(866) 891-2392
1501 Broadway, Suite 1720
New York, NY 10036
www.sharecancersupport.org
82
Shriners Hospital Referral Line [*+]
Línea de Consultas del Hospital Shriners
(Free orthopedic or burn care for children)
(Cuidado médico gratuito para los niños con problemas
ortopédicos o con quemaduras)
(800) 237-5055
2900 Rocky Point Drive
Tampa, FL 33607
www.shrinershq.org
Shwachman-Diamond Syndrome International
Síndrome Internacional Shwachman-Diamond
(877) 737-4685
5195 Hampted Village Center Way, PMB 162
New Albany, OH 43054-8331
www.shwachman-diamond.org/
Sickle Cell Disease Association of America [+]
Asociación de Anemia de Células Falciformes de América
(800) 421-8453
200 Corporate Pointe, Suite 495
Culver City, CA 90230-8727
www.sicklecelldisease.org
Simon Foundation [*]
Fundación Simón
(Incontinence information)
(Información sobre la incontinencia)
(800) 237-4666
P.O. Box 835
Wilmette, IL 60091
www.simonfoundation.org
Sjogren's Syndrome Foundation [+]
Fundación del Síndrome de Sjogren
(800) 475-6473
8120 Woodmont Avenue, Suite 530
Bethesda, MD 20814
www.sjogrens.org
83
Social Security Administration [*+]
Administración del Seguro Social Departamento
(800) 772-1213
(800) 325-0778 (TTY)
Office of Public Inquires
6401 Security Boulevard
Baltimore, MD 21235
www.ssa.gov
Sotos Syndrome Support Association [*+]
Asociación de Apoyo del Síndrome Sotos
(630) 682-8815
(888) 246-SSSA(7772)
3 Danada Square East, Suite 235
Wheaton, IL 60187-8484
www.well.com/~sssa
Special Olympics, Inc. [*+]
Juegos Olímpicos Especiales
(800) 700-8585
1325 G Street NW, Suite 500
www.specialolympics.org
Spondylitis Association of America [+]
Asociación Americana de la Espondilitis Aniquilosante
(800) 777-8189
14827 Ventura Boulevard, Suite 222
Sherman Oaks, CA 91403
www.Spondylitis.org
Stepfamily Association of America
Asociación Americana de Familias Compuestas por
Matrimonio
(800) 735-0329
650 J Street, Suite 205
Lincoln, NE 68508
www.stepfam.org
84
Sturge-Weber Foundation [*+]
Fundación Sturge-Weber
(800) 627-5482
P.O. Box 418
Mount Freedom, NJ 07970
www.sturge-weber.com
Stuttering Foundation of America [+]
Fundación Americana de la Tartamudez
(800) 992-9392
P.O. Box 11749
Memphis, TN 38111-0749
www.stutteringhelp.org
Substance Abuse and Mental Health Services
Administration [*]
Administración de Servicios para la Salud Mental y el
Abuso de Sustacias
(800) 789-2647
11426 Rockville Pike
Rockville, MD 20852
www.samhsa.gov
Sudden Arrhythmia Death Syndromes
Foundation [*+]
Fundación del Síndrome de Muerte Súbita por arritmia
(800) 786-7723
508 East South Temple, Suite 20
Salt Lake City, UT 84102
www.sads.org
Sudden Infant Death Syndrome Alliance [+]
Alianza para el Síndrome de la Muerte Súbita del
Lactante
(800) 221-7437
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
www.sidsalliance.org
85
Support for People with Oral and Head and Neck
Cancer
Apoyo para las Personas con Cáncer Oral y de Cabeza y
Cuello (SPOHNC)
(800) 377-0928
P.O. Box 53
Locust Valley, NY 11560-0053
www.spohnc.org
Support Organization for Trisomy 18, 13 and
Related Disorders [*+]
Organización de Apoyo para la Trisomia 18, 13 y
Trastornos Relacionados
(800) 716-SOFT (716-7638)
2982 South Union
Rochester, NY 14624
www.trisomy.org
Susan G. Komen Breast Cancer Foundation [*+]
Fundación Susan G. Komen para el Cáncer del Seno
(800) IM-AWARE (462-9273)
5005 LBJ Freeway, Suite 250
Dallas, TX 75244
www.breastcancerinfo.com
Thalassemia Action Group
Grupo de Acción Talasemia
(800) 522-7222
129-09 26th Avenue, Suite 203
Flushing, NY 11354
Thursday's Child
Centro de Ayuda para Niños Desaparecidos
(At-risk youth)
(Jóvenes en riesgo)
(800) USA-KIDS (872-5437)
24100 Hartland Street
West Hills, CA 91307
www.thursdayschild.org
86
Thyroid Foundation of America, Inc. [+]
Fundación Americana de la Tiroides, Inc.
(800) 832-8321
410 Stuart Street
Boston, MA 02116
www.allthyroid.org
Tourette Syndrome Association, Inc. [*+]
Asociación del Síndrome de Tourette
(888) 4Touret (486-8738)
42-40 Bell Boulevard, Suite 205
Bayside, NY 11361-2820
www.tsa-usa.org
Tuberous Sclerosis Alliance [+]
Alianza para la Esclerosis Tuberosa
(800) 225-6872
801 Roeder Road, Suite 750
www.tsalliance.org
Turner's Syndrome Society of the U.S. [+]
Sociedad Estadounidense del Síndrome de Turner
(800) 365-9944
14450 TC Jester, Suite 260
Houston, TX 77014
www.turnersyndrome.org
U.S. Consumer Products Safety Commission [*+]
Comisión de Seguridad de los Estados Unidos de los
Productos para el Consumidor
(800) 638-2772
(800) 638-8270 (TTY)
Bethesda, MD 20814
www.cpsc.gov
United Cerebral Palsy Associations, Inc. [+]
Asociaciones Unidas sobre la Parálisis Cerebral, Inc.
(800) USA-5UCP (872-5827)
1660 L Street NW, Suite 700
www.ucp.org
87
United Leukodystrophy Foundation [+]
Fundación Unida de la Leucodistrofia
(800) 728-5483
2304 Highland Drive
Sycamore, IL 60178
www.ulf.org
United Ostomy Association [*+]
Asociación Unida de la Ostomía
(800) 826-0826
19772 McArthur Boulevard, Suite 200
Irvine, CA 92612-2405
www.UOA.org
Us Too! International, Inc. [+]
Grupo de educación y apoyo para hombres con cáncer
de la próstata y sus familias
(Prostate cancer support and education)
(800) 80-US-TOO (808-7866)
5003 Fairview Avenue
Downers Grove, IL 60515
www.ustoo.org
USDA's Meat and Poultry Hotline [*+]
Línea Directa de Carnes y Aves del Departamento de
Agricultura de los Estados Unidos (USDA)
(800) 535-4555
5601 Sunnyside Avenue, Maildrop 5269
Beltsville, MD 20705-5259
www.fsis.usda.gov
USP Center for the Advancement of
Patient Safety [*]
(Reporting of product defects)
(Quejas sobre productos defectuosos)
(800) 487-7776
(800) 233-7767
12601 Twinbrook Parkway
Rockville, MD 20852
www.usp.org
88
VHL (Von Hippel-Lindau) Family Alliance [*+]
Alianzas de Familias de VHL (Von Hippel-Lindau)
(800) 767-4845
171 Clinton Road
Brookline, MA 02445-5815
www.vhl.org
VOICES in Action, Inc.
Victims of Incest Can Emerge Survivors
Las Víctimas del Incesto se Presentan, Sobrevivientes en
acción
(800) 7-VOICE-8 (786-4238)
P.O. Box 13
Batavia, OH 45103
www.voices-action.org
Vision Council of America
Consejo de la Visión de América
(800) 424-8422
1700 Diagonal Road, Suite 500
www.checkyearly.com
Vision World Wide
Vision Mundial
(800) 431-1739
5707 Brocton Drive, Suite 302
Indianapolis, IN 46220-5481
www.visionww.org
Visiting Nurse Association of America
Asociación Americana de Enfermeras Domiciliarias
(888) VN-NURSE (866-8773)
99 Summer, Suite 1700
Boston, MA 02110
www.vnaa.org/Home.htm
Wegener's Granulomatosis Association, Inc.
Grupo Internacional de Apoyo de la Granulomatosis de
Wegener
(800) 277-9474
P.O. Box 28660
Kansas City, MO 64188-8660
www.wgassociation.org
89
Well Spouse Foundation [*]
Fundación Well Spouse
(Support to partners of the chronically ill or
disabled)
(Ofrece apoyo a las parejas de las personas con
enfermedades crónicas o con discapacidades)
(800) 838-0879
63 West Main Street, Suite H
Freehold, NJ 07728
www.wellspouse.org
Wilson's Disease Association [*]
Asociación de la Enfermedad de Wilson
(800) 399-0266
1802 Brookside Drive
Wooster, OH 44691
www.wilsonsdisease.org
Women's Sports Foundation Information and
Referral Service
Servicio de Información y Consultas de la Fundación para
Promover los Deportes Femeninos
(800) 227-3988
Eisenhower Park
East Meadow, NY 11554
www.womenssportsfoundation.org
Y-Me National Breast Cancer Organization [*+]
Organización Nacional del Cáncer del Seno Y-me
(800) 221-2141
212 West Van Buren, 5th Floor
Chicago, IL 60607
www.Y-me.org
YMCA of the USA [*+]
Asociación Cristiana de Jóvenes, ACJ-USA
(800) USA-YMCA (872-9622)
101 North Wacker Drive
Chicago, IL 60606
www.ymca.net
90
Youth Development International Youth Crisis
Hotline
Desarrollo de la Juventud Internacional Línea para Crisis
Juveniles
(800) 448-4663
5331 Mount Alifan Drive
San Diego, CA 92111
www.1800hiphome.org
Zero to Three: National Center for Infants,
Toddlers and Families [+]
De Zero a Tres: Centro Nacional para Infantes, Bebes y
Familias
(800) 899-4301 (publications)
2000 M Street NW, Suite 200
www.zerotothree.org
91
92
National and State HIV/AIDS Hotlines
CDC National Aids Hotline:
(800) 342-AIDS (342-2437) (English)
(800) 344-SIDA (344-7432) (Spanish)
(800) AIDS-TTY (243-7889) (Hearing Impaired)
Alabama
(800) 228-0469
Georgia
(800) 551-2728
Alaska
(800) 478-2437
Hawaii
(800) 321-1555
Arizona
(800) 334-1540
Idaho
(800) 386-1555
Arkansas
(888) 317-3063
Illinois
(800) 243-2437
California
(800) 367-2437
Indiana
(800) 848-2437
Colorado
(800) 333-2437
Iowa
(800) 342-2437
(CDC National AIDS
Hotline)
Connecticut
(800) 342-2437
(CDC National AIDS
Hotline)
Kansas
(877) 526-2437
Delaware
(800) 422-0429
Kentucky
(200) 420-7431
District of Columbia
(877) 939-2437
Louisiana
(800) 992-4379
Florida
(800) 352-2437
(800) 243-7101 (Haitian
Creole)
(800) 545-SIDA (Spanish)
(888) 503-7118 (TTY)
Maine
(800) 851-2437
Maryland
(800) 638-6252
93
Massachusetts
(800) 235-2331
North Carolina
(800) 289-2437
Michigan
(800) 872-2437
North Dakota
(800) 472-2180
Minnesota
(800) 248-2437
Ohio
(800) 332-2437
Mississippi
(800) 286-2961
Oklahoma
(800) 332-2437
Missouri
(800) 533-2437
Pennsylvania
(800) 662-6080
Montana
(800) 233-6668
Puerto Rico
(800) 981-5721
Nebraska
(800) 782-2437
Rhode Island
(800) 726-3010
Nevada
(800) 342-2437
(CDC National AIDS
Hotline)
South Carolina
(800) 322-2437
New Hampshire
(800) 752-2437
New Jersey
(800) 624-2377
New Mexico
(800) 545-2437
New York
(800) 872-2777
(800) 369-2437 (TTY)
94
South Dakota
(800) 592-1861
Tennessee
(800) 525-2437
Texas
(800) 299-2437
Utah
(800) 366-2437
Vermont
(800) 882-2437
West Virginia
(800) 642-8244
Virginia
(800) 533-4148
Wisconsin
(800) 334-2437
Washington
(800) 272-2437
Wyoming
(800) 327-3577
95
96
INDEX
ADOLESCENTS
(ADOLESCENTES)
See Youth (vea Juventud)
ADOPTION
(ADOPCIÓN)
Adopt a Special Kid/AASK-America ................................1
Adoptive Parents Committee .........................................2
Concerned United Birthparents, Inc ...............................27
Dave Thomas Foundation for Adoption ..........................29
Gladney Center for Adoption .........................................37
National Adoption Center..............................................52
National Adoption Information Clearinghouse .................52
National Council for Single Adoptive Parents...................58
AGING
(ENVEJECIMIENTO)
AARP ..........................................................................1
American Health Assistance Foundation .........................9
Association of Late Deafened Adults ..............................17
Children of Aging Parents .............................................24
Citizens for Better Care ................................................26
Community Transportation Association of America..........26
Eldercare Locator National Association of Area
Agencies on Aging .......................................................31
Grandparent Information Center American Association
of Retired Persons .......................................................37
National Aging Information Center U.S. Administration
on Aging .....................................................................53
National Committee to Preserve Social Security and
Medicare .....................................................................58
National Institute on Aging Information Center...............64
Older Women's League ................................................75
Partnership for Caring ..................................................77
Senior's Eye Care Program............................................82
AIDS
(SIDA)
CDC National AIDS Hotline ...........................................22
CDC National Prevention Information Network ...............22
Good Samaritan Project Teen Teaching
AIDS Prevention Program .............................................37
97
Elizabeth Glaser Pediatric AIDS Foundation.................... 31
Hemophilia and AIDS/HIV Network for the
Dissemination of Information (HANDI) .......................... 39
National AIDS Fund ..................................................... 53
National Institutes of Health Clinical Center Infoline ....... 65
National Pediatric HIV Resource Center ......................... 69
Project Inform............................................................. 80
ALBINISM
(ALBINISMO)
National Organization for Albinism and
Hypopigmentation ....................................................... 68
ALCOHOLISM
(ALCOHOLISMO)
See Substance Abuse (Ver de Sustancias Abuso)
ALLERGY
(ALERGIA)
Allergy and Asthma Network/Mothers of Asthmatics ....... 3
Allergy to Latex Education and Resource Team
Latex Allergy Association.............................................. 3
American Academy of Allergy, Asthma,
and Immunology ......................................................... 4
Asthma and Allergy Foundation of America .................... 17
Food Allergy Network................................................... 34
ALPHA-1 ANTITRYPSIN DEFICIENCY
Alpha-1 Foundation ..................................................... 3
ALTERNATIVE MEDICINE
(MEDICINA ALTERNATIVA)
National Center for Complementary and Alternative
Medicine Clearinghouse................................................ 56
ALZHEIMER’S DISEASE
(ENFERMEDAD DE ALZHEIMER)
Alzheimer’s Disease and Related Disorders Association ... 3
Alzheimer’s Disease Education and Referral
(ADEAR) Center .......................................................... 4
AMYLOIDOSIS
Amyloidosis Network International ................................ 14
98
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis Association (ALSA)............15
Foundation, Ltd ...........................................................46
ANIMAL WELFARE
(BIENESTAR DE LOS ANIMALES)
ASPCA National Animal Poison Control Center ................16
ARTHRITIS
Arthritis Foundation .....................................................16
ASTHMA
(ASMA)
Allergy and Asthma Network/Mothers of Asthmatics........3
American Academy of Allergy, Asthma, and
Immunology ...............................................................4
Asthma and Allergy Foundation of America ....................17
LUNG LINE..................................................................65
ATAXIA TELANGIECTASIA
(ATAXIA TELANGIECTASIA)
Ataxia Telangiectasia (A-T) Children’s Project .................17
AUTOIMMUNE DISORDERS/DISEASES
Association, Inc. ..........................................................6
American Behcets Association, Inc.................................6
American Diabetes Association......................................8
Arthritis Foundation .....................................................16
Crohn's and Colitis Foundation of America......................28
Fibromylagia Network ..................................................34
Juvenile Diabetes Research Foundation International ......44
Lupus Foundation of America........................................47
National Diabetes Information Clearinghouse .................59
Multiple Sclerosis Association of America........................51
Multiple Sclerosis Foundation ........................................51
Myasthenia Gravis Foundation.......................................52
National Multiple Sclerosis Society .................................67
Scleroderma Foundation...............................................81
Scleroderma Research Foundation.................................81
Sjogren’s Syndrome Foundation ....................................83
Spondylitis Association of America .................................84
Wegener’s Granulomatosis Support Group .....................89
99
BIRTH DEFECTS
(DEFECTOS DEL NACIMIENTO)
Cleft Palate Foundation ................................................ 26
Cornelia de Lange Syndrome Foundation ....................... 27
Easter Seals National Headquarters............................... 31
March of Dimes Birth Defects Foundation ...................... 49
Family Empowerment Network: Supporting Families
Affected by FAS/FAE .................................................... 33
BLADDER DISORDERS/DISEASES
Interstitial Cystitis Association....................................... 44
National Association for Continence............................... 54
Simon Foundation ....................................................... 83
BLINDNESS
See Vision
BLOOD DISORDERS
Aplastic Anemia and MDS International Foundation ........ 15
Cooley’s Anemia Foundation ......................................... 27
Histiocytosis Association of America .............................. 40
National Hemophilia Foundation ................................... 62
Severe Chronic Neutropenia International Registry ......... 82
Sickle Cell Disease Association of America...................... 83
Thalassemia Action Group ............................................ 86
BONE DISEASES
Osteogenesis Imperfecta Foundation ............................ 76
Osteoporosis and Related Bone Disease National
Resource Center.......................................................... 76
Paget's Foundation for Paget's Disease of Bone
and Related Disorders.................................................. 76
BONE MARROW
(MÉDULA ÓSEA)
National Bone Marrow Transplant Link .......................... 55
National Marrow Donor Program................................... 66
BRAIN TUMORS
(TUMORES DEL CEREBRO)
American Brain Tumor Association ................................ 6
Brain Tumor Society .................................................... 20
National Brain Tumor Foundation.................................. 55
100
BREAST CANCER
(CÁNCER DEL SENO)
National Alliance of Breast Cancer Organizations ............53
SHARE: Self-help for Women with Breast or
Ovarian Cancer............................................................82
Susan G. Komen Breast Cancer Foundation....................86
Y-Me National Breast Cancer Organization .....................90
BREAST FEEDING
(LACTANCIA MATERNA)
Best Start Social Marketing ...........................................19
La Leche League International ......................................45
BURNS
(QUEMADURAS)
American Burn Association............................................7
Phoenix Society for Burn Survivors ................................78
Shriners Hospital Referral Line ......................................83
CANCER
(CÁNCER)
American Institute for Cancer Research .........................10
Cancer Care ................................................................20
Cancer Hope Network ..................................................21
Cancer Hot Line and R.A. Bloch Cancer Foundation.........21
Cancer Information Service...........................................21
Candlelighters Childhood Cancer Foundation ..................21
Fox Chase Cancer Center..............................................35
Gilda Radner Familial Ovarian Cancer
Registry Roswell Park Cancer Institute ...........................36
International Cancer Alliance ........................................42
International Myeloma Foundation ................................43
Johns Hopkins Hereditary Colorectal Cancer
Registry ......................................................................44
Kidney Cancer Association ............................................45
Leukemia and Lymphoma Society..................................46
Look Good... Feel Better American Cancer Society ..........47
Lymphoma Research Foundation...................................48
Make Today Count .......................................................48
Memorial Sloan-Kettering Cancer Center ........................50
National Alliance of Breast Cancer Organizations ............53
National Cancer Information Center...............................55
National Foundation for Cancer Research, Inc. ...............61
Reach to Recover Program American Cancer Society.......80
SHARE: Self-help for Women with Breast or
101
Ovarian Cancer ........................................................... 82
Support for People with Oral and Head and
Neck Cancer ............................................................... 86
Susan G. Komen Breast Cancer Foundation ................... 86
Us Too! International, Inc. ........................................... 88
Y-Me National Breast Cancer Organization ..................... 90
CHILD ABUSE PREVENTION
(PREVENCIÓN DEL ABUSO DEL NIÑO)
American Humane Association/Children’s Division........... 10
Girls and Boys Town National Hotline ............................ 36
Childhelp USA ............................................................. 24
Children’s Defense Fund............................................... 24
Kidsrights ................................................................... 45
National Center for Missing and Exploited Children ......... 56
National Clearinghouse on Child Abuse and Neglect........ 57
Parents of Murdered Children, Inc................................. 77
Prevent Child Abuse America ........................................ 80
Thursday's Child .......................................................... 86
CHILD SAFETY
(SEGURIDAD DEL NIÑO)
Farm Safety 4 Just Kids................................................ 33
National Child Safety Council Childwatch ....................... 57
National Resource Center for Health and Safety
in Child Care ............................................................... 70
CHILD WELFARE
(BIENESTAR DEL NIÑO)
Association for Children for Enforcement of Support ....... 17
Child Find of America................................................... 23
Children’s Defense Fund............................................... 24
Children’s Hospice International.................................... 25
Compeer..................................................................... 27
Covenant House .......................................................... 28
Kidsrights ................................................................... 45
National Association for Family Child Care...................... 54
National Association for the Education
of Young Children........................................................ 54
National Child Care Information Center ......................... 57
Youth with Disabilities.................................................. 63
National Resource Center for Health and Safety
in Child Care ............................................................... 70
National Runaway Switchboard..................................... 71
102
Save the Children Federation ........................................81
Thursday's Child ..........................................................86
Zero to Three: National Center for Infants,
Toddlers, and Families .................................................91
CHIROPRACTIC
(QUIROPRÁCTICA)
American Chiropractic Association .................................7
CHRONIC FATIGUE SYNDROME
(SÍNDROME DE LA FATIGA CRÓNICA)
Chronic Fatigue and Immune Dysfunction Syndrome
(CFIDS) Association .....................................................26
CONNECTIVE TISSUE DISEASES
National Marfan Foundation ..........................................66
Scleroderma Foundation...............................................81
Scleroderma Research Foundation.................................81
CONSUMER INFORMATION/PRODUCT SAFETY
(SEGURIDAD DE LOS PRODUCTOS/INFORMACION DEL
CONSUMIDOR)
Danny Foundation .......................................................29
FDA Division of Drug Information ..................................34
Federal Citizen Information Center ................................34
Inspector General's Hotline Department of Health and
Human Services...........................................................41
Insurance Information Institute ....................................42
MedWatch...................................................................50
National Fraud Information Center National Consumer
League .......................................................................61
U.S. Consumer Products Safety Commission...................87
USP Center for the Advancement of Patient Safety .........88
CRIMINAL JUSTICE
(JUSTICIA CRIMINAL)
Juvenile Justice Clearinghouse Department of Justice .....44
National Criminal Justice Reference Service National
Institute of Justice .......................................................58
Office of National Drug Control Policy Clearinghouse.......75
CRISIS INTERVENTION
(INTERVENCIÓN DE CRISIS)
Covenant House ..........................................................28
103
DEAFNESS
(SORDERA)
See Hearing (Audición)
DENTAL
American Association for Functional Orthodontics........... 5
DEPRESSION
(DEPRESIÓN)
Depression and Bipolar Support Alliance (DBSA)............. 30
National Foundation for Depressive Illness..................... 61
National Institute of Mental Health (NIMH) Information
Resources and Inquires Branch..................................... 64
DIABETES MELLITUS
(DIABETES MELLITUS)
American Diabetes Association ..................................... 8
Juvenile Diabetes Foundation International.................... 44
National Diabetes Information Clearinghouse ................. 59
DISABILITIES
(MINUSVÁLIDOS)
ABLEDATA .................................................................. 1
American Association on Mental Retardation .................. 6
Americans with Disabilities Act and
Information Technology ............................................... 14
Amputee Coalition of America....................................... 14
ARCH National Respite Locator Service .......................... 16
Architectural and Transportation Barriers
Compliance Board ....................................................... 16
Devereux Foundation................................................... 30
Disabilities Information Access Line............................... 30
Disabled and Alone/Life Services for the Handicapped .... 30
Eastern Paralyzed Veterans Association ......................... 31
Family Caregiver Alliance.............................................. 33
Family Voices .............................................................. 33
Heartspring................................................................. 39
Job Accommodation Network ....................................... 44
MUMS National Parent-to-Parent Network
Mothers United for Moral Support, Inc........................... 51
National Aphasia Association ........................................ 53
National Center for Learning Disabilities ........................ 56
Youth with Disabilities.................................................. 63
104
National Institute for Rehabilitation Engineering .............64
North American Riding for the Handicapped
Association (NARHA) ....................................................74
Paralyzed Veterans of America ......................................77
Pathways Awareness Foundation...................................78
Paws with a Cause.......................................................78
Special Olympics, Inc ...................................................84
Well Spouse Foundation ...............................................90
DOMESTIC VIOLENCE
(VIOLENCIA EN EL HOGAR)
See Victim Assistance (vea Ayuda a las Víctimas)
DRUG ABUSE
(ABUSO DE DROGAS)
See Substance Abuse (Ver de Sustancias Abuso)
EDUCATION
(EDUCACIÓN)
National Association for the Education of
Young Children ............................................................54
EMERGENCY MEDICAL SERVICES
(SERVICIOS DE EMERGENCIAS MÉDICAS)
Medic Alert Foundation International .............................49
ENVIRONMENTAL HEALTH
(SALUD DEL MEDIO AMBIENTE)
American Environmental Health Foundation ...................8
Chemical Referral Center National Chemical
Response and Information Center .................................23
Indoor Air Quality Information Clearinghouse .................41
National Drinking Water Clearinghouse ..........................59
Office of Environmental Justice Environmental
Protection Agency........................................................74
Safe Drinking Water Hotline U.S. Environmental
Protection Agency........................................................81
ETHICS
(ETICA)
National Reference Center for Bioethics Literature ..........69
105
FACIAL ASYMMETRY
(ASIMETRÍA FACIAL)
About Face ................................................................. 1
Reconstructive Surgery ................................................ 4
Children's Craniofacial Association................................. 24
FACES: The National Craniofacial Association ................. 32
Forward Face .............................................................. 34
FAMILY PLANNING
(PLANIFICACIÓN FAMILIAR)
Planned Parenthood Federation of America.................... 79
FAMILY PROBLEMS
(PROBLEMAS FAMILIARES)
Friends Health Connections .......................................... 35
Kidsrights ................................................................... 45
National Family Caregivers Association .......................... 60
Stepfamily Association of America ................................. 84
VOICES in Action, Inc. Victims of Incest Can
Emerge Survivors ....................................................... 89
FRAUD
(FRAUDE)
Inspector General’s Hotline .......................................... 41
National Fraud Information Center National
Consumers League ...................................................... 61
FUNERALS
(FUNERALES)
Funeral Service Consumer Assistance Program............... 36
GAMBLING
(JUEGOS DE AZAR)
National Council on Problem Gambling .......................... 58
GENETIC DISORDERS
(ENFERMEDADES GENÉTICAS)
Alpha-1 Foundation ..................................................... 3
American Hemochromatosis Society .............................. 9
Angelman Syndrome Foundation .................................. 15
Ataxia Telangiectasia (A-T) Children's Project................. 17
Batten Disease Support and Research Association .......... 18
Beckwith-Wiedemann Support Network ......................... 18
106
Children's Memorial Hospital Division of Genetics............25
Children's PKU Network ................................................25
Chromosome Deletion Outreach, Inc. ............................25
Cystic Fibrosis Foundation ............................................28
Cystinosis Foundation, Inc. ...........................................29
Foundation for Nager and Miller Syndromes ...................35
Genetic Alliance ...........................................................36
National Human Genome Research Institute ..................36
Hereditary Hemorrhagic Telangiectasia Foundation
International ...............................................................39
Hermansky-Pudlak Syndrome Network, Inc. ...................40
Huntington’s Disease Society of America........................41
International Rett Syndrome Association........................43
Malignant Hyperthermia Association of
the United States .........................................................49
National Batten Disease Registry ...................................55
National Down Syndrome Congress ...............................59
National Down Syndrome Society ..................................59
National Fragile X Foundation .......................................61
National Gaucher Foundation ........................................62
National Marfan Foundation ..........................................66
National Tay-Sachs and Allied Diseases Association.........72
National Tuberous Sclerosis Association .........................72
Neurofibromatosis, Inc. ................................................73
National Urea Cycle Disorders Foundation ......................73
Noonan Syndrome Support Group, Inc...........................74
Prader-Willi Syndrome Association, USA.........................79
Rubenstein-Taybi Parent Group.....................................81
Shwachman-Diamond Syndrome International ...............83
Sotos Syndrome Support Association .............................84
Support Organization for Trisomy 18, 13 and
Related Disorders ........................................................86
Thalassemia Action Group ............................................86
Tuberous Sclerosis Alliance ...........................................87
Turner’s Syndrome Society of the U.S............................87
United Leukodystrophy Foundation................................88
VHL(Von Hippel-Lindau) Family Alliance .........................89
Wilson’s Disease Association .........................................90
GRIEF
(AFLICCIÓN)
AARP Grief and Loss Program .......................................1
After Loss ...................................................................2
Compassionate Friends.................................................27
107
GROWTH DISORDERS
(DESORDENES DEL CRECIMIENTO)
CHARGE Syndrome Foundation..................................... 23
Human Growth Foundation........................................... 40
Little People of America ............................................... 47
Little People’s Research Fund ....................................... 47
MAGIC Foundation for Children’s Growth ....................... 48
HANDICAPED
See Disabilities
HEALTH CARE SERVICES
(SERVICIOS DE CUIDADOS DE LA SALUD)
Health Resources and Services Administration Information
Center ........................................................................ 38
HEALTH INSURANCE
(SEGURO DE SALUD)
Insurance Information Institute .................................... 42
HEALTH POLICY
(POLITICA DE LA SALUD)
Agency for Health Care Research and Quality ................ 2
HEALTH PROMOTION
(PROMOCIÓN DE LA SALUD)
Health Care for the Homeless Information
Resource Center.......................................................... 38
Inspector General’s Hotline .......................................... 41
Medic Alert Foundation International............................. 49
National Health Information Center ............................... 62
Office on Smoking and Health ...................................... 75
YMCA of the USA......................................................... 90
HEARING
(AUDICIÓN)
American Association for the Deaf-Blind ........................ 6
American Society for Deaf Children ............................... 13
Consumer Helpline ...................................................... 13
American Tinnitus Association....................................... 14
Association of Late Deafened Adults.............................. 17
Better Hearing Institute Hearing Helpline....................... 19
DB-LINK: National Information Clearinghouse on
108
Children who are Deaf-Blind .........................................29
EAR Foundation ...........................................................31
HEAR NOW .................................................................38
International Hearing Society Hearing Aid Helpline..........43
National Cued Speech Association .................................59
National Family Association of the Deaf-Blind .................60
National Institute on Deafness and Other
Communication Disorders Information Clearinghouse......65
National Temporal Bone, Hearing and Balance Pathology
Resource Registry Massachusetts Eye
and Ear Infirmory ........................................................72
HEARING AIDS
(APARATOS PARA SORDOS)
International Hearing Society Hearing Aid Helpline..........43
HEART DISEASE
(ENFERMEDAD DEL CORAZÓN)
American Heart Association ..........................................9
Heart Information Service Texas Heart Institute .............39
Mended Hearts, Inc .....................................................50
Pulmonary Hypertension Association..............................80
Sudden Arrhythmia Death Syndromes Foundation ..........85
HEREDITARY
See Genetic Disorders
HOSPICES
(HOSPICIOS)
Children’s Hospice International ....................................25
Hospice Education Institute ..........................................40
National Hospice and Palliative Care Organization ...........63
HOUSING
(VIVIENDA)
Department of Housing and Urban Development
HUD User....................................................................29
HYDROCEPHALUS
(HIDROCÉTALOS)
Hydocephalus Association.............................................41
109
IMMUNE DISORDERS
(DESORDENES DEL SÓSTENA DE IMNUNIDAD)
Association, Inc........................................................... 6
Immune Deficiency Foundation..................................... 41
IMMUNOLOGY
(INMUNOLOGÍA)
and Immunology ......................................................... 4
CDC National Immunization Information Hotline............. 22
LUNG LINE ................................................................. 65
INTESTINAL DISEASES
(ENFERMEDADES INTESTINAL)
International Foundation for Functional
Gastrointestinal Disorders............................................. 43
Crohn's and Colitis Foundation of America ..................... 28
KIDNEY
(RIÑÓN)
American Association of Kidney Patients ........................ 5
Kidney Cancer Association............................................ 45
National Kidney Foundation .......................................... 65
Oxalosis and Hyperoxaluria Foundation ......................... 76
PKD Foundation .......................................................... 79
Wegener’s Granulomatosis Support Group ..................... 89
LARYNGECTOMEES
International Association of Laryngectomees.................. 42
LASER SURGERY
(CIRIGÍA CON LASER)
Laser Institute of America ............................................ 45
LEAD POISONING
(ENVENENAMIENTO POR PLOMO)
National Lead Information Center Hotline
and Clearinghouse....................................................... 66
LEARNING DISORDERS
Attention Deficit Disorder and Dyslexia Challenge........... 17
Children and Adults with Attention
Deficit/Hyperactivity Disorder ....................................... 24
110
International Dyslexia Association .................................42
RFB&D (Recording for the Blind and Dyslexic)
Learning Through Listening ..........................................80
LEPROSY
(LEPRA)
American Leprosy Missions, Inc.....................................10
National Hansen’s Disease Program...............................62
LIMB LOSS
(PERDIDA DE MIEMBROS)
Amputee Coalition of America .......................................14
LIVER
(HÍGADO)
American Liver Foundation Hepatitis Hotline...................11
Hepatitis Foundation International.................................39
Oxalosis and Hyperoxaluria Foundation..........................76
LYMPHEDEMA
(LINFAEDEMA)
National Lymphedema Network.....................................66
MEDICAL ASSISTANCE
(ASISTENCIA MÉDICA)
American Health Assistance Foundation .........................9
Ask-A-Nurse ................................................................16
Office of Minority Health Resource Center
Public Health Service U.S. Department Health and
Human Services...........................................................74
MEDICAL GENETICS
(GENETICA EN LA MEDICINA)
Medical Genetics..........................................................49
MEDICAL SPECIALTIES
(ESPECIALIDADES MÉDICAS)
American Board of Medical Specialties ...........................6
MEDICARE
(MEDICARE)
Medicare Issues Hotline................................................50
MENINGITIS
Meningitis Foundation of America..................................50
111
MENTAL HEALTH
(SALUD MENTAL)
American Art Therapy Association ................................. 5
American Foundation for Suicide Prevention .................. 9
Compeer..................................................................... 27
Health Care for the Homeless Information
Resource Center.......................................................... 38
National Association for the Dually
NAMI (National Alliance for the Mentally Ill) .................. 52
Diagnosed (NADD) ...................................................... 54
National Eating Disorders Association ............................ 60
National Institute of Mental Health................................ 64
National Mental Health Association
Information Center ...................................................... 67
National Mental Health Consumer
Self-Help Clearinghouse ............................................... 67
National Mental Health Information Center .................... 67
National Resource Center on Homelessness and
Mental Illness.............................................................. 70
MENTAL RETARDATION
(RETRASO MENTAL)
American Association on Mental Retardation .................. 6
Angelman Syndrome Foundation .................................. 15
Arc of the United States ............................................... 15
Devereux Foundation................................................... 30
National Association for the Dually Diagnosed ................ 54
MULTIPLE SCLEROSIS
(ESCLEROSIS MÓLTIPLE)
Multiple Sclerosis Association of America ....................... 51
Multiple Sclerosis Foundation........................................ 51
National Multiple Sclerosis Society................................. 67
NEUROFIBROMATOSIS
(NEUROFIBROMATOSIS)
National Neurofibromatosis Foundation ......................... 68
NEUROLOGICAL DISORDERS/DISEASES
American Council for Headache Education ..................... 7
American Parkinson’s Disease Association, Inc. .............. 11
Batten Disease Support and Research Association .......... 18
Brain Injury Association, Family Helpline........................ 20
Epilepsy Foundation of America .................................... 32
112
Epilepsy Information Service Wake Forest
University School of Medicine........................................32
Huntington’s Disease Society of America........................41
International Essential Tremor Foundation .....................43
National Batten Disease Registry ...................................55
National Headache Foundation......................................62
National Parkinson Foundation ......................................68
National Spasmodic Dysphonia Association.....................71
National Spasmodic Torticollis Association......................71
National Stroke Association...........................................71
Parkinson’s Disease Foundation.....................................77
Tourette Syndrome Association, Inc. (TSA) ....................87
United Cerebral Palsy Association, Inc ...........................87
NEUROMUSCULAR DISEASES
Amyotrophic Lateral Sclerosis Association (ALSA)............15
Charcot-Marie-Tooth Association ...................................23
Families of Spinal Muscular Atrophy...............................33
Foundation, Ltd ...........................................................46
Muscular Dystrophy Association ....................................52
Myasthenia Gravis Foundation.......................................52
Parent Project for Muscular Dystrophy Research .............77
NURSING
(ENFERMERÍA)
Visiting Nurse Association of America.............................89
NUTRITION
(NUTRICIÓN)
American Dietetic Association .......................................8
American Institute for Cancer Research
Nutrition Hotline ..........................................................10
National Eating Disorders Association ............................60
Oley Foundation for Home Parenteral and
Enteral Nutrition ..........................................................75
USDA's Meat and Poultry Hotline ...................................88
OCCUPATIONAL HEALTH
(SALUD OCUPACIONAL)
National Institute for Occupational Safety
and Health (NIOSH) .....................................................63
113
ORPHAN DRUGS
(DROGAS HUÉRFANAS)
Office of Orphan Products Development ........................ 75
ORTHOPEDICS
(ORTOPEDIA)
Shriners Hospital Referral Line ...................................... 83
OSTEOPATHIC MEDICINE
(MEDICINA OSTEOPÁTICA)
American Osteopathic Association ................................. 11
OSTOMY
(OSTOMÍA)
United Ostomy Association ........................................... 88
PARALYSIS
(PARÁLISIS)
Christopher Reeve Paralysis Foundation ........................ 25
Eastern Paralyzed Veterans Association ......................... 31
Paralyzed Veterans of America...................................... 77
PARENTS
(PADRES)
Lamaze International ................................................... 45
Parent Project for Muscular Dystrophy Research............. 77
Stepfamily Association of America, Inc. ......................... 84
Sudden Infant Death Syndrome Alliance........................ 85
PARKINSON’S DISEASE
(ENFERMEDAD DE PARKINSON)
American Parkinson’s Disease Association, Inc. .............. 11
National Parkinson Foundation...................................... 68
Parkinson’s Disease Foundation .................................... 77
PATHOLOGY
(PATOLOGIA)
American Society for Colposcopy and Cervical
Pathology ................................................................... 12
PESTICIDES
(PESTICIDAS)
National Pesticide Information Center............................ 69
114
PHYSICAL FITNESS
(BUENA SALUD FISICA)
American Association for Active
Lifestyles and Fitness ...................................................5
American Running Association ......................................12
YMCA of the USA .........................................................90
PHYSICIANS
(MÉDICOS)
and Immunology .........................................................4
American Academy of Facial Plastic
and Reconstructive Surgery ..........................................4
American Academy of Family Physicians ........................4
American Academy of Ophthalmology............................5
American Board of Medical Specialties ...........................6
and Medicine...............................................................7
American Osteopathic Association .................................11
American Society of Plastic Surgeons.............................13
PODIATRY
(PODIATRÍA)
and Medicine...............................................................7
American Podiatric Medical Association ..........................12
PREGNANCY/PREGNANCY ALTERNATIVES
(EMBARAZO/ALTERNATIVAS AL EMBARAZO)
Depression After Delivery .............................................30
International Childbirth Education Association ................42
National Abortion Federation.........................................52
National Life Center, Inc...............................................66
Planned Parenthood Federation of America ....................79
Pregnancy Risk Network ...............................................79
SHARE Pregnancy and Infant Loss Support ....................82
PREVENTIVE MEDICINE
(MEDICINA PREVENTIVA)
American Institute for Preventive Medicine.....................10
PRIMARY CARE
(ATENCIÓN PRIMARIA DE LA SALUD)
Health Resources and Services Administration
Information Center ......................................................38
115
PSORIASIS
(PSORIASIS)
National Psoriasis Foundation ....................................... 69
RADIATION
(RADIACIÓN)
National Association of Radiation Survivors .................... 55
RARE DISEASES
(ENFERMEDADES EXÓTICAS)
National Human Genome Research Institute .................. 36
National Organization for Rare Disorders ....................... 68
REHABILITATION
(REHABILITACIÓN)
ABLEDATA .................................................................. 1
American Medical Rehabilitation Providers Association .... 11
National Institute for Rehabilitation Engineering ............. 64
National Rehabilitation Information Center..................... 70
RESPIRATORY DISORDERS
(TRASTORNOS RESPIRATORIOS)
American Lung Association ........................................... 11
Asthma and Allergy Foundation of America .................... 17
National Jewish Medical and Research Center ................ 65
REYE’S SYNDROME
(SÍNDROME DE REYE)
National Reye’s Syndrome Foundation, Inc. ................... 70
RUNAWAYS
(FUGITIVOS DEL HOGAR)
Child Find of America................................................... 23
Covenant House .......................................................... 28
National Runaway Switchboard..................................... 71
116
SAFETY
(SEGURIDAD)
American Red Cross, Youth and Community Services ......12
Auto Safety Hotline National Highway Traffic Safety
Administration .............................................................18
MedWatch...................................................................50
National Child Safety Council ........................................57
National Fire Protection Association ...............................60
National Institute for Occupational Safety .....................63
National Public Safety Information Bureau .....................69
Operation Lifesaver......................................................76
U.S. Consumer Product Safety Commission ....................87
SEXUALLY TRANSMITTED DISEASES
(ENFERMEDADES TRANSMITIDAS SEXUALMENTE)
CDC National AIDS Hotline ...........................................22
Herpes Resource Center ...............................................40
SOCIAL SECURITY
(SEGURO SOCIAL)
Social Security Administration .......................................84
SPEECH DISORDERS
(DESORDENES DEL HABLA)
(ASHA) Consumer Helpline ...........................................13
National Center for Stuttering .......................................56
National Cued Speech Association .................................59
National Stuttering Foundation......................................72
Stuttering Foundation of America ..................................85
SPINAL CORD INJURIES/DISEASES
American Syringomyelia Alliance Project ........................13
Christopher Reeve Paralysis Foundation.........................25
Foundation for Spinal Cord Injury Prevention,
Care & Cure ................................................................35
National Scoliosis Foundation, Inc .................................71
National Spinal Cord Injury Association
Resource Center ..........................................................71
STROKE
(ATAQUE DE APOPLEGÍA)
National Institute of Neurological Disorders
and Stroke (NINDS) .....................................................64
National Stroke Association...........................................71
117
STURGE-WEBER SYNDROME
(SÍNDROME DE STURGE-WEBER)
Sturge-Weber Foundation ............................................ 85
SUBSTANCE ABUSE
(ABUSO DE SUSTANCIAS)
Al-Anon, Alateen Family Group Meeting
Information Line.......................................................... 3
American Council for Drug Education ............................ 7
American Council on Alcoholism.................................... 8
Cocaine Anonymous World Service Office, Inc................ 26
Families Anonymous .................................................... 32
Family Empowerment Network: Supporting Families
Affected by FAS/FAE .................................................... 33
Mothers Against Drunk Driving ..................................... 51
National Association for Children of Alcoholics................ 53
National Clearinghouse for Alcohol and Drug
Information................................................................. 57
National Council on Alcoholism and Drug Dependence
Hopeline ..................................................................... 58
National Drug and Alcohol Treatment Routing Service .... 60
National Inhalant Prevention Coalition ........................... 63
Office of National Drug Control Policy Clearinghouse ...... 75
Phoenix House National Substance Abuse Helpline ......... 78
Substance Abuse and Mental Health Services
Administration............................................................. 85
SUDDEN INFANT DEATH
(MUERTE SÒBITA INFANTIL)
American Sudden Infant Death Syndrome Institute ........ 13
Back to Sleep Program Hotline...................................... 18
Sudden Infant Death Syndrome Alliance........................ 85
SURGERY
(CIRUGIÁ)
Reconstructive Surgery ................................................ 4
American Society of Plastic Surgeons ............................ 13
Center for Bloodless Medicine and Surgery .................... 22
118
THYROID
(TIROIDES)
Thyroid Foundation of America, Inc. ..............................87
TRANSPORTATION/TRANSPORTATION SAFETY
AirLife Line ..................................................................2
Angel Flight East..........................................................15
Auto Safety Hotline .....................................................18
Community Transportation Association of America..........26
Corporate Angel Network, Inc .......................................28
Mercy Medical Airlift .....................................................51
National Highway Traffic Safety Administration
Department of Transportation.......................................63
Operation Lifesaver......................................................76
TRANSPLANTATION
(TRANSPLANTE)
LifeNet........................................................................46
Living Bank .................................................................47
National Bone Marrow Transplant Link...........................55
National Foundation for Transplants ..............................61
National Marrow Donor Program ...................................66
National Minority Organ Tissue Transplant
Education Program (MOTTEP).......................................67
National Transplant Assistance Fund..............................72
TRAUMA
(TRAUMA)
American Trauma Society .............................................14
ULTRASOUND
(ULTRASONIDO)
American Institute of Ultrasound in Medicine..................10
VACCINE
(VACUNAS)
National Vaccine Information Center..............................73
VETERANS
(VETERANOS)
Blinded Veterans Association ........................................19
Eastern Paralyzed Veterans Association .........................31
National Veterans Services Fund, Inc.............................73
Paralyzed Veterans of America ......................................77
119
VICTIM ASSISTANCE
(AYUDA A LAS VÍCTIMAS)
Health Resource Center on Domestic Violence
Family Violence Prevention Fund................................... 38
National Center for Victims of Crime.............................. 56
National Coalition Against Domestic
Violence ..................................................................... 57
National Domestic Violence Hotline ............................... 59
National Organization for Victim Assistance.................... 68
National Resource Center on Domestic Violence ............. 70
Office for Victims of Crime Resource Center ................... 74
VOICES in Action, Inc. Victims of Incest Can
Emerge Survivors ........................................................ 89
VISION
(VISION)
American Association of the Deaf-Blind.......................... 5
American Council of the Blind
National Legislative Hotline........................................... 8
American Foundation for the Blind ................................ 9
America's Job Line - National Federation of the Blind ...... 4
Blind Children’s Center ................................................. 19
Blinded Veterans Association ........................................ 19
Braille Institute............................................................ 20
DB-LINK: National Information Clearinghouse
on Children Who Are Deaf-Blind.................................... 29
Foundation Fighting Blindness ...................................... 35
Glaucoma Research Foundation .................................... 37
Guide Dogs for the Blind .............................................. 37
Guide Dogs of America ................................................ 38
Leader Dogs for the Blind............................................. 46
Lighthouse International .............................................. 46
Macular Degeneration Foundation................................. 48
Macular Degeneration International .............................. 48
National Association for Parents of the
Visually Impaired......................................................... 54
National Braille Press ................................................... 55
National Family Association for Deaf-Blind ..................... 60
National Keratoconus Foundation.................................. 65
RFB & D (Recording for the Blind and Dyslexic)
Learning Through Listening .......................................... 80
Senior's Eye Care Program ........................................... 82
Vision Council of America ............................................. 89
Vision World Wide ....................................................... 89
120
WATER
(AGUA)
National Drinking Water Clearinghouse ..........................59
Safe Drinking Water Hotline..........................................81
WOMEN’S HEALTH
(SALUD DE LA MUJER)
Endometriosis Association.............................................32
National Women's Health Information Center .................73
National Women's Health Resource Center.....................73
Older Women's League ................................................75
PMS Access .................................................................79
SHARE: Self-help for Women with Breast
or Ovarian Cancer........................................................82
Women's Sports Foundation Information and Referral
Service .......................................................................90
YOUTH
(JUVENTUD)
American Red Cross, HIV/AIDS Teen Hotline" ................12
American Red Cross,Youth and Community Services .......12
Bureau for At-Risk Youth ..............................................20
Girls and Boys Town National Hotline ............................36
Good Samaritan Project Teen Teaching AIDS
Prevention Program .....................................................37
National Life Center, Inc...............................................66
Youth Development International ..................................91
121
122
Dear Health Hotline User:
Do you like Health Hotlines? If you find this brochure
useful, you may also appreciate searching this database on
the NLM web site (http://sis.nlm.nih.gov/hotlines/).
You can search by choosing a term from a subject list
describing the major focus of the resource, or by key words
you think might appear in the name or description of the
organization. You can also search by city, state, or ZIP
code.
You may also find DIRLINE (Directory of Information
Resources Online) even more useful. Toll-free numbers
in Health Hotlines are taken from this comprehensive
database of more than 9,000 records, containing location
and descriptive information about a wide variety of
information resources in the fields of health and biomedicine.
DIRLINE is available on the NLM Web site at
http://dirline.nlm.nih.gov. Remember, Health
Hotlines contains only a small percentage of the useful
information available in DIRLINE.
For additional information about DIRLINE, contact:
Specialized Information Services
6707 Democracy Blvd, Suite 510
Bethesda, MD 20892
(301) 496–3147
123
124
Estimado Usuario de Nuestras Líneas Directas de
Salud:
Si le gustó nuestro directorio de información sobre la salud,
lo mas probable es que también encuentre conveniente
realizar búsquedas en el banco de datos disponible en la
NLM (Biblioteca Nacional de Medicina, por sus siglas en
inglés) a través de la red de Internet localizada en
(http://sis.nlm.nih.gov/hotlines/). Usted puede
realizar búsquedas bibliográficas en nuestro banco de
datos, ya sea mediante el uso de un término que se
encuentre en la lista de tópicos y que describa el foco
principal de la organizacion, o ya sea mediante el uso de
una palabra clave que usted piense podría aparecer en el
nombre o la descripición de la organización. Usted podría
realizar su búsqueda también usando la ciudad, estado or
código postal, de la fuente que le interese.
Es posible que usted encuentre a DIRLINE (Directorio de
Recursos de Información Computarizada, por sus siglas en
inglés) aun mas útil. Los números telefónicos gratuitos que
aparecen en este directorio de salud son extraidos de este
vasto banco de datos generalizado, que incluye alrededor
de 9,000 records, los cuales incluyen la dirección e
información descriptiva de una considerable lista de fuentes
de información sobre salud y biomedicina.
DIRLINE está disponible en el sitio web
http://dirline.nlm.nih.gov. Recuerde que las líneas Directas
de la Salud contiene solo una mínima parte del directorio
disponible en DIRLINE.
Para información adicional sobre DIRLINE, contacte:
Servicios de Información Specializados
Bethesda, MD 20892
(301) 496–3147
125
126
Please send additional copies of Health Hotlines or
the DIRLINE fact sheet to:
Name
Address
Organization
City, State, ZIP
To suggest an organization for inclusion in DIRLINE:
Organization Name
Address
City, State, ZIP
Telephone
Toll-Free Telephone
Contact
Mail to:
DIRLINE Information
6707 Democracy Blvd., Suite 510
Bethesda, MD 20892
127
Por favor envíeme más copias de las Líneas
Telefónicas de Información sobre la Salud y/o el
Boletín de DIRLINE a:
Nombre
Dirección
Organización
Ciudad, Estado, Código Postal
Si desea incluir otra organización en DIRLINE por favor
escriba la información en los siguientes espacios:
Nombre de la Organización
Dirección
Ciudad, Estado, Código Postal
Teléfono
Teléfono Gratuito
Contacto
Envie su solicitud a:
DIRLINE Información Servicio
Bethesda, MD 20892
(301) 496–3147
128
NIH Publication 03–2780
March 2003

Health Hotlines Health Hotlines

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