September – October, 2015 Newsletter

September/October 2015
Volume 15, No. 5
the eXtra!
A publication of Down Syndrome Association of Central California
Our mission is to enhance the quality of life for all people whose lives are touched by Down syndrome.
OCTOBER IS DOWN SYNDROME
AWARENESS MONTH!
Activities on page 3
after the official 3.1 miles for a
total of 3.21 miles to represent
Trisomy 21! We invite everyone to
show up a little earlier to cheer on
our runners as they finish the Down
syndrome distance!
REGISTRATION FORM ON PG 8
Step Up Walk of Fame
Step Up for Down
Syndrome 2015!
5K Timed run/walk
& 1 mi. wareness walk
Saturday, October 24, 2015
@ the Clovis Rodeo Grounds
Join us as we Step Up for Down
Syndrome! The day will also
feature a 5K timed run/walk, 1
mi. awareness walk, the Down
Syndrome Walk of Fame, Exhibitor
area, Food court, Kid zone and live
entertainment.
The 5K timed run/walk is not just
another race, participants will cross
a SECOND finish line 0.11 miles
In this issue...
Step Up for Ds...............
Family Festival................
DSACC Updates............
Office Hours..................
Ds Activity Sheet............
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be featured in the Walk of Fame,
please mail $25 to DSACC at:
1491 W. Shaw Ave. Fresno, CA
93711. You will need to send a
high resolution
photo (head shot)
of your superstar
to info@dsacc.
org by October
14, 2015.
13” x 19” Color posters of our
superstars with Down Syndrome will *Price includes an
be featured along the Step Up walk extra copy to take
route for the whole city to see! To
home.
FAMILY FESTIVAL
Friday, September 18, 2015
6-9 pm
at The Well ChurchFig Garden Campus
4545 N Palm Avenue Fresno, CA
(park in lot off Gettysburg & Palm. We will be in the grassy area behind the buildings)
Fun for the whole family! Join us for an evening of carnival games,
playground fun, crafts, face painting, light snacks & sweets
and the opportunity to meet families from the community!
NEW cost is $5 per family!
Please bring your own picnic blankets and outdoor chairs to relax in while the
kids play! Please RSVP with a head count by Monday, September 14, 2015
559.228.0411, or by email to [email protected]
Birthdays . ....................
Milestones.....................
Donate Today................
Calendar of Events.........
Step Up Ambasador.......
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Step Up Registration.......
Step up Sponsorships......
Group Registration form..
Registracion de Step Up..
Calendario de eventos....
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DSACC Updates
A Letter from Program Director Jennifer Whiting
The Extra is funded in part by
The Fansler Foundation.
Contact Information:
Down Syndrome Association
of Central California
1491 W. Shaw Avenue
Fresno, CA 93711
Phone: (559) 228-0411
Fax: (559) 228-0414
E-mail: [email protected]
Website: www.dsacc.org
Jennifer Whiting- Program Director
Lourdes Arias: Spanish Language
Editor, [email protected]
Statement of Policy and
Disclaimer:
The Extra is the periodic newsletter of
(DSACC) Down Syndrome Association
of Central California, which serves
Central California. Subscription is free to
members & friends of the Association.
DSACC is affiliated with N.D.S.C and
N.D.S.S. The Extra reports items of
interest related to Down syndrome, so
that the reader may make informed
decisions concerning Down syndrome
related issues. Any opinions, findings
and conclusions, or recommendations
expressed in The Extra are those of the
individual authors and do not necessarily
reflect the views of the officers, Board
of Directors, DSACC organization or its
membership. All medical related issues
should be thoroughly discussed with
your doctor before being implemented.
DSACC does not endorse the writings
of any individual, professional, or
organization.
2015 Officers & Board of
Directors
Steven Ueltzen - President
Open - Vice President
Rachel Hitz- Treasurer
Chandel Perkins- Secretary
Denise Allshouse - Member at Large
Beth Ford - Member at Large
Jeremy Bishel - Self Advocate
Tony Phillips - Self Advocate
Step Up for Down Syndrome and
Down Syndrome Awareness Month
(October) are almost here!
We are so excited for Step Up
this year and the addition of the
5k Down Syndrome Dash! If you
haven't registered yet, fear not! Use
coupon code STEPUP2OFF online
for a $2 discount on every registrant
thru September 30, 2015.
Remember, for Step Up team
awards- we will use team member
counts and funds raised by October
9, 2015. And new this year, we
will be awarding the team captain
of the first 5 teams to raise $2,000
with a new iPad!
DSACC is also excited to be rolling
out TWO new shirt designs at
Step Up- thanks to your input on
Facebook, we have some GREAT
ideas!
We would love to hear how you
celebrated Down syndrome in
October and how you helped
•Office Hours•
Mon. thru Wed. from 10 am - 2:30 pm
or by appointment.
Thurs. & Fri. by appointment only
or for scheduled events.
DSACC will be CLOSED:
Mon. Sept 7- Labor Day
Mon. Oct 12- Columbus Day
Mon. Oct 26
If you need to reach someone at the
DSACC office, please call
(559) 228-0411 or E-mail
[email protected] and someone will
respond as soon as possible
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raised awareness in the communitysend us your story to be featured in
our November/December issue by
October 20, 2015. You can email
it to [email protected] pr drop off a
hard copy at the DSACC office.
Hopefully you had a wonderful
summer and are looking forward to
Fall because DSACC is!
Need some DSACC attire?
We have some great
merchandise for sale!
• I 5 DSACC shirt ................ $15
• DSACC glitter shirt ............. $25
• DSACC tumbler.................. $10
• DSACC socks..................... $10
• Step Up wristband................ $2
• DSACC portable charger
$15
Purchase them at the DSACC office or at
any of our events until they are sold out!
Contact DSACC staff for more info
559.228.0411 or [email protected]
Down Syndrome Association of
Central California relies entirely on
private contributions to offer free or
close to free programs, events, and
services. You have the power to
impact DSACC’s efforts & ensure our
continued growth and success.
Visit www.dsacc.org
to donate today!
You Can Make a Difference!
Sign up to receive
the eXtra
electronically at
www.dsacc.org!
(opt-in field at base of home page)
October is Down Syndrome Awareness Month!
Like all Super Heroes, our loved ones with Down syndrome
have something EXTRA special about them...
they are born with an EXTRA Twenty First Chromosome!
Color our Ds Superhero in!
Did You Know...
• There are over 1,200 people
living with Down syndrome
in the Central Valley
• 1 out of every 691 live births
result in a child being born
with Down syndrome
• Down syndrome is the most
common genetic disorder
• There is no cure for Down
syndrome
• Down syndrome was first
described by Dr. John
Langdon Down in 1866
DOWN SYNDROME WORD SEARCH
HUMAN
ACCEPT
APPRECIATE
INCLUDE
LAUGH
LOVE
BROTHER
EXTRA
CHROMOSOME
DOWN
SYNDROME
FAMILY
FRIEND
NEIGHBOR
SISTER
SUPER
• Most people have 23 pairs
of chromosomes (46 total), a
person with Down syndrome
has 47 chromosomes
• Down syndrome means that
a person has three copies of
chromosome 21 instead of 2
copies
• Today, the approximate
life span for someone with
Down syndrome is 60 years
Learn more about Down
syndrome at www.dsacc.org
ACCEPT INCLUDE APPRECIATE
1491 W. Shaw Avenue Fresno, CA 93711
O: 559.228.0411 F: 559.228.0414 Email: [email protected] Website: www.dsacc.org
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Birthdays
If your birthday is not listed here, please call us and let us know. We will publish missed birthdays.
Adrienne Scott
Alana Marley
Alejandro Bettran
Alexander Gonzalez
Alina Ortiz
Anahis Rayas
Analysa Garcia
Angel Portillo
Angelina Pantaleon
Anthony Alvarez
Ariana Alvarez
Ariana Lopez-Gutierrez
Arturo Arias
Asher McCan Berry
Ashley Giselle Rivera
Ayla Reyes
Bianca Sarabia
Bobby Montemayor
Bransen Briston
Brooklyn Renee Moore
Bryan Rodriguez
Brythanie Cortez
Camila Sandoval
Candice Castio
Candice R. Castro
Carlos Guana Jr
Cassandra Taussig
Celeste Valdez
Cesia Naomi Silva
Ciara Helms
Dallas Young
Dannylin Ledesma
Rodriguez
Destiny Jasmine
Magallon
Diana Magana
Valencia
Elaine Ward
Eleana Martinez
Eleana Martinez
Eliana Cabrales- Leon
Ellisia Nasalroad
Elsie Nieto
Elyvia Grant
Emily Archon
Emma Sambrano
Emme Ann Morris
Estrella Cisneros
Ethan Sambel
Frank Ornellas
Genesis Martinez
Genevieve Blanco
Helen Young
Jackson White
Jacob Ballon
Jacob Castillo
Jacob Serrano
Jared Schmidt
Jaxon Jones
Jayden Audry Guillen
Jayden Chalabian
Jeuel Sulit
John Cook
Jonathon Jimenez
Jonathon Linares
Jose Morales
Jose Uriel Eszeberre
Jose Vasquez Jr.
Joseph Jones
Josephina Cruz
Joshua Manuel
Hernandez Ramos
Nathan Aguirre
Josue Ambris
Nathan Kerby
Juan Mata Jr.
Naythan
Kirby
Juan Valenzuela-Ruiz
Nicole Graciano
Julia Appelonia
Noah Mayorga
Julian Rodriguez
Onnika Chapa
Justin Garretson
Perla
Espinoza-Quijada
Kelsey Hope
Rachel
Avilan
Keyla Pineda Mercado
Richard Lathrop
Kyle Harder
Robert Busby
Lauren Sherman
Salvador
Ramirez
Louey Guerra
Samantha Gonzalez
Luis Ortega III
Santiago Ceja
Mana Elena Guo
Sara Habib
Manerva Leon
Sara
Terrazas
Marcos Acuna
Sarah
Corona
Marissa Garcia
Sarbjeet Thind
Mark Dobbs Jr.
Shawn Justice
Mason Coon
Sherrie
Collins
Matthew Briam
Teng Yang
Maylanii Malmgren
Xavier
D. Anthony
Mckenzie Sidley
Castro
Melissa Correa
Yael
Rolando
Moises CoronaGonzalez
Cevallos
........KIDS CORNER........
BUBBLE ART!
From http://www.
alwaysmadewithlove.co.nz/super-funeasy-diy-bubble-art
What you will need for your DIY
Bubble Art project:
•Thick paper or card stock
•Acrylic Paint of your choice
•A few plastic straws
•Bubble Mix
•Containers (to mix paint and
bubbles)
•Scissors
•Glue
First thing, mix the bubble mix
with my desired… about 5
tablespoon of bubble mix per
colour. Don’t be too light handed
because if you don’t add enough
paint your bubbles will turn out
far too light and you won’t be
able to see them too well. (about
half a teaspoon plus of paint to 5
tablespoons of bubble mix)
Start slowly blowing individual
bubbles with your straw. Make
sure they form nice and big
and then place the bubble on
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to the page. The bubbles either
instantly popped or they sat on
the page for a little bit before
popping. If you have a few
stubborn bubbles then you can
pop them yourself. The pop of
the bubble is very cool as it send
paint flying in all directions and
each bubble is left with its own
unique look.
Once you have finished making
all the colour combinations you
want then leave them to dry.
If you’re doing this DIY with
children, have them in their
underwear or have a paint
gown on because it does get
messy and there is lots of splatter
in the end. Outside would
probably be more ideal!
Milestones
DONATE TODAY!
Congrats to all the iCan Bike participants
who can now ride bikes on their own or
with a little assistance!
Former Board Self
Advocate, Marissa
Eickson has moved back
to the Bay Area and was
hired to work at Down
Syndrome Connection
Bay Area! Congrats and
best of luck!
Asher Berry can sit
independently now
and has
2 bottom teeth!
DSACC’s mission is to enhance the quality of life for all
people whose lives are touched by Down syndrome.
La misión de DSACC es de aumentar la calidad de la
vida para todas las personas cuyas vidas son tocadas por
síndrome de Down.
I would like to assist DSACC support their mission. Please
accept my donation of..../ Querría ayudar DSACC apoya
su misión. Acepte por favor mi donativo de. ...
$10
$25
$50
$100
$______________________
Name/Nombre
Congrats to Ian Frantz and Oliver Hitz who
are both mostly potty trained now!
Address/Domicilio
City/State/Ciudad/Estado
ZIP/Código
Phone/Teléfono:
Jacob Castillo made it
to the Kennedy Space
Center in Florida,
crossing it off his bucket
list!
Have a milestone you would like to
share? Email us at [email protected] and
please include a photo!
E-mail
Checks can be made payable to/
Los cheques pueden ser hechos pagaderos a:
DSACC
1491 W. Shaw Avenue
Fresno, CA 93711
Thank you for your support!
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Calendar of Events
Grupo Latino
Will be Meeting on Saturday,
October 10, 2015
At the DSACC office from
12:00-3:00pm
Parent2Parent
This (all ages) group offers
emotional support, insight,
and understanding to parents
of children with any special
needs. The group meets the first
Wednesday of every month from
7-9 pm at the DSACC office.
Meetings are led by Carolyn
Tellalian, LCSW
Important 2015 dates to take note of...
•
•
•
•
•
•
•
Family Festival . ........................................ September 18, 2015
Down Syndrome Awareness Month
October
SibShops............... October3,2015
Step Up For Ds @ Clovis Rodeo Grounds
October 24, 2015
Breakfast with Santa
December 12, 2015
Sweetheart Ball...................................................February 6, 2016
DSACC Health Conference
April 2016
Please note, dates may be subject to change
month at the DSACC office located
at 1491 W Shaw Avenue Fresno,
CA 93711
•Tuesday, September 8, 2015
•Wednesday, September 2, 2015
•Tuesday, October 13, 2015
•Wednesday, October 7, 2015
•Tuesday, November 10, 2015
•Wednesday, November 4, 2015
Childcare provided with at least 5
days advance notice of meetingplease call us at 559.228.0411
South Valley 5 & Under
Parent Education and
Support Group
Meets the First Thursday of the
month from 10:00-11:30 am at
the Liberty Center: 11535 Avenue
264 in Visalia, in partnership with
BrightStart.
•Thursday, September 3, 2015:
Nutrition & Feeding with Valley
Children's Hospital
•Thursday, October 1, 2015:
Behavior 101
•Thursday, November 5, 2015:
Advocating for your child
Fresno Play Group
This playgroup is for our families
with kids 5 yrs and younger
looking to connect with other
parents in a casual play setting.
Groups are held from 10-11:30
am the second Tuesday of every
Down Syndrome & Dementia
Support Group
CVRC in partnership with UCSF
Fresno Alzheimer & Memory Center
offers a support group for parents
as caregivers or those directly caring
for those with Down syndrome and
dementia.
All meetings held the Third
Wednesday of the month from
1-3 pm at UCSF Fresno Alzheimer
& Memory Center: 6137 N Thesta
Street, Suite 101 B Fresno, CA
For more information, please call
559.227.4810
Sib Shops
Sib Shops acknowledge that being
a sibling of a person with special
needs is for some a good thing,
others a not-so-good thing, and
for many- somewhere in between.
Participants are led through a
variety of games and discussions to
foster new friendships, knowledge
& acceptance.
•Saturday, October 3, 2015
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•at CVRC Fresno: 4615 N Marty Fresno, CA
•Young Sibs (5-12 yrs) from
9-11:30 am
•Teen Sibs (13+) from 1-3 pm...Ice
cream Social
Please sign up for the Sib Shops
by contacting the DSACC office by
Monday, September 28, 2015 by
calling559.228.0411orinfo@dsacc.
org, or online at www.dsacc.org/
events. We need a minimum of 6
participants to host this program,
register your child today!
Creating a Plan: Footprints
for the Future
This program is aimed to help
you plan for the future when you
will not be around to take care of
your child or loved one with Down
syndrome or other disabilities. It is
never too early to start planning
and we are here to help make the
process as painless as possible.
There will be 4 sessions. Each
will have a professional from
the covered field to assist you
with planning for the future.
Please register for the series by
contacting the DSACC office at
559.228.0411, [email protected] or
register online at
www.dsacc.org/events/other.
Registration is FREE!
Sessions will begin on
Thursday, September 24, 2015
from 6:30-8:00 pm
Sessions will be held on consecutive
Thursdays from 6:30-8pm at the
DSACC office: 1491 W Shaw Avenue
Fresno, CA 93711
•September 24, Session 1:
Footprints for the Future
workbook & introduction
•October1,2015Session2:Wills&
Special Needs Trusts
•October 8, 2015 Session 3:
Probate & Conservatorship
•October 15, 2015 Session 4:
Social Security 101 & impact of
the ABLE Act
Please note sessions are subject to
change.
Play it Forward
Central California
Down Syndrome Association of
Central California has created this
page/community on Facebook
to allow their members as well
as others in the special needs
community in the central valley
buy, sell and trade their gently
used therapy devices, equipment,
adaptive toys and more.
DSACC is not responsible for
selling, shipping or taking part in
any of the sales or trades on this
page. We are merely the host and
will remove those who abuse the
page's intended purpose which is
to connect local families looking
for or selling specialized items for
their children with special needs.
www.facebook.com/
playitforwardcc
MOMS NIGHT OUT!
•Friday, Sept 4, 2015
•6:30 pm at Guadalajaras
Restaurant
•9433 N Fort Washington
(near Friant and Ft. Washington)
RSVP to [email protected]
DOUBLE YOUR STEP UP
DONATION!
Many employers sponsor matching
gift programs to support their
employees' charitable giving.
This is a great way to double
the impact of your support of the
Down Syndrome Association of
Central California. Please contact
your employer or your Human
Resources department to find out
if they have such a program. Most
companies match dollar for dollar,
and some will even double or
triple match donors' gifts!
With such programs, the process
is usually as easy as requesting
a matching gift form from your
employer. Please send the
completed and signed form in with
your next gift to DSACC and we
will do the rest.
Thank you for your support!
DON'T FORGET...
PossABILITIES!
We would love for all of our
loved ones with Ds to put together
a collage, art piece or display
board featuring their favorite
activities, accomplishments and
loves to be showcased in the
PossABILITIES tent at Step Up!
Create them at home and bring
them with you the day of the event
(Oct 24).
If you need help creating or
coming up with ideas, contact
DSACC staff for help at
559.228.0411 or [email protected]
____________________________
Do you have an event or program
to share with DSACC readers? You
can submit written information for
approval to [email protected] by
October 1, 2015
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Side Notes
Are you interested in making a
difference? We accept DSACC
Board applications year round
Now is your chance to join
DSACC on its mission to
enhance the quality of life for
all people whose lives are
touched by Down syndrome.
By joining the DSACC Board of
Directors, you are committing
to meet once a month to
help shape the future of the
organization and make sure
that our members are getting
the services and programs they
need and deserve.
To apply, please contact the
DSACC office for an
application at 559-228-0411,
[email protected]
Every little bit helps...
If you are able to donate 1 or more of
the items on our wish list, we would
greatly appreciate it!
Every little bit of help makes a
difference!
•Standard sized copier paper (white)
•Legal sized copier paper (white)
•Cases of bottled water
•Cases of soda
•Stamps: forever and postcard
amounts
•K-cup coffees
•Gift cards for anything or anywhere
•Silent auction items
•Board members
•8 -10 strands of white LED holiday
lights (non-glass bulbs)
•knitted baby blankets
•blank painting canvases
You can drop items by the DSACC office
at 1491 W Shaw Ave -Fresno CA 93711
or arrange for us to pick them up, call
559.228.0411.
Thank you!
END OF SUMMER FUN WITH CLUB 321 & JUNIOR 321
Thank you Fresno River Sports Center for having Club 321 & Junior 312 members, friends and family out
to celebrate the end of summer break with a wonderful day kayaking on the San Joaquin River! Thank you
Chick-Fil-A for donating lunch for all the participants and volunteers, it was tasty and much needed fuel after a
morning paddling up stream!
Here are some of our favorite moments...
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Introducing our Inaugural
Step Up Ambassador, Jaleena Rayas!
Photo: Sweet Nectar Society
Let's met the Rayas family: Augustine Rayas
(Dad), Jennifer Rayas (mom), Jaleena Rayas (9yr.),
Isabella Rayas (6yr.), Rayden Rayas (4yr.) and
Gabriella Rayas (3yr.)
Jennifer, tell us a little about your family...
Our family consist of three girls, one boy, Mom,
Dad, and Grandma (Cathy). We enjoy going to the
beach, visiting amusement parks, playing sports, and
being involved in school events. We love to sing and
dance and the occasional impromptu fashion show.
We really enjoy spending time together as family and
being able to explore new things.
Who do you walk for? We walk for Jaleena, but
ultimately we walk for awareness, acceptance, and
equality for all individuals with Down syndrome.
When and how did you get first get involved with
Step Up? We have been involved with Buddy Walk/
Step Up for about 10 years. We became involved
when our daughter Jaleena was about a month old.
We were told about Buddy Walk/Step Up through
Jaleena's early intervention teacher.
Why do you have so much Step Up pride?
We have so much Step Up pride because we are so
proud of how amazing Jaleena is and want to share
her awesomeness with everyone. We are proud of
what she has accomplished and want to celebrate
her achievements with everyone. We want to show
people that we ALL have the ability to do amazing
things.
What are your goals and hopes for your
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child's future? Our goals and hopes for the
future for Jaleena are for her to be independent and
confident in herself. We want Jaleena to pursue her
dreams and passions just like everyone else. We
hope she will inspire others to be their best and to
never give up . We want her to strive to be the best
"Jaleena" she can be and to just be happy!
How DSACC has helped/impacted your life?
DSACC has helped us in so many ways. When we
first found out Jaleena had Down syndrome, we felt
scared and alone. DSACC gave us the information
and tools we needed to be the best parents we
could be for Jaleena. DSACC has also given us the
opportunity to meet and network with other families
that share similar stories. We feel comfort in knowing
we are not alone in this journey.
Jaleena, what is your favorite color? Orange
Favorite food? Pizza!
Favorite activity/hobby? To sing, dance and
read her bibles.
Favorite thing about yourself? My hair! (Mom
says she is constantly playing with it)
What do you want to be when you grow
up? A singer/actress in Hollywood. "I'm going to be
famous!"
We know you will be famous Jaleena! and we look
forward to seeing your spirit at Step Up in October!
Photo: Jason Mendez- Snapshot Media, 2014
Team Jaleena is the reigning "Step Up Most
Spirit" winner and has been the "most spirited"
for the past 4 consecutive years!
To nominate yourself or a loved one with Ds as the 2016
Step Up Ambassador, please send us your story answering the above questions and a brief explanation of why
you think you or they would be a great role model.
Send to [email protected] or by mail to
1491 W Shaw Avenue Fresno, CA 93711
STEP UP FOR DOWN SYNDROME
SATURDAY, OCTOBER 24, 2015 @ CLOVIS RODEO GROUNDS
Step Up 1-mile awareness walk
Entry Fees & Deadlines
Step Up 5K timed run/walk
Entry Fees & Deadlines
•Registration: August 6 - October 9, 2015... $17
•Late Registration: October 9- October 22,
2015... $20
•Day of Registration: October 24, 2015... $25
•Event shirt not guaranteed for Day of Registrations
•Participants with Down syndrome... FREE!
•Registration: August 6 - October 9, 2015... $25
•Late Registration: October 9- October 22,
2015... $30
•Day of Registration: October 24, 2015... $35
•Event shirt not guaranteed for Day of Registrations
•Participants with Down syndrome... $15
Packet Pick Up
Packet pick up available Thursday, October 22, from 1-7 pm & Friday, October 23, from 12-5 pm
@ the DSACC Office or at the event. Group registration pick up available.
You must notify us if you are picking up packets for 4 or more runners by e-mail by Oct. 9, 2015 at [email protected]
REGISTER AND RAISE FUNDS ONLINE AT www.dsacc.org/events and click the link to STEP UP!
One Participant Per Entry Form!
Don’t forget to sign the waiver at the bottom! Photocopies accepted
Team name: Team Captain:
Participant Name:
Address:
City/State/Zip:
Email:
Phone:
Male/Female:
Birthday:
Shirt Size:
Walker with DS? yes/no
(Youth XS-Adult XXXL)
1 Mile Walk
5K (MM/DD/YY)
Walk of Fame Poster
$25 per superstar
(Check all that apply) Runners: you do not need to pay for the walk portion, stay for the fun!
Enclosed $ ________________and includes $________for # ______ of Walk of Fame posters.
I cannot participate in the walk but please accept my donation of $ _____________
Please mail this form with checks payable to Down Syndrome Association of Central CA:
1491 W. Shaw Avenue, Fresno, CA 93711
LIABILITY WAIVER AND RACE AGREEMENT: In consideration of your acceptance of my entry, I, intending to be legally bound do
hereby for myself, my heirs, executor, and administrators, waive and release forever any and all rights to claims or damages I may have
against Down Syndrome Association of Central CA and all other parties with this event. I attest to being fully trained and fit to participate
and have full knowledge of the risks involved. I also give my permission for the free use of my name(s), photo and/or voice in any broadcast,
telecast, print account or any other account in any medium of this event. I understand that all entry fees are non-refundable and nontransferable. All events take place rain or shine. You agree not give or sell your number to another individual, if you do this it could result in
your disqualification.
I understand that I am relinquishing substantial rights, including the right to sue, and I intend this agreement and waiver to be an unconditional
release of all liability to the greatest extent permitted by law.
Signature/Date:
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Step Up Sponsorship Opportunities
Starting Line Sponsor: $5,000
Included is the company logo/individuals name on starting line banner, recognition in the DSACC bi-monthly newsletter
& DSACC website, logo on event shirt, event website, brochure and any other printed materials. Walk route marker with
premium placement. VIP reserved seating and parking (2 cars), and registration for 12 walkers.
PossABILITIES Tent Sponsor: $3,000
Included is company logo/individuals name on area banner, recognition in the DSACC bi-monthly newsletter & DSACC
website, logo on event shirt, event website, brochure and any other printed materials. Walk route marker with premium
placement. VIP reserved seating and parking (2 car), and registration for 10 walkers.
Sole Sponsor: $2,500
Included is recognition in the DSACC bi-monthly newsletter & DSACC website, logo on event shirt, event website,
brochure and any other printed materials. Walk route marker with premium placement. VIP reserved seating and parking
(1 car), and registration for 8 walkers.
Sprint Sponsor: $1,000
Included is recognition in the DSACC bi-monthly newsletter & DSACC website, printed name on event shirt, event website,
brochure and any other printed materials, VIP reserved parking (1 car) and walk route marker. Registration for 6 walkers.
Stroll Sponsor: $500
Included is recognition in the DSACC bi-monthly newsletter & DSACC website, printed name on event shirt, event website,
brochure and any other printed materials and a walk route marker. Registration for 4 walkers.
3-2-1 Sponsor: $250
Included is recognition in the DSACC bi-monthly newsletter and a walk route marker. Registration for 2 walkers.
Sponsorships over $500 may also join us as an Exhibitor in our Exhibitor area at no extra charge!
Interested in becoming an Exhibitor at Step Up? Join us!
Non-Profit Organization or High School Clubs $35
Retail Business/Health Organization $65
Food Vendor $100
Each vendor will be provided a table and two folding chairs. Shade tents NOT provided by DSACC.
* Booth set up 7:00 am - 8:30 am the morning of the event. Event runs from 8:30 am -2:00 pm
*If selling any product we ask for a 20% donation be made to DSACC at end of the event. This applies to merchandise
and food vendors only.
* Open flames are NOT permitted. Booth contents must be approved prior to event. It is expected vendors have all
appropriate permits required by county and state if applicable. It is expected vendors leave area clean and free of trash
at end of event.
Please include a brief description of organization and what you will be serving or promoting at booth:
Name:
Street Address
Phone:
Business name:
Business Address:
Title:
Sponsor or Vendor type:
City/State/Zip
E-mail:
Business Phone:
City/State/Zip:
Please mail form and appropriate fees or sponsorship commitments to DSACC at 1491 W Shaw Avenue Fresno, CA 93711 by
September 30, 2015
By signing below, I acknowledge that I am authorized to sign on behalf of my organization/business and understand that I am making
a financial commitment to participate as a sponsor and/or vendor of this event and take responsibility for any accidents or illnesses that
could arise from the booth operation.
Signature:
11
Date:
Step Up Group 5K Dash & 1 mile Walk Large Registration Form
Grupo de Step 5K Dash & 1 milla de Caminata a Pie Forma de Inscripción
Step UP 1 mile fun walk Entry Fees & Deadlines
5K Step Up Dash Entry Fees & Deadlines
Registration: August 6 - October 9, 2015 - $17
Late Registration: October 9 - October 22, 2015 - $20
Day of Registration: October 24, 2015 - $25
Participants with Down Syndrome - FREE!
Registration: August 6 - October 9, 2015 - $25
Late Registration: October 9 - October 22, 2015 - $30
Day of Registration: October 24, 2015 - $35
Participants with Down Syndrome - $15
Event Shirts not guaranteed Day of Registration
Team Name:
Team Captain:
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
□ 1 Mile Walk
□ 5K Dash
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
□ 1 Mile Walk
□ 5K Dash
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
□ 1 Mile Walk
□ 5K Dash
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
□ 1 Mile Walk
□ 5K Dash
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
□ 1 Mile Walk
□ 5K Dash
Participant Name :
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
Signature:
Participant Name :
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
□ 1 Mile Walk
□ 5K Dash
□ 1 Mile Walk
□ 5K Dash
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
□ 1 Mile Walk
□ 5K Dash
Phone:
Email:
T-shirt Size (Youth
XS-Adult XXXL)
□ 1 Mile Walk
□ 5K Dash
Participant Name :
Signature:
Participant Name :
Signature:
Participant Name :
Signature:
Participant Name :
Signature:
Participant Name :
Signature:
Signature:
Participant Name :
Signature:
Participant Name :
Signature:
Liability Waiver and Race Agreement: In consideration of your acceptance of my entry, I intending to be legally bound do hereby for
myself, my heirs, executor and administrators, waive and release forever any and all rights to claims or damages I may have against
Down Syndrome Association of Central CA and all other parties with this event. I attest to being fully trained and fit to participate
and have full knowledge of the risks involved. I also give my permission for the free use of my name(s), photo and/or voice in
any broadcast, telecast, print account or any other account in any medium of this event. I understand that all entry fees are nonrefundable and non-transferable. All events take place rain or shine. You agree to not give or sell your number to another individual,
if you do this it could result in your disqualification. I understand that I am relinquishing substantial rights, including the right to sue
and I intend this agreement and waiver to be an unconditional release of all liability to the greatest extent permitted by law.
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STEP UP FOR DOWN SYNDROME
sabado 24 de octubre de 2015 @ CLOVIS RODEO GROUNDS
Step Up 5k
Comisiones y Plazos de Entrada
Step Up 1-milla Caminata de Diversión
Comisiones y Plazos de Entrada
•Registro: 6 agosto a 9 octubre 2015 ... $17
•Registro: 6 agosto a 9 octubre 2015 ... $25
•Inscripción tarde: Octubre 9- 22 de octubre 2015 ... $20
•Inscripción tarde: Octubre 9- 22 de octubre 2015 ... $30
•Día de Inscripción: October 24, 2015 ... $25
•Camisa de eventos no está garantizada para el día del
evento
•Los participantes con síndrome de Down ... ¡GRATIS!
•Día de Inscripción: Octubre 24, 2015 ... $35
•Camisa de eventos no está garantizada para el día del
evento
•Los participantes con síndrome de Down ... $15
Recoger paquete
Recogida de paquetes disponibles Jueves, 22 de octubre, 1-7 pm y viernes 23 de octubre de 12 a 5 pm en la Oficina
DSACC o en el dia del evento. Recogida de paquetes de grupo también es disponible. Usted debe notificarnos si usted va
a recoger los paquetes de 4 o más corredores por e-mail antes del 09 de octubre 2015 en [email protected]
Registrarse y recaudar fondos linea en www.dsacc.org/events y haga clic en el enlace a STEP UP!
Una participante Formulario de Inscripción por !
No se olvide de firmar la renuncia en la parte inferior ! Fotocopias aceptadas
Nombre del equipo:
Capitán del equipo:
Nombre del participante:
Dirección:
City/State/Zip:
Email:
Teléfono:
Hombre / Mujer: Cumpleaños:
(MM/DD/AA)
Talla de Camiseta: (XS para jóvenes-adultos XXXL)
1 milla a pie
5K Caminante con DS ? si no
Paseo de la Fama Póster
$25 per superstar
(Check all that apply) Runners: you do not need to pay for the walk portion, stay for the fun!
Encerrado $ ________________y incluye $ ________ para # ______ Carteles de Paseo de la Fama .
No puedo participar en la caminata, pero por favor, acepte mi donación de $ _____________
Por favor envíe este formulario con cheques al nombre de la Asociación de Síndrome de Down de CA central:
1491 W. Shaw Avenue, Fresno, CA 93711
RENUNCIA DE RESPONSABILIDAD Y ACUERDO DE CARRERA: En consideración de la aceptación de mi entrada, yo, con la intención de estar
legalmente sometido a este medio por mí mismo, mis herederos, albacea y administradores, renunciar y liberar para siempre a cualquier derecho
a reclamación o daño que pueda tener contra la Asociación Síndrome de Down de Ca Central y todos los demás partidos con este evento. Me
dan fe de contar con una formación adaptarse a participar y tener pleno conocimiento de los riesgos que implica. También doy mi permiso para
el libre uso de mi nombre (s), foto y / o voz en cualquier emisión, transmisión, cuenta de impresión o cualquier otra cuenta en cualquier medio
de este evento. Entiendo que todos los derechos de inscripción no son reembolsables ni transferibles. Todos los eventos se llevaran acabo llueva o
haga sol. Usted acepta no dar o vender su número a otro individuo, si usted hace esto podría dar lugar a su descalificación.
Entiendo que estoy renunciando a derechos substanciales, incluyendo el derecho a demandar, y tengo la intención de este acuerdo y la renuncia a
ser una liberación incondicional de toda responsabilidad en la mayor medida permitida por la ley.
Firma/Date:
13
Calendario de eventos
Festival Familiar
•viernes, 18 de septiembre, 2015
de 6-9pm
•The Well Church- Fig
Garden Campus 4545 N
Palm Avenue (Estaciónese
en el estacionamiento de la
tGettysburg y Palm. Estaremos
en el área detrás de los
edificios)
Diversión para toda la familia!
Únase a nosotros para una noche
de juegos de carnaval, diversión
infantil, manualidades, pintura
de cara, aperitivos y dulces y la
oportunidad de conocer a familias
de la comunidad!
NUEVO costo es de $5 por
familia!
Favor de traer sus propias
cobijas y sillas para relajarse
mientras los niños juegan! Favor
de RESERVAR para saber cuántas
personal vendrán para el lunes
14 de septiembre, 2015 al
559.228.0411, o por email al
[email protected]
Junta del Grupo Latino
El Grupo Latino tendrá su reunión
el 10, de octubre del, 2015
En la ofinica de DSACC de
12:00-3:00 pm
Step Up para el Síndrome
de Down 2015!
¡En sus marcas, listos, ya! Es
hora de nuevo para Step Up
para el Síndrome de Down y este
año estamos muy contentos de
anunciar que han añadido una
nueva carrera de 5 kilómetros
cronometrada / y una caminata
por la mañana antes de Step
Up, además de nuestra caminata
de una milla de conciencia! La
jornada también contará con
nuestra Síndrome de Down Paseo
de la Fama, zona de expositores,
patio de comidas, zona de niños
y entretenimiento en vivo.
¡La carrera / caminata de 5K
cronometrado no es sólo otra
carrera, los participantes cruzarán
una línea de meta SEGUNDO
0,11 millas después de las 3,1
millas oficiales para un total de
3,21 millas de representar a la
trisomía 21 (síndrome de Down)!
¡Invitamos a todos a llegar
un poco más temprano para
animar a nuestros corredores que
terminen la distancia síndrome de
Down!
¡Por favor, tenga en cuenta
algunos cambios en la forma
de registración de Step Up este
año ... los precios, fechas de
inscripción y cada participante
debe presentar un formulario de
entrada / autorización firmada,
y menores de edad deben tener
la firma de sus padres. Si usted
necesita una forma de registro de
grupo, puede descargar una en
línea en www.dsacc.org/events/
step_up_for_down_syndrome
pero cada participante aún
debe presentar su firma junto a
su nombre en el formulario de
grupo. Así que por favor revise
el formulario de inscripción con
cuidado!
Step Up Paseo de la Fama
¡13 "x 19" pósters en Color
de nuestras superestrellas con
Síndrome de Down se presentarán
a lo largo de la ruta de Step up
por toda la ciudad para ver! Para
ser presentado en el Paseo de la
Fama, por favor enviar por correo
$ 25 a DSACC en: 1491 W. Shaw
Avenue- Fresno, CA 93711.
También tendrá que enviar una
foto de alta resolución (foto de
14
cabeza) de su superestrella a
[email protected] antes del 14 de
octubre de 2015. * El precio
incluye una copia extra para
llevar a casa.
¡Muéstranos tu síndrome de
Down orgullo!
Los equipos pueden competir
por el título de "Equipo Mayor"
o "recaudación de fondos
más grande" en las siguientes
categorías: individual / familia,
escuela o negocio. Un equipo se
llamará "La mayoría de espíritu
" en el evento, seleccionados por
nuestro maestro de ceremonias
invitado! ¡Categoría ganadores
serán decididos por las
donaciones y las inscripciones
recibidas en la oficina antes
de 09 de octubre 2015. Los
primeros 5 Equipos individuales /
familiares al recaudar más de $
2,000 ganarán un iPad para su
capitán de equipo!
De Padre a Padre
Este es un grupo para todas
(las edades) que ofrece apoyo
emocional, comprehensivo y
entendimiento a padres de niños
con necesidades especiales.
El grupo se reunirá el primer
miércoles de cada mes de 7-9
pm en la oficina de DSACC.
Las juntas serán presentadas
por Carolyn Tellalian, LCSW y
oradores ocasionales.
•miércoles, 2 de septiembre,
2015
•miércoles, 7 de octubre, 2015
•miércoles, 4 de noviembre,
2015
Cuidado de niños será
proporcionado si nos lo notifica
por lo menos 5 días antes de
la reunión- pro favor llame al
559.228.0411
Grupo de Juego de Fresno
Este grupo es para nuestras
familias con niños menores de 5
anos que bisque conectar con
otros padres en juegos casuales.
Las reuniones so en el primer
jueves del mes de 10:00-11:30
am en el Liberty Center: 11535
Avenue 264 en Visalia, en
colaboración con BrightStart.
•Jueves3, de septiembre, 2015:
Nutrición y alimentación
•jueves, 1 de octubre, 2015:
Comportamiento 101
•jueves, 5 de Noviembrer ,
2015: Abogar por su hijo
Sur del Valle menores d
5 Grupo Educacional de
Apoyo para Padres
¡Tenga en cuenta que se
Grupo de Apoyo de
Síndrome de Down y
Demencia
CVRC en colaboración con la
UCSF Fresno Centro de Alzheimer
y Memoria ofrece un grupo de
apoyo para los padres como
cuidadores o personas que cuidan
directamente a personas con
síndrome de Down y demencia.
Todas las reuniones se llevan a
cabo el Tercer Miércoles de cada
mes de 1-3 pm en la UCSF Fresno
Centro de Alzheimer y Memoria:
6137 N Thesta Street, Suite 101 B
Fresno, CA
Para obtener más información, por
favor llame al 559.227.4810
Creating a Plan: Footprints
for the Future (Fresno area)
Este programa está orientado
a ayudarle a planificar para el
futuro, cuando usted ya no esté
ahí para cuidar a su hijo o ser
querido con síndrome de Down u
otras discapacidades. Nunca es
temprano para empezar a
planificar y estamos aquí para
ayudarle a planear. Cada sesión
tendrá un profesional experto en
cada campo para ayudarle con la
planificación para el futuro.
Por favor regístrese para cada
serie comunicándose con la
oficina de DSACC al
559.228.0411 o [email protected]
o www.dsacc.org/events/other.
La registración es completamente
GRATIS!
Las sesiones comenzarán el
jueves, 24 de septiembre de
2015, 6:30-8 pm . Las sesiones se
celebrarán el juevesconsecutivos
de 6:30-8 pm en la oficina de
DSACC: 1491 W Shaw Ave.
Fresno, CA 93711
• Sesión 1. Libro de huellas para
el Futuro & como preparar un
plan individual
• Sesión 2. Testamentos &
fideicomisos
• Sesión 3. Navegando el
sistema de sucesiones
• Sesión 4. Seguro Social 101
Tenga en cuenta que las sesiones
están sujetas a cambios.
Sib Shops
Sib Shops reconoce que ser un
hermano de una persona con
necesidades especiales es para
algunos una cosa Buena, para
otros no tan buena y para muchos
es algo entre en medio. Los
participantes son conducidos a
través de una variedad de juegos
y debates para fomentar nuevas
amistades, conocimientos y
aceptación.
•Sábado, 3 de octubre, 2015
•@ CVRC Fresno at CVRC
Fresno: 4615 N Marty - Fresno,
CA
•Pequeños (5-12 años)
•de 9-11:30 am
•Jóvenes (13+)
15
•de 1-3 pm...Helado Social
Por favor regístrese para
estos talleres de Sib Shops
comunicándose con la oficina de
DSACC para el 28 de septiembre
559.228.0411 o [email protected].
Necesitamos un mínimo de de 6
participantes para poden tener
este programa así que no olvide
de registrar a su niño hoy!
Noche de mamá fuera!
•viernes, 4 de septiembre,
2015
•6:30 pm @ Guadalajaras
Restaurant
•9433 N Fort Washington
(Friant/ Ft. Washington)
RSVP to [email protected]
DON'T FORGET...
PossABILITIES!
We would love for all of our
loved ones with Ds to put together
a collage, art piece or display
board featuring their favorite
activities, accomplishments and
loves to be showcased in the
PossABILITIES tent at Step Up!
Create them at home and bring
them with you the day of the event
(Oct 24).
If you need help creating or
coming up with ideas, contact
DSACC staff for help at
559.228.0411 or [email protected]
1491 W. Shaw Avenue
Fresno, CA 93711
Change Service Requested
What's Inside
Step Up for Down Syndrome
Family Festival
Creating a Plan
Sib Shops & more!
Join our community ...
On Facebook.com/dsacc
16
On Instagram @ dsacentralca
Online @ www.dsacc.org