Health Hotlines - Macon County North Carolina

Transcripción

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2005
NATIONAL LIBRARY OF MEDICINE
National Institutes of Health
The National Library of Medicine is pleased to offer
this booklet listing toll-free telephone numbers for
health-related organizations. This revised edition is
bilingual and lists the organization names in both
English and Spanish. It also indicates if services
and/or publications are available in Spanish.
NLM is the world’s largest medical library with
unparalleled collections in the health sciences. Using
the World Wide Web, the Library’s resources are now
available to health professionals in every part of the
United States. The listings in this pamphlet are from
our online database, DIRLINE.
Donald A.B. Lindberg, M.D.
Director
http://www.nlm.nih.gov
Health Hotlines:
Toll-free Numbers from DIRLINE
Health Hotlines is a compilation of organizations with
toll-free telephone numbers. It is derived from DIRLINE,
the National Library of Medicine's Directory of Information
Resources Online. This database contains descriptions of
more than 8,000 biomedical information resources including
organizations, databases, research, resources, etc.
Some of the subject areas included in Health Hotlines are
AIDS, cancer, maternal and child health, aging, substance
abuse, disabilities, and mental health. Health Hotlines
also lists a variety of groups disseminating information on a
number of specific diseases and disorders. Organizations fall
into many categories including Federal, State and local
government agencies, information and referral centers,
professional societies, support groups, and voluntary
associations.
Health Hotlines is provided as a community service to
assist the public in locating health-related information. The
toll-free telephone numbers in Health Hotlines were
provided by the organizations and verified at the time of
printing. The National Library of Medicine has not reviewed
or evaluated the services of the organizations listed.
Visit Our Web Sites
Health Hotlines: http://healthhotlines.nlm.nih.gov
DIRLINE: http://dirline.nlm.nih.gov
MedlinePlus: http://www.medlineplus.gov
The inclusion of an organization in this publication does not
constitute a recommendation or endorsement by the
Federal Government of an organization's services or views.
March 2005
National Library of Medicine
Líneas Telefónicas de Información sobre la
Salud: Números Gratuitos de DIRLINE
Líneas Telefónicas de Información sobre la Salud es una
recopilación de organizaciones con números para hacer
llamadas gratuitas. Esta recopilación se deriva de DIRLINE
(Directory of Information Resources Online), Directorio de
Medios de Información computarizada de la Biblioteca
Nacional de Medicina. Esta base de datos contiene las
descripciones de más de 8,000 recursos sobre información
biomédica, incluyendo organizaciones, bases de datos y
recursos de investigación, además de otra información útil.
Algunos de los temas incluídos en las Líneas Telefónicas
de Información sobre la Salud son el SIDA, el cáncer, la
salud materno-infantil, la vejez, la drogadicción, la
discapacidad y la salud mental. Las Líneas Telefónicas de
Información sobre la Salud también contienen una variedad
de números de teléfonos de grupos encargados de distribuir
información acerca de enfermedades específicas y trastornos de la salud. Estas organizaciones se agrupan bajo
varias categorías incluyendo agencias de los gobiernos
locales, estatales y federales, centros de información y
referencia, asociaciones de profesionales, grupos de apoyo,
y asociaciones de voluntarios.
Las Líneas Telefónicas de Información sobre la Salud se
provee como un servicio a la comunidad para asistir al
público a localizar información relacionada con la salud. Los
números de teléfonos gratuitos que aparecen en las Líneas
Telefónicas de Información sobre la Salud fueron
provistos por las organizaciones y verificados al momento
de imprimirse. La Biblioteca Nacional de Medicina no ha
revisado ni evaluado los servicios prestados por las
organizaciones aquí nombradas.
Visite Nuestros Sitios Web
Health Hotlines: http://healthhotlines.nlm.nih.gov
DIRLINE: http://dirline.nlm.nih.gov
MedlinePlus: http://www.medlineplus.gov
El gobierno Federal no está recomendando o endorsando
los servicios o los puntos de vista de las organizaciones
que se incluyen en esta publicación.
Marzo del 2005
Biblioteca Nacional de Medicina
AARP [+*]
Asociación Americana de Personas Jubiladas
(800) 424-2277
(888) 687-2277 (OUR AARP)
601 E Street NW
Washington, DC 20049
www.aarp.org
ABLEDATA
(Information on assistant technology products and
rehabilitation research)
(Información acerca de productos para las personas
minusválidas y discapacitadas)
(800) 227-0216
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
www.abledata.com
AboutFace [+]
(Organización que provee apoyo emocional e información a
personas con problemas faciales y a sus familias)
(Facial Disfigurement-Support)
(Grupo de apoyo para la desfiguración facial)
(888) 486-1209
(800) 665-3223
P.O. Box 969
Batavia, IL 60510
www.aboutfaceusa.org
ADA & IT Information Centers [*+]
(Americans With Disabilities Act and Information Technology
Information Center)
(Centro de Información de la Ley de Personas con Discapacidades y
Technologia de Información)
(800) 949-4232
451 Hungerford Drive, Suite 607
Rockville, MD 20850
www.adata.org
Adopt a Special Kid/AASK-America
Adopte un Niño Especial /AASK-America
(888) 680-7349
7700 Edgewater Drive, Suite 320
Oakland, CA 94621
www.adoptaspecialkid.org
After Loss
Después de la Pérdida
(Bereavement)
(Duelo)
(800) 423-8811
(888) 443-5732 (Fax)
79-301 Country Club Drive, Suite 100
Bermuda Dunes, CA 92201
www.afterloss.com
Agency for Healthcare Research and Quality [*+]
Agencia para la Calidad e Investigación de la Atención Médica
(800) 358-9295
P.O. Box 8547
Silver Spring, MD 20907-8547
www.ahrq.gov
AIDSinfo [*+]
Información acerca de investigación clínica y tratamiento del
VIH/SIDA
(800) 448-0440
P.O. Box 6303
Rockville, MD 20850
http://aidsinfo.nih.gov
Al-Anon, Alateen Family Group Meeting
Information Line [*+]
Línea de Información sobre Reuniones de Grupos de Familias AlAnon, Alateen
(888) 4-AL-ANON (425-2666)
1600 Corporate Landing Parkway
Virginia Beach, VA 23454-5617
www.AL-ANON.Alateen.org
Alcohol and Drug Helpline
Línea de Ayuda para el Alcohol y Drogas
(800) 821-HELP
7309 South 180th West
Midvale, UT 84047
www.highlandridgehospital.com
All Kids Count
Todo Niño Cuenta
National Technical Assistance Center fostering development
of integrated child health information systems.
(800) 874-4338
750 Commerce Drive, Suite 400
Decatur, GA 30030
www.allkidscount.org
2
Allergy and Asthma Network/Mothers of Asthmatics [*+]
Red de Alergias y Asma/Madres de Asmáticos
(800) 878-4403
2751 Prosperity Avenue, Suite 150
Fairfax, VA 22031
www.aanma.org
Allergy to Latex Education and Resource Team
American Latex Allergy Association [+]
Equipo de Educación y Recursos para la Alergia al Látex,
Asociación Americana de Alergia al Látex
(888) 97ALERT (972-5378)
3791 Sherman Road
Slinger, WI 53086
www.latexallergyresources.org
Alpha-1 Foundation [*+]
Fundación Alfa-1
(877) 228-7321
2937 Southwest 27th Avenue, Suite 302
Miami, FL 33133
www.alphaone.org
Alzheimer's Association [*+]
Asociación para la Enfermedad de Alzheimer
(800) 272-3900
225 North Michigan Avenue, 17th Floor
Chicago, IL 60601-7633
www.alz.org
Alzheimer's Disease Education and
Referral Center [*+]
Centro para la Educación y Consulta sobre la Enfermedad de
Alzheimer
(800) 438-4380
P.O. Box 8250
Silver Spring, MD 20907-8250
www.alzheimers.org
American Academy of Allergy, Asthma,
and Immunology [*+]
Academia Americana de Alergias, Asma e Inmunología
(800) 822-2762 (Voice and TTY)
611 East Wells Street
Milwaukee, WI 53202
www.AAAAI.org
[Symbols: * Spanish spoken; + Spanish publications available]
[Símbolos: * Se hablo Español; + Publicaciones disponibles en Español]
3
American Academy of Facial Plastic and Reconstructive
Surgery [+]
Academia Americana de Cirugía Plástica y Reconstrucción Facial
(800) 332-FACE (332-3223)
310 South Henry Street
Alexandria, VA 22314
www.aafprs.org or www.facemd.org
American Academy of Family Physicians [*+]
Academia Americana de Médicos Generales
(800) 274-2237
11400 Tomahawk Creek Parkway
Leawood, KS 66211
www.aafp.org
American Art Therapy Association [+]
Asociación Americana de Terapia de Arte
(888) 290-0878
1202 Allanson Road
Mundelein, IL 60060-3808
www.arttherapy.org
American Association for Active Lifestyles and Fitness
Asociación Americana para un Estilo de Vida Activa y Saludable
(800) 213-7193
1900 Association Drive
Reston, VA 20191-1502
www.aahperd.org
American Association for Functional Orthodontics
Asociación Americana para la Ortodoncia Funcional
(800) 441-3850
106 South Kent Street
Winchester, VA 22601
www.aafo.org
American Association of Kidney Patients [+]
Asociación Americana de Pacientes con Enfermedades del Riñón
(800) 749-2257
3505 East Frontage Road, Suite 315
Tampa, FL 33607
www.aakp.org
American Association of People with Disabilities
Asociación Americana para las Personas Discapacitadas
(866) 241-3200
1629 K Street NW, Suite 503
www.aapd-dc.org
4
American Association on Mental Retardation [*]
Asociación Americana para el Retraso Mental
(800) 424-3688
444 North Capitol Street NW, Suite 846
Washington, DC 20001-1512
www.aamr.org
American Autoimmune Related Diseases Association, Inc.
Asociación Americana de las Enfermedades Relacionadas a la
Autoinmunidad, Inc.
(800) 598-4668
22100 Gratiot Avenue
Eastpointe, MI 48021
www.aarda.org
American Behcet's Disease Association, Inc. [+]
Asociación Americana de la Enfermedad de Behcet, Inc.
(800) 7-BEHCET (723-4238)
P.O. Box 19952
Amarillo, TX 79114
www.behcets.com
American Board of Medical Specialties
Consejo Americano de Especialidades Médicas
(866) ASK-ABMS (275-2267)
1007 Church Street, Suite 404
Evanston, IL 60201-5913
www.abms.org
American Brain Tumor Association [+]
Asociación Americana sobre Tumores del Cerebro
(800) 886-2282
2720 River Road, Suite 146
Des Plaines, IL 60018
www.abta.org
American Chiropractic Association [*]
Asociación Americana de Quiroprácticos
(800) 986-4636
1701 Clarendon Boulevard, 2nd Floor
Arlington, VA 22209
www.acatoday.com
American Chronic Pain Association [+]
Asociación Americana de Dolor Crónico
(800) 533-3231
P.O. Box 850
Rocklin, CA 95677
www.theacpa.org
5
American College of Foot and Ankle Orthopedics and
Medicine
Colegio Americano de Medicina y Ortopédicos del Pie y el Tobillo
(800) 265-8263
3525 Ellicott Mills Drive, Suite N
Ellicott City, MD 21049-4547
www.acfaom.org
American Council for Drug Education
Consejo Americano para Educación sobre la Drogadicción
(800) 488-DRUG (488-3784)
164 West 74th Street
New York, NY 10023
www.drughelp.org or www.acde.org
American Council for Headache Education
Consejo Americano para la Educacion sobre el Dolor de Cabeza
(800) 255-ACHE (255-2243)
19 Mantua Road
Mount Royal, NJ 08061
www.achenet.org
American Council of the Blind National
Legislative Hotline [*]
Línea Nacional Legislativa del Consejo Americano de los Invidentes
(800) 424-8666
1155 15th Street NW, Suite 1004
www.acb.org
American Council on Alcoholism
Consejo Americano sobre el Alcoholismo
(800) 527-5344
1000 East Indian School Road
Phoenix, AZ 85014
www.aca-usa.org
American Diabetes Association [*+]
Asociación Americana de la Diabetes
(800) 342-2383
1701 North Beauregard Street
www.diabetes.org
6
American Dietetic Association [*+]
Asociación Americana de Dietéticos
(800) 877-1600
120 South Riverside Plaza, Suite 2000
Chicago, IL 60606
www.eatright.org
American Environmental Health Foundation [*]
Fundación Americana de Salud Ambiental
(800) 428-2343
8345 Walnut Hill Lane, Suite 225
Dallas, TX 75231
www.aehf.com
American Foundation for Suicide Prevention
Fundación Americana para la Prevención del Suicidio
(888) 333-AFSP (333-2377)
120 Wall Street, 22nd Floor
New York, NY 10005
www.afsp.org
American Foundation for the Blind [+]
Fundación Americana para los Invidentes
(800) AFB-LINE (232-5463)
11 Penn Plaza
New York, NY 10001
www.afb.org
American Health Assistance Foundation [*+]
Fundación Americana de Asistencia para la Salud
(Age related and degenerative diseases)
(Enfermedades degenerativas y relacionadas con la edad)
(800) 437-2423
22512 Gateway Center Drive
Clarksburg, MD 20871
www.ahaf.org
American Heart Association [*+]
Asociación Americana del Corazón
(800) 242-8721
7272 Greenville Avenue
Dallas, TX 75231-4596
www.americanheart.org
7
American Hemochromatosis Society [*]
Sociedad Americana de Hemocromatosis
(888) 655-IRON (655-4766)
4044 West Lake Mary Boulevard, # 104, PMB 416
Lake Mary, FL 32746-2012
www.americanhs.org
American Humane Association/Children's Division
Asociación Humanística Americana/División Pediátrica
(Protection of children from abuse and neglect)
(Protege a los niños contra el abuso y el abandono)
(800) 227-4645
63 Inverness Drive East
Englewood, CO 80112-5117
www.americanhumane.org
American Institute for Cancer Research
Nutrition Hotline [*+]
Instituto Americano para la Investigación del Cáncer Línea de
Información sobre Nutrición
(800) 843-8114
1759 R Street NW
www.aicr.org
American Institute for Preventive Medicine [+]
Instituto Americano para la Medicina Preventiva
(800) 345-AIPM (345-2476)
30445 Northwestern Highway, Suite 350
Farmington Hills, MI 48334
www.healthylife.com
American Institute of Ultrasound in Medicine [*]
Instituto Americano de Ultrasonidos en Medicina
(800) 638-5352
14750 Sweitzer Lane, Suite 100
Laurel, MD 20707-5906
www.aium.org
American Leprosy Missions, Inc.
Misiones Americanas sobre la Lepra, Inc.
(800) 543-3135
1 ALM Way
Greenville, SC 29601
www.leprosy.org
8
American Liver Foundation Hepatitis Hotline [*+]
Fundación Americana del Hígado Línea de Información sobre la
Hepatitis
(800) GO LIVER (465-4837)
(888) 4HEPUSA (443-7872)
(800) 223-0179
(888) 4HEPABC (443-7222)
75 Maiden Lane, Suite 603
New York, NY 10038
www.liverfoundation.org
American Lung Association [*+]
Asociación Americana del Pulmón
(800) 548-8252
3000 Kelly Lane
Springfield, IL 62711
www.lungusa.org
American Macular Degeneration Foundation [*]
Fundación Americana de la Degeneración Macular
(888) 622-8527
P.O. Box 515
Northampton, MA 01061-0515
www.macular.org
American Medical Rehabilitation Providers Association
Asociación Americana de Proveedores de Rehabilitación Médica
(888) 346-4624
1710 N Street NW
www.amrpa.org
American Orthopaedic Society for Sports Medicine
Sociedad Americana Ortopédica para la Medicina de Deportistas
(877) 321-3500
6300 North River Road, Suite 500
Rosemont, IL 60018
www.sportsmed.org
American Osteopathic Association [*+]
Asociación Americana de Osteopatía
(800) 621-1773
142 East Ontario Street
Chicago, IL 60611
www.aoa-net.org
9
American Parkinson's Disease Association, Inc. [+]
Asociación Americana de la Enfermedad de Parkinson
(800) 223-2732
1250 Hylan Boulevard, Suite 4B
Staten Island, NY 10305
www.apdaparkinson.org
American Physical Therapy Association [*]
Asociación Americana de la Terapia Física
(800) 999-2782
1111 North Fairfax Street
Alexandria, VA 22314-1488
www.apta.org
American Podiatric Medical Association [+]
Asociación Médica Americana de Podiatría
(800) FOOT-CARE (366-8227)
9312 Old Georgetown Road
Bethesda, MD 20814-1698
www.apma.org
American Psychiatric Association [*+]
Asociación Americana de Psiquiatría
(888) 35-PSYCH (357-7324)
1000 Wilson Boulevard, Suite 1825
Arlington, VA 22209-3901
www.psych.org
American Running Association
Asociación Americana para Deportistas
(800) 776-2732
4405 East-West Highway, Suite 405
Bethesda, MD 20814
www.americanrunning.org
American Society for Colposcopy and Cervical
Pathology [+]
Sociedad Americana para la Colposcopia y Patologia Cervical
(800) 787-7227
20 West Washington Street, Suite 1
Hagerstown, MD 21740
www.asccp.org
American Society for Deaf Children [*]
Sociedad Americana Para Niños Sordos
(800) 942-ASDC (942-2732)
P.O. Box 3355
Gettysburg, PA 17325
www.deafchildren.org
10
American Society of Plastic Surgeons [+]
Sociedad Americana de Cirujanos Plásticos
(888) 4PLASTIC (475-2784)
Executive Office
444 East Algonquin Road
Arlington Heights, IL 60005
www.plasticsurgery.org
American Society on Aging [*+]
Sociedad Americana de Envejecimiento
(800) 537-9728
833 Market Street, Suite 511
San Francisco, CA 94103
www.asaging.org
American Speech-Language-Hearing Association
Consumer Helpline [*+]
Asociación Americana del Habla, Lenguaje, y Audición Línea de
Ayuda al Consumidor
(800) 638-8255 (consumers)
10801 Rockville Pike
Rockville, MD 20852
www.asha.org
American Stroke Association [*+]
Asociación Americana de la Apoplejía
(888) 4-STROKE
Dallas, TX 75231
www.strokeassociation.org
American Sudden Infant Death Syndrome Institute
Instituto Americano del Síndrome de Muerte Súbita Infantil
(800) 232-SIDS (232-7437)
509 Augusta Drive
Marietta, GA 30067
www.sids.org
American Syringomyelia Alliance Project
Proyecto de la Alianza Americana de Siringomielia
(800) ASAP-282 (272-7282)
P.O. Box 1586
Longview, TX 75606-1586
www.asap.org
11
American Tinnitus Association [+]
Asociación Americana de Tinitus
(800) 634-8978
P.O. Box 5
Portland, OR 97207
www.ata.org
American Trauma Society
Sociedad Americana de Traumatología
(800) 556-7890
8903 Presidential Parkway, Suite 512
Upper Marlboro, MD 20772
www.amtrauma.org
Amputee Coalition of America [+]
Coalición Americana de Personas Amputadas
(888) 267-5669
900 East Hill Avenue, Suite 285
Knoxville, TN 37915
www.amputee-coalition.org
Amyloidosis Network International, Inc. [*]
Red Internacional de Amiloidosis
(888) AMYLOID (269-5643)
7118 Cole Creek Drive
Houston, TX 77092-1421
Amyotrophic Lateral Sclerosis Association [+]
Asociación de la Esclerosis Lateral Amiotrófica
(800) 782-4747
27001 Agoura Road, Suite 150
Calabasa Hills, CA 91301-5104
www.alsa.org
Angel Flight America [*+]
Transporte aéreo médico para las personas necesitadas
(Air transport for the needy)
(Transporte aéreo para las personas necesitadas)
(877) 621-7177
(888) 426-2643 (Spanish)
2430 Winchester Road
Hanger 16, Suite 100
Memphis, TN 38116
www.angelflightamerica.org
12
Angelman Syndrome Foundation [*+]
Fundación del Síndrome de Angelman
(800) 432-6435
3015 East New York Street, Suite A2265
Aurora, IL 60504
www.angelman.org
Aplastic Anemia and MDS International
Foundation, Inc. [*+]
Fundación Internacional de la Anemia Aplásica y MDS, Inc.
(800) 747-2820
P.O. Box 613
Annapolis, MD 21404
www.aamds.org
Arc of the United States [*+]
El Arco de los Estados Unidos
(Mental retardation)
(Retardo mental)
(800) 433-5255
1010 Wayne Avenue, Suite 650
www.thearc.org
Architectural and Transportation Barriers
Compliance Board
Junta para Acuerdos con Respecto a las Barreras Arquitectónicas y
de Transporte
(800) USA-ABLE (872-2253)
1331 F Street NW, Suite 1000
www.access-board.gov
Arthritis Foundation [*+]
Fundación para la Artritis
(800) 283-7800
1330 West Peachtree Street
Atlanta, GA 30309
www.arthritis.org
ASPCA National Animal Poison Control Center [*]
Centro Nacional para el Control del Envenanamiento de los
Animales de ASPCA
(800) 548-2423
(888) 426-4435
1717 South Philo Road, Suite 36
Urbana, IL 61802
www.apcc.aspca.org
13
Association for Children for Enforcement of Support [+]
Asociación para la Ejecución de las Leyes de Sustento de Menores
(800) 738-2237
2260 Upton Avenue
Toledo, OH 43606
www.childsupport-aces.org
Association of Late Deafened Adults
Asociación de los Adultos que han Perdido la Audición
(877) 907-1738
1145 Westgate Street, Suite 206
Oak Park, IL 60301
www.alda.org
Asthma and Allergy Foundation of America [+]
Fundación Americana del Asma y las Alergias
(800) 7-ASTHMA (727-8462)
www.aafa.org
Ataxia Telangiectasia (A-T) Children's Project [*]
Proyecto de Ataxia Telangiectasia de Niños
(800) 5-HELP-A-T (543-5728)
668 South Military Trail
Deerfield Beach, FL 33442
www.atcp.org
Auto Safety Hotline
National Highway Traffic Safety Administration [*+]
Línea de Información acerca de la Seguridad Automovilística
Administración Nacional para la Seguridad del Tráfico en las
Carreteras
(800) 424-9393
(888) 327-4236
400 7th Street SW, Room 5319
www.nhtsa.dot.gov
Back to Sleep Program Hotline
National Institute of Child Health and Human
Development [*+]
Línea de Información sobre el Programa "Ponga al bebé a dormir
sin peligro" Instituto Nacional de Salud Infantil y Desarollo
Humano
(800) 505-CRIB (505-2742)
P.O. Box 3006
Rockville, MD 20847
www.nichd.nih.gov
14
Batten Disease Support and Research Association [+]
Asociación para el Apoyo y la Investigación de la Enfermedad de
Batten
(800) 448-4570
120 Humphries Drive, Suite 2
Reynoldsburg, OH 43068
www.bdsra.org
Beckwith-Wiedemann Support Network
Red de Apoyo de Beckwith-Wiedemann
(800) 837-2976
2711 Colony Road
Ann Arbor, MI 48104
www.beckwith-wiedemann.org
Beststart Social Marketing [*+]
Mercadeo Social para el Buen Comienzo
(Promotes breastfeeding for the economically disadvantaged)
(Promueve la lactancia para los niños en desventaja económica)
(800) 277-4975
4809 East Busch Boulevard, Suite 104
Tampa, FL 33617
www.beststartinc.org
Better Hearing Institute Hearing Helpline
Instituto para una Buena Audición Línea de Información del
Instituto para una Buena Audición
(888) 432-7435
515 King Street, Suite 420
www.betterhearing.org
Blind Children's Center [*+]
Centro para Niños Ciegos
(800) 222-3566
(800) 222-3567 (within California)
4120 Marathon Street
Los Angeles, CA 90029
www.blindchildrencenter.org
Blinded Veterans Association
Asociación de Veteranos Ciegos
(800) 669-7079
477 H Street NW
www.bva.org
15
Braille Institute [*]
Instituto Braille
(800) BRAILLE (272-4553)
741 North Vermont Avenue
Los Angeles, CA 90029-3594
www.brailleinstitute.org
Brain Injury Association of America
Family Helpline [*+]
Asociación de Lesiones Cerebrales, Línea de Información Familiar
(800) 444-6443
8201 Greensboro Drive, Suite 611
McLean, VA 22102
www.biausa.org
Brain Tumor Society
Sociedad de Tumores Cerebrales
(800) 770-8287
124 Watertown Street, Suite 3H
Watertown, MA 02472
www.tbts.org
Bureau for At-Risk Youth [*+]
Agencia para la Juventud en Riesgo
(800) 999-6884
135 Dupont Street
P.O. Box 9120
Plainview, NY 11803-9020
www.at-risk.com
Business Responds to AIDS and Labor Responds to AIDS
Programs [*+]
El Mundo Empresarial Resonde al SIDA y Los Trabajadores
Responden al SIDA
(877) 242-9760
P.O. Box 6003
Rockville, MD 20849-6003
www.hivatwork.org
Cancer Care [*+]
Cuidado del Cancer
(800) 813-HOPE (813-4673) (Línea de consejería)
275 7th Avenue
New York, NY 10001
www.cancercare.org
16
Cancer Hope Network
Red de Esperanza para el Cáncer
(Patients and families dealing with cancer and treatment)
(Pacientes y familiares enfrentados al cáncer y su tratamiento)
(877) HOPE-NET (467-3638)
2 North Road, Suite A
Chester, NJ 07930
www.cancerhopenetwork.org
Cancer Hot Line and R.A. Bloch Cancer Foundation [*+]
Línea de Información del Cáncer y Fundación de Cancer R.A. Bloch
(800) 433-0464
4400 Main Street
Kansas City, MO 64111
www.blochcancer.org
Cancer Information Service [*+]
Servicio de Información sobre el Cáncer
(800) 4-CANCER (422-6237)
(800) 332-8615 (TTY)
Cancer Information Services
6116 Executive Boulevard, Room 3035A
Rockville, MD 20852
www.cancer.gov
Candlelighters Childhood Cancer Foundation [+]
Fundación Candlelighters para el Cáncer Infantil
(800) 366-CCCF (366-2223)
3910 Warner Street
Kensington, MD 20895
www.candlelighters.org
CDC National Immunization Information Hotline
American Social Health Association [*+]
Línea Directa de Información sobre las Vacunas del Centro para el
Control de las Enfermedades, Asociación Americana de Salud
Social
(800) 232-2522 (English)
(800) 232-0233 (Spanish)
(800) 243-7889 (TTY)
P.O. Box 13827
Research Triangle Park, NC 27709
www.vaccines.ashastd.org
17
CDC National Prevention Information Network [*+]
Red Nacional de Información sobre la Prevención del Centro para
el Control de las Enfermedades
(800) 458-5231
(800) 243-7012 (TTY)
P.O. Box 6003
www.cdcnpin.org
CDC National STD and AIDS Hotline [*+]
Línea nacional de ETS y SIDA de los Centros de Control y
Prevención de Enfermedades
(800) 342-AIDS (342-2437)
(800) 344-SIDA (344-7432) (Spanish)
(800) AIDS-TTY (243-7889) (Hearing impaired)
P.O. Box 13827
Research Triangle Park, NC 27709
www.cdc.gov/hiv/hivinfo/nah.htm
Center for Bloodless Medicine and Surgery [*+]
Centro para Medicina y Cirugía sin Sangre
(800) 664-2533
Jackson Memorial Hospital
1611 Northwest 12th Avenue
Miami, FL 33136
www.noblood-miami.com
Center for Persons with Disabilities [*+]
Centro para las Personas con Discapacidades
(866) 284-2821
6800 Old Main Hill
Logan, UT 84322-6800
www.cpd.usu.edu
Centers for Disease Control and Prevention [*+]
Centros para el Control y la Prevención de Enfermedades
(800) 311-3435
1600 Clifton Road
Atlanta, GA 30329-4018
www.cdc.gov
Centers for Medicare and Medicaid Servcies [*+]
Centros para los Servicios de Medicare y Medicaid
(877) 267-2323
(866) 226-1819 (TTY)
7500 Security Boulevard
Baltimore, MD 21244-1850
www.cms.hhs.gov
18
Charcot-Marie-Tooth Association [+]
Asociación de Charcot-Marie-Tooth
(Inherited neuromuscular disorder)
(Desorden neuromuscular hereditario)
(800) 606-2682
2700 Chestnut Street
Chester, PA 19013
www.charcot-marie-tooth.org
CHARGE Syndrome Foundation [*+]
Fundación del Síndrome CHARGE
(Coloboma heart malformations, afresia of the choanoe,
retardation of growth or development, genital hypoplasia and
ear anomalies)
(Coloboma, malformación del Corazón, atreasia del coana, retardo en
el crecimiento o desarrollo, hipoplasia genital y anormalidades del
oído)
(800) 442-7604
409 Vandiver Drive, Suite 5-104
Columbia, MO 65202-1563
www.chargesyndrome.org
Chemtrec [*+]
(National Chemical Response and Information Center)
(Centro de Referencia Química, Centro Nacional de Información y
Respuesta Química)
(800) 424-9300
1300 Wilson Boulevard
Arlington, VA 22209
www.chemtrec.com
Child Find of America, Inc.
Encuentre al Niño de América
(Locating missing children)
(Búqueda de niños perdidos)
(800) I-AM-LOST (426-5678)
(800) 292-9688 (Support Services & Mediation)
P.O. Box 277
New Paltz, NY 12561
www.childfindofamerica.org
Childhelp USA [*+]
Ayuda para el Niño, USA
(National Child Abuse Hotline)
(Linea Nacional de Ayuda para el Niño Maltratado)
(800) 4-A-CHILD (422-4453)
15757 North 78th Street
Scottsdale, AZ 85260
www.childhelpusa.org
19
Children Anguished with Lymphatic Malformations [*]
Niños Angustiados por Malformaciones Linfáticas
(877) 570-2256
11413 Prestige Drive
Frisco, TX 75034
www.staycalm.org
Children of Aging Parents
Niños de Padres Envejecientes
(800) 227-7294
P.O. Box 167
Richboro, PA 18954
www.caps4caregivers.org
Children's AIDS Fund
Fondo Juvenile del SIDA
(866) 829-1560
P.O. Box 16433
www.childrensaidsfund.org
Children's Brain Tumor Foundation [+]
Fundación de Tumores Cerebrales Infantiles
(866) 228-4673
274 Madison Avenue, Suite 1301
New York, NY 10016
www.cbtf.org
Children's Craniofacial Association
Asociación Craneofacial de Niños
(800) 535-3643
13140 Coit Road, Suite 307
Dallas, TX 75240
www.ccakids.com
Children's Defense Fund [+]
Fondo para la Defensa de los Niños
(800) 233-1200
25 E Street NW
www.childrensdefense.org
Children's Hospice International
Hospicio Internacional para Niños
(800) 242-4453
901 North Pitt Street, Suite 230
www.chionline.org
20
Children's PKU Network [+]
Red de Niños con Fenilcetonuria (PKU)
(800) 377-6677
3790 Via De La Valle, Suite 120
Del Mar, CA 92014
www.pkunetwork.org
Choice Magazine Listening
Selección de Revistas para Escuchar
Tapes for visually-impaired and physically handicapped
(888) 724-6423
85 Channel Drive
Port Washington, NY 11050
www.choicemagazinelistening.org
Christopher Reeve Paralysis Foundation [*]
Fundación de Parálisis Christopher Reeve
(800) 539-7309 (resource center)
500 Morris Avenue
Springfield, NJ 07081
www.christopherreeve.org
Chronic Fatigue and Immune Dysfunction Syndrome
(CFIDS) Association [+]
Asociación del Síndrome de la Fatiga Crónica y el Síndrome de
Disfunción Inmunitaria
(800) 442-3437
P.O. Box 220398
Charlotte, NC 28222
www.cfids.org
Citizens for Better Care
Ciudadanos para un mejor cuidado
(Nursing home advocacy and information)
(Información y apoyo de los asilos)
(800) 833-9548
4750 Woodward Avenue, Suite 410
Detroit, MI 48201-1308
www.cbcmi.org
Cleft Palate Foundation [*+]
Fundación del Labio Leporino
(800) 24-CLEFT (242-5338)
104 South Estes Drive, Suite 204
Chapel Hill, NC 27514
www.cleftline.org
21
Cocaine Anonymous World Service Office, Inc. [*]
Oficina Mundial de Servicios para Cocainómanos Anónimos, Inc.
(800) 347-8998
3740 Overland Avenue, Suite C
www.ca.org
Community Transportation Association of America
Asociación de Transporte Comunitario de América
(800) 527-8279
1341 G Street NW, 10th Floor
www.ctaa.org
Compassionate Friends [+]
Amigos Compasivos
(Grief resolution after death of a child)
(Solución a la pena después de la muerte de un niño)
(877) 969-0010
P.O. Box 3696
Oak Brook, IL 60522-3696
www.compassionatefriends.org
Compeer [+]
Compañero-Amigo de niños o adultos que reciben tratamiento
mental
(Volunteer friends for children and adults who receive mental
health treatment)
(Compañero-Amigo de niños o adultos que reciben tratamiento
mental)
(800) 836-0475
Monroe Square
259 Monroe Avenue
Rochester, NY 14607
www.compeer.org
Concerned United Birthparents, Inc.
Grupo de personas conmovidas por la adopción
(Adoption issues)
(Asuntos sobre adopción)
(800) 822-2777
P.O. Box 230457
Encinitas, CA 92023
www.cubirthparents.org
22
Cooley's Anemia Foundation [+]
Fundación de Anemia Cooley
(800) 522-7222
129-09 26th Avenue, Suite 203
Flushing, NY 11354
www.cooleysanemia.org
Cornelia de Lange Syndrome Foundation [+]
Fundación del Síndrome Cornelia de Lange
(Birth defects information)
(Información sobre defectos congénitos)
(800) 223-8355
(800) 753-2357
302 West Main Street, Suite 100
Avon, CT 06001-4331
www.cdlsusa.org
Corporate Angel Network, Inc.
Transporte para Pacientes con Cáncer
(Flights on corporate jets to and from recognized cancer
treatment centers)
(Vuelos en aviones corporativos hacia y desde centros de tratamiento
de cáncer reconocidos)
(866) 328-1313
Westchester County Airport
1 Loop Road
White Plains, NY 10604
www.corpangelnetwork.org
Covenant House [*+]
La Casa del Convenio
(Homeless youth-various locations in United States and
Canada)
(Centros en Estados Unidos y Canadá para jóvenes sin hogar)
(800) 999-9999
(800) 999-9915 (TTY)
New York, NY 10011
www.covenanthouseny.org
Crohn's and Colitis Foundation of America, Inc. [*]
Fundación de la Enfermedad de Crohn y Colitis de América, Inc.
(800) 932-2423
386 Park Avenue South
New York, NY 10016
www.ccfa.org
23
Cure Autism Now [*]
Curar el Autismo
(888) 8AUTISM
5455 Wilshire Boulevard, Suite 715
www.cureautismnow.org
Cystic Fibrosis Foundation [+]
Fundación para la Fibrosis Cística
(800) 344-4823
6931 Arlington Road, Suite 200
Bethesda, MD 20814
www.cff.org
Cystinosis Foundation, Inc. [*+]
Fundación de Cistinosis, Inc.
(800) 392-8458
604 Vernon Street
Oakland, CA 94610
www.cystinosisfoundation.org
Dana-Farber Cancer Institute [*]
Instituto de Cáncer Dana-Farber
(866) 408-3324
44 Binney Street
Boston, MA 02115
www.dfci.harvard.edu
Danny Foundation [+]
Fundación Danny
(Baby crib safety)
(Seguridad cuando el bebé duerme)
(800) 83-DANNY (833-2669)
P.O. Box 680
Alamo, CA 94507
www.dannyfoundation.org
Dave Thomas Foundation for Adoption
Fundación para la Adopción Dave Thomas
(800) 275-3832
4150 Tuller Road, Suite 204
Dublin, OH 43017
www.davethomasfoundationforadoption.org
24
Department of Housing and Urban Development
HUD USER [+]
Departamento de Vivienda y Desarrollo Urbano
(Database searches, bibliographies, document delivery on
housing)
(Búsquedas en base de datos, bibliografías y entrega de documentos
sobre la vivienda)
(800) 245-2691
(800) 483-2209 (TTY)
P.O. Box 23268
www.huduser.org
Depression After Delivery-National
Grupo Nacional sobre la Depresión Posparto
(800) 944-4773
P.O. Box 27891
East Somerset Street
Raritan, NJ 08869
www.depressionafterdelivery.com
Depression and Bipolar Support Alliance [*+]
Alianza de Apoyo para la Depresión y el Trastorno Bipolar (DBSA)
(800) 82-NDMDA (826-3632)
730 North Franklin Street, Suite 501
Chicago, IL 60610
www.DBSalliance.org
DES Action USA [*+]
Apoyo e información para las mujeres y los niños expuestos a
dietistilbestrol
(800) DES-9288
610 16th Street, Suite 301
Oakland, CA 94612
www.desaction.org
Devereux Foundation [+]
Fundación Devereux
(Services to children, adults, and families with special needs)
(Servicios para los niños, adultos y familias con necesidades
especiales)
(800) 345-1292
444 Deveroux Drive
Villanova, PA 19085
www.devereux.org
25
Disabilities Information Access Line (DIAL) [*]
Línea de Acceso a Información sobre Discapacidades
(800) 922-3425
647 Main Street
Baton Rouge, LA 70802
www.laddc.org/dial.htm
Disabled and Alone/Life Services for the Handicapped
Solo y Discapacitado/Servicios Vitales para el Minusválido
(800) 995-0066
352 Park Avenue South, 11th Floor
New York, NY 10010
www.disabledandalone.org
EAR Foundation
Fundación del Oído
(800) 545-HEAR
1817 Patterson Street
Nashville, TN 37203
www.earfoundation.com
Easter Seals National Headquarters [*+]
Oficina Nacional de Easter Seals
(800) 221-6827
230 West Monroe Street, Suite 1800
Chicago, IL 60606
www.easterseals.org
Eldercare Locator
National Association of Area Agencies on Aging [*+]
Centro Localizador de Servicios de Cuidado para el Anciano,
Asociación Nacional de Agencias para el Envejeciente
(800) 677-1116
1730 Rhode Island Avenue NW
www.n4a.org/locator.cfm
Elizabeth Glaser Pediatric AIDS Foundation [*+]
Fundación Elizabeth Glaser para el SIDA Pediátrico
(888) 499-HOPE (499-4673)
2950 31st Street, #125
Santa Monica, CA 90405
www.pedaids.org
26
Endometriosis Association [*+]
Asociación de la Endometriosis
(800) 992-ENDO (992-3636)
International Headquarters
8585 North 76th Place
Milwaukee, WI 53223
www.endometriosisassn.org
Epilepsy Foundation of America [*+]
Fundación Americana de la Epilepsia
(800) EFA-1000 (332-1000)
4351 Garden City Drive
Landover, MD 20785
www.epilepsyfoundation.org
Epilepsy Information Service
Wake Forest University School of Medicine
Servicio de Información sobre la Epilepsia, Facultad de Medicina
de la Universidad Wake Forest
(Comprehensive epilepsy program)
(Programa completo sobre la epilepsia)
(800) 642-0500
Medical Center Boulevard
Winston-Salem, NC 27157-1078
www.wfumc.edu/neuro/epilepsy/information.htm
Eyecare America [+]
Cuidado para la Vista
(Elderly/For those without insurance)
(800) 222-EYES (222-3937)
P.O. Box 429098
San Francisco, CA 94142-9098
www.eyecareamerica.org
FACES: The National Craniofacial Association
FACES: Asociación Nacional Craneofacial
(800) 3-FACES-3 (332-2373)
P.O. Box 11082
Chattanooga, TN 37401
www.faces-cranio.org
Families Anonymous [+]
Familias Anónimas
(Families coping with drug abuse and alcohol)
(Familias enfrentadas a la drogadicción y el alcoholismo)
(800) 736-9805
P.O. Box 3475
Culver City, CA 90231-3475
www.familiesanonymous.org
27
Families of Spinal Muscular Atrophy [*+]
Familias de Personas con Atrofia Musculoespinal
(800) 886-1762
P.O. Box 196
Libertyville, IL 60048-0196
www.fsma.org
Family Caregiver Alliance [*+]
Alianza de Familias que Cuidan o Atienden a los Enfermos
(800) 445-8106
180 Montgomery Street, Suite 1100
www.caregiver.org
Family Empowerment Network
Supporting Families Affected by FAS/FAE
Red de Apoyo para Familias Afectadas por el Síndrome de
Alcoholismo Fetal/Efectos del Alcoholismo fetal
(800) 462-5254
UW Department of Family Medicine
777 South Mills Street
Madison, WI 53715
www.fammed.wisc.edu/fen
Family Voices [*+]
Voces de Familia
(Children with special health needs)
(Niños con necesidades médicas especiales)
(888) 835-5669
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
www.familyvoices.org
Farm Safety 4 Just Kids [+]
Prevención de accidentes de niños en tareas rurales
(800) 423-5437
P.O. Box 458
Earlham, IA 50072
www.fs4jk.org
Federal Citizen Information Center [*+]
Centro Federal de Información para Ciudadanos
(800) FED-INFO (333-4636)
P.O. Box 450
Camby, IN 46113
www.pueblo.gsa.gov
28
Female Health Foundation
Fundación Salud Femenina
(800) 635-0844
515 North State Street, Suite 2225
Chicago, IL 60610
www.femalehealth.com
Fibromyalgia Network [*+]
Red de Información sobre la Fibromialgia
(800) 853-2929
P.O. Box 31750
Tucson, AZ 85751-1750
www.fmnetnews.com
First Candle SIDS Alliance [*+]
Alianza First Candle para el Sindrome de Muerte Súbita Infantil
(800) 221-7437
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
www.firstcandle.org
Food Allergy and Anaphylaxis Network [+]
Red de Información sobre Alergias a los Alimentos
(800) 929-4040
11781 Lee Jackson Highway, Suite 160
Fairfax, VA 22033
www.foodallergy.org
Food and Drug Administration
Division of Drug Information
Administración de Alimentos y Medicamentos de los Estados
Unidos, División de Información sobre Medicament
(800) 238-7332
(888) Info-FDA (463-6332)
5600 Fishers Lane (HFE-88)
Rockville, MD 20857
www.fda.gov/cder/offices/ddi/
Forward Face
Apoyo para las Familias con Niños con Desfiguración de la Cara
(Charity foundation for children with craniofacial problems)
(Fundación benéfica para niños con problemas craneofaciales)
(800) FWD-FACE (393-3223)
317 East 34th Street, Suite 901A
New York, NY 10016
www.forwardface.org
29
Foundation Fighting Blindness
Fundación para la Lucha contra la Ceguera
(800) 683-5555
(800) 683-5551 (TTY)
11435 Cronhill Drive
Owings Mills, MD 21117-2220
www.blindness.org
Foundation for Aquatic Injury Prevention
Fundación para la Prevención de Lesions de Deportes Acuáticos
(800) 342-0330
11230 White Lake Road
Fenton, MI 48430
www.aquaticisf.org
Foundation for Nager and Miller Syndromes (FNMS)[*]
Fundación para los Síndromes Nager y Miller
(800) 507-FNMS (507-3667)
1827 Grove Street, #2
Glenview, IL 60025-2913
www.nagerormillersynd.com
Foundation for Spinal Cord Injury Prevention, Care and
Cure (FSCIPCC)
Fundación para la Prevención, Cuidado y Cura de Lesiones de la
Médula Espinal
(800) 342-0330
11230 White Lake Road
Fenton, MI 48430
www.fscip.org
Fox Chase Cancer Center
Centro de Cáncer Fox Chase
(888) 369-2427
333 Cottnan Avenue
Philadelphia, PA 19111
www.fccc.edu
Friend's Health Connection
(Support for people with similar health problems)
(Grupo de apoyo para poner en contacto a personas con
problemas de salud similares)
(800) 483-7436
P.O. Box 114
New Brunswick, NJ 08903
www.friendshealthconnection.org
30
Funeral Service Consumer Assistance Program
Programa de Asistencia al Consumidor para Servicios de Funeraria
(800) 662-7666
PO Box 486
Elm Grove, WI 53122-0486
www.fsef.org
Genetic Alliance
Alianza Genética
(800) 336-4363
4301 Connecticut Avenue NW, Suite 404
www.geneticalliance.org
Genetic and Rare Diseases Information Center
National Human Genome Research Institute [*+]
Centro de Información de Enfermedades Raras y Genéticas,
Instituto Nacional de Investigación del Genoma Humano
(888) 205-2311
(888) 205-3223 (TTY)
P.O. Box 8126
Gaithersburg, MD 20898-8126
www.genome.gov/10000409
Gilda Radner Familial Ovarian Cancer Registry
Roswell Park Cancer Institute [*]
Registro Gilda Radner de Cáncer Ovárico de Familia del Instituto
de Cáncer Roswell Park
(800) OVARIAN (682-7426)
Elm and Carlton Streets
Buffalo, NY 14263
www.ovariancancer.com
Girls and Boys Town National Hotline [*+]
Línea de Información Nacional de Girls and Boys Town
(800) 448-3000
13940 Gatowski Road
Boys Town, NE 68010
www.girlsandboystown.org
31
Gladney Center for Adoption [*+]
Centro de Adopción Gladney
(Maternity home and child placement agency)
(Hogar de maternidad y agencia de adopción niño)
(800) GLADNEY (452-3639)
6300 John Ryan Drive
Fort Worth, TX 76132
www.gladney.org
Glaucoma Research Foundation [*+]
Fundación para la Investigación de la Glaucoma
(800) 826-6693
490 Post Street, Suite 1427
www.glaucoma.org
Grandparent Information Center
American Association of Retired Persons [*+]
Centro de Información para los Abuelos, Asociación Americana de
Jubilados
(888) 687-2277 (our AARP)
601 E Street NW
www.aarp.org/grandparents/
Guide Dog Foundation for the Blind
Fundación de Perros Guía para Ciegos
(800) 548-4337
371 East Jericho Turnpike
Smithtown, NY 11787-2976
www.guidedog.org
Guide Dogs for the Blind, Inc. [*+]
Perros Guías para Ciegos
(800) 295-4050
P.O. Box 151200
San Rafael, CA 94915-1200
www.guidedogs.com
Guide Dogs of America
Perros Guía de América
(800) 459-4843
13445 Glenoaks Boulevard
Sylmar, CA 91342
www.guidedogsofamerica.org
32
Health Care for the Homeless Information
Resource Center
Centro de Información de Cuidado Médico para Personas sin
Hogar
(888) 439-3300, ext 247
345 Delaware Avenue
Delmar, NY 12054
www.hchirc.bphc.hrsa.gov
Health Resource Center on Domestic Violence
Family Violence Prevention Fund [*]
Centro de Información sobre Violencia Doméstica, Fondo de
Prevención de Violencia Familiar
(888) 792-2873
(800) 595-4889 TTY
383 Rhode Island Street, Suite 304
www.endabuse.org
Health Resources and Services Administration Information
Center [*+]
Centro Nacional para la Distribución de Información sobre la
atención primaria de la Salud
(888) 275-4772 (ASK-HRSA)
8280 Greensboro Drive, Suite 300
McLean, VA 22102
www.ask.hrsa.gov
HEAR NOW
Escuche Ahora
(800) 648-HEAR (648-4327)
6700 Washington Avenue South
Eden Prarie, MN 55344
www.sotheworldmayhear.org
Heart Information Service, Texas Heart Institute [*+]
Servicio de Información sobre el Corazón, Instituto de Cardiología
de Texas
(800) 292-2221
6770 Bertner Avenue
Houston, TX 77030
www.texasheartinstitute.org
Heartbeat International
(888) 550-7577
665 East Dubline-Granville Road, Suite 440
Columbus, OH 43229
www.heartbeatinternational.org
33
Heartspring [*]
(Programs for multiply disabled children)
(Programas para niños con múltiples discapacidades)
(800) 835-1043
8700 East 29th Street North
Wichita, KS 67226-2169
www.heartspring.org
Hemophilia and AIDS/HIV Network for the Dissemination
of Information (HANDI) [*+]
Red para la Diseminación de Información sobre la Hemofilia y el
VIH/SIDA
(800) 424-2634
116 West 32nd Street, 11th Floor
New York, NY 10001
www.hemophilia.org
Hepatitis Foundation International [+]
Fundación Internacional de la Hepatitis
(800) 891-0707
504 Blick Drive
www.hepatitisfoundation.org
Hereditary Hemorrhagic Telangiectasia Foundation
International
Fundación Internacional de Telangiectasia Hemorrágica
Hereditaria
(800) 448-6389
P.O. Box 329
Monkton, MD 21111
www.HHT.org
Hermansky-Pudlak Syndrome Network, Inc. [*+]
Red de Información del Síndrome Hermansky-Pudlak
(800) 789-9477
1 South Road
Oyster Bay, NY 11771
www.hermansky-pudlak.org or www.hpsnetwork.org
Histiocytosis Association of America [*+]
Asociación Americana de la Histiocitosis
(800) 548-2758
72 East Holly Avenue, Suite 101
Pittman, NJ 08071
www.histio.org
34
Hospice Education Institute
Instituto de Educación sobre Hospicios
(One-to-one support for patients and families)
(Apoyo personalizado para los pacientes y sus familias)
(800) 331-1620
3 Unity Square
P.O. Box 98
Machiasport, ME 04655
www.hospiceworld.org
Human Growth Foundation [+]
Fundación del Crecimiento Físico Humano
(Child growth abnormalities)
(Ofrece ayuda a niños con problemas del crecimiento)
(800) 451-6434
997 Glen Cove Avenue, Suite 5
Glen Head, NY 11545
www.hgfound.org
Huntington's Disease Society of America [*]
Sociedad Americana de la Enfermedad de Huntington
(800) 345-4372
158 West 29th Street, 7th Floor
New York, NY 10001
www.hdsa.org
Hydrocephalus Association [+]
Asociación de Hidrocefalia
(888) 598-3789
870 Market Street, Suite 705
www.hydroassoc.org
Hysterectomy Educational Resources and Services [*+]
Recursos Educativos y Servicios para la Histerectomía
(888) 750-HERS
422 Bryn Mawr Avenue
Bala Cynwyd, PA 19004
www.hersfoundation.com
35
Immune Deficiency Foundation [+]
Fundación para la Deficiencia Inmunitaria
(800) 296-4433
40 West Chesapeake Avenue, Suite 308
Towson, MD 21204
www.primaryimmune.org
Indoor Air Quality Information Clearinghouse [*+]
Centro de Información Acerca de la Calidad del Aire Interior
(800) 438-4318
P.O. Box 37133
www.epa.gov/iaq/
Inspector General's Hotline
Department of Health and Human Services [*]
Línea Directa de Información de la oficina del Inspector General
Departamento de Salud y Servicios Sociales
(Reporting fraud, waste, and abuse in HHS programs)
(Comunicación de fraude, desperdicio y abuso en los programas del
HHS)
(800) HHS-TIPS (447-8477)
P.O. Box 23489
www.hhs.gov
International Association of Laryngectomees
Asociación Internacional de Pacientes de Laringectomía
(866) IAL-FORU (425-3678)
8900 Thornton Road, Box 99311
Stockton, CA 95209
www.larynxlink.com
International Childbirth Education Association [+]
Asociación Internacional de Educación sobre el Parto
(800) 624-4934
P.O. Box 20048
Minneapolis, MN 55420-0048
www.icea.org
International Diabetes Center [*+]
Centro Internacional de Diabetes
(888) 825-6315
(800) 325-0778 TTY
3800 Park Nicollet Boulevard
Minneapolis, MN 55146
www.parknicollet.com/diabetes/
36
International Dyslexia Association [+]
Asociación Nacional de Dislexia
8600 LaSalle Road, Suite 382
Chester Building
www.interdysk.org
International Essential Tremor Foundation [+]
Fundación Internacional de Tremor Esencial
(888) 387-3667
P.O. Box 14005
Lenexa, KS 66285
www.essentialtremor.org
International Foundation for Functional Gastrointestinal
Disorders (IFFGD)
Fundación Internacional para el Trastorno Gastrointestinal
Funcional
(888) 964-2001
P.O. Box 170864
Milwaukee, WI 53217-8076
www.iffgd.org
International Hearing Society Hearing Aid Helpline
Sociedad Internacional de la Audición Línea de Ayuda, Información
sobre Aparatos de Audición
(800) 521-5247
16880 Middlebelt Road, Suite 4
Livonia, MI 48154
www.ihsinfo.org
International Myeloma Foundation [*+]
Fundación Internacional del Mieloma
(800) 452-CURE (452-2873)
12650 Riverside Drive, Suite 206
North Hollywood, CA 91607-3421
www.myeloma.org
International Rett Syndrome Association [+]
Asociación Internacional del Síndrome de Rett
(800) 818-7388
9121 Piscataway Road, Suite 2B
Clinton, MD 20735
www.rettsyndrome.org
37
Interstitial Cystitis Association [+]
Asociación de la Cistitis Intersticial
(800) HELP-ICA (435-7422)
110 North Washington Street, Suite 340
Rockville, MD 20850
www.ichelp.org
Job Accommodation Network [*+]
Red de Información para la Ubicación de Empleo
(Information resource about accomodations & information
under ADA)
(Recurso de información sobre el acomodamiento en el lugar de
empleo y información de la ley ADA)
(800) 526-7234
P.O. Box 6080
Morgantown, WV 26506-6080
www.jan.wvu.edu
Johns Hopkins Hereditary Colorectal Cancer Registry
Registro del Cáncer Colorrectal Hereditario de Johns Hopkins
(888) 77-COLON (772-6566)
550 North Broadway, Suite 108
http://hopkins-gi.nts.jhu.edu/edu/pages/latin/templates/?pg=hcc4
Juvenile Diabetes Research Foundation International
Fundación Internacional de la Diabetes Juvenil
(800) 533-2873
120 Wall Street, 19th Floor
New York, NY 10005
www.jdrf.org
Juvenile Justice Clearinghouse
Department of Justice [*+]
Centro de Información sobre Justicia Juvenil, Departamento de
Justicia
(800) 851-3420
P.O. Box 6000
www.ncjrs.org
Kidney and Urology Foundation of America [*]
Fundación Americana de los Riñones y la Urología
(800) 633-6628
1250 Broadway, Suite 2001
New York, NY 10001
www.kidneyurology.org
38
Kidney Cancer Association [+]
Asociación de Cáncer del Riñón
(800) 850-9132
1234 Sherman Avenue, Suite 203
Evanston, IL 60202
www.curekidneycancer.org
Kidsrights [*+]
Derecho Infantil
(Children's rights and family issues)
(Derecho infantil y asuntos familiares)
(800) 892-5437
8902 Otis Avenue
Indianapolis, IN 46216
www.jistlife.com
La Leche League International [*+]
Liga Internacional La Leche
(Breastfeeding)
(Lactancia)
(800) LA LECHE (525-3243)
1400 North Meacham Road
P.O. Box 4079
Schaumburg, IL 60173-4808
www.lalecheleague.org
Lamaze International [+]
Lamaze Internacional
(800) 368-4404
2025 M Street NW, Suite 800
www.lamaze.org
Laser Institute of America
Instituto Laser de América
(800) 34-LASER (345-2737)
13501 Ingenuity Drive, Suite 128
Orlando, FL 32826
www.laserinstitute.org
Leader Dogs for the Blind [+]
Perros Guía para los Ciegos
(888) 777-5332
P.O. Box 5000
Rochester, MI 48307
www.leaderdogs.org
39
Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd.
Fundación para la Esclerosis Lateral Amiotrópica
(888) ALS-1107 (257-1107)
8142 North Lawndale Avenue
Skokie, IL 60076-3322
www.lesturnerals.org
Leukemia and Lymphoma Society [*]
Sociedad Americana de la Leucemia
(800) 955-4LSA (955-4572)
1311 Mamaroneck Avenue
www.leukemia-lymphoma.org or www.lls.org
LifeNet
Red de Vida
(organ and tissue donation)
(Donación de órganos y tejidos)
(800) TISSUE-1 (847-7831)
5809 Ward Court
Virginia Beach, VA 23455
www.lifenet.org
Lighthouse International [*+]
Gente Pequeña de América
(800) 829-0500 (Voice and TDD)
111 East 59th Street
New York, NY 10022-1202
www.lighthouse.org
Little People of America [+]
Gente Pequeña de América
(888) LPA-2001 (572-2001)
5289 NE Elam Young Parkway, Suite F700
Hillsboro, OR 97125
www.LPAonline.org
Little People's Research Fund
Fondo de Investigación sobre la Gente Pequeña
(800) 232-LPRF (232-5773)
616 Old Edmondson Avenue, 2nd Floor
Baltimore, MD 21228
www.lprf.org
40
Living Bank [*+]
Banco de Vida
(Organ donation)
(Donación de órganos)
(800) 528-2971
P.O. Box 6725
Houston, TX 77265-6725
www.livingbank.org
Look Good...Feel Better American Cancer Society [*+]
Luzca Bien...Siéntase Mejor, Sociedad Americana del Cáncer
(800) 395-LOOK
(800) 227-2345
1599 Clifton Road NE
Atlanta, GA 30329
www.lookgoodfeelbetter.org
Lupus Foundation of America [*+]
Fundación Americana del Lupus
(800) 558-0121
2000 L Street NW, Suite 710
www.lupus.org
Lyme Disease Foundation [+]
Fundación de la Enfermedad Lyme
(800) 886-LYME
P.O. Box 332
Tolland, CT 06103
www.lyme.org
Lymphoma Research Foundation [*]
Fundación de Investigación sobre Linfoma
(800) 500-9976
8800 Venice Boulevard, Suite 207
www.lymphoma.org
Macular Degeneration Foundation
Fundación para la Degenearación Macular
(888) 633-3937
(800) 924-4393
P.O. Box 531313
Henderson, NV 89053
www.eyesight.org
MAGIC Foundation for Children's Growth
Fundación MAGIC para el Crecimiento de los Niños
(800) 3MAGIC3 (362-4423)
6645 West North Avenue
Oak Park, IL 60302
www.magicfoundation.org
Make Today Count
Haga Valer el Día de Hoy
(Emotional grief or loss support for people affected by cancer)
(Apoyo para las personas afectadas por el cáncer)
(800) 432-2273
St. John's Cancer Center
1235 East Cherokee Street
Springfield, MO 65804
www.smsu.edu/nursing/community/Agency_folder/MakeTodayCount.htm
Malignant Hyperthermia Association of the
United States [+]
Asociación Estadounidense de la Hipertermia Maligna
(800) 98-MHAUS (986-4287)
P.O. Box 1069
11 East State Street
Sherbourne, NY 13460-1069
www.mhaus.org
March of Dimes Birth Defects Foundation [*+]
Fundación March of Dimes para los Defectos Congénitos
(Information on pregnancy, birth defects, and genetics)
(Información sobre el embarazo, los defectos congénitos y la genética)
(888) MODIMES (663-4637)
(800) 925-1855 (Spanish)
1275 Mamaroneck Avenue
www.marchofdimes.com
MedicAlert Foundation International [*+]
Fundación Internacional de Alerta Médica
(Identification system for medical conditions)
(Sistema de identificación de condiciones médicas)
(800) ID-ALERT (432-5378)
2323 Colorado Avenue
Turlock, CA 95382-2018
www.medicalert.org
42
Medical Genetics
Genetica en la Medicina
(Genetic testing and counseling)
(Consejería y pruebas genéticas)
(800) 998-4785
Cleveland Clinic Foundation
Medical Genetics
9500 Euclid Avenue
Cleveland, OH 44195
www.clevelandclinic.org/medgen
Medicare Issues Hotline
Health Care Financing Administration [+]
Línea Directa de Información sobre Asuntos de MEDICARE,
Administración para el Financiamiento del Cuidado de la Salud
(800) MEDICARE (633-4227)
Baltimore, MD 21244
www.medicare.gov
MedWatch [*]
Alerta Medica
(The FDA Medical Products Reporting Program)
(Programa de información sobre productos médicos de la FDA)
(800) 332-1088
5600 Fishers Lane
www.fda.gov/medwatch
Memorial Sloan-Kettering Cancer Center [*+]
Centro de Cancer Memorial Sloan-Kettering
(800) 525-2225
1275 York Avenue
New York, NY 10021
www.mskcc.org
Mended Hearts, Inc.
Organización para enfermos del corazón y sus familias
(888) heart99 (432-7899)
Dallas, TX 75231-4596
www.mendedhearts.org
Meningitis Foundation of America [+]
Fundación de Meningitis de América
(800) 668-1129
6610 North Shadeland Avenue, Suite 220
www.musa.org
43
Mercy Medical Airlift [*]
Transporte aéreo para pacientes y sus familias
(Charitable medical air transportation)
(Transporte aéreo médico de caridad)
(800) 296-1217
P.O. Box 1940
Manassas, VA 20108-0804
www.mercymedical.org
Mothers Against Drunk Driving
Madres en Contra de Conductores Embriagados
(800) GET-MADD (438-6233)
511 East John Carpenter Freeway, Suite 700
Irving, TX 75062
www.madd.org
Multiple Sclerosis Association of America [*]
Asociación Americana de Esclerosis Múltiple
(800) LEARN-MS (532-7667)
706 Haddonfield Road
Cherry Hill, NJ 08002-2652
www.msaa.com
Multiple Sclerosis Foundation [*+]
Fundación para la Esclerosis Múltiple
(800) 441-7055
(888) 673-6287
6350 North Andrews Avenue
Fort Lauderdale, FL 33309
www.msfocus.org
MUMS National Parent-to-Parent Network
Mothers United for Moral Support, Inc. [*]
Red Nacional de Padres a Padres MUMS, Madres Unidas para
Apoyo Moral, Inc.
(877) 336-5333
150 Custer Court
Green Bay, WI 54301-1243
www.netnet.net/mums
Muscular Dystrophy Association [*+]
Asociación de la Distrofia Muscular
(800) 572-1717
3300 East Sunrise Drive
Tucson, AZ 85718-3208
www.mdausa.org
44
Myasthenia Gravis Foundation of America, Inc. [+]
Fundación Americana de la Miastenia Gravis
(800) 541-5454
1821 University Avenue West, Suite S256
St. Paul, MN 55104
www.myasthenia.org
NAMI (National Alliance for the Mentally Ill) [*+]
Alianza Nacional de Enfermedades Mentales
(888) 999-NAMI (999-6264)
(800) 950-6264
Colonial Place Three
2107 Wilson Boulevard, Suite 300
Arlington, VA 22201
www.nami.org
Narcotic Educational Foundation of America [*]
Fundación Americana Educativa sobre Narcóticos
(877) 775-NARC
28245 Avenue Crocker, Suite 230
Santa Clarita, CA 91355-1201
www.cnoa.org/NEFA.htm
National Abortion Federation Hotline [*+]
Federación Nacional del Aborto
(800) 772-9100
1755 Massachusetts Avenue NW, Suite 600
www.prochoice.org
National Adoption Center
Centro Nacional para la Adopción
(800) 862-3678
1500 Walnut Street, Suite 701
www.adopt.org
National Adoption Information Clearinghouse [*+]
Centro Nacional de Distribución de Información sobre la Adopción
(888) 251-0075
330 C Street SW
http://naic.acf.hhs.gov
45
National AIDS Fund [*]
Fondo Nacional del SIDA
(888) 234-AIDS (234-2437)
www.aidsfund.org
National AIDS Treatment Advocacy Project [*+]
Proyecto Nacional de Abogacía para el Tratamiento del SIDA
(888) 26-NATAP
580 Broadway, Suite 1010
New York, NY 10012
www.natap.org
National Aphasia Association
Asociación Nacional de Afasia
(800) 922-4622
29 John Street, Suite 1103
New York, NY 10038
www.aphasia.org
National Association for Children of Alcoholics
Asociación Nacional para Hijos de Alcohólicos
(888) 554-COAS (554-2627)
11426 Rockville Pike, Suite 100
Rockville, MD 20852
www.nacoa.org
National Association for Continence (NAFC) [+]
Asociación Nacional para la Continencia
(800) 252-3337
P.O. Box 1019
Charleston, SC 29402
www.nafc.org
National Association for Family Child Care [*+]
Asociación Nacional para Guarderías Infantiles de Tipo Familiar
(800) 359-3817 (child care)
5200 Pinemont Drive
Murray, UT 84123
www.nafcc.org
National Association for Parents of the Visually Impaired
(NAPVI) [*+]
Asociación Nacional para Padres de Hijos con Problemas Visuales
(800) 562-6265
P.O. Box 317
Watertown, MA 02471
www.napvi.org
46
National Association for the Dually Diagnosed (NADD)
Asociación Nacional para las Personas con Doble Diagnóstico
(800) 331-5362
132 Fair Street
Kingston, NY 12401-4802
www.thenadd.org
National Association for the Education of
Young Children [*+]
Asociación Nacional para la Educación de los Niños Pequeños
(800) 424-2460
1509 16th Street NW
www.naeyc.org
National Association of Radiation Survivors
Asociación Nacional de Sobrevivientes de la Radiación
(800) 798-5102
P.O. Box 1587
Marysville, CA 95901
www.radiationsurvivors.org
National Batten Disease Registry
Registro Nacional de Enfermedad de Batten
(800) 952-9628
1050 Forest Hill Road
Staten Island, NY 10314-6399
National Bone Marrow Transplant Link [*]
Conexión Nacional para Transplantes de Médula Osea
(800) LINK-BMT (546-5268)
20411 West 12 Mile Road, Suite 108
Southfield, MI 48076
www.nbmtlink.org
National Braille Press Inc. [+]
Publicaciones Braille
(800) 548-7323
88 Saint Stephen Street
Boston, MA 02115
www.braille.com
National Brain Tumor Foundation [*+]
Fundación Nacional de Tumores del Cerebro
(800) 934-CURE (934-2873)
22 Battery Street, Suite 612
www.braintumor.org
47
National Cancer Information Center [*+]
Centro de Información sobre el Cancer
(800) ACS-2345 (227-2345)
1825-B Kramer Lane, Suite 200
Austin, TX 78758
www.cancer.org
National Center for Complementary and Alternative
Medicine Clearinghouse [*+]
Centro Nacional de Distribución de Información sobre la Medicina
Alternativa y Complementaria
(888) 644-6226
(866) 464-3615 (TTY)
(866) 464-3616 (fax)
P.O. Box 7923
www.nccam.nih.gov
National Center for Homeopathy
Centro Nacional de Homeopatía
(877) 624-0613
801 North Fairfax Street, Suite 306
www.homeopathic.org
National Center for Learning Disabilities
Centro Nacional para las Personas con Problemas de Aprendizaje
(888) 575-7373
381 Park Avenue South, Room 1401
New York, NY 10016-8806
www.ld.org
National Center for Missing and Exploited Children [*+]
Centro Nacional de Niños Desaparecidos y Abusados
(800) THE-LOST (843-5678)
699 Prince Street
www.missingkids.com
National Center for Victims of Crime [*]
Centro Nacional para Víctimas del Crimen
(800) FYI-CALL (394-2255)
www.ncvc.org
48
National Child Care Information Center [*+]
Centro Nacional de Información para el Cuidado de Niños
(800) 616-2242
(800) 516-2242 (TTY)
243 Church Street NW, 2nd Floor
Vienna, VA 22180
http://nccic.org
National Child Safety Council Childwatch
Concilio Nacional para la Seguridad del Niño Vigilancia del Niño
(800) 222-1464
4065 Page Avenue
P.O. Box 1368
Jackson, MI 49204
National Children's Alliance [+]
Alianza Nacional de Niños
(800) 239-9950
1612 K Street NW
www.nca-online.org
National Clearinghouse for Alcohol and Drug
Information [*+]
Centro Nacional de Información sobre el Alcohol y las Drogas
(800) SAY-NOTO (729-6686)
(800) 487-4889 (TTY)
P.O. Box 2345
Rockville, MD 20847
www.health.org
National Clearinghouse on Child Abuse and Neglect [*+]
Centro Nacional de Información sobre el Abuso y Negligencia
Infantil
(800) FYI-3366 (394-3366)
330 C Street SW
http://nccanch.acf.hhs.gov
National Committee to Preserve Social Security
and Medicare [*+]
Comité Nacional para Mantener el Seguro Social y Medicare
(800) 998-0180
10 G Street NE, Suite 600
www.ncpssm.org
49
National Council for Single Adoptive Parents
Consejo Nacional para Padres Adoptivos Solteros
(888) 490-4600
P.O. Box 567
Mount Herman, CA 95041
www.adopting.org/ncsap.html
National Council on Alcoholism and Drug Dependence
Hopeline [+]
Línea de Esperanza del Consejo Nacional sobre la Dependencia del
Alcohol y las Drogas
(800) NCA-CALL (622-2255)
(800) 475-4673
20 Exchange Place, Suite 2902
New York, NY 10005-3201
National Dissemination Center for Children with
Disabilities [*+]
Centro Nacional de Información para Niños y Jóvenes con
Discapacidades
(800) 695-0285
P.O. Box 1492
www.nichcy.org
National Domestic Violence Hotline [*+]
Línea Nacional de Información sobre Violencia Doméstica
(800) 799-7233
P.O. Box 161810
Austin, TX 78716
www.ndvh.org
National Down Syndrome Congress [+]
Congreso Nacional del Síndrome de Down
(800) 232-NDSC (232-6372)
1370 Center Drive, Suite 102
Atlanta, GA 30338
www.ndsccenter.org
National Down Syndrome Society [*+]
Sociedad Nacional del Síndrome de Down
(800) 221-4602
666 Broadway
New York, NY 10012
www.ndss.org
National Drinking Water Clearinghouse [+]
Centro Nacional de Informacion sobre el Agua Potable
(800) 624-8301
West Virginia University
P.O. Box 6064
Morgantown, WV 26506-6064
www.nesc.wvu.edu/ndwc
National Drug and Alcohol Treatment Routing Service
National Institute on Drug Abuse [*+]
Servicio Nacional de Tratamiento para el Alcohol y las Drogas
Instituto Nacional para el Abuso de las Drogas
(800) 662-HELP (662-4357)
11426-28 Rockville Pike, Suite 200
Rockville, MD 20852
www.health.org
51
National Eating Disorders Association [+]
Asociación Nacional de Trastornos Alimentarios
(800) 931-2237
603 Stewart Street, Suite 803
Seattle, WA 98101
www.nationaleatingdisorders.org
National Family Association for Deaf-Blind
Asociación Nacional de Familias de Sordos-Ciegos
(800) 255-0411
141 Middle Neck Road
Sands Point, NY 11050
www.nfadb.org
National Family Caregivers Association [*+]
Asociación Nacional de Familias Proveedoras de Cuidado
(800) 896-3650
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895
www.nfcacares.org
National Fire Protection Association, Inc. [*+]
Asociación Nacional para la Protección contra Incendios, Inc.
(800) 344-3555
1 Batterymarch Park
P.O. Box 9101
Quincy, MA 02269-9101
www.nfpa.org
National Foundation for Cancer Research, Inc. [*+]
Fundación Nacional para la Investigación del Cáncer, Inc.
(800) 321-CURE (321-2873)
4600 East-West Highway, Suite 525
Bethesda, MD 20814
www.nfcr.org
National Foundation for Transplants
Fundación Nacional de Transplantes
(800) 489-3863
1102 Brookfield, Suite 200
Memphis, TN 38119
www.transplants.org
National Fragile X Foundation [+]
Fundación Nacional del Cromosoma X Frágil
(800) 688-8765
P.O. Box 190488
www.fragilex.org
52
National Fraud Information Center
National Consumers League
Centro Nacional de Información sobre Fraudes, Liga Nacional del
Consumidor
(Telemarketing fraud)
(Fraude en telemercadeo)
(800) 876-7060
1701 K Street NW, Suite 1200
www.fraud.org
National Gaucher Foundation [+]
Fundación Nacional de la Enfermedad de Gaucher
(800) 428-2437
5410 Edson Lane, Suite 260
Rockville, MD 20852
www.gaucherdisease.org
National Hansen's Disease Programs [*+]
Programas Nacionales para la Enfermedad de Hansen
(Leprosy)
(Lepra)
(800) 642-2477
1770 Physicians Park Drive
Baton Rouge, LA 70816
www.bphc.hrsa.gov/nhdp
National Headache Foundation [+]
Fundación Nacional para el Dolor de Cabeza
(800) 843-2256
(800) 819-4510 (Espanol)
820 North Orleans, Suite 217
Chicago, IL 60614
www.headaches.org
National Health Information Center [*+]
Centro Nacional de Información sobre la Salud
(800) 336-4797
P.O. Box 1133
www.health.gov/nhic
National Hemophilia Foundation [*+]
Fundación Nacional de la Hemofilia
(800) 424-2634
116 West 32nd Street, 11th Floor
New York, NY 10001
www.hemophilia.org
53
National Highway Traffic Safety Administration
Department of Transportation [*+]
Administración Nacional para la Seguridad del Tráfico en las
Autopistas, Departamento de Transporte
(888) 327-4236
400 Seventh Street SW
www.nhtsa.dot.gov
National Hopeline Network
Red Nacional de Hopeline
(800) SUICIDE
(877) SUICIDA (Spanish)
2001 North Beauregard Street, 12th Floor
www.hopeline.com
National Hospice and Palliative Care Organization [+]
Organización Nacional de Hospicios y Cuidados Paliativos
(800) 646-6460
1700 Diagonal Road, Suite 625
www.nhpco.org
National Hydrocephalus Foundation [+]
Fundación Nacional de Hidrocefalia
(888) 857-3434
12413 Centralia Road
Lakewood, CA 90715-1653
www.nhfonline.org
National Information Clearinghouse on Children Who Are
Deaf-Blind [*+]
Centro Nacional de Información sobre Niños Sordo-Ciegos
(800) 438-9376
(800) 854-7013 (TTY)
345 North Monmouth Avenue
Monmouth, OR 97361
www.dblink.org
National Inhalant Prevention Coalition [+]
Coalición Nacional para la Prevención del Abuso de Inhalantes
(800) 269-4237
2904 Kirby Lane
Austin, TX 78703
www.inhalants.org
54
National Institute for Occupational Safety
and Health (NIOSH)
Centers for Disease Control and Prevention [*+]
Instituto Nacional para la Seguridad y la Salud en el Trabajo
Centros para el Control y la Prevención de las Enfermedades
(800) 356-4674
4676 Columbia Parkway , C-19
Cincinnati, OH 45226-1998
www.cdc.gov/niosh
National Institute for Rehabilitation Engineering
Instituto Nacional de Ingeniería Rehabilitativa
(Devices for the severely and multiply handicapped)
(Aparatos para personas con discapacidades múltiples y severas)
(800) 736-2216
P.O. Box 1088
Hewitt, NJ 07421
www.theoffice.net/nire
National Institute of Arthritis and Musculoskeletal and
Skin Diseases (NIAMS) [*+]
Instituto Nacional de Artritis y Enfermedades Musculoesqueléticas
y de la Piel
(877) 22-NIAMS
1 AMS Circle
www.niams.nih.gov
National Institute of Child Health and Human
Development (NICHD)
Information Resource Center (IRC) [*+]
Centro de Información y Recursos de NICHD
(Instituto Nacional de Salud Infantil y Desarollo Humano)
(800) 370-2943
P.O. Box 3006
Rockville, MD 20847
www.nichd.nih.gov
National Institute of Mental Health (NIMH)
Information Resources and Inquiries Branch [*+]
Instituto Nacional de Salud Mental División de Fuentes de
Información e Investigación
(866) 615-6464
6001 Executive Boulevard, MSC 9663
Bethesda, MD 20892
www.nimh.nih.gov
55
National Institute of Neurological Disorders
and Stroke (NINDS) [*+]
Instituto Nacional de las Enfermedades Neurológicas y la Apoplejía
(800) 352-9424
P.O. Box 5801
Bethesda, MD 20824
www.ninds.nih.gov
National Institute on Aging Information Center [*+]
Centro de Información del Instituto Nacional de la Vejez
(800) 222-2225
(800) 222-4225 (TTY)
P.O. Box 8057
www.nia.nih.gov
National Institute on Deafness and Other Communication
Disorders (NIDCD) Information Clearinghouse [*+]
Centro de Información del Instituto Nacional de la Sordera y Otros
Trastornos de Comunicación
(800) 241-1044
(800) 241-1055 (TTY)
1 Communication Avenue
www.nidcd.nih.gov
National Institutes of Health (NIH)
Clinical Center [*]
Institutos Nacionales de la Salud Centro Clínico
(800) 411-1222 (Clinical trials recruitment)
(866) 411-1010 (TTY Clinical trials recruitment)
9000 Rockville Pike
Bethesda, MD 20892
http://clinicalcenter.nih.gov
National Institutes of Health
Osteoporosis and Related Bone Diseases National
Resource Center [*+]
Institutos Nacionales de Salud, Centro Nacional de Recursos de la
Osteoporosis y Enfermedades Relacionadas con los Huesos
(800) 624-BONE (624-2663)
2 AMS Circle
www.osteo.org
56
National Jewish Medical and Research Center
LUNG LINE [*+]
Línea del Pulmón del Centro Nacional Judío de Medicina e
Investigación
(800) 222-LUNG (222-5864)
1400 Jackson Street
Denver, CO 80206
www.nationaljewish.org
National Keratoconus Foundation [+]
Fundación Nacional de Keratoconus
(800) 521-2524
8733 Beverly Boulevard, Suite 201
www.nkcf.org
National Kidney Foundation [*+]
Fundación Nacional del Riñón
(800) 622-9010
30 East 33rd Street
New York, NY 10016
www.kidney.org
National Lead Information Center Hotline and
Clearinghouse [*+]
Centro Nacional de Información sobre el Plomo
(800) 424-LEAD (424-5323)
422 South Clinton Avenue
Rochester, NY 14620
www.epa.gov/lead/
National Life Center, Inc. [+]
Centro Nacional de Vida, Inc.
(800) 848-LOVE (848-5683)
686 North Broad Street
Woodbury, NJ 08096
www.nationallifecenter.com
National Lymphedema Network [+]
Red Nacional del Linfedema
(800) 541-3259
1611 Telegraph Avenue, Suite 1111
Oakland, CA 94612
www.lymphnet.org
57
National Marfan Foundation [+]
Fundación Nacional del Síndrome de Marfan
(800) 8-MARFAN (862-7326)
22 Manhasset Avenue
Port Washington, NY 11050
www.marfan.org
National Marrow Donor Program [*+]
Programa Nacional para Donantes de Médula Ósea
(800) MARROW-2 (627-7692) (General Information)
(800) 654-1247 (Office of Patient Advocacy)
3001 Broadway Street NE, Suite 500
www.marrow.org
National Mental Health Association Information
Centro de Recursos Información de la Asociación Nacional de
Salud Mental
(800) 969-6642
(800) 433-5959 (TTY)
20001 North Beauregard Street
www.nmha.org
National Mental Health Consumers'
Self-Help Clearinghouse [*+]
Centro Nacional de Información de Autoayuda para Problemas de
Salud Mental
(800) 553-4539
1211 Chestnut Street, Suite 1207
www.mhselfhelp.org
National Mental Health Services Information Center [*+]
Centro Nacional de Información sobre Servicios para la Salud
Mental
(800) 789-2647 (Mental Health)
(800) 729-6686 (Substance Abuse)
P.O. Box 42490
www.mentalhealth.samhsa.gov
58
National Minority Organ Tissue Transplant Education
Program (MOTTEP)
Howard University Hospital [*+]
Programa Nacional Para Educar a las Minorías sobre los
Transplantes de Órganos y Tejidos Hospital de la Universidad
Howard
(800) 393-2839
Ambulatory Care Center, Suite 3100
2041 Georgia Avenue NW
www.nationalmottep.org
National Multiple Sclerosis Society [*+]
Sociedad Nacional de la Esclerosis Múltiple
(800) 344-4867
733 3rd Avenue, 6th Floor
New York, NY 10017-3288
www.nmss.org
National Neurofibromatosis Foundation [*+]
Fundación Nacional de la Neurofibromatosis
(800) 323-7938
95 Pine Street, 16th Floor
New York, NY 10005
www.mf.org
National Niemann-Pick Disease Foundation
Fundación Nacional de la Enfermedad Niemann-Pick
(877) CURE-NPC
415 Madison Avenue
P.O. Box 49
Fort Atkinson, WI 53538
www.nnpdf.org
National Organization for Albinism and
Hypopigmentation [+]
Organización Nacional del Albinismo y la Hipopigmentación
(800) 473-2310
P.O. Box 959
East Hampstead, NH 03826-0959
www.albinism.org
National Organization for Rare Disorders
Organización Nacional de las Enfermedades Raras
(800) 999-6673
P.O. Box 1968
Danbury, CT 06813-1968
www.raredisorders.org
59
National Organization for Victim Assistance
Organización Nacional de Ayuda a las Víctimas
(800) TRY-NOVA (879-6682) (Victims/Survivors only)
1730 Park Road NW
www.try-nova.org
National Ovarian Cancer Coalition [+]
Coalición Nacional del Cáncer Ovárico
(888) - OVARIAN
500 NE Spanish River Boulevard, Suite 8
Boca Raton, FL 33431
www.ovarian.org
National Parkinson Foundation [*+]
Fundación Nacional de la Enfermedad de Parkinson
(800) 327-4545
(800) 433-7022 (within Florida)
(800) 522-8855 (within California)
1501 Northwest 9th Avenue
Miami, FL 33136-1494
www.parkinson.org
National Pesticide Information Center [*]
Centro Nacional de Información sobre Pesticidas
(800) 858-7378
Oregon State University
333 Weniger Hall
Corvallis, OR 97331-6502
www.npic.orst.edu
National Psoriasis Foundation [+]
Fundación Nacional de la Psoriasis
(800) 723-9166
6600 Southwest 92nd Avenue, Suite 300
Portland, OR 97223-7195
www.psoriasis.org
National Public Safety Information Bureau
Agencia Nacional de Información sobre Seguridad Pública
(800) 647-7579
P.O. Box 365
Stevens Point, WI 54481-0365
www.safetysource.com
60
National Reference Center for Bioethics Literature
Kennedy Institute of Ethics [+]
Centro Nacional de Referencia sobre Literatura Bioética Instituto
de Ética Kennedy
(888) BIO-ETHX (246-3849)
(800) MED-ETHX (633-3849)
(888) GEN-ETHX (436-3849)
Georgetown University
P.O. Box 571212
www.bioethics.georgetown.edu
National Rehabilitation Information Center [*]
Centro Nacional de Información sobre la Rehabilitación
(800) 34-NARIC (346-2742)
4200 Forbes Boulevard, Suite 202
Lanham, MD 20706
www.naric.com
National Resource Center for Health and Safety in
Child Care [*+]
Centro Nacional de Recursos para la Salud y la Seguridad del
Cuidado de los Niños
(800) 598-KIDS (598-5437)
University of Colorado Health Sciences Center
P.O. Box 6508
Aurora, CO 80045
nrc.uchsc.edu
National Resource Center on Domestic Violence [+]
Centro Nacional de Recursos sobre la Violencia Doméstica
(800) 537-2238
(800) 553-2508 (TTY)
6400 Flank Drive, Suite 1300
Harrisburg, PA 17112-2778
www.PCADV.org
National Resource Center on Homelessness and Mental
Illness [*+]
Centro Nacional de Recursos sobre Enfermedades Mentales y la
Falta de Vivienda
(800) 444-7415
Policy Research Associates, Inc.
345 Delaware Avenue
Delmar, NY 12054
www.nrchmi.samsha.com
61
National Reye's Syndrome Foundation, Inc. [+]
Fundación Nacional del Síndrome de Reye, Inc.
(800) 233-7393
426 North Lewis
Bryan, OH 43506
www.reyessyndrome.org
National Runaway Switchboard [*+]
Central Telefónica Nacional para Fugitivos del Hogar
(Offers a service that can translate any language)
(Ofrece servicios de traducción a cualquier idioma)
(800) 621-4000
3080 North Lincoln Avenue
Chicago, IL 60657
www.nrscrisisline.org
National Safety Council [*+]
Consejo Nacional de Seguridad
(800) 621-7619
1121 Spring Lake Drive
Itasca, IL 60143-3201
www.nsc.org
National Scoliosis Foundation, Inc. [+]
Fundación Nacional de Escoliosis, Inc.
(800) 673-6922
5 Cabot Place
Stoughton, MA 02072
www.scoliosis.org
National Sexual Assault Hotline [*+]
Línea Nacional de Asalto Sexual
(Rape, Abuse and Incest National Network)
Red nacional de asalto y abuso sexual y el incesto
(800) 656-HOPE
635-B Pennsylvania Avenue SE
www.rainn.org
National Spasmodic Dysphonia Association [+]
O
Asociación Nacional de Disfonía Espasmódica
National Spasmodic Torticollis Association
Asociación Nacional de la Torticolis Espasmódica
(800) HURTFUL (487-8385)
9920 Talbert Avenue
Fountain Valley, CA 92708
www.torticollis.org
National Spinal Cord Injury Association
Asociación Nacional de Lesiones de la Médula Espinal
(800) 962-9629
6701 Democracy Boulevard , Suite 300
Bethesda, MD 20817
www.spinalcord.org
National Stroke Association [+]
Asociación Nacional de Apoplejía
(800) 787-6537
9707 East Easter Lane
Englewood, CO 80112-3747
www.stroke.org
National Stuttering Association
Asociación Nacional de Tartamudez
(800) 364-1677
119 West 40th Street, 14th Floor
New York, NY 11018
www.nsastutter.org
National Tay-Sachs and Allied Diseases Association [+]
Asociación Nacional de Tay-Sachs y Enfermedades Aliadas
(800) 90-NTSAD (906-8723)
2001 Beacon Street, Suite 204
Boston, MA 02135
www.ntsad.org
National Temporal Bone, Hearing and Balance
Pathology Resource Registry
Massachusetts Eye and Ear Infirmary
Registro Nacional de Recursos de Patología del Hueso Temporal,
de la Audición y del Equilibrio, del Centro de Cuidado de Ojos y
Oídos de Massachusetts
(800) 822-1327
(888) 561-3277 (TTY)
243 Charles Street
Boston, MA 02114-3096
www.tbregistry.org
63
National Transplant Assistance Fund
Fondo Nacional de Asistencia para Transplantes
(800) 642-8399
3475 Westchester Pike, Suite 230
Newtown Square, PA 19073
www.transplantfund.org
National Urea Cycle Disorders Foundation [*+]
Fundación Nacional de Enfermedades del Ciclo de Urea
(800) 386-8233
4841 Hill Street
La Canada, CA 91011
www.nucdf.org
National Women's Health Information Center [*+]
Centro Nacional de Información sobre la Salud de la Mujer
(800) 994-9662
8550 Arlington Boulevard., Suite 300
Fairfax, VA 22031
www.4woman.gov
National Women's Health Resource Center
Centro Nacional de Recursos sobre la Salud de la Mujer
(877) 986-9472
157 Broad Street, Suite 315
Red Bank, NJ 07701
www.healthywomen.org/
Neurofibromatosis, Inc.
Neurofibromatosis, Inc.
(800) 942-6825
8855 Annapolis Road, Suite 100
Lanham, MD 20706-2924
www.nfinc.org
Neuroleptic Malignant Syndrome Information Service
Servicio de Información sobre el Síndrome Neuroleptico Maligno
(888) 776-6747
P.O. Box 1069
11 East State Street
Sherbourne, NY 13460-1069
www.nmsis.org
64
Nevus Outreach [*]
Investigación sobre los nevos
(877) 426-3887
1601 Madison Boulevard
Bartlesville, OK 74006
www.nevus.org
Noonan Syndrome Support Group, Inc. [+]
Grupo de Apoyo para el Síndrome de Noonan, Inc.
(888) 686-2224
P.O. Box 145
Upperco, MD 21155
www.noonansyndrome.org
North American Riding for the Handicapped
Association (NARHA)
Asociación Norteamericana de Equitación para Minusválidos
(800) 369-7433
P.O. Box 33150
Denver, CO 80233
www.narha.org
North American Spine Society
Sociedad Norteamericana de la Columna Vertebral
(877) SPINE-DR
22 Calendar Court, 2nd Floor
La Grange, IL 60525
www.spine.org
Occupational Safety and Health Administration [*+]
Administración de Seguridad y Salud Ocupacional
(800) 321-OSHA
200 Constitution Avenue NW
www.osha.org
65
Office for Victims of Crime Resource Center [*+]
Centro de Recursos para las Víctimas del Crimen
(800) 851-3420
(877) 712-9279 (TTY)
P.O. Box 6000
www.ncjrs.org
Office of Environmental Justice
Environmental Protection Agency [*+]
Oficina para un Medioambiente, Justo Agencia para la Protección
del Medio Ambiente
(800) 962-6215
1200 Pennsylvania Avenue NW
Ariel Rios Building
www.epa.gov/compliance/environmentaljustice
Office of Minority Health Resource Center
U.S. Department of Health and Human Services [*+]
Centro de Recursos de Salud para las Minorías, Departamento de
Salud y Servicios Sociales de los Estados Unidos
(800) 444-6472
P.O. Box 37337
www.omhrc.gov
Office of National Drug Control Policy Clearinghouse [+]
Centro Nacional de Información de la Oficina de Políticas sobre las
Drogas
(800) 666-3332
P.O. Box 6000
www.whitehousedrugpolicy.gov
Office of Orphan Products Development
Food and Drug Administration [*+]
Oficina para el Desarrollo de Productos Farmacéuticos con Poca
Demanda, Administración de Alimentos y Medicamentos
(800) 300-7469
5600 Fishers Lane, Room 6A55 (HF35)
Rockville, MD 20857
www.fda.gov/orphan
66
Office on Smoking and Health [*+]
Oficina del Fumar y la Salud
(888) 232-3299
Centers for Disease Control and Prevention
4770 Buford Highway NE, Mailstop K-50
Atlanta, GA 30341-3717
www.cdc.gov/tobacco
Older Women's League [+]
Liga de Mujeres Mayores de Edad
(800) 825-3695
1750 New York Avenue NW, Suite 350
www.owl-national.org
Oley Foundation for Home Parenteral and Enteral
Nutrition [*+]
Fundación Oley para Proveer Nutrición Parenteral y Enteral en el
Hogar
(800) 776-OLEY (776-6539)
214 Hun Memorial, MC28
Albany Medical Center
Albany, NY 12208
www.oley.org
Operation Lifesaver [+]
Operación Salvavidas
(Safety at highway-rail intersections)
(Para la seguridad del tráfico en las intersecciones de carreteras y vías
ferroviarias)
(800) 537-6224
1420 King Street, Suite 401
www.oli.org
Osteogenesis Imperfecta Foundation [+]
Fundación de la Osteogénesis Imperfecta
(800) 981-BONE (981-2663)
804 West Diamond Avenue
Gaithersburg, MD 20878
www.oif.org
67
Oxalosis and Hyperoxaluria Foundation
Fundación de Oxalosis e Hiperoxaluria
(800) 643-8699
201 East 19th Street, #12E
New York, NY 10003
www.ohf.org
Paget Foundation for Paget's Disease of Bone and Related
Disorders
Fundación para la Enfermedad de Paget y otras Enfermedades
Óseas
(800) 23-PAGET (237-2438)
120 Wall Street, Suite 1602
New York, NY 10005
www.paget.org
Pancreatic Cancer Action Network
Red de Acción del Cáncer del Páncreas
(877) 272-6226
2221 Rosecrans Avenue, Suite 131
El Segundo, CA 90245
www.pancan.org
Paralyzed Veterans of America [*+]
Veteranos Paralíticos de America
(800) 424-8200
(800) 795-3619
801 18th Street NW
www.pva.org
Parent Project for Muscular Dystrophy Research [+]
Proyecto para las Investigaciones de la Distrofia Muscular
(800) 714-KIDS (714-5437)
1012 North University Boulevard
Middletown, OH 45042
www.parentprojectmd.org
Parent Training and Information Center [*+]
Centro de Información y Formación para los Padres
(888) 248-0822
8161 Normandale Boulevard
www.taalliance.org/PTIs.htm
68
Parents of Murdered Children, Inc. [+]
Padres de Niños Asesinados, Inc.
(888) 818-7662
100 East Eighth Street, Suite B-41
Cincinnati, OH 45202
www.pomc.com
Parkinson's Disease Foundation [*+]
Fundación para la Enfermedad de Parkinson
(800) 457-6676
William Black Medical Research Building
Columbia Presbyterian Medical Center
New York, NY 10032
www.pdf.org
Partnership for Caring
Sociedad para Cuidado
(End-of-life-care)
(Cuidado para los últimos días de vida)
(800) 989-9455
1620 Eye Street NW, Suite 202
www.partnershipforcaring.org
Pathways Awareness Foundation [*+]
Fundación de apoyo a niños con trastornos de movilidad,
neurológicos y metabólicos
(Children with movement and physical challenges)
(Niños con retos físicos y de movimiento)
(800) 955-2445
(888) 795-5884 (Fax)
150 North Michigan Avenue, Suite 2100
Chicago, IL 60601
www.pathwaysawareness.org
Paws With a Cause
Perros de Asistencia para los Minusválidos
(Assistance dogs for people with disabilities)
(Perros de asistencia para los Minusválidos)
(800) 253-7297
4646 South Division Street
Wayland, MI 49348-9727
www.pawswithacause.org
[Symbols: * Spanish spok
Phoenix Society for Burn Survivors [+]
Sociedad Fénix para los Sobrevivientes de Quemaduras
(800) 888-2876
2153 Wealthy Street SE, Suite 215
East Grand Rapids, MI 40950
www.phoenix-society.org
PKD Foundation [+]
Fundación para la Enfermedad Poliquística del riñón (PDK)
(Polycystic Kidney Disease)
(Enfermedad poliquística del riñón)
(800) PKD-CURE
9221 Ward Parkway
Kansas City, MO 64114
www.pkdcure.org
Planned Parenthood Federation of America, Inc. [*+]
Federación Americana Para la Planificación Familiar
(800) 829-7732 (National Office)
(800) 230-7526 (for nearest local office)
434 West 33rd Street
New York, NY 10001
www.plannedparenthood.org
Prader-Willi Syndrome Association, USA [*+]
Asociación Estadounidense del Síndrome de Prader-Willi
(800) 926-4797
5700 Midnight Pass Road, Suite 6
Sarasota, FL 34242
www.pwsausa.org
Pregnancy Risk Network
Red de Riesgo del Embarazo
(800) 724-2454
976 Delaware Avenue
Buffalo, NY 14209
www.pregnancyrisknetwork.org
Prevent Child Abuse America [+]
América Previene el Abuso a los Niños
(800) CHILDREN
(800) 835-2671 (publications)
200 South Michigan Avenue, Suite 1700
Chicago, IL 60604
www.preventchildabuse.org
70
Project Inform [*+]
Proyecto Informar
(Treatment Information for HIV/AIDS)
(Información sobre el tratamiento del VIH/SIDA)
(800) 822-7422
205 13th Street, # 2001
www.projectinform.org
Pulmonary Hypertension Association [*+]
Asociación de Hipertensión Pulmonar
(800) 748-7274
850 Sligo Avenue, #800
www.phassociation.org
Raising Special Kids [*+]
Criando Niños Especiales
(800) 237-3007
2400 North Central Avenue, Suite 200
Phoenix, AZ 85004
www.RaisingSpecialKids.org
Reach to Recovery Program
American Cancer Society [*+]
Programa de Recuperación al Alcance, Sociedad Americana del
Cáncer
(800) 227-2345
1599 Clifton Road NE
Atlanta, GA 30329
www.cancer.org
RFB and D (Recording for the Blind and Dyslexic)
Learning through Listening [+]
Audiograbaciones para los Ciegos y los Disléxicos
(800) 221-4792
(866) 732-3585
20 Roszel Road
Princeton, NJ 08540
www.rfbd.org
Rubinstein-Taybi Parent Group USA [*+]
Grupo de Padres Rubinstein-Taybi
(888) 447-2989
P.O. Box 146
Smith Center, KS 66967
www.rubinstein-taybi.org
71
Safe Drinking Water Hotline
U.S. Environmental Protection Agency [*+]
Línea de Información sobre Agua Potable, Agencia Estadounidense
para la Protección ambiental
(800) 426-4791
4601 Ariel Rios Building
1200 Pennsylvania Avenue NW
www.epa.gov/safewater
Save the Children Federation [*+]
Federación para Salvar los Niños
(800) 728-3843
54 Wilton Road
Westport, CT 06880
www.savethechildren.org
Scleroderma Foundation [*+]
Fundación de la Escleroderma
(800) 722-HOPE (722-4673)
12 Kent Way, Suite 101
Byfield, MA 01922
www.scleroderma.org
Scleroderma Research Foundation (SRF)
Fundación para la Investigación sobre la Escleroderma
(800) 637-4005
P.O. Box 200
Columbus, NJ 08022
www.srfcure.org
Senior's Eye Care Program [+]
Programa para el Cuidado de los Ojos para las Personas Mayores
(Medical and surgical care for the elderly at no out-of-pocket
expense)
(Atención médica y quirúrgica gratuita para los ancianos)
(800) 222-EYES (222-3937)
P.O. Box 429098
www.eyecareamerica.org
Severe Chronic Neutropenia International Registry [+]
Registro Internacional de Neutropenia Crónica Grave
(800) 726-4463
600 Stewart Street, Suite 1503
Seattle, WA 98101
www.depts.washington.EDU/Registry
72
SHARE Pregnancy and Infant Loss Support [+]
Apoyo en el Embarazo y en la Pérdida de un Niño, SHARE
(800) 821-6819
Saint Joseph Health Center
300 1st Capitol Drive
Saint Charles, MO 63301-2893
www.nationalshareoffice.com
SHARE: Self-Help for Women With Breast or Ovarian
Cancer [*+]
Autoayuda para las Mujeres con Cáncer de Seno o del Ovario
(866) 891-2392
1501 Broadway, Suite 704A
New York, NY 10036
www.sharecancersupport.org
Simon Foundation for Continence
Fundación Simón de Continencia
(Incontinence information)
(Información sobre la incontinencia)
(800) 237-4666
P.O. Box 835
Wilmette, IL 60091
www.simonfoundation.org
Sjogren's Syndrome Foundation [+]
Fundación del Síndrome de Sjogren
(800) 475-6473
8120 Woodmont Avenue, Suite 530
Bethesda, MD 20814
www.sjogrens.org
Social Security Administration [*+]
Administración del Seguro Social
(800) 772-1213
(800) 325-0778 (TTY)
Office of Public Inquiries
Baltimore, MD 21235
www.ssa.gov
Sotos Syndrome Support Association [+]
Asociación de Apoyo del Síndrome Sotos
(630) 682-8815
(888) 246-SSSA (7772)
P.O. Box 4626
Wheaton, IL 60189
www.well.com/user/sssa
Special Olympics, Inc [*+]
Juegos Olímpicos Especiales
(800) 700-8585
1325 G Street NW, Suite 500
www.specialolympics.org
Spina Bifida Association of America [*+]
Asociación Americana de Espina Bífida
(800) 621-3141
4590 MacArthur Boulevard NW, Suite 250
www.sbaa.org
74
Spondylitis Association of America [+]
Asociación Americana de la Espondilitis Aniquilosante
(800) 777-8189
14827 Ventura Boulevard, Suite 222
Sherman Oaks, CA 91403
www.Spondylitis.org
STAND! Against Domestic Violence [*+]
Contra la Violencia Doméstica
(888) 215-5555
1410 Danzig Plaza, Second Floor
Concord, CA 94520
www.standagainstdv.org
Stepfamily Association of America
Asociación Americana de Familias Compuestas por Matrimonio
(800) 735-0329
650 J Street, Suite 205
Lincoln, NE 68508
www.stepfam.org
Sturge-Weber Foundation [*+]
Fundación Sturge-Weber
(800) 627-5482
P.O. Box 418
Mount Freedom, NJ 07970
www.sturge-weber.com
Stuttering Foundation of America [*+]
Fundación Americana de la Tartamudez
(800) 992-9392
(800) 967-7700
3100 Walnut Grove Road, Suite 603
P.O. Box 11749
Memphis, TN 38111
www.stutteringhelp.org or www.tartamudez.org
Sudden Arrhythmia Death Syndromes Foundation [+]
Fundación del Síndrome de Muerte Súbita por arritmia
(800) 786-7723
508 East South Temple, Suite 20
Salt Lake City, UT 84102
www.sads.org
75
Support for People with Oral
and Head and Neck Cancer (SPOHNC)[+]
Apoyo para las Personas con Cáncer Oral y de Cabeza y Cuello
(800) 377-0928
P.O. Box 53
Locust Valley, NY 11560-0053
www.spohnc.org
Support Organization for Trisomy 18, 13 and Related
Disorders [*+]
Organización de Apoyo para la Trisomia 18, 13 y Trastornos
Relacionados
(800) 716-SOFT (716-7638)
2982 South Union Street
Rochester, NY 14624
www.trisomy.org
Susan G. Komen Breast Cancer Foundation [*+]
Fundación Susan G. Komen para el Cáncer del Seno
(800) IM-AWARE (462-9273)
5005 LBJ Freeway, Suite 250
Dallas, TX 75244
www.komen.org
Thalassemia Foundation [+]
Fundación de Talasemia
(800) 522-7222
129-09 26th Avenue, Suite 203
Flushing, NY 11354
www.thalassemia.org
Thyroid Foundation of America, Inc. [+]
Fundación Americana de la Tiroides, Inc.
(800) 832-8321
1 Longfellow Place, Suite 1518
Boston, MA 02114
www.allthyroid.org
Tourette Syndrome Association, Inc. [+]
Asociación del Síndrome de Tourette
(888) 4Touret (486-8738)
42-40 Bell Boulevard, Suite 205
Bayside, NY 11361-2820
www.tsa-usa.org
76
Tuberous Sclerosis Alliance [+]
Alianza para la Esclerosis Tuberosa
(800) 225-6872
801 Roeder Road, Suite 750
www.tsalliance.org
Turner Syndrome Society of the U.S. [+]
Sociedad Estadounidense del Síndrome de Turner
(800) 365-9944
14450 TC Jester, Suite 260
Houston, TX 77014
www.turnersyndrome.org
U.S. Consumer Products Safety Commission [*+]
Comisión de los EE.UU. de Seguridad de los Productos para el
Consumidor
(800) 638-2772
(800) 638-8270 (TTY)
4330 East-West Highway
Bethesda, MD 20814
www.cpsc.gov
U.S. Department of Health and Human Services [*+]
Departamento de Salud y Servicios Humanos de los Estados
Unidos.
(877) 696-6775
200 Independence Avenue SW
www.dhhs.gov
UAB EatRight Information Service
Servicio de Información UAB EatRight
(800) 231-3438
1530 3rd Avenue South
Birmingham, AL 35294
http://main.uab.edu
United Cerebral Palsy Associations, Inc. (UCP) [+]
Asociaciones Unidas sobre la Parálisis Cerebral, Inc.
(800) USA-5UCP (872-5827)
1660 L Street NW, Suite 700
www.ucp.org
77
United Leukodystrophy Foundation [+]
Fundación Unida de la Leucodistrofia
(800) 728-5483
2304 Highland Drive
Sycamore, IL 60178
www.ulf.org
United Network for Organ Sharing [*+]
Red Unida para Compartir en la Donación de Órganos
(888) TXINFO1 (894-6361)
P.O. Box 2484
Richmond, VA 23218
www.unos.org
United Ostomy Association [+]
Asociación Unida de la Ostomía
(800) 826-0826
19772 McArthur Boulevard, Suite 200
Irvine, CA 92612-2405
www.UOA.org
Us Too! International, Inc. [+]
Grupo de educación y apoyo para hombres con cáncer de la
próstata y sus familias
(Prostate cancer support and education)
(800) 80-US-TOO (808-7866)
5003 Fairview Avenue
Downers Grove, IL 60515
www.ustoo.org
USDA's Meat and Poultry Hotline [*+]
Línea Directa de Carnes y Aves del Departamento de Agricultura
de los Estados Unidos (USDA)
(800) 535-4555
5601 Sunnyside Avenue, Maildrop 5269
Beltsville, MD 20705-5269
www.fsis.usda.gov
USP Center for the Advancement of Patient Safety [*]
Centro para el Avance de la Seguridad del Paciente
(Reporting of product defects)
(Quejas sobre productos defectuosos)
(800) 487-7776
(800) 233-7767
12601 Twinbrook Parkway
Rockville, MD 20852
www.usp.org
78
VHL (Von Hippel-Lindau) Family Alliance [*+]
Alianzas de Familias de VHL (Von Hippel-Lindau)
(800) 767-4845
171 Clinton Road
Brookline, MA 02445-5815
www.vhl.org
Victims of Incest Can Emerge Survivors (VOICES) In
Action, Inc.
Las Víctimas del Incesto Sobrevivientes en Acción
(800) 7-VOICE-8 (786-4238)
P.O. Box 13
Batavia, OH 45103
www.voices-action.org
Vision Council of America [+]
Consejo de la Visión de América
(800) 424-8422
1700 Diagonal Road, Suite 500
www.checkyearly.com
Visiting Nurse Association of America
Asociación Americana de Enfermeras Domiciliarias
Referrals to consumers of VNAs
(888) VN-NURSE (866-8773)
99 Summer Street, Suite 1700
Boston, MA 02110
www.vnaa.org/
Wegener's Granulomatosis Association, Inc. [+]
Grupo Internacional de Apoyo de la Granulomatosis de Wegener
(800) 277-9474
P.O. Box 28660
Kansas City, MO 64188-8660
www.wgassociation.org
Well Spouse Foundation
Fundación Well Spouse
(Support to partners of the chronically ill or disabled)
(Ofrece apoyo a las parejas de las personas con enfermedades
crónicas o con discapacidades)
(800) 838-0879
63 West Main Street, Suite H
Freehold, NJ 07728
www.wellspouse.org
79
Wilson's Disease Association [*]
Asociación de la Enfermedad de Wilson
(800) 399-0266
1802 Brookside Drive
Wooster, OH 44691
www.wilsonsdisease.org
Women's Sports Foundation Information and Referral
Service [+]
Servicio de Información y Consultas de la Fundación para
Promover los Deportes Femeninos
(800) 227-3988
Eisenhower Park
1899 Hampstead Turnpike, Suite 400
East Meadow, NY 11554
www.womenssportsfoundation.org
World Craniofacial Foundation [*]
Fundación Mundial Craniofacial
(800) 533-3315
P.O. Box 515838
Dallas, TX 75251
www.worldcf.org
Wound, Ostomy and Continence Nurses Society
Sociedad de Enfermeras de Heridas, Ostomía y Continencia
(888) 224-9626
4700 West Lake Avenue
Glenview, IL 60025
www.wocn.org
YMCA of the USA [*+]
Asociación Cristiana de Jóvenes, ACJ-USA
(800) USA-YMCA (872-9622)
101 North Wacker Drive
Chicago, IL 60606
www.ymca.net
80
Y-Me National Breast Cancer Organization [*+]
Organización Nacional del Cáncer del Seno Y-Me
(800) 221-2141
(800) 986-9505 (Spanish)
212 West Van Buren Street, Suite 1000
Chicago, IL 60607-3908
www.Y-me.org
Young Children: Priority One [*]
Niños Pequeños: Prioridad Número Uno
(800) 549-2647
3636 Woodview Trace
www.kiwanis.org
Youth Development International Youth Crisis Hotline
Desarrollo de la Juventud Internacional Línea de Crisis para
Jovenes
(800) 448-4663
P.O. Box 178408
San Diego, CA 92177-8408
www.1800hiphome.com
Zero to Three: National Center for Infants, Toddlers and
Families [+]
De Zero a Tres: Centro Nacional para Infantes, Bebés y Familias
(800) 899-4301 (publications)
www.zerotothree.org
81
82
National and State HIV/AIDS Hotlines
CDC National Aids Hotline:
(800) 342-AIDS (342-2437) (English)
(800) 344-SIDA (344-7432) (Spanish)
(800) AIDS-TTY (243-7889) (Hearing Impaired)
Alabama
Georgia
(800) 228-0469
(800) 551-2728
Alaska
Hawaii
(800) 478-2437
(800) 321-1555
Arizona
Idaho
(800) 334-1540
(800) 386-1555
Arkansas
Illinois
(888) 317-3063
(800) 243-2437
California
Indiana
(800) 367-2437
(800) 848-2437
Iowa
(800) 342-2437
(CDC National AIDS
Hotline)
Colorado
(800) 333-2437
Connecticut
(800) 342-2437
(CDC National AIDS
Hotline)
Kansas
Delaware
(200) 420-7431
(800) 422-0429
District of Columbia
(877) 939-2437
Florida
(800) 352-2437
(800) 243-7101 (Haitian
Creole)
(800) 545-SIDA (Spanish)
(888) 503-7118 (TTY)
(877) 526-2437
Kentucky
Louisiana
(800) 992-4379
Maine
(800) 851-2437
Maryland
(800) 638-6252
83
Massachusetts
(800) 235-2331
North Carolina
Michigan
North Dakota
(800) 289-2437
(800) 872-2437
(800) 472-2180
Minnesota
Ohio
(800) 248-2437
(800) 332-2437
Mississippi
Oklahoma
(800) 286-2961
(800) 332-2437
Missouri
Pennsylvania
(800) 533-2437
(800) 662-6080
Montana
Puerto Rico
(800) 233-6668
(800) 981-5721
Nebraska
Rhode Island
(800) 782-2437
(800) 726-3010
Nevada
South Carolina
(800) 342-2437
(CDC National AIDS
Hotline)
South Dakota
New Hampshire
(800) 752-2437
New Jersey
(800) 624-2377
New Mexico
(800) 545-2437
New York
(800) 872-2777
(800) 369-2437 (TTY)
84
(800) 322-2437
(800) 592-1861
Tennessee
(800) 525-2437
Texas
(800) 299-2437
Utah
(800) 366-2437
Vermont
(800) 882-2437
Virginia
(800) 533-4148
Washington
(800) 272-2437
West Virginia
(800) 642-8244
Wisconsin
(800) 334-2437
Wyoming
(800) 327-3577
85
86
INDEX
ACCIDENTS
(ACCIDENTES)
Auto Safety Hotline National Highway Traffic
Safety Administration ...................................................14
Foundation for Aquatic Injury Prevention .......................30
National Institute for Occupational Safety .....................55
National Public Safety Information Bureau .....................60
National Safety Council.................................................62
Occupational Safety and Health Administration...............65
U.S. Consumer Product Safety Commission ....................77
ADOLESCENTS
(ADOLESCENTES)
See Youth (vea Juventud)
ADOPTION
(ADOPCIÓN)
Adopt a Special Kid/AASK-America ................................1
Concerned United Birthparents, Inc ...............................22
Dave Thomas Foundation for Adoption ..........................24
Gladney Center for Adoption .........................................32
National Adoption Center..............................................45
National Adoption Information Clearinghouse .................45
National Council for Single Adoptive Parents...................50
AGING
(ENVEJECIMIENTO)
AARP ..........................................................................1
American Health Assistance Foundation .........................7
American Society on Aging ...........................................11
Association of Late Deafened Adults ..............................14
Centers for Medicare and Medicaid Services ...................18
Children of Aging Parents .............................................20
Citizens for Better Care ................................................21
Community Transportation Association of America..........22
Eldercare Locator National Association of Area
Agencies on Aging .......................................................26
Grandparent Information Center American Association
of Retired Persons .......................................................32
National Committee to Preserve
Social Security and Medicare.........................................49
87
National Institute on Aging Information Center .............. 56
Older Women's League ................................................ 67
Partnership for Caring.................................................. 69
AIDS
(SIDA)
AIDSinfo ..................................................................... 2
Business Responds to AIDS and Labor Responds
To AIDS Programs....................................................... 16
CDC National STD and AIDS Hotline.............................. 18
CDC National Prevention Information Network .............. 18
Children’s AIDS Fund ................................................... 20
Elizabeth Glaser Pediatric AIDS Foundation.................... 26
Hemophilia and AIDS/HIV Network for the
Dissemination of Information (HANDI) .......................... 34
National AIDS Fund ..................................................... 46
National AIDS Treatment Advocacy Project.................... 46
National Institutes of Health Clinical Center ................... 56
Project Inform............................................................. 71
AIR AMBULANCES
Angel Flight America .................................................... 12
Corporate Angel Network ............................................. 23
Mercy Medical Airlift..................................................... 44
AIR POLLUTION
(CONTAMINACIÓN DEL AIRE)
Indoor Air Quality Information Clearinghouse................. 36
ALBINISM
(ALBINISMO)
National Organization for Albinism and
Hypopigmentation ....................................................... 59
ALCOHOLISM
(ALCOHOLISMO)
See Substance Abuse (Ver Abuso de Sustancias)
88
ALLERGY
(ALERGIA)
Allergy and Asthma Network/Mothers of Asthmatics........3
Allergy to Latex Education and Resource Team
Latex Allergy Association ..............................................3
and Immunology .........................................................3
Asthma and Allergy Foundation of America ....................14
Food Allergy and Anaphylaxis Network ..........................29
ALPHA-1 ANTITRYPSIN DEFICIENCY
(DEFICIENCIA DE ALFA-1)
Alpha-1 Foundation......................................................3
ALTERNATIVE MEDICINE
(MEDICINA ALTERNATIVA)
National Center for Complementary and Alternative
Medicine Clearinghouse ................................................48
National Center for Homeopathy ...................................48
ALZHEIMER’S DISEASE
(ENFERMEDAD DE ALZHEIMER)
Alzheimer’s Association ................................................3
Alzheimer’s Disease Education and Referral
(ADEAR) Center...........................................................3
AMYLOIDOSIS
(AMILOIDOSIS PRIMARIA)
Amyloidosis Network International ................................12
AMYOTROPHIC LATERAL SCLEROSIS
(ESCLEROSIS LATERAL AMIOTRÓFICA)
Amyotrophic Lateral Sclerosis Association (ALSA)............12
Les Turner Amyotrophic Lateral Sclerosis
Foundation, Ltd ...........................................................40
ANIMAL WELFARE
(BIENESTAR DE LOS ANIMALES)
ASPCA National Animal Poison Control Center ................13
89
ARTHRITIS
(ARTRITIS)
Arthritis Foundation ..................................................... 13
National Institute of Arthritis and Musculoskeletal
And Skin Diseases (NIAMS) .......................................... 55
ASSISTANCE DOGS
(PERROS GUIA)
Guide Dog Foundation for the Blind............................... 32
Guide Dogs for the Blind .............................................. 32
Guide Dogs of America ................................................ 32
Leader Dogs for the Blind............................................. 39
Paws With a Cause ...................................................... 69
ASTHMA
(ASMA)
Allergy and Asthma Network/Mothers of Asthmatics ....... 3
American Academy of Allergy, Asthma, and
Immunology .............................................................. 3
Asthma and Allergy Foundation of America .................... 14
(LUNG LINE) ............................................................... 57
ATAXIA TELANGIECTASIA
(ATAXIA TELANGIECTASIA)
Ataxia Telangiectasia (A-T) Children’s Project................. 14
AUTISM
(AUTISMO)
Cure Autism Now......................................................... 24
AUTOIMMUNE DISORDERS/DISEASES
(TRASTORNOS AUTOINMUNES)
American Autoimmune Related Diseases
Association, Inc........................................................... 5
American Behcets Association, Inc. ............................... 5
American Diabetes Association ..................................... 6
Crohn's and Colitis Foundation of America ..................... 23
Fibromylagia Network .................................................. 29
Juvenile Diabetes Research Foundation International...... 38
Lupus Foundation of America ....................................... 41
Multiple Sclerosis Association of America ....................... 44
90
Multiple Sclerosis Foundation ........................................44
Myasthenia Gravis Foundation.......................................45
National Diabetes Information Clearinghouse .................50
National Multiple Sclerosis Society .................................59
Scleroderma Foundation...............................................72
Scleroderma Research Foundation.................................72
Sjogren’s Syndrome Foundation ....................................74
Spondylitis Association of America .................................75
Wegener’s Granulomatosis Support Group .....................79
BIRTH DEFECTS
(DEFECTOS CONGÉNITOS)
Children Anguished with Lymphatic Malformations..........20
Cleft Palate Foundation ................................................21
Cornelia de Lange Syndrome Foundation .......................23
Easter Seals National Headquarters ...............................26
Family Empowerment Network: Supporting Families
Affected by FAS/FAE ....................................................28
March of Dimes Birth Defects Foundation.......................42
Nevus Outreach...........................................................65
BLADDER DISORDERS/DISEASES
(ENFERMEDADES DE LA VEJIGA)
Interstitial Cystitis Association .......................................38
National Association for Continence ...............................46
Simon Foundation........................................................74
Wound Ostomy and Continence Nurses Society ..............80
BLINDNESS
(CEGUERA)
See Vision (Ver Vision)
BLOOD DISORDERS
(PROBLEMAS DE LA SANGRE)
American Hemochromatosis Society ..............................8
Aplastic Anemia and MDS International Foundation.........13
Cooley’s Anemia Foundation .........................................23
Histiocytosis Association of America...............................34
National Hemophilia Foundation....................................53
Severe Chronic Neutropenia International Registry .........72
Sickle Cell Disease Association of America ......................73
Thalassemia Foundation ...............................................76
91
BONE AND JOINT DISORDERS
(ENFERMEDADES DE LOS HUESOS)
American College of Foot and Ankle Orthopedics
and Medicine .............................................................. 6
National Institute of Muscular and Musculoskeletal
and Skin Disease ......................................................... 55
National Institutes for Health Osteoporosis and
Related Bone Disease .................................................. 56
Osteogenesis Imperfecta Foundation ............................ 67
Paget Foundation for Paget's Disease of Bone
and Related Disorders.................................................. 68
Spondylitis Association of America................................. 75
BONE MARROW
(MÉDULA ÓSEA)
National Bone Marrow Transplant Link .......................... 47
National Marrow Donor Program................................... 58
BRAIN TUMORS
(TUMORES DEL CEREBRO)
American Brain Tumor Association ................................ 5
Brain Tumor Society .................................................... 16
Children’s Brain Tumor Foundation................................ 20
National Brain Tumor Foundation.................................. 47
BREAST CANCER
(CÁNCER DEL SENO)
SHARE: Self-help for Women with Breast or
Ovarian Cancer ........................................................... 73
Susan G. Komen Breast Cancer Foundation ................... 76
Y-Me National Breast Cancer Organization ..................... 81
BREAST FEEDING
(LACTANCIA MATERNA)
Beststart Social Marketing ............................................ 15
La Leche League International...................................... 39
BURNS
(QUEMADURAS)
Phoenix Society for Burn Survivors................................ 70
Shriners Hospital Referral Line ...................................... 73
92
CANCER
(CÁNCER)
American Institute for Cancer Research .........................8
Cancer Care ................................................................16
Cancer Hope Network ..................................................17
Cancer Hot Line and R.A. Bloch Cancer Foundation.........17
Cancer Information Service...........................................17
Candlelighters Childhood Cancer Foundation ..................17
Dana-Farber Cancer Institute........................................24
Fox Chase Cancer Center..............................................30
Gilda Radner Familial Ovarian Cancer
Registry Roswell Park Cancer Institute ...........................31
International Myeloma Foundation ................................37
Johns Hopkins Hereditary Colorectal Cancer
Registry ......................................................................38
Kidney Cancer Association ............................................39
Leukemia and Lymphoma Society..................................40
Look Good... Feel Better American Cancer Society ..........41
Lymphoma Research Foundation...................................41
Make Today Count .......................................................42
Memorial Sloan-Kettering Cancer Center ........................43
National Cancer Information Center...............................48
National Foundation for Cancer Research, Inc. ...............52
National Ovarian Cancer Coalition..................................60
Pancreatic Cancer Action Network .................................68
Reach to Recovery Program American Cancer Society .....71
Ovarian Cancer............................................................73
Support for People with Oral and Head and
Neck Cancer................................................................76
Susan G. Komen Breast Cancer Foundation....................76
Us Too! International, Inc.............................................78
Y-Me National Breast Cancer Organization .....................81
CEREBRAL PALSY
(PARÁLISIS CEREBRAL)
United Cerebral Palsy Association, Inc ...........................77
93
CHILD ABUSE PREVENTION
(PREVENCIÓN DEL MALTRATO DE MENORES)
American Humane Association/Children’s Division........... 8
Childhelp USA ............................................................. 19
Children’s Defense Fund............................................... 20
Girls and Boys Town National Hotline ............................ 31
Kidsrights ................................................................... 39
National Center for Missing and Exploited Children ......... 48
National Children’s Alliance........................................... 49
National Clearinghouse on Child Abuse and Neglect........ 49
Parents of Murdered Children, Inc................................. 69
Prevent Child Abuse America ........................................ 70
CHILD SAFETY
(SEGURIDAD DEL NIÑO)
Farm Safety 4 Just Kids................................................ 28
National Child Safety Council Childwatch ....................... 49
National Resource Center for Health and Safety
in Child Care ............................................................... 61
CHILD WELFARE
(BIENESTAR DEL NIÑO)
All Kids Count.............................................................. 2
Association for Children for Enforcement of Support ....... 14
Child Find of America................................................... 19
Children’s Defense Fund............................................... 20
Children’s Hospice International.................................... 20
Compeer..................................................................... 22
Covenant House .......................................................... 23
Kidsrights ................................................................... 39
National Association for Family Child Care...................... 46
National Association for the Education
of Young Children........................................................ 47
National Child Care Information Center ......................... 49
National Institute of Children’s Health
and Human Services .................................................... 55
National Resource Center for Health and Safety
in Child Care ............................................................... 61
National Runaway Switchboard..................................... 62
Save the Children Federation........................................ 72
Zero to Three: National Center for Infants,
Toddlers, and Families ................................................. 81
94
CHIROPRACTIC
(QUIROPRÁCTICA)
American Chiropractic Association .................................5
CHRONIC FATIGUE SYNDROME
(SÍNDROME DE LA FATIGA CRÓNICA)
Chronic Fatigue and Immune Dysfunction
Syndrome (CFIDS) Association.....................................21
CLEFT PALATE
(LABIO LEPORINO Y PALADER HENDIDO)
Cleft Palate Foundation ................................................21
CONNECTIVE TISSUE DISEASES
(ENFERMEDADES DEL TEJIDO CONECTIVO)
National Marfan Foundation ..........................................58
Scleroderma Foundation...............................................72
Scleroderma Research Foundation.................................72
CONSUMER INFORMATION/PRODUCT SAFETY
(SEGURIDAD DE LOS PRODUCTOS/INFORMACION PARA EL
CONSUMIDOR)
American Institute for Preventative Medicine..................8
Centers for Disease Control and Prevention (CDC) ..........18
Danny Foundation .......................................................24
Federal Citizen Information Center ................................28
Food and Drug Administration/Division of
Drug Information.........................................................29
Health Resources and Services Administration
Information Center ......................................................33
Inspector General's Hotline Department of
Health and Human Services ..........................................36
MedWatch...................................................................43
National Fraud Information Center National
Consumer League ........................................................53
National Safety Council.................................................62
U.S. Consumer Products Safety Commission...................77
USP Center for the Advancement of Patient Safety .........78
95
CRIMINAL JUSTICE
(JUSTICIA CRIMINAL)
Juvenile Justice Clearinghouse Department of Justice ..... 38
National Criminal Justice Reference Service National
Institute of Justice....................................................... 50
Office of National Drug Control Policy Clearinghouse ...... 66
CRISIS INTERVENTION
(INTERVENCIÓN EN CRISIS)
Covenant House .......................................................... 23
CYSTIC FIBROSIS
(FRIBROSIS QUÍSTICA)
Cystic Fibrosis Foundation ............................................ 24
DEAFNESS
(SORDERA)
See Hearing (Ver Hearing)
DENTAL
American Association for Functional Orthodontics........... 4
DEPRESSION
(DEPRESIÓN)
Depression After Delivery ............................................. 25
Depression and Bipolar Support Alliance (DBSA)............. 25
National Institute of Mental Health (NIMH) Information
Resources and Inquires Branch..................................... 55
DIABETES MELLITUS
(DIABETES MELLITUS)
American Diabetes Association ..................................... 6
International Diabetes Center ....................................... 36
Juvenile Diabetes Foundation International.................... 38
National Diabetes Information Clearinghouse ................. 50
DISABILITIES
(DISCAPACIDADES)
ABLEDATA .................................................................. 1
American Association of People with Disabilities ............. 4
American Association on Mental Retardation .................. 5
American Medical Rehabilitation Providers
Association ................................................................. 9
96
Americans with Disabilities Act and
Information Technology (ADA & IT) ..............................1
Amputee Coalition of America .......................................12
Architectural and Transportation Barriers
Compliance Board........................................................13
Center for Persons with Disabilities................................18
Devereux Foundation ...................................................25
Disabilities Information Access Line ...............................26
Disabled and Alone/Life Services for the Handicapped.....26
Family Caregiver Alliance ..............................................28
Family Voices ..............................................................28
Heartspring .................................................................34
Job Accommodation Network ........................................38
MUMS National Parent-to-Parent Network
Mothers United for Moral Support, Inc. ..........................44
National Aphasia Association.........................................46
National Center for Learning Disabilities.........................48
National Dissemination Center for Children
With Disabilities ...........................................................51
National Institute for Rehabilitation Engineering .............55
North American Riding for the Handicapped
Association (NARHA) ....................................................65
Paralyzed Veterans of America ......................................68
Pathways Awareness Foundation...................................69
Paws with a Cause.......................................................69
Raising Special Kids .....................................................71
Special Olympics, Inc ...................................................74
Well Spouse Foundation ...............................................79
DOMESTIC VIOLENCE
(VIOLENCIA DOMÉSTICA)
See also Victim Assistance (vea Ayuda a las Víctimas)
National Domestic Violence Hotline................................51
National Resource Center on Domestic Violence .............61
STAND! Against Domestic Violence................................75
DOWN SYNDROME
(SÍNDROME DE DOWN)
National Down Syndrome Congress ...............................51
National Down Syndrome Society ..................................51
97
DRUG ABUSE
(ABUSO DE DROGAS)
See Substance Abuse (Ver de Sustancias Abuso)
DYSLEXIA
(DISLEXIA)
International Dyslexia Association ................................. 37
RFB&D (Recording for the Blind and Dyslexic)
Learning Through Listening .......................................... 71
EDUCATION
(EDUCACIÓN)
National Association for the Education of
Young Children............................................................ 47
EMERGENCY MEDICAL SERVICES
(SERVICIOS DE EMERGENCIAS MÉDICAS)
MedicAlert Foundation International .............................. 43
ENVIRONMENTAL HEALTH
(SALUD AMBIENTAL)
American Environmental Health Foundation ................... 7
Chemtrec.................................................................... 19
Indoor Air Quality Information Clearinghouse................. 36
National Drinking Water Clearinghouse.......................... 51
Office of Environmental Justice Environmental
Protection Agency ....................................................... 66
Safe Drinking Water Hotline U.S. Environmental
Protection Agency ....................................................... 72
EPILEPSY
(EPILEPSIA)
Epilepsy Foundation of America .................................... 27
Epilepsy Information Service Wake Forest
University School of Medicine ....................................... 27
ETHICS
(ÉTICA)
National Reference Center for Bioethics Literature .......... 61
FACIAL ASYMMETRY
(ASIMETRÍA FACIAL)
About Face ................................................................. 1
98
American Academy of Facial Plastic and
Reconstructive Surgery.................................................4
Children's Craniofacial Association .................................20
FACES: The National Craniofacial Association .................27
Forward Face ..............................................................29
World Craniofacial Foundation.......................................80
FAMILY PLANNING
(PLANIFICACIÓN FAMILIAR)
Planned Parenthood Federation of America ....................70
FAMILY PROBLEMS
(PROBLEMAS FAMILIARES)
Friends Health Connections...........................................30
Kidsrights....................................................................39
National Family Caregivers Association ..........................52
Stepfamily Association of America .................................75
VOICES in Action, Inc. Victims of Incest Can
Emerge Survivors ........................................................79
FIBROMYLAGIA
(FIBROMIALGIA)
Fibromylagia Network ..................................................29
FRAUD
(FRAUDE)
Inspector General’s Hotline...........................................36
National Fraud Information Center National
Consumers League ......................................................53
FUNERALS
(FUNERALES)
Funeral Service Consumer Assistance Program ...............31
GAMBLING
(JUEGOS COMPULSIVO)
National Council on Problem Gambling...........................50
GENETIC DISORDERS
(ENFERMEDADES GENÉTICAS)
Alpha-1 Foundation......................................................3
American Hemochromatosis Society ..............................8
Angelman Syndrome Foundation...................................13
99
Ataxia Telangiectasia (A-T) Children's Project................. 14
Batten Disease Support and Research Association .......... 15
Beckwith-Wiedemann Support Network ......................... 15
Children's PKU Network................................................ 21
Cystic Fibrosis Foundation ............................................ 24
Cystinosis Foundation, Inc............................................ 24
Foundation for Nager and Miller Syndromes................... 30
Genetic Alliance........................................................... 31
Genetic and Rare Diseases Information Center
Hereditary Hemorrhagic Telangiectasia
Foundation International .............................................. 34
Hermansky-Pudlak Syndrome Network, Inc.................... 34
Huntington’s Disease Society of America ....................... 35
International Rett Syndrome Association ....................... 37
Malignant Hyperthermia Association of
the United States......................................................... 42
National Batten Disease Registry................................... 47
National Down Syndrome Congress............................... 51
National Down Syndrome Society.................................. 51
National Fragile X Foundation ....................................... 52
National Gaucher Foundation........................................ 53
National Marfan Foundation.......................................... 58
National Niemann-Pick Disease Foundation.................... 59
National Tay-Sachs and Allied Diseases Association ........ 63
National Urea Cycle Disorders Foundation...................... 64
Neurofibromatosis, Inc................................................. 64
Noonan Syndrome Support Group, Inc. ......................... 65
Prader-Willi Syndrome Association, USA ........................ 70
Rubinstein-Taybi Parent Group ..................................... 71
Shwachman-Diamond Syndrome International ............... 73
Sotos Syndrome Support Association............................. 74
Support Organization for Trisomy 18, 13 and
Related Disorders ........................................................ 76
Thalassemia Foundation............................................... 76
Tuberous Sclerosis Alliance........................................... 77
Turner Syndrome Society of the U.S.............................. 77
United Leukodystrophy Foundation ............................... 78
VHL(Von Hippel-Lindau) Family Alliance......................... 79
Wilson’s Disease Association......................................... 80
GLAUCOMA
(GLAUCOMA)
Glaucoma Research Foundation .................................... 32
100
GRIEF
(PÉRDIDA Y DUELO)
After Loss ...................................................................2
Compassionate Friends.................................................22
GROWTH DISORDERS
(TRASTORNOS DE CRECIMIENTO)
CHARGE Syndrome Foundation .....................................19
Human Growth Foundation ...........................................35
Little People of America................................................40
Little People’s Research Fund........................................40
MAGIC Foundation for Children’s Growth .......................42
HANDICAPPED
(DISCAPACIDADES)
See Disabilities (Ver Discapacidades)
HEADACHES
(DOLORES DE CABEZA)
American Council for Headache Education......................6
National Headache Foundation......................................53
HEALTH POLICY
(POLITICA DE LA SALUD)
Agency for Healthcare Research and Quality ..................2
HEALTH PROMOTION
(PROMOCIÓN DE LA SALUD)
Resource Center ..........................................................33
Inspector General’s Hotline...........................................36
MedicAlert Foundation International ..............................42
National Health Information Center ...............................53
Office of Minority Health, Department
Of Health and Human Services......................................66
Office on Smoking and Health.......................................67
U.S. Public Health Service.............................................77
YMCA of the USA .........................................................80
HEARING
(AUDICIÓN)
American Society for Deaf Children................................10
101
Consumer Helpline ...................................................... 11
American Tinnitus Association....................................... 12
Association of Late Deafened Adults.............................. 14
Better Hearing Institute Hearing Helpline....................... 15
EAR Foundation........................................................... 26
HEAR NOW ................................................................. 33
International Hearing Society Hearing Aid Helpline ......... 37
National Cued Speech Association................................. 50
National Family Association of the Deaf-Blind................. 52
National Information Clearinghouse on Children
Who are Deaf-Blind ..................................................... 54
National Institute on Deafness and Other
Communication Disorders Information Clearinghouse ..... 56
National Temporal Bone, Hearing and Balance Pathology
Resource Registry Massachusetts Eye
and Ear Infirmary ........................................................ 63
HEARING AIDS
(APARATOS PARA SORDOS)
International Hearing Society Hearing Aid Helpline ......... 37
HEART DISEASE
(ENFERMEDAD DEL CORAZÓN)
American Heart Association .......................................... 7
Heart Information Service Texas Heart Institute............. 33
Heartbeat International................................................ 33
Mended Hearts, Inc ..................................................... 43
Pulmonary Hypertension Association ............................. 71
Sudden Arrhythmia Death Syndromes Foundation .......... 75
HEREDITARY DISORDERS
(ENFERMEDADES HEREDITARIAS)
See Genetic Disorders (Ver Enfermedades Géneticas)
HISTIOCYTOSIS
(HISTIOCITOSIS)
Histiocytosis Association of America .............................. 34
HOSPICES
(HOSPICIOS)
Children’s Hospice International.................................... 20
Hospice Education Institute .......................................... 35
National Hospice and Palliative Care Organization........... 54
102
HOUSING
(VIVIENDA)
Department of Housing and Urban Development
HUD User....................................................................25
HYDROCEPHALUS
(HIDROCEFALIA)
Hydocephalus Association.............................................35
IMMUNE DISORDERS
(DESORDENES DEL SÍSTEMA INMUNIDAD)
American Autoimmune Related Diseases
Association, Inc. ..........................................................5
Immune Deficiency Foundation .....................................36
IMMUNOLOGY
(INMUNOLOGÍA)
and Immunology .........................................................3
CDC National Immunization Information Hotline .............17
(LUNG LINE) ...............................................................57
INCONTINENCE
(INCONTINENCIA)
See Bladder Disorders (Ver BLADDER
DISORDERS/DISEASES)
INTESTINAL DISEASES
(ENFERMEDADES INTESTINALES)
Crohn's and Colitis Foundation of America......................23
International Foundation for Functional
Gastrointestinal Disorders .............................................37
KIDNEY
(RIÑÓN)
American Association of Kidney Patients ........................4
Kidney and Urology Foundation of America ....................38
Kidney Cancer Association ............................................39
National Kidney Foundation ..........................................57
Oxalosis and Hyperoxaluria Foundation..........................68
PKD Foundation...........................................................70
Wegener’s Granulomatosis Support Group .....................79
103
LAMAZE
(LAMAZE)
Lamaze International ................................................... 39
LARYNGECTOMEES
(LARINGECTOMIZADOS)
International Association of Laryngectomees.................. 36
LASER SURGERY
(CIRIGÍA CON LASER)
Laser Institute of America ............................................ 39
LEAD POISONING
(INTOXICACIÓN POR PLOMO)
National Lead Information Center Hotline
and Clearinghouse....................................................... 57
LEARNING DISORDERS
(PROBLEMAS DE APRENDIZAJE)
International Dyslexia Association ................................. 37
RFB&D (Recording for the Blind and Dyslexic)
LEPROSY
(LEPRA)
American Leprosy Missions, Inc. ................................... 8
National Hansen’s Disease Program .............................. 53
LIMB LOSS
(AMPUTACIONES)
Amputee Coalition of America....................................... 12
LITTLE PEOPLE
(ENANISMO)
Little People of America ............................................... 40
Little People’s Research Fund ....................................... 40
LIVER
(HÍGADO)
American Liver Foundation Hepatitis Hotline .................. 9
Hepatitis Foundation International ................................ 34
Oxalosis and Hyperoxaluria Foundation ......................... 68
104
LYME DISEASE
(ENFERMEDAD DE LYME)
Lyme Disease Foundation .............................................41
LYMPHEDEMA
(LINFAEDEMA)
National Lymphedema Network.....................................57
MEDICAL ASSISTANCE
(ASISTENCIA MÉDICA)
American Health Assistance Foundation .........................7
Office of Minority Health Resource Center
Public Health Service U.S. Department Health and
Human Services...........................................................66
MEDICAL GENETICS
(GENÉTICA EN LA MEDICINA)
Medical Genetics..........................................................43
MEDICAL SPECIALTIES
(ESPECIALIDADES MÉDICAS)
American Board of Medical Specialties ...........................5
MEDICARE
(MEDICARE)
Centers for Medicare and Medicaid Services ...................18
Medicare Issues Hotline................................................43
National Commission to Preserve Social Security
and Medicare...............................................................49
MENINGITUS
Meningitis Foundation of America..................................43
MENTAL HEALTH
(SALUD MENTAL)
American Art Therapy Association .................................4
American Foundation for Suicide Prevention...................7
Compeer .....................................................................22
Resource Center ..........................................................33
NAMI (National Alliance for the Mentally Ill) ..................45
National Association for the Dually
Diagnosed (NADD).......................................................47
National Eating Disorders Association ............................52
105
National Institute of Mental Health................................ 55
National Mental Health Association
Information Resource Center........................................ 58
National Mental Health Consumers’
Self-Help Clearinghouse ............................................... 58
National Mental Health Information Center .................... 58
National Resource Center on Homelessness and
Mental Illness.............................................................. 61
MENTAL RETARDATION
(RETRASO MENTAL)
American Association on Mental Retardation .................. 5
Angelman Syndrome Foundation .................................. 13
Arc of the United States ............................................... 13
Devereux Foundation................................................... 25
National Association for the Dually Diagnosed ................ 47
MULTIPLE SCLEROSIS
(ESCLEROSIS MULTIPLE)
Multiple Sclerosis Association of America ....................... 44
Multiple Sclerosis Foundation........................................ 44
National Multiple Sclerosis Society................................. 59
MUSCULAR DYSTROPHY
(DISTROFIA MUSCULAR)
Muscular Dystrophy Association .................................... 44
Parent Project for Muscular Dystrophy Research............. 68
NEUROFIBROMATOSIS
(NEUROFIBROMATOSIS)
National Neurofibromatosis Foundation ......................... 59
Neurofibromatosis Inc.................................................. 64
NEUROLEPTIC MALIGNANT SYNDROME
(SÍNDROME NEUROLÉPTICO MALIGNO)
Neuroleptic Malignant Syndrome Information Service ..... 64
NEUROLOGICAL DISORDERS/DISEASES
(TRASTORNOS NEUROLÓGICOS)
American Council for Headache Education ..................... 6
American Parkinson’s Disease Association, Inc. .............. 10
Batten Disease Support and Research Association .......... 15
Brain Injury Association, Family Helpline........................ 16
Epilepsy Foundation of America .................................... 27
106
Epilepsy Information Service Wake Forest
University School of Medicine........................................27
Huntington’s Disease Society of America........................35
International Essential Tremor Foundation .....................37
National Batten Disease Registry ...................................47
National Headache Foundation......................................53
National Hydrocephalus Foundation...............................54
National Parkinson Foundation ......................................60
National Spasmodic Dysphonia Association.....................62
National Spasmodic Torticollis Association......................63
National Stroke Association...........................................63
Parkinson’s Disease Foundation.....................................69
Tourette Syndrome Association, Inc. (TSA) ....................76
United Cerebral Palsy Association, Inc ...........................77
NEUROMUSCULAR DISEASES
(ENFERMEDADES NEUROMUSCULARES)
Amyotrophic Lateral Sclerosis Association (ALSA)............12
Charcot-Marie-Tooth Association ...................................19
Families of Spinal Muscular Atrophy...............................28
Les Turner Amyotrophic Lateral Sclerosis
Foundation, Ltd ...........................................................40
Muscular Dystrophy Association ....................................44
Myasthenia Gravis Foundation.......................................45
Parent Project for Muscular Dystrophy Research .............68
NURSING
(ENFERMERÍA)
Visiting Nurse Association of America.............................79
NUTRITION
(NUTRICIÓN)
American Dietetic Association .......................................7
American Institute for Cancer Research
Nutrition Hotline ..........................................................8
National Eating Disorders Association ............................52
Oley Foundation for Home Parenteral and
Enteral Nutrition ..........................................................67
UAB EatRight Information Service .................................77
USDA's Meat and Poultry Hotline ...................................78
107
OCCUPATIONAL HEALTH
(SALUD OCUPACIONAL)
National Institute for Occupational Safety
and Health (NIOSH)..................................................... 55
ORGAN DONATION
(DONACÍON DE ÓRGANOS)
See Transplantation (Ver TRANSPLANTATION)
ORPHAN DRUGS
(DROGAS HUÉRFANAS)
Office of Orphan Products Development ........................ 66
ORTHOPEDICS
(ORTOPEDIA)
Shriners Hospital Referral Line ...................................... 73
OSTEOPATHIC MEDICINE
(MEDICINA OSTEOPÁTICA)
American Osteopathic Association ................................. 9
OSTEOPOROSIS
(OSTEOPOROSIS)
National Institutes of Health Osteoporosis and
Related Bone Diseases National Resource Center ........... 56
OSTOMY
(OSTOMÍA)
United Ostomy Association ........................................... 78
OVARIAN CANCER
(CÁNCER OVÁRICO)
Gilda Radner Familial Ovarian Cancer
Registry Roswell Park Cancer Institute........................... 31
National Ovarian Cancer Coalition ................................. 60
Ovarian Cancer ........................................................... 73
PAIN
(DOLOR)
American Chronic Pain Association ................................ 5
108
PARALYSIS
(PARÁLISIS)
Christopher Reeve Paralysis Foundation.........................21
PARENTS
(PADRES)
Lamaze International ...................................................39
Parent Project for Muscular Dystrophy Research .............68
Parent Training and Information Center .........................68
Stepfamily Association of America, Inc...........................75
PARKINSON’S DISEASE
(ENFERMEDAD DE PARKINSON)
American Parkinson’s Disease Association, Inc................10
National Parkinson Foundation ......................................60
Parkinson’s Disease Foundation.....................................69
PATHOLOGY
(PATOLOGIÁ)
American Society for Colposcopy and Cervical
Pathology....................................................................10
PESTICIDES
(PESTICIDAS)
National Pesticide Information Center ............................60
PHYSICAL FITNESS
(BUENA SALUD FÍSICA)
American Association for Active
Lifestyles and Fitness ...................................................4
American Running Association ......................................10
YMCA of the USA .........................................................80
PHYSICIANS
(MÉDICOS)
and Immunology .........................................................3
American Academy of Facial Plastic
and Reconstructive Surgery ..........................................4
American Academy of Family Physicians ........................4
American Board of Medical Specialties ...........................5
and Medicine...............................................................6
109
American
American
American
American
American
Orthopaedic Society of Sports Medicine........... 9
Osteopathic Association ................................. 9
Physical Therapy Association.......................... 10
Psychiatric Association................................... 10
Society of Plastic Surgeons ............................ 11
PODIATRY
(PODIATRÍA)
and Medicine .............................................................. 6
American Podiatric Medical Association.......................... 10
PREGNANCY/PREGNANCY ALTERNATIVES
(EMBARAZO/ALTERNATIVAS AL EMBARAZO)
Depression After Delivery International ......................... 25
DES Action USA........................................................... 25
International Childbirth Education Association ................ 36
National Abortion Federation ........................................ 45
National Life Center, Inc. ............................................. 57
Planned Parenthood Federation of America.................... 70
Pregnancy Risk Network............................................... 70
SHARE Pregnancy and Infant Loss Support.................... 73
Sidelines National High Risk Pregnancy
Support Net ................................................................ 73
PREVENTIVE MEDICINE
(MEDICINA PREVENTIVA)
American Institute for Preventive Medicine .................... 8
PRIMARY CARE
(ATENCIÓN PRIMARIA DE LA SALUD)
Health Resources and Services Administration
Information Center ...................................................... 33
PSORIASIS
(PSORIASIS)
National Psoriasis Foundation ....................................... 60
RADIATION
(RADIACIÓN)
National Association of Radiation Survivors .................... 47
110
RARE DISEASES
(ENFERMEDADES RARAS)
Genetic and Rare Diseases Information Center,
National Human Genome Research Institute ..................31
National Organization for Rare Disorders........................59
REHABILITATION
(REHABILITACIÓN)
ABLEDATA ..................................................................1
American Medical Rehabilitation Providers Association.....9
National Institute for Rehabilitation Engineering .............55
National Rehabilitation Information Center .....................61
RESPIRATORY DISORDERS
(TRASTORNOS RESPIRATORIOS)
American Lung Association ...........................................9
Asthma and Allergy Foundation of America ....................14
(LUNG LINE) ...............................................................57
REYE’S SYNDROME
(SÍNDROME DE REYE)
National Reye’s Syndrome Foundation, Inc.....................62
RUNAWAYS
(FUGITIVOS DEL HOGAR)
Child Find of America ...................................................19
Covenant House ..........................................................23
National Runaway Switchboard .....................................62
SAFETY
(SEGURIDAD)
Safety Administration ...................................................14
MedWatch...................................................................43
National Child Safety Council ........................................49
National Fire Protection Association ...............................52
National Institute for Occupational Safety .....................55
National Public Safety Information Bureau .....................60
111
National Safety Council ................................................ 62
Occupational Safety and Health Administration .............. 65
Operation Lifesaver ..................................................... 67
U.S. Consumer Product Safety Commission.................... 77
SCLERODERMA
(ESCLERODERMIA)
Scleroderma Foundation .............................................. 72
Scleroderma Research Foundation ................................ 72
SEXUALLY TRANSMITTED DISEASES
(ENFERMEDADES DE TRANSMISIÓN SEXUAL)
CDC National STD and AIDS Hotline.............................. 18
SOCIAL SECURITY
(SEGURO SOCIAL)
Social Security Administration ....................................... 74
National Commission to Preserve Social Security
and Medicare .............................................................. 49
SPEECH DISORDERS
(TRASTORNOS DEL HABLA Y LENGUAJE)
(ASHA) Consumer Helpline ........................................... 11
National Cued Speech Association................................. 50
National Stuttering Foundation ..................................... 63
Stuttering Foundation of America.................................. 75
SPINA BIFIDA
(ESPINA BÍFIDA)
Spina Bifida Association of America ............................... 74
SPINAL CORD INJURIES/DISEASES
(TRAUMATISMO DE LA MÉDULA ESPINAL)
American Syringomyelia Alliance Project ........................ 11
Christopher Reeve Paralysis Foundation ........................ 21
Foundation for Spinal Cord Injury Prevention,
Care & Cure ................................................................ 30
National Scoliosis Foundation, Inc ................................. 62
National Spinal Cord Injury Association
Resource Center.......................................................... 63
North American Spine Society....................................... 65
112
SPONDYLITIS
(ESPONDILITIS)
Spondylitis Association of America .................................75
STEPFAMILIES
(FAMILIAS PADRASTRAS)
Stepfamily Association of America, Inc...........................75
STROKE
(ATAQUE CEREBRAL)
American Stroke Association .........................................11
National Institute of Neurological Disorders
and Stroke (NINDS) .....................................................56
National Stroke Association...........................................63
STURGE-WEBER SYNDROME
(SÍNDROME DE -W-WL
113
National Inhalant Prevention Coalition ........................... 54
Office of National Drug Control Policy Clearinghouse ...... 66
SUDDEN INFANT DEATH
(MUERTE INFANTIL SÚBITA)
American Sudden Infant Death Syndrome Institute ........ 11
Back to Sleep Program Hotline...................................... 14
First Candle SIDS Alliance ............................................ 29
SUICIDE
(SUICIDIO)
American Foundation for Suicide Prevention .................. 7
National Hopeline Network ........................................... 54
SURGERY
(CIRUGIÁ)
American Academy of Facial Plastic and
Reconstructive Surgery ................................................ 4
American Society of Plastic Surgeons ............................ 11
Center for Bloodless Medicine and Surgery .................... 18
THYROID
(TIROIDES)
Thyroid Foundation of America, Inc............................... 76
TRAFFIC SAFETY
(SEQURIDAD DEL TRÁFICO)
Safety Administration................................................... 14
Department of Transportation ...................................... 54
TRANSPORTATION/TRANSPORTATION SAFETY
(SEGURIDAD DEL TRANSPORTE)
Angel Flight America .................................................... 12
Auto Safety Hotline ..................................................... 14
Community Transportation Association of America ......... 22
Corporate Angel Network, Inc....................................... 23
Mercy Medical Airlift..................................................... 44
Department of Transportation ...................................... 54
Operation Lifesaver ..................................................... 67
114
TRANSPLANTATION
(TRANSPLANTE)
LifeNet........................................................................40
Living Bank .................................................................41
National Bone Marrow Transplant Link...........................47
National Foundation for Transplants ..............................52
National Marrow Donor Program ...................................58
National Minority Organ Tissue Transplant
Education Program (MOTTEP).......................................59
National Transplant Assistance Fund..............................64
United Network for Organ Sharing.................................78
TRAUMA
(TRAUMA)
American Trauma Society .............................................12
ULTRASOUND
(ULTRASONIDO)
American Institute of Ultrasound in Medicine..................8
UROLOGICAL DISORDERS
Interstitial Cystitis Association .......................................38
Kidney and Urology Foundation of America ....................38
National Kidney Foundation ..........................................57
National Urea Cycle Disorders Foundation ......................64
VACCINE
(VACUNAS)
All Kids Count ..............................................................2
VETERANS
(VETERANOS)
Blinded Veterans Association ........................................15
Paralyzed Veterans of America ......................................68
VICTIM ASSISTANCE
(AYUDA A LAS VÍCTIMAS)
Health Resource Center on Domestic Violence
Family Violence Prevention Fund ...................................33
National Center for Victims of Crime ..............................48
National Domestic Violence Hotline................................51
National Organization for Victim Assistance ....................60
National Resource Center on Domestic Violence .............61
National Sexual Assault Hotline .....................................62
115
Office for Victims of Crime Resource Center ................... 66
STAND! Against Domestic Violence ............................... 75
VOICES in Action, Inc. Victims of Incest Can
Emerge Survivors ........................................................ 79
VISION
(VISIÓN)
American Council of the Blind
National Legislative Hotline........................................... 6
American Foundation for the Blind ................................ 7
American Macular Degeneration Foundation .................. 9
Blind Children’s Center ................................................. 15
Blinded Veterans Association ........................................ 15
Braille Institute............................................................ 16
Choice Magazine Listening............................................ 21
DB-LINK: National Information Clearinghouse
on Children Who Are Deaf-Blind.................................... 25
Eyecare America.......................................................... 27
Foundation Fighting Blindness ...................................... 30
Glaucoma Research Foundation .................................... 32
Guide Dogs for the Blind .............................................. 32
Guide Dogs of America ................................................ 32
Leader Dogs for the Blind............................................. 39
Lighthouse International .............................................. 40
Macular Degeneration Foundation................................. 41
National Association for Parents of the
Visually Impaired......................................................... 46
National Braille Press ................................................... 47
National Family Association for Deaf-Blind ..................... 52
National Information Clearinghouse on Children
Who are Deaf-Blind ..................................................... 54
National Keratoconus Foundation.................................. 57
RFB & D (Recording for the Blind and Dyslexic)
Vision Council of America ............................................. 79
WATER
(AGUA)
National Drinking Water Clearinghouse.......................... 51
Safe Drinking Water Hotline ......................................... 72
116
WOMEN’S HEALTH
(SALUD DE LA MUJER)
DES Action USA ...........................................................25
Endometriosis Association.............................................27
Female Health Foundation ............................................29
Hysterectomy Educational Resources and Services..........35
National Women's Health Information Center .................64
National Women's Health Resource Center.....................64
Older Women's League ................................................67
SHARE: Self-help for Women with Breast
or Ovarian Cancer........................................................73
Women's Sports Foundation Information and
Referral Service ...........................................................80
YOUTH
(JUVENTUD)
Bureau for At-Risk Youth ..............................................16
Girls and Boys Town National Hotline ............................31
National Life Center, Inc...............................................57
Young Children: Priority One.........................................81
Youth Development International ..................................81
117
118
Dear Health Hotline User:
Do you like Health Hotlines? If you find this brochure
useful, you may also appreciate searching this database on
the NLM web site (http://healthhotlines.nlm.nih.gov).
You can search by choosing a term from a subject list
describing the major focus of the resource, or by key words
you think might appear in the name or description of the
organization. You can also search by city, state, or ZIP
code.
You may also find DIRLINE (Directory of Information
Resources Online) even more useful. Toll-free numbers
in Health Hotlines are taken from this comprehensive
database of more than 8,000 records, containing location
and descriptive information about a wide variety of
information resources in the fields of health and biomedicine.
DIRLINE is available on the NLM Web site at
http://dirline.nlm.nih.gov. Remember, Health
Hotlines contains only a small percentage of the useful
information available in DIRLINE.
For additional information about DIRLINE, contact:
Specialized Information Services
6707 Democracy Blvd, Suite 510
Bethesda, MD 20892
(301) 496–3147
119
120
Estimado Usuario de Nuestras Líneas Directas de
Salud:
Si le gustó nuestro directorio de información sobre la salud,
lo más probable es que también encuentre conveniente
realizar búsquedas en La base de datos disponible en la
NLM (Biblioteca Nacional de Medicina, por su sigla en
inglés) a través de la red de Internet localizada en
(http://healthhotlines.nlm.nih.gov/). Usted puede
realizar búsquedas bibliográficas en nuestra base de datos,
ya sea mediante el uso de un término que se encuentre en
la lista de tópicos y que describa el foco principal de la
organizacion, o ya sea mediante el uso de una palabra clave
que usted piense podría aparecer en el nombre o la
descripición de la organización. Usted podría realizar su
búsqueda también usando la ciudad, estado or código
postal, de la fuente que le interese.
Es posible que usted encuentre a DIRLINE (Directorio de
Recursos de Información Computarizada, por su sigla en
inglés) aun mas útil. Los números telefónicos gratuitos que
aparecen en este directorio de salud son extraidos de esta
vasta base de datos generalizado, que incluye alrededor de
8,000 documentos, los cuales incluyen la dirección e
información descriptiva de una considerable lista de fuentes
de información sobre salud y biomedicina.
DIRLINE está disponible en el sitio web
http://dirline.nlm.nih.gov. Recuerde que las líneas Directas
de la Salud contiene solo una mínima parte del directorio
disponible en DIRLINE.
Para información adicional sobre DIRLINE, contacte:
Servicios de Información Specializados
Bethesda, MD 20892
(301) 496–3147
121
122
Please send additional copies of Health Hotlines or
the DIRLINE fact sheet to:
Name
Address
Organization
City, State, ZIP
To suggest an organization for inclusion in DIRLINE:
Organization Name
Address
City, State, ZIP
Telephone
Toll-Free Telephone
Contact
Mail to:
DIRLINE Information
6707 Democracy Blvd., Suite 510
Bethesda, MD 20892
(301) 496–3147
123
Por favor envíeme más copias de las Líneas
Telefónicas de Información sobre la Salud y/o el
Boletín de DIRLINE a:
Nombre
Dirección
Organización
Ciudad, Estado, Código Postal
Si desea incluir otra organización en DIRLINE por favor
escriba la información en los siguientes espacios:
Nombre de la Organización
Dirección
Ciudad, Estado, Código Postal
Teléfono
Teléfono Gratuito
Contacto
Envie su solicitud a:
DIRLINE Información Servicio
Bethesda, MD 20892
(301) 496–3147
124
NIH Publication 05–2780
March 2005
Visit NLM Web sites
Health Hotlines:
http://healthhotlines.nlm.nih.gov
DIRLINE:
http://dirline.nlm.nih.gov
MedlinePlus:
http://www.medlineplus.gov

Health Hotlines - Macon County North Carolina

Transcripción

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